Artigo 2
Artigo 2
Artigo 2
To cite this article: Kathleen R. Perry, Heather A. King, Ryan Parker & Karen E. Steinhauser
(2021): Coordinating assessment of spiritual needs: a cross-walk of narrative and psychometric
assessment tools used in palliative care, Journal of Health Care Chaplaincy, DOI:
10.1080/08854726.2021.1904653
Article views: 75
ABSTRACT KEYWORDS
Addressing spiritual needs of patients in healthcare settings Chaplain; health care;
improves patient experiences and clinical outcomes; however, non- interdisciplinary; measure-
chaplain providers typically assess spiritual needs differently (quanti- ment tools; religious care;
spiritual care
tative psychometric) than healthcare chaplains (long form narrative)
and thus there is little shared language or cross-disciplinary evalu-
ation frameworks across disciplines. This discrepancy impedes the
provision of both team-based and patient-centered care. This paper
used scoping review methodology to illustrate the overlap between
narrative and psychometric assessment tools, comparing four narra-
tive tools against eight psychometric tools. The SpNQ-120 and Brief
RCOPE demonstrated consistent domain coverage across the four
chaplain narrative tools. This work provides preliminary resources to
aid clinicians and researchers in choosing an appropriate tool.
Additionally, for those who do not work closely with chaplains, it
provides a sense of what domains chaplains prioritize, from their
professional and lived experience, in assessing the spiritual life of the
patient. This improves interdisciplinary communication, and there-
fore, patient care.
Introduction
Assessing spiritual needs is an essential component of comprehensive palliative care,
and may be addressed, differentially, by members of the interdisciplinary team. We
know that addressing spiritual needs is important to patients and is associated with
patient quality of life (QOL) as well as being associated with outcomes such as utiliza-
tion of aggressive treatments and cost (Balboni et al., 2007, 2011, 2013). Done properly
and shared across disciplines, spiritual assessment and subsequent care provide an
opportunity to improve continuity of care and inform treatment choices (Balboni et al.,
2007). Unfortunately to date, there is no gold standard across disciplines for spiritual
assessment, nor is there consistency within disciplines of how to assess spiritual needs.
being consulted in the development of the PC-SAT. In the end, eight tools were
included, four primarily used in clinical settings, and four that are primarily used as
research tools. See Table 2 in Results for selected psychometric tools.
Table 2. Continued.
Number
Type of tool Tool Population Spiritual constructs measured of items Scoring
GES Questionnaire (Benito Patients in palliative care. Intrapersonal, interpersonal and Six initial open-ended Non-open ended questions are on a five-
et al., 2014) transcendent dimension questions establish point Likert scale. Item means
rapport with patients, are calculated.
and followed by an
eight scored items.
K. R. PERRY ET AL.
MD Anderson (Hui Patients with advanced The continuum sub-scales are: 7 It consists of seven sub-scales, scored on a
et al., 2011) cancer admitted to an despair-hopeful, broken-whole, five-point scale (2 to þ2), to comprise
in-patient palliative dread-courage, alienated- a total distress score ranging from 0 to
care unit. connected, meaningless- 10. Spiritual distress is considered
meaningful, guilt/shame- present if patients had 2 or more of the
accepted, and following distress domains.
helpless-empowered.
Spiritual Assessment Tool Veteran patients receiving Includes Koenig’s modifications to 85 The Religiosity Index Items are scored on a
(Berg, 1994) care in a Veterans Kasl’s Religiosity Index, 4 or 5 item Likert scale. They are
Administration Rokeach’s Ultimate Values Test, converted into standardized scores
Medical Center. the Spiritual Injury Scale and before summing. The Ultimate Values
the Holmes/Westberg Personal Test is a rank-order scaling of 36 values,
Health Inventory, which covers 18 terminal and 18 instrumental. The
the following areas: personal Spiritual Injury Scale items are scored on
event or change, marital a 4-point Likert scale (never, sometimes,
relationship, household events, often, very often). Scores are summed
vocational event, financial for a total score. The Holmes/Westberg
change, and Personal Health Inventory Scale items
spiritual dimension. are yes/no items. Each item is given a
particular value, and summed. Subscales
totals are then summed to create a total
personal health inventory score.
JOURNAL OF HEALTH CARE CHAPLAINCY 7
that addressed each particular domain. Therefore, we reported what percentage of a psy-
chometric assessment’s items either explicitly covered or had the potential to cover a
particular domain of a narrative assessment, in order to estimate “coverage” of a par-
ticular domain. For example, the cell in Table 3 that corresponds with “SDAT” and
“Awareness of the Holy” that reads 25.0% indicates that one-quarter of the SDAT’s four
items (or one item) captures the “Awareness of the Holy” domain in the Ministerial
Diagnosis Model.
Results
Representation of chaplain assessment domains in psychometric tools
Eight psychometric spiritual assessment tools (four developed primarily for use in
research and four for use in clinical settings) were crosswalked against the four chaplain
narrative assessments in order to find areas of overlap in the different spiritual domains
of interest. Table 1 and Table 2 respectively describe the selected narrative assessment
models and psychometric tools.
largest number of items that overlapped with “Grace or Gratefulness,” although the
Brief RCOPE did have one item in that domain, respectively. Two domains were cov-
ered by all eight tools, “Awareness of the Holy” and “Providence.”
Of the eight tools, the SpNQ-20 and the Brief RCOPE were the only three that had
items addressing each of Pruyser’s seven domains.
In comparing those tools that are clinically-oriented vs. research-oriented, there was
not a substantial amount of differentiation, although research-oriented tools had more
coverage in the “Awareness of the Holy, “Faith,” and “Grace or Gratefulness” domains.
See Table 3 for more details.
items that overlapped with “Grace or Gratefulness,” although the Brief RCOPE did have
one item in that domain, respectively. Three domains were covered by all eight tools,
“Power,” “Meaning,” and “Rest.”
Of the eight tools, four of them, the GES, the Spiritual Well-Being Scale, the SpNQ-
20, and the Brief RCOPE, had items addressing each of Lyon’s seven domains.
In comparing those tools that are clinically-oriented vs. research-oriented, the clinic-
ally-oriented tools had more coverage in the “Power” domain. The research-oriented
tools had slightly more coverage in the “Dignity” and “Celebration” domains. See Table
5 for more details.
Discussion
This research compared four chaplain narrative assessment tools and eight psychometric
spiritual assessment tools—four developed primarily for use in research and four for
10 K. R. PERRY ET AL.
use in clinical settings. We found significant yet heretofore unexplored overlap between
dimensions in each of the tools representing different categories. Two tools, SpNQ-20,
and Brief RCOPE, demonstrated consistent domain coverage across all four chaplain
frameworks. Coverage of a chaplain framework domain did not appear to be correlated
with the content of a particular domain. Each chaplain framework, except for Spiritual-
AIM, did have one or two domains that were severely underrepresented across the eight
tools. Likewise, it does not appear that psychometric tools are universally lacking in one
particular type of domain prioritized by chaplain frameworks. The lack of complete
coverage by most of the psychometric tools indicates a disconnect between the priorities
of the chaplains versus the priorities of researchers and clinicians when it comes to
assessing the spiritual journey of a patient.
This work provides preliminary resources to aid clinicians and researchers in choos-
ing a spiritual psychometric tool specific to their setting. Considering whether assess-
ment aims are more research or clinically oriented is an important first step in
choosing an appropriate tool. SpNQ-20 and Brief RCOPE were the research tools with
the most consistent coverage across the different domains. As healthcare continues to
move towards more interdisciplinary team-based care, it is worth researchers and clini-
cians’ time to review some of the heavily used narrative spiritual frameworks by chap-
lains when choosing which psychometric tool to use.
For researchers, especially those who might not be working as closely with chaplain
colleagues, this work provides a road map for thinking about what data needs to be col-
lected in order to meet the needs of a potential study. Likewise, when clinicians are
choosing an assessment tool, by thinking critically about the needs of the team and their
patients, they can assess what sort of information that would be useful to chaplains
based on what they prioritize in their own narrative assessments. For example, if a
researcher or chaplain wanted to choose a psychometric tool that assessed the “Grace
and Gratefulness” domain of the Ministerial Diagnosis Model, they would see that
SpNQ-20 or Brief RCOPE covers that domain, and therefore those two would be their
best options. Researchers and clinicians can utilize spiritual assessment tools that better
fit their own and their chaplain colleague’s research and clinical needs. For example, a
psychometric tool might be properly utilized as a screener or as a background tool that
JOURNAL OF HEALTH CARE CHAPLAINCY 11
a patient could complete on their own, providing preliminary data for the chaplain to
work with prior to the patient encounter.
In response to the premise of this research and these findings, this research team is
developing a spiritual assessment tool for veterans in palliative care. The PC-SAT is
based on qualitative work with chaplains, clinicians, patients in palliative care, and
bereaved family members (Steinhauser et al., 2019) The domains for the tool were
crosswalked with the narrative spiritual assessment tools included in this research in
order to ensure continuity between the goals of spiritual assessment between chaplains,
and the clinicians and researchers who will employ this tool. It is currently being vali-
dated in a population of veterans in palliative care that will test full psychometric prop-
erties and inform item reduction.
There are several limitations associated with this study. This was not a thoroughly
systematic review of the literature in choosing which chaplain frameworks and psycho-
metric tools would be included in this scoping review. However, the frameworks and
tools chosen were agreed upon by interdisciplinary stakeholders and collaborators to be
representative of the field. More research could be done to look at the development of
the different psychometric tools, and their attention to patients’ expressed spirituality
and chaplains’ work throughout that development process.
This scoping review and subsequent descriptive content analysis identified significant
gaps of representation of chaplains’ domains of interest across selected research-oriented
and clinically-oriented psychometric tools. However, there are some tools that do cover
the domains of interest for chaplains across several different chaplain frameworks, spe-
cifically the SpNQ-20 and Brief RCOPE, both which are research-oriented tools. Future
work may include the development of a tool with a clinical orientation that takes into
account the domains prioritized by chaplains’ narrative assessments, and can improve
communication on spiritual assessment between disciplines. This is the approach being
taken with the development of the PC-SAT, which at the point of publication, is under-
going validation and is forthcoming (Steinhauser et al., 2019). This project has positive
implications for interdisciplinary work between chaplains, researchers, and non-chaplain
clinicians. In choosing which psychometric tools to utilize, researchers and clinicians
can have a clearer sense of how the information they’re collecting aligns with the spirit-
ual domains of interest for chaplains. Additionally, with this new knowledge of the
overlap of current tools, this project can move forward the development of new tools
that reflect the lived professional experience of chaplains and the spiritual lives of
their patients.
Acknowledgments
We would like to thank first and foremost, the veterans who make this research possible. We’d
also like to thank our chaplain colleagues, whose lived experience enhances the validity and use-
fulness of our work.
Disclosure statement
No potential conflict of interest was reported by the author(s). The content is solely the responsi-
bility of the authors and does not necessarily reflect the position or policy of the U.S.
12 K. R. PERRY ET AL.
Department of Veterans Affairs, U.S. government, or Duke University. The sponsor played no
role in study design, collection, analysis or interpretation of the data; in the writing of this manu-
script or in the decision to submit the manuscript for publication.
Funding
This work was supported by the U.S. Department of Veterans Affairs, Veterans Health
Administration, Office of Research and Development, Health Services Research and Development
Service [IIR 15-365] and by the Center of Innovation to Accelerate Discovery and Practice
Transformation (ADAPT) [CIN 13-410] at the Durham VA Health Care System.
ORCID
Kathleen R. Perry http://orcid.org/0000-0001-9987-2711
Ryan Parker http://orcid.org/0000-0002-3788-0414
Karen E. Steinhauser http://orcid.org/0000-0002-3084-711X
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