Boelen Et Al 2013 Prolonged Grief Disorder - Scientific Foundations
Boelen Et Al 2013 Prolonged Grief Disorder - Scientific Foundations
Boelen Et Al 2013 Prolonged Grief Disorder - Scientific Foundations
Introduction
For a minority of people, the death of a loved one precipitates the development
of prolonged grief disorder (PGD), or complicated grief (CG) as it has also been
named (e.g., Prigerson et al., 2009). PGD has been defined as a clinical condition
that encompasses specific grief reactions (including separation distress, difficul-
ties accepting the loss, and moving on without the lost person) that cause signifi-
cant distress and disability at least 6 months after the death occurred. Symptoms
of PGD are distinct from normal grief, bereavement-related depression, posttrau-
matic stress disorder (PTSD), and other anxiety symptoms and syndromes, and, if
left untreated, associated with significant impairments in health and quality of life
(Prigerson et al., 2009; see also Chapter 7 in this volume).
Parallel to the growing recognition of PGD as a distinct disorder, increasing
attention is being given to its treatment, with the most well-tested and effective
recent therapies being based in cognitive–behavioral therapy (CBT). For instance,
Shear, Frank, Houck, and Reynolds (2005) found “complicated grief treatment”
– a 16-session treatment containing elements CBT such as imaginal exercises to
revisit the death (exposure) and working toward achievement of personal goals
– to be effective in reducing PGD. Wagner, Knaevelsrud, and Maercker (2006)
found Internet-based CBT, including elements of confronting the loss, cognitive
restructuring, and social sharing, to be effective in reducing PGD and concomitant
depressive and anxious symptoms. We examined the effectiveness of a 12-session
CBT for PGD, based on a cognitive–behavioral conceptualization of the condition
(Boelen, de Keijser, van den Hout, & van den Bout, 2007). Compared with sup-
portive counseling, CBT was considerably more effective in ameliorating PGD
symptoms.
The present chapter addresses the theory and treatment of PGD from the per-
spective of cognitive–behavioral theorizing, with a focus on our own theoretical
approach (Boelen, van den Hout, & van den Bout, 2006). Notably, this approach
bears resemblance to other recent theoretical approaches to PGD (Shear, Boelen,
& Neimeyer, 2011). Specifically, this chapter will (1) introduce a theoretical basis
of CBT for PGD, (2) describe key interventions included in this approach, and (3)
review research on its theoretical underpinnings and effectiveness.
Interaction between, and the mediating role of, the three processes
The three processes are assumed not only to directly contribute to symptoms of
PGD, but also to influence each other. For instance, elaboration of the loss, and
subsequent integration of the reality of the loss with memory knowledge about
the self and the lost relationship, is likely to be blocked when reviewing the con-
sequences of the loss brings to mind negative thoughts about the self, life, and the
future. Likewise, a tendency to engage in anxious avoidance is likely to prevent
such integration. Negative cognitions and avoidance behaviors also have a mutual
impact. For instance, negative cognitions about the self and life are likely to main-
tain a depressive cycle of withdrawal and inactivity. Catastrophic misinterpreta-
tions of grief reactions can contribute to anxious avoidance behaviors, which, in
turn, prevent correction of such misinterpretations.
Important also is that the three processes are assumed to mediate the impact
of various established risk factors for poor bereavement outcome. These include
personality characteristics of the bereaved individual, such as neuroticism and
insecure attachment style; features characterizing the loss, such as who died
and the mode of death; and events and circumstances occurring in the aftermath
(e.g., perceived social responses). Put another way, it is proposed that the three
processes are intermediate mechanisms that explain why, for instance, people
who are insecurely attached have an elevated chance of developing PGD (cf.
Wijngaards-de Meij et al., 2007). This is so because these people are likely have
Cognitive–behavioral treatment
The aim of CBT for PGD is to alleviate persisting acute grief symptoms and to
help the person to achieve valued goals. To accomplish this, (1) the loss needs to
be integrated with existing knowledge, (2) unhelpful thinking patterns need to
be identified and altered, and (3) unhelpful avoidance strategies need to replaced
by more helpful ones. Different conventional CBT interventions can be used to
achieve these aims. Examples of interventions are described below.
Theory
Because the underpinnings of CBT for PGD draw heavily on existing cogni-
tive–behavioral theorizing (Beck, 1976; Dalgleish, 2004; Ehlers & Clark, 2000),
the extensive body of evidence supporting the view that unhelpful thoughts,
behaviors, and memory processes indeed work in concert, maintaining all kinds
of emotional suffering, provides indirect support for the CBT approach to PGD.
However, an increasing number of studies have directly investigated causes and
correlates of PGD from the perspective of CBT.
For instance, earlier research findings of a linkage between grief severity
and negative views about meaningfulness of the world and the worthiness of
the self (Schwartzberg & Janoff-Bulman, 1991) and self-blame and other-blame
(Field & Bonanno, 2001) accord with the importance of negative cognitions in
grief. In several of our own studies, we found evidence for a significant linkage
between negative cognitions and assumptions and PGD severity. For instance,
in a prospective study, stronger endorsement of negative assumptions about the
self, life, and the future in the early stages of grief predicted more severe PGD
and depression across 2 years post-loss (Boelen, van den Bout, & van den Hout,
2006). Furthermore, in cross-sectional and prospective studies (Boelen, van den
Bout, & van den Hout, 2003, 2010), we found evidence that catastrophic misin-
terpretations of grief reactions were associated with more severe PGD as well as
with tendencies to experientially avoid the pain of the loss. The importance of
these misinterpretations in predicting PGD was also supported in a large-scale
longitudinal study by Van der Houwen, Stroebe, Schut, Stroebe, and van den Bout
(2010).
Research has also provided evidence for the importance of avoidance behaviors
in PGD. For instance, generic measures of deliberate avoidance of loss-related
stimuli have been found to be significantly associated with loss-related distress in
several studies (e.g., Bonanno, Papa, Lalande, Nanping, & Noll, 2005; Shear et al.,
2007). In a cross-sectional study, we found evidence that indices of situational and
cognitive avoidance were associated with PGD (Boelen & van den Hout, 2008).
Importantly, the strength of the association was stronger in mourners who strongly
endorsed catastrophic misinterpretations, attesting to the notion that avoidance
strategies interact with catastrophic misinterpretations in maintaining PGD. A
further cross-sectional study showed that anxious and depressive avoidance are
separate constructs having distinct associations with PGD severity (Boelen & van
den Bout, 2010). Several studies have pointed at a linkage between PGD and
difficulties to retrieve specific memories (e.g., Chapter 13 in this volume). Given
that such difficulties are assumed to reflect avoidant tendencies, these studies also
support the importance of avoidance in maintaining PGD.
Treatment
CBT has consistently been found to be an effective treatment for a wide range
of disorders (Beck, 2005). Again, this indirectly supports the relevance of this
approach for treating PGD. More direct evidence for the effectiveness of CBT
interventions comes from early studies by Mawson, Marks, Ramm, and Stern
(1981) and Sireling, Cohen, and Marks (1988). In these studies, exposure to loss-
related stimuli was found to lead to reduction in symptoms of problematic forms
of grief. As noted, some of the more recently conducted treatment studies have
also provided evidence for the effectiveness of CBT for PGD. In a large trial,
Shear et al. (2005) compared the effectiveness of “complicated grief treatment”
with the effects of interpersonal psychotherapy. The former treatment was signifi-
cantly more effective in terms of effect sizes and time to response than the latter
approach. Wagner et al. (2006) subjected patients with PGD to an Internet-based
Closing comments
In CBT perspectives on PGD (Boelen, van den Hout, & van den Bout, 2006; Shear
et al., 2005, 2011; Wagner et al., 2006) it is hypothesized that memory processes,
negative cognitions, and avoidance behaviors play a key role in the development
and maintenance of PGD. As outlined in this chapter, there is increasing evidence
supporting this hypothesis. Nonetheless, more work needs to be done to test basic
premises of CBT perspectives on PGD. For instance, studies conducted to date
have mostly relied on self-report measures. It would be relevant for future stud-
ies to use other methods to study the role of memory processes, cognitions, and
behaviors in PGD, including methods based on social cognition and diary-keeping
methods to map out avoidance behaviors. In addition, experimental research is
needed to test the proposed directions of causality between variables.
More work obviously also needs to be done in the area of CBT treatment for
PGD. Although the findings summarized in this chapter support the potential
strength of CBT as a treatment of PGD, there is still ample scope for improving
References
Beck, A. T. (1976). Cognitive therapy and the emotional disorders. New York: International
Universities Press.
Beck, A. T. (2005). The current state of Cognitive Therapy. Archives of General Psychiatry,
62, 953–959.
Bennett-Levy, J., Butler, G., Fennell, M. J. V., Hackmann, A., Mueller, M. & Westbrook,
D. (Eds.) (2004). The Oxford guide to behavioural experiments in cognitive therapy.
Oxford, Oxford University Press.
Boelen, P. A. (2010). A sense of “unrealness” about the death of a loved-one: An explora-
tory study of its role in emotional complications among bereaved individuals. Applied
Cognitive Psychology, 24, 238–251.
Boelen, P. A., & van den Bout, J. (2010). Anxious and depressive avoidance and symp-
toms of prolonged grief, depression, and posttraumatic stress-disorder. Psychologica
Belgica, 50, 49–67.
Boelen, P. A., van den Bout, J., & van den Hout, M. A. (2003). The role of negative
interpretations of grief reactions in emotional problems after bereavement. Journal of
Behavior Therapy and Experimental Psychiatry, 34, 225–238.
Boelen, P. A., van den Bout, J., & van den Hout, M. A. (2006). Negative cognitions and
avoidance in emotional problems after bereavement: A prospective study. Behaviour
Research and Therapy, 44, 1657–1672.
Boelen, P. A., van den Bout, J., & van den Hout, M. A. (2010). A prospective examination
of catastrophic misinterpretations and experiential avoidance in emotional distress fol-
lowing loss. Journal of Nervous and Mental Disease, 198, 252–257.
Boelen, P. A., & van den Hout, M. A. (2008). The role of threatening misinterpretations and
avoidance in emotional problems after loss. Behavioural and Cognitive Psychotherapy,
36, 71–88.
Boelen, P. A., van den Hout, M. A., & van den Bout, J. (2006). A cognitive–behavioral
conceptualization of complicated grief. Clinical Psychology: Science and Practice, 13,
109–128.
Boelen, P. A., de Keijser, J., van den Hout, M. A., & van den Bout, J. (2007). Treatment of
Complicated Grief: A comparison between cognitive behavioral therapy and supportive
counseling. Journal of Consulting and Clinical Psychology, 75, 277–284.
Boelen, P. A., de Keijser, J., van den Hout, M. A., & van den Bout, J. (2011). Factors
associated with outcome of cognitive behavioral therapy for Complicated Grief: A pre-
liminary study. Clinical Psychology & Psychotherapy, 18, 284–291.