Cyberchondria Assessment Paper FINAL
Cyberchondria Assessment Paper FINAL
Cyberchondria Assessment Paper FINAL
Fineberg6,7,8
1
University of Sydney, Faculty of Medicine and Health, Sydney Medical School, Nepean
Kingdom.
8
University of Cambridge, School of Clinical Medicine, Cambridge, United Kingdom.
* Corresponding author
Address: Vladan Starcevic; Department of Psychiatry; Nepean Hospital; PO Box 63; Penrith
Email: [email protected]
Abstract
instruments for the assessment of cyberchondria is imperative for better understanding of this
construct. The aim of the present article is to provide a systematic literature review of
cyberchondria instruments.
Recent findings: Although several measures of cyberchondria have been developed, the
Cyberchondria Severity Scale (CSS) has been used most often. The CSS is based on a solid
theoretical framework, with very good to excellent reliability and validity. It has been
translated into several languages. Modifications of the original version of the CSS have been
introduced to refine its conceptual foundation and improve its utility by making it shorter.
Summary: Further improvement of the CSS may boost the quality of cyberchondria
research. There remains a need to test the theoretical underpinnings of the CSS and consider
Keywords:
Introduction
The Internet and digital technology have revolutionised searches for health-related
information. Instead of relying on medical books and encyclopaedias and consulting medical
professionals, most people now turn to the Internet for any enquiry about health- or illness-
related matters. Although several factors seem to have contributed to this change, it is likely
due to the ease with which health information can be accessed via the Internet.
Online health research (OHR) allows millions of people worldwide to quickly obtain
information that they need, with a generally empowering effect. Some individuals, however,
report a higher level of anxiety or distress during or after OHR. This outcome, coupled with a
studies were hampered by a lack of instruments assessing the construct. That changed in
2014, when the first cyberchondria scale appeared [3]. Years that followed have seen
flourishing of cyberchondria research, along with efforts to improve the original instrument
The present article focuses on the assessment of cyberchondria and aims to present
and critically review the psychometric properties of instruments developed thus far to assess
cyberchondria. The article will also highlight the shortcomings of the present instruments,
identify the gaps in the relevant literature and offer suggestions for further research.
Methods
[4]. We searched PubMed, Web of Science, ScienceDirect, Scopus, PsycINFO and Google
4
Scholar for the relevant publications published until February 2020. Search terms included
basis of two or more of these terms, whereby one of them had to be cyberchondria. We did
The following criteria were used to identify publications for possible inclusion in this
of the instrument used to assess cyberchondria. Abstracts and review articles were excluded.
The following data were extracted from the selected publications: authors and year of
publication, instrument(s) used in the publication, country, sample size, basic demographic
characteristics of the sample, type of sample, method of recruitment, health status of study
participants and main psychometric properties of the instruments. The latter included the
factor structure; intercorrelations between subscales; correlations between subscales and total
scale scores; internal consistency; and correlations between total scale scores and subscales
on one hand and other scales of relevance on the other. Additional information was extracted
for the specific scales and/or for specific purposes, e.g., whether there were any data on cut-
off points.
Results
5
Figure 1 shows that of the 33 articles identified through the searches, 24 met our inclusion
criteria and were included in the systematic review. Figure 1 also shows reasons for
excluding articles.
Table 1 presents the main characteristics of the articles and samples included in the present
systematic review. All identified instruments are based on self-report. Of the 24 articles, 21
reported on the Cyberchondria Severity Scale (CSS) and 4 reported on four other
cyberchondria instruments. Of the 21 articles addressing the CSS, 13 reported on the full, 33-
item version, 10 reported on the 30-item version (CSS-30) and 1 article each reported on the
and 12-item version (CSS-12). Several articles reported findings based on more than one
sample [5-9], whereas 2 articles were based on the same sample [10, 11], resulting in 29
Almost one half of articles were based on samples from the USA (10 articles) and
Puerto Rico/USA (1). The remaining articles used samples from Turkey (4), Poland (2), UK
(2), Croatia (1), Germany (1), Iran (1) and Australia (1). One study published by the
Australia, Canada, Ireland, New Zealand, the UK and USA [12]. Sample sizes across the
articles varied from 86 to 1200 (mean = 413). The majority of participants were women in 21
of the 28 samples for which the data on gender were available, and the proportion of women
across all 28 studies ranged from 35.5% to 87.2%. The mean age of participants ranged from
19 to 39 years across 26 samples, with the mean age in 16 samples being between 31 and 39
years.
6
The majority of studies were conducted in community samples (6 samples) and online
community samples (7 samples), with some studies including only community subjects using
the Internet for health searches (3 samples) or online community subjects using the Internet
for health searches (5 samples). The remaining samples consisted of university students,
treatment-seeking individuals with the DSM-5 illness anxiety disorder or DSM-5 somatic
symptom disorder (1 sample). The method of recruitment was described for 15 of the 29
samples and involved use of an online crowdsourcing platform to recruit 10 samples. Health
status was taken into consideration or noted when recruiting 12 of the 29 samples, with 3
studies excluding subjects with medical conditions and 3 studies excluding subjects with
The CSS [3], developed in the UK, has been the most widely used instrument in
cyberchondria research. It has been translated into several languages, but the psychometric
properties have been published only for the German [5], Polish [13*] and two Turkish [14,
15] versions of the CSS. The Croatian version only reported data on internal consistency [9]
and the Iranian version only reported total CSS score correlations with other scales [16].
The basis for the development of the CSS was the definition of cyberchondria as an
“increase in anxiety about one’s own health status, as a result of excessive reviews of online
dimensional construct, reflecting both anxiety and an element of compulsiveness” [3, p. 260].
