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I have epilepsy
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.
Understand their epilepsy and support them to be safe and included so that they can reach their potential.
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.
Every single donation - no matter how big or small - helps us to support more children and young people with epilepsy.
Whether you have a child who has been recently diagnosed or if you have a school-aged child with epilepsy, there are many challenges that parents and carers can face.
Join us to test the new My Epilepsy digital tool, a platform where you can manage and share your epilepsy health data securely.
Help shape the future of epilepsy care.
Epilepsy can be one of the most frightening conditions a child can experience. Together we can help them live without fear.
See our latest news and blogs
Today young people are delivering our #UnderstandMyEpilepsy petition to education ministers in England, Scotland, Wales and Northern Ireland. The petition was signed by 16,163 people across the UK and is calling for children with epilepsy to be safe and included at school.
My epilepsy means I have tonic-clonic seizures. They’re big ones. I fall to the floor and shake. They're over five minutes long. And yeah, I have minimal control, so I have prolonged seizures.
Updated guidance on valproate use for males, including advice on contraception, family planning, and associated risks.
Help us push the boundaries to ensure the voices of children and young people with epilepsy are heard, their voices respected and their ambitions realised.