The stated aim of the CSS is to measure anxiety as a result of online searches for health
information. It was not developed as a screening tool for cyberchondria and corresponding
7
cut-off scores were not established. The CSS initially consisted of 43 items that were
anxiety disorders.
The original CSS (“full CSS”) consists of 33 items that are scored on a 5-point scale
[3]. Scores on each item are summed up to provide a total CSS score. Exploratory factor
analysis of the CSS revealed 5 factors: Compulsion, Distress, Excessiveness, Reassurance (or
Reassurance Seeking) and Mistrust of Medical Professionals (MMP). These factors represent
separate subscales and scores on each subscale can be calculated separately. Compulsion was
ways in which OHR interrupts activities. Distress denotes negative emotional states (e.g.,
anxiety) associated with OHR. Excessiveness involves repetitious and time-consuming OHR,
often relying on numerous online sources. Reassurance reflects a need to seek reassurance
about health-related matters from a suitably qualified person such as medical professionals.
Finally, MMP was originally conceptualised as a “conflict” as to whether one should trust
medical professionals or the results of one’s own OHR, with greater confidence in the latter.
Table 2 shows psychometric properties of the CSS across 13 studies. The original
study by McElroy and Shevlin [3] used exploratory factor analysis to identify the 5-factor
structure of the CSS. Additional six studies identified the same 5-factor structure, one of them
using exploratory factor analysis, one using principal component analysis and four using
confirmatory factor analysis. Using confirmatory factor analysis, one study reported bifactor
modelling with a General Cyberchondria Factor and Specific Factors that comprise
Compulsion, Distress, Excessiveness, Reassurance and MMP [10]. Except for the MMP
subscale, the intercorrelations between the CSS subscales ranged between 0.26 and 0.80,
8
while their correlations with the total CSS score ranged from 0.65 to 0.89. These correlations
Internal consistency for the total CSS was excellent, with Cronbach α ranging
between 0.91 and 0.96 in 10 studies and only one study reporting Cronbach α of 0.89.
Likewise, internal consistency was excellent for the Compulsion subscale (Cronbach α
ranging between 0.90 and 0.96 in 6 studies, with one study reporting Cronbach α of 0.88) and
Distress subscale (Cronbach α ranging between 0.92 and 0.95 in 6 studies, with one study
reporting Cronbach α of 0.87). Internal consistency figures for the Excessiveness and
Reassurance subscales were generally good: for the Excessiveness subscale, Cronbach α
ranged between 0.85 and 0.91 in 5 studies, with one study reporting Cronbach α of 0.74,
whereas for the Reassurance subscale, Cronbach α ranged between 0.80 and 0.89 in 5 studies,
Test-retest reliability of the CSS was assessed in 2 studies using translated versions.
For one of the Turkish translations, a reliability figure in 66 participants over a 2-week period
was 0.65 for the total CSS, while the corresponding figures for the CSS subscales ranged
from 0.53 to 0.71 [14]. The reported test-retest reliability figures for the CSS subscales of the
Polish version over a period of 3 months in 59 participants ranged from 0.58 to 0.76 [13*].
correlations between measures of the two conceptually related constructs. Close relationships
have been postulated theoretically or based on research not relying on the CSS between
cyberchondria and health anxiety [1], problematic Internet use [17] and obsessive-compulsive
disorder (OCD) [18]. Therefore, convergent validity of the CSS could be examined via its
correlations with measures of health anxiety, problematic Internet use and OCD. Table 2
shows that convergent validity of the CSS is solid because the correlations between the total
CSS and measures of health anxiety such as the Short Health Anxiety Inventory and
9
Modified Version of the Short Health Anxiety Inventory ranged between 0.53 and 0.59. In
one study, however, the correlation between the total CSS and the Health Anxiety Inventory
was only 0.23 [15]. With regards to problematic Internet use, only one study reported a
correlation of 0.45 between the total CSS and the Internet Addiction Test [15], suggesting
good convergent validity of the CSS. Although somewhat lower, the correlations between the
total CSS and measures of OCD such as the total Dimensional Obsessive-Compulsive Scale
(rs = 0.38 and 0.49) and the subscales of Maudsley Obsessive-Compulsive Inventory (rs =
correlations between measures of the constructs that are conceptually unrelated or less
the measures of these two constructs are therefore expected to be relatively low. Indeed, the
correlations between the total CSS and measures of depression, such as the Depression
subscale of the Depression, Anxiety and Stress Scale – 21-Item Version (rs = 0.22 and 0.24)
and the Center for Epidemiologic Studies Depression Scale (r = 0.31) were generally weaker.
The MMP subscale of the CSS consists of 3 items, which are the only reverse-scored
items of the CSS. The performance of the MMP subscale was different from other CSS
subscales, as shown in Table 3. Its correlations with other CSS subscales were lower or
negative (ranging from -0.16 to 0.44), as were the correlations with the total CSS (ranging
between 0.12 and 0.41). Internal consistency of the MMP subscale was considerably lower
compared to the other CSS subscales, with Cronbach α ranging between 0.62 and 0.89 across
9 studies and being lower than 0.69 in 4 studies. Correlations between the MMP subscale and
measures of health anxiety, problematic Internet use, OCD, other anxiety-related variables
10
and depression were generally weak, often nonsignificant and at times negative. These
findings suggest that the MMP subscale may not assess the same overarching construct of
cyberchondria as the other CSS subscales and that it may not belong to the CSS. It has been
suggested that the MMP score might still have some value, but that it should be calculated
separately from the CSS score [13*, 19]. Consequently, several authors proposed a removal
of the MMP subscale items from the CSS [5, 10, 14]. This led to the development of shorter
Given the problems with the MMP subscale, several authors have used the CSS without 3
items of the MMP subscale. The psychometric properties of this 30-item version of the CSS
correlations between these 4 CSS-30 subscales (ranging between 0.42 and 0.78) and the
correlations between the 4 CSS-30 subscales and the total CSS-30 score (ranging from 0.73
to 0.90), the CSS-30 performs similarly to the full CSS (if the MMP subscale is not taken into
account).
Internal consistency for the total CSS-30 was excellent (Cronbach α = 0.95 and 0.96
across 7 studies) and therefore somewhat better than internal consistency for the total full
CSS. Similarly, internal constancy values for the Compulsion (Cronbach α = 0.95 and 0.96
0.87 across 2 studies) and Reassurance (Cronbach α = 0.85 and 0.88 across 2 studies)
subscales of the CSS-30 were excellent to good and somewhat better than internal
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consistency values for the same subscales of the full CSS. There are no published data on
Convergent validity indices for the CSS-30 were similar to those for the full CSS,
with strongest correlations reported with measures of health anxiety or measures related to
health anxiety, such as the Short Health Anxiety Inventory (rs = 0.52-0.58), Whiteley
(rs = 0.32-0.66). The correlation with a measure of problematic Internet use (Problematic
Internet Use Questionnaire) was also robust (r = 0.59), whereas the correlations with a
measure of OCD (total Dimensional Obsessive-Compulsive Scale) were somewhat lower (rs
= 0.38-0.49). Divergent validity of the CSS-30 has not been examined, as no study reported
A general tendency to shorten self-report instruments has played a role in several attempts to
decrease the number of items of the CSS. The first such attempt was made by Barke et al. [5]
in their German version of the scale. They conducted a principal components analysis of the
full CSS and retained the 3 best-performing items from each of the 5 CSS subscales based on
their factor loadings, thereby forming a 15-item version (CSS-15). A confirmatory factor
analysis identified 5 factors/subscales, but their intercorrelations and the correlations with the
total CSS-15 score were much lower than those reported for the full CSS and CSS-30 (Table
4). Internal consistency values for the total CSS-15 (Cronbach α = 0.82) and for the CSS-15
subscales (Cronbach α = 0.67-0.86) were also lower. Indices of convergent and divergent
Another shorter version of the CSS was based on the CSS-15, except for 3 items of
the MMP subscale. This resulted in a 12-item instrument, referred to as CSS-15-Revised [7].
Internal consistency for the total CSS-15-Revised (Cronbach α = 0.88) was better than that
for the CSS-15, with solid convergent validity (Table 4). Divergent validity was not assessed.
The authors of the original CSS developed an abbreviated version of the CSS
containing 12 items (CSS-12) [21**]. They first conducted an exploratory factor analysis of
the full CSS and selected for inclusion in the CSS-12 3 items from each factor/subscale
except for the MMP subscale. This selection was made on the basis of several criteria: factor
loadings, endorsement rates, impact on subscale internal consistency, length and content. The
CSS-12 thus consists of 4 factors/subscales. Internal consistency for the total CSS-12 was
excellent (Cronbach α = 0.90), but lower than internal consistency for the full CSS and CSS-
30 (Table 4). Likewise, internal consistency figures for the CSS-12 subscales were lower
(Cronbach α = 0.73-0.87). Total score of the CSS-12 correlated more strongly with a measure
of health anxiety (r = 0.53) than with a measure of general anxiety (r = 0.30), suggesting a
The CSS has been translated into several other languages and used in several non-English
the CSS are not available in peer-reviewed journals published in English. Therefore, the
corresponding articles have not been included in the present systematic review. Still, it should
be noted that the CSS has been translated into Brazilian Portuguese [22] and that Indonesian
version of the CSS was used in one study [23]. The CSS was also used in published studies
conducted in Pakistan [24, 25], India [26, 27] and Sri Lanka [28]. The original English
13
version of the CSS was administered in some of these studies [25, 27], while other studies did
not provide details of translations into local languages [24, 26, 28].
Cyberchondria Scale (CS) [8], Short Cyberchondria Scale (SCS) [9], Brief Cyberchondria
Scale (BCS) [29] and Cyberchondria Tendency Scale (CTS) [30]. This is partly a
consequence of a need for measures that would be more “culturally specific”, that is, suitable
for various non-English speaking populations. Hence, two of these scales were developed in
Turkey (CS and CTS), one was developed in Croatia (SCS) and another in Puerto Rico for
shorten cyberchondria instruments, with SCS consisting only of 4 items and BCS having 10
items. Another reason for introducing new cyberchondria measures can be found in different
Although the CS and CSS are both based on the notion that cyberchondria is a
multidimensional construct, these dimensions overlap, but are not the same. Consequently,
behaviour (or OHR) and characteristics of online health-related material that both increase
and decrease anxiety. In contrast, the SCS is based on the premise that the “core element” of
cyberchondria is anxiety amplification following OHR. The BCS was developed on the
assumption that cyberchondria represents OHR driven by health anxiety. The stated purpose
of the CTS is to assess Internet users’ “tendency to cyberchondria”, i.e., the extent to which
they use health information obtained online and seek a “solution” online when having health
problems.
Table 5 presents the psychometric properties of the CS, SCS, BCS and CTS. Their
factor structure differs from one scale to another, which is a consequence of their different
conceptual underpinnings. Some of the factors/subscales resemble those of the CSS, while
others are unrelated to them. Internal consistency for all the instruments was excellent
(Cronbach α = 0.92, 0.93 and 0.94 for total BCS, CS and CTS, respectively), except for the
SCS (Cronbach α = 0.73). Correlations with measures of health anxiety were generally
robust, suggesting a relatively good convergent validity for the BCS, CS and SCS. Unlike
any version of the CSS, the BCS and CTS provide instructions for scoring and for
Discussion
The CSS has dominated cyberchondria research. This is mainly due to two reasons. First, the
anxiety, interference with activities and reassurance seeking from offline sources, usually
Second, the CSS has very good to excellent psychometric properties. Internal
consistency for the total CSS is excellent, which is particularly important considering the
consistency of the CSS subscales that assess distress and interference with activities is also
excellent. Internal consistency for the subscales assessing the excessive nature of OHR and
15
reassurance seeking is acceptable to good and could be improved. This also suggests that
excessive OHR and reassurance seeking from medical professionals as components of the
cyberchondria construct may require further conceptual elaboration. The CSS has a solid
and to a lesser extent, measures of problematic Internet use. Correlations with measures of
OCD have been generally weaker than those with health anxiety, suggesting that the CSS
reflects the relationship between cyberchondria and health anxiety more than the one between
cyberchondria and OCD. The CSS appears to have a solid divergent validity, but there is a
need for further research examining the correlations between the CSS and measures of the
impulsivity.
The validity of the CSS is also supported by numerous studies that have confirmed the
overall factor structure. This provides confidence in each of the five subscales as reflective of
specific domains of cyberchondria, notwithstanding the less convincing findings for the
MMP subscale. Further research should take into account bifactor modelling of the CSS
reported by Norr et al. [10] and reconsider the notion that cyberchondria is a unitary
construct, best described as including both a factor which incorporates all items, as well as
the separate factors. Although the interpretation of CSS total scores as indicative of a unitary
concept of cyberchondria is generally assumed to be correct, this has not always been
supported. For example, Fergus [19] did not find that CSS subscales “tapped” a general
cyberchondria factor, leaving open the possibility that CSS subscales reflect relatively
The full version of the CSS may not be practical for routine use because of its length
(33 items). Another shortcoming of the CSS is the lack of a clear scoring system. A
performance of the MMP subscale that was incongruent with that of the other CSS subscales
16
has been addressed by omitting the 3 MMP subscale items from the scale (as in the CSS-30)
or by calculating the score on this subscale separately from the total CSS score. The
psychometric properties of the CSS-30 are comparable to those of the full CSS. The same
generally holds true for even shorter versions of the CSS: CSS-15, CSS-15-Revised and CSS-
12. Lower internal consistency values for the shorter versions of the CSS are possibly a
consequence of fewer scale items. However, the approach taken to construct shorter forms of
the CSS may not necessarily allow these instruments to “capture” the full extent of the
construct as the original CSS [31]. Therefore, modifications of the CSS call for further
cyberchondria. These measures are difficult to compare with the CSS because their
theoretical foundations and purposes are different. Furthermore, they have been developed
mainly for use in certain non-English speaking countries. Despite their generally solid
psychometric properties, it does not seem very likely that these instruments will be used
across different countries, perhaps except for the BCS, which may be used in various
Spanish-speaking countries.
Future studies of the CSS and other cyberchondria instruments need to be conducted
treatment. Only one study so far [32**] has been conducted in a treatment-seeking sample.
Further research should control for individuals who were medically or psychologically
unwell at the time of assessment. While internal consistency, convergent and divergent
validity of the CSS and its variants are well established, there is a need for further detailed
determine whether these measures are consistent in capturing the concept of cyberchondria
across time. Studies should ideally investigate the invariance of the factor structure across
17
different samples and population groups and the item response characteristics for each item
of the scale. More work also remains to be done in terms of the interpretation of the CSS
scores. It would be useful, for example, to have guidance on classifying cyberchondria cases
into mild, moderate and severe based on their CSS scores. This is of particular importance for
use of the CSS in clinical practice and for public health purposes. Another issue is the
conceptual status of cyberchondria and the question of what the CSS is assessing: a distinct
The near-ubiquitous use of the CSS in cyberchondria research has been helpful for
comparing findings across studies. However, this fact also carries the limitation that almost
everything that we know about cyberchondria is based on use of the CSS in research. The
model of cyberchondria upon which the CSS was constructed is not necessarily accurate,
while CSS-based research findings implicitly (or even explicitly) endorse such a model. This
compared with the CSS-based model. Such approaches might introduce different theoretical
This endeavour would then allow a more adequate appraisal of the validity of the CSS.
Conclusion
To the best of our knowledge, this is the first published systematic review of cyberchondria
instruments. To date, the cyberchondria literature has relied heavily on a single measure – the
CSS. It is critically important that the CSS and its derivatives have robust psychometric
properties as our understanding of the construct of cyberchondria and its place in the
landscape of conceptually similar constructs hinges upon valid and reliable measurement.
18
This is particularly the case for understanding the relationships between cyberchondria,
health anxiety, problematic Internet use and OCD. While the CSS has met the standard
thresholds for psychometric validation, there remains considerable scope for refinement.
Conflict of Interest
This article does not contain any studies with human or animal subjects performed by any of
the authors.
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Figure 1. PRISMA flowchart: Selection of the original studies reporting on the psychometric
properties of measurement instruments for cyberchondria.
N = 33
Records excluded
N=8
Reasons for exclusion:
Screening
• Review articles (n = 2)
• Not using a cyberchondria
instrument (n = 6)
N=1
Reason for exclusion:
• Not reporting on any psychometric
property of the cyberchondria
instrument used in the study
Inclusion
Table 1. Characteristics of the articles (N=24) and samples (N=29) in which the Cyberchondria Severity Scale (CSS), modified versions of the CSS and other cyberchondria
scales were tested or in which the psychometric properties of these instruments were described.
Article and sample Instrument Country Sample % Mean age Age range Sample characteristics Recruitment method Health status taken into
size females (years) (years) consideration or noted during
recruitment
McElroy & CSS UK 208 63.9 24.2±8.2 18-60 University undergraduate NR No
Shevlin, 2014 [3] students
Fergus, 2014 [19] CSS, USA 539 43.4 31.3±9.9 18-67 Online sample using the Online crowdsourcing Yes (individuals with medical
CSS-30 Internet for health searches platform - MTurk conditions were excluded)
Norr et al., 2015 CSS USA 526 69.2 34.9±12.4 18-72 Online community sample Online crowdsourcing No
[10] & Norr et al., platform - MTurk
2015 [11]
McElroy et al., CSS, UK 661 73.0 22.2±5.9 NR University undergraduate NR No
2019 [21**] CSS-12 students
Starcevic et al., CSS Australia & 751 NR NR NR Online sample using the Online crowdsourcing No
2019 [12] Switzerland† Internet for health searches platform - PROL
during previous 3 months
Newby & CSS Australia 86 87.2 30±12 18-65 Treatment-seeking individuals NR Yes (individuals with psychosis,
McElroy, 2020 with illness anxiety disorder bipolar affective disorder and
[32**] (DSM-5) or somatic symptom severe depression were excluded)
disorder (DSM-5)
Barke et al., 2016 CSS Germany 500 73.6 29.1±10.4 NR Online community sample NR Yes (but individuals with current
[5] – Sample A illness were not excluded)
Bajcar et al., 2019 CSS, Poland 380 53.4 26.5±11.1 19-68 Community sample NR No
[13*] CSS-30
Uzun & Zencir, CSS Turkey 335 35.5 38.2±8.5 19-61 University employees NR No
2018 [14]
Selvi et al., 2018 CSS Turkey 337 55.8 21.8±5.2 16-55 University students NR No
[15]
Zangoulechi et al., CSS Iran 177 72.9 NR NR University students NR No
2018 [16]
Fergus, 2015 [33] CSS-30 USA 578 43.7 31.2±9.8 NR Online community sample Online crowdsourcing Yes (individuals with medical
platform - MTurk conditions were excluded)
Norr et al., 2015 CSS-30 USA 468 71.6 35.4±12.5 18-72 Online community sample Online crowdsourcing No
[34] platform - MTurk
Fergus & Spada, CSS-30 USA 337 50.1 33.3±11.5 18-65 Online sample using the Online crowdsourcing Yes (25.5% had medical
2017 [6] – Sample Internet for health searches platform - MTurk conditions)
1
27
Fergus & Spada, CSS-30 USA 260 40.8 32.9±9.2 19-69 Online sample using the Online crowdsourcing Yes (29.2% had medical
2017 [6] – Sample Internet for health searches platform - MTurk conditions)
2
Fergus & Spada, CSS-30 USA 330 66.6 19.4±2.1 18-47 University undergraduate NR No
2018 [7] – Sample students
1
Fergus & Russell, CSS-30 USA 375 47.3 31.6±10.2 19-64 Online community sample Online crowdsourcing Yes (individuals with medical
2016 [35] platform - MTurk conditions were excluded)
Mathes et al., 2018 CSS-30 USA 462 64.3 36.6±12.9 18-77 Online community sample Online crowdsourcing No
[20] platform - MTurk
Gibler et al., 2019 CSS-30 USA 221 70.6 19.2±1.7 19-33 Undergraduate students NR Yes (percentage with various
[36] types of pain and related problems
was noted)
Bajcar & Babiak, CSS-30 Poland 207 58.9 31.5±13.0 19-64 Community sample Snowball method No
2019 [37]
Barke et al., 2016 CSS-15 Germany 292 76.4 24.2±4.1 NR Online community sample NR Yes (but individuals with current
[5] – Sample B illness were not excluded)
Fergus & Spada, CSS-15- USA 331 53.5 38.7±10.4 22-74 Online sample using the Online crowdsourcing No
2018 [7] – Sample Revised Internet for health searches platform – MTurk
2
Durak-Batigun et CS Turkey 250 49.6 36.6±14.3 NR Community sample NR Yes (individuals with
al., 2018 [8] – current/recently diagnosed mental
Sample 1 illness were excluded)
Durak-Batigun et CS Turkey 360 61.1 36.5±13.6 NR Community sample NR Yes (individuals with
al., 2018 [8] – current/recently diagnosed mental
Sample 2 illness were excluded)
Jokić-Begić et al., SCS-7 Croatia 507 72.2 33.2±12.3 18-71 Community sample using the Link to survey on No
2019 [9] – Sample Internet for health searches social networks, use of
1 mailing lists and
snowball method
Jokić-Begić et al., SCS-7 Croatia 379 75.5 31.8±10.9 18-71 Community sample using the Link to survey on No
2019 [9] – Sample Internet for health searches social networks, use of
2 mailing lists and
snowball method
Jokić-Begić et al., CSS, Croatia 594 83.8 30.3±10.4 18-73 Community sample using the Link to survey on No
2019 [9] – Sample SCS-4 Internet for health searches social networks, use of
3 mailing lists and
snowball method
28
González-Rivera et BCS Puerto Rico/ 320 71.3 37.3±12.1 NR Community sample Advertisement paid on No
al., 2020 [29] USA social networks
Tatli et al., 2019 CTS Turkey 1200 42.2 NR 18-35 Community sample NR Yes (presence of “any health
[30] problem in the previous 6
months” was an inclusion
criterion)
NR: Not reported.
† Participation was restricted to English-speaking individuals from Australia, Canada, Ireland, New Zealand, the United Kingdom and the United States of America.
BCS: Brief Cyberchondria Scale; CS: Cyberchondria Scale; CSS: Full, 33-item version of the Cyberchondria Severity Scale; CSS-30: A 30-item version of the
Cyberchondria Severity Scale; CSS-15: A 15-item version of the Cyberchondria Severity Scale; CSS-15-Revised: A 15-item version of the Cyberchondria Severity Scale
(CSS-15) modified to a 12-item version; CSS-12: A 12-item version of the Cyberchondria Severity Scale; CTS: Cyberchondria Tendency Scale; SCS-7: A preliminary 7-item
version of the Short Cyberchondria Scale; SCS-4: Final 4-item version of the Short Cyberchondria Scale.
29
Table 2. Psychometric properties of the Cyberchondria Severity Scale (CSS) across the studies.
Article/study Factor structure (identification Correlations Correlations Internal consistency Total CSS score correlations with Correlations of the CSS subscales
of factors/subscales) between the between the CSS (Cronbach α), not other scales (excluding MMP subscale) with other
CSS subscales subscales reporting for the MMP scales
(excluding (excluding MMP subscale
MMP subscale) and
subscale) total CSS score
McElroy & Exploratory factor analysis: 0.52-0.67 NR - Total: 0.94 - DASS-21 Total: 0.40 - DASS-21 Total: 0.29-0.46
Shevlin, 1. Compulsion - Compulsion: 0.95 - DASS-21 Anxiety: 0.43 - DASS-21 Anxiety: 0.29-0.49
2014 [3] 2. Distress - Distress: 0.92 - DASS-21 Stress: 0.37 - DASS-21 Stress: 0.27-0.36
3. Excessiveness - Excessiveness: 0.85 - DASS-21 Depression: 0.24 - DASS-21 Depression: 0.20-0.34
4. Reassurance - Reassurance: 0.89
5. MMP
Fergus, 2014 Confirmatory factor analysis: 0.52-0.68 0.75-0.88 - Total: 0.95 - SHAI: 0.59 - SHAI: 0.33-0.61
[19] 1. Compulsion - Compulsion: 0.95 - DOCS: 0.49 - DOCS: 0.27-0.50
2. Distress - Distress: 0.95
3. Excessiveness - Excessiveness: 0.87
4. Reassurance - Reassurance: 0.88
5. MMP
Norr et al., Confirmatory factor analysis: 0.63-0.80 NR - Total: 0.95 NR - SHAI Thought Intrusion: 0.34-0.49
2015 [10] Bifactor modelling - Subscales: 0.86-0.95 - SHAI Fear of Illness: 0.36-0.52
1. General Cyberchondria
Factor
2. Specific Factors
(Compulsion, Distress,
Excessiveness, Reassurance,
MMP)
Norr et al., NR NR NR - Total: 0.95 - SHAI: 0.53 NR
2015 [11] - Subscales: 0.86-0.95 - ASI-3: 0.57
- IUS-12 Prospective: 0.38
- IUS-12 Inhibitory: 0.50
McElroy et Exploratory factor analysis: 0.34-0.54 NR - Total: NR NR NR
al., 2019 1. Compulsion - Compulsion: 0.93
[21**] 2. Distress - Distress: 0.92
3. Excessiveness - Excessiveness: 0.88
4. Reassurance - Reassurance: 0.82
5. MMP
30
† Test-retest reliability figures for CSS subscales ranging from 0.58 to 0.76 reported over a period of 3 months in 59 participants.
†† Test-retest reliability figures for CSS subscales ranging from 0.53 to 0.71 and for total CSS score of 0.65 reported over a period of 2 weeks in 66 participants.
ASI-3: Anxiety Sensitivity Index-3; ASI-R: Anxiety Sensitivity Index Revised; CES-D: Center for Epidemiologic Studies Depression Scale; DASS-21: Depression, Anxiety
and Stress Scale – 21-Item Version; DOCS: Dimensional Obsessive-Compulsive Scale; HAI: Health Anxiety Inventory; HCU: Health Care Utilization Questionnaire; IAT:
Internet Addiction Test; IUS: Intolerance of Uncertainty Scale; IUS-12: Intolerance of Uncertainty Scale – Short Form; MOCI: Maudsley Obsessive-Compulsive Inventory;
mSHAI: Modified Version of the Short Health Anxiety Inventory; PHQ-15: Patient Health Questionnaire; SHAI: Short Health Anxiety Inventory.
32
Table 3. Status of the Mistrust of Medical Professionals (MMP) subscale of the Cyberchondria Severity Scale (CSS).
Article/study Internal Correlations Correlations Correlations between the MMP subscale and Recommendations/suggestions/comments about the
consistency of the between the MMP between the MMP other scales of relevance for validity suitability of the MMP subscale
MMP subscale subscale and other subscale and total
(Cronbach α) CSS subscales CSS score
McElroy & 0.75 -0.04 to 0.23 NR - DASS-21 Total: 0.15 - None.
Shevlin, 2014 - DASS-21 Anxiety: 0.14
[3] - DASS-21 Stress: 0.16
- DASS-21 Depression: 0.09
Fergus, 2014 0.87 -0.01 to 0.27 0.26 - SHAI: 0.21 - It does not assess the same construct as the other 4 CSS
[19] - DOCS: 0.11 subscales.
Norr et al., 2015 NR <0.01 to 0.28 NR - SHAI Thought Intrusion: 0.01 - Consider as a construct distinct from cyberchondria as
[10] - SHAI Fear of Illness: -0.08 measured by the CSS.
- Consider removal from the CSS.
Norr et al., 2015 0.81 NR 0.12† - SHAI: -0.02 - “Future research should attempt to further clarify the
[11] - ASI-3: -0.001 role of the MMP factor with regard to cyberchondria as a
- IUS-12 Prospective: 0.07 construct.”
- IUS-12 Inhibitory: -0.10
McElroy et al., 0.64 -0.16 to 0.26 NR NR - Items from this subscale were excluded from the short
2019 [21**] form of the CSS due to low internal consistency and
nonsignificant and weak correlations with all of the other
four subscales of the CSS.
Newby & 0.81 NR NR NR - Reductions in health anxiety after treatment were partly
McElroy, 2020 mediated by reductions in cyberchondria severity, except
[32**] for scores on the MMP subscale.
Barke et al., 0.89 0.03-0.21 0.34 - mSHAI: 0.13 - It does not seem to be a part of the CSS construct.
2016 [5] – - PHQ-15: 0.10 - Propose to “drop” it from the CSS.
German version - CES-D: 0.11
- HCU: 0.09
Bajcar et al., 0.62 -0.08 to 0.08 0.15 - SHAI Total: 0.08 - Excluded from the cyberchondria model.
2019 [13*] – - SHAI Illness Likelihood: 0.07 - Potentially theoretically related to cyberchondria.
Polish version - SHAI Negative Consequences of Illness: 0.06 - May be considered a “control variable”.
- DOCS Total: 0.07
- DOCS Contamination: 0.02
- DOCS Responsibility: 0.05
- DOCS Unacceptable Thoughts: 0.06
- DOCS Symmetry: 0.08
33
Uzun & Zencir, NR NR NR - DASS-21 Total: 0.09 - “Seems unnecessary to the CSS construct”.
2018 [14] – - DASS-21 Anxiety: 0.14 - Consider removal from the CSS.
Turkish version - DASS-21 Stress: 0.02
- DASS-21 Depression: 0.09
Selvi et al., 0.64 -0.05 to 0.44 0.41 - IAT: -0.07 - None.
2018 [15] – - HAI: 0.01
Turkish version - ASI-3: 0.02
Jokić-Begić et 0.68 NR NR NR - None.
al., 2019 [9] –
Croatian version
NR: Not reported.
† Total CSS score does not include items of the MMP subscale.
ASI-3: Anxiety Sensitivity Index-3; CES-D: Center for Epidemiologic Studies Depression Scale; DASS-21: Depression, Anxiety and Stress Scale – 21-Item Version; DOCS:
Dimensional Obsessive-Compulsive Scale; HAI: Health Anxiety Inventory; HCU: Health Care Utilization Questionnaire; IAT: Internet Addiction Test; IUS-12: Intolerance
of Uncertainty Scale – Short Form; mSHAI: Modified Version of the Short Health Anxiety Inventory; PHQ-15: Patient Health Questionnaire; SHAI: Short Health Anxiety
Inventory.
34
Table 4. Psychometric properties of the shorter/modified versions of the Cyberchondria Severity Scale (CSS) across the studies.
Article/study Correlations Correlations between the CSS Internal consistency Total CSS score correlations with other scales Correlations of the CSS subscales
between the CSS subscales and total CSS score (Cronbach α) with other scales
subscales
CSS-30 NR 0.78-0.88 - Total: 0.96 - SHAI: 0.58 NR
(Fergus, 2014) - DOCS: 0.49
[19]
CSS-30 0.45-0.66 0.78-0.88 - Total: 0.95 - Whiteley Index: 0.62 - Whiteley Index: 0.38-0.65
(Fergus, 2015) - Compulsion: 0.95 - ASI-3-Physical: 0.55 - ASI-3-Physical: 0.33-0.59
[33] - Distress: 0.95 - ASI-3-Cognitive: 0.55 - ASI-3-Cognitive: 0.35-0.53
- Excessiveness: 0.87 - ASI-3-Social: 0.40 - ASI-3-Social: 0.21-0.39
- Reassurance: 0.88 - IUS-12-Inhibitory: 0.47 - IUS-12-Inhibitory: 0.24-0.49
- IUS-12-Prospective: 0.33 - IUS-12-Prospective: 0.17-0.36
CSS-30 0.61-0.78 NR -Total and subscales: NR - SHAI: 0.39-0.60
(Norr et al., 2015) 0.86-0.97 - DOCS-Contamination: 0.33-0.45
[34] - DOCS-Harm Avoidance: 0.36-0.55
- DOCS-Unacceptable Thoughts:
0.28-0.41
- DOCS-Symmetry: 0.29-0.40
- PANAS-NA: 0.23-0.43
CSS-30 NR NR - Total: 0.95 - PIUQ: 0.59 NR
(Fergus & Spada, - Subscales: NR - Whiteley Index - 6: 0.67
2017) [6] - ASI-3-Physical: 0.64
- ASI-3-Cognitive: 0.62
- ASI-3-Social: 0.52
- IUS-12-Inhibitory: 0.52
- IUS-12-Prospective: 0.44
- PANAS-NA: 0.58
- MCQ-HA-U: 0.66
- MCQ-HA-B: 0.58
- MCQ-HA-C: 0.49
CSS-30 NR NR - Total: 0.95 - Whiteley Index - 6: 0.56 NR
(Fergus & Spada, - Subscales: NR - ASI-3-Physical: 0.37
2018) [7] - ASI-3-Cognitive: 0.44
- ASI-3-Social: 0.35
- IUS-12-Inhibitory: 0.31
- IUS-12-Prospective: 0.24
- PANAS-NA: 0.34
35
- MCQ-HA-U: 0.51
- MCQ-HA-B: 0.49
- MCQ-HA-C: 0.32
- BARI: 0.49
- SSQ: 0.33
CSS-30 0.42-0.61 0.73-0.86 - Total: NR - MIHT-Affective: 0.57 - MIHT-Affective: 0.27-0.62
(Fergus & - Subscales: 0.86-0.96 - MIHT-Cognitive: 0.46 - MIHT-Cognitive: 0.22-0.46
Russell, 2016) - MIHT-Perceptual: 0.13 - MIHT-Perceptual: -0.05-0.28
[35] - MIHT-Behavioural: 0.32 - MIHT-Behavioural: 0.15-0.32
- DOCS-Contamination: 0.41 - DOCS-Contamination: 0.22-0.43
- DOCS-Responsibility: 0.44 - DOCS-Responsibility: 0.18-0.48
- DOCS-Thoughts: 0.32 - DOCS-Thoughts: 0.08-0.35
- DOCS-Symmetry: 0.26 - DOCS-Symmetry: 0.14-0.27
- PANAS-NA: 0.31 - PANAS-NA: 0.14-0.30
CSS-30 0.50-0.75 NR - Total: 0.96 NR - SHAI Thought Intrusion: 0.34-0.49
(Mathes et al., - Compulsion: 0.96 - SHAI Fear of Illness: 0.33-0.52
2018) [20] † - Distress: 0.95 - WHOQOL-Physical Health:
- Excessiveness: 0.87 -0.24 to -0.17
- Reassurance: 0.85 - WHOQOL-Psychological Health:
-0.24 to -0.10
- WHOQOL-Social Relationships:
-0.20 to -0.05
- WHOQOL-Environment:
-0.22 to -0.10
- SDS Occupational Functioning:
0.42-0.70
- SDS Social Functioning: 0.41-0.70
- SDS Family Functioning: 0.45-0.73
- Physical Health Care Utilisation:
0.19-0.33
- Mental Health Care Utilisation:
0.11-0.25
CSS-30 0.64-0.71 0.82-0.89 -Total and subscales: - SHAI: 0.58 - SHAI: 0.43-0.55
(Gibler et al., 0.83-0.96 - PCS Total: 0.52 - PCS Total: 0.38-0.50
2019) [36] - PANAS-NA: 0.44 - PANAS-NA: 0.30-0.43
CSS-30 – Polish NR 0.80-0.90 - Total: 0.95 - SHAI Total: 0.56 NR
version - Subscales: NR - SHAI Illness Likelihood: 0.52
- SHAI Negative Consequences of Illness: 0.33
36
† The factor structure of the 30-item version of the CSS (Mathes et al., 2018) comprised 4 factors/subscales identified by means of confirmatory factor analysis: 1)
Compulsion; 2) Distress; 3) Excessiveness; 4) Reassurance. However, bifactor modelling with General Cyberchondria factor and Specific factors was the best-fitting model.
†† The factor structure of the 30-item version of the CSS (Bajcar et al., 2019) comprised 4 factors/subscales identified by means of confirmatory factor analysis: 1)
Compulsion; 2) Distress; 3) Excessiveness; 4) Reassurance.
††† The factor structure of the CSS-15 comprised 5 factors/subscales identified by means of confirmatory factor analysis: 1) Compulsion; 2) Distress; 3) Excessiveness; 4)
Reassurance; 5) Mistrust of Medical Professionals.
37
††††† The factor structure of the CSS-12 comprised 4 factors/subscales identified by means of exploratory factor analysis: 1) Compulsion; 2) Distress; 3) Excessiveness; 4)
Reassurance.
CSS-30: 30-item version of the Cyberchondria Severity Scale; CSS-15: 15-item version of the Cyberchondria Severity Scale; CSS-15-Revised: 15-item version (CSS-15) of
the Cyberchondria Severity Scale modified to a 12-item version; CSS-12: 12-item version of the Cyberchondria Severity Scale.
ASI-3: Anxiety Sensitivity Index-3; BARI: Beliefs about Rituals Inventory; BFI-2-XS-N: Big Five Inventory-2-Extra Short Neuroticism Scale; CES-D: Center for
Epidemiologic Studies Depression Scale; DOCS: Dimensional Obsessive-Compulsive Scale; GAD-7: Generalized Anxiety Disorder 7-Item Scale; IUS-12: Intolerance of
Uncertainty Scale – Short Form; MCQ-HA-B: Metacognitions Questionnaire – Health Anxiety – Biased Thinking; MCQ-HA-C: Metacognitions Questionnaire – Health
Anxiety – Thoughts Can Cause Illness; MCQ-HA-U: Metacognitions Questionnaire – Health Anxiety – Thoughts Are Uncontrollable; MIHT: Multidimensional Inventory of
Hypochondriacal Traits; mSHAI: Modified Version of the Short Health Anxiety Inventory; PANAS-NA: Positive and Negative Affect Schedule – Negative Affect; PCS:
Pain Catastrophizing Scale; PHQ-15: Patient Health Questionnaire; PIUQ: Problematic Internet Use Questionnaire; RSES: Rosenberg Self-Esteem Scale; SDS: Sheehan
Disability Scale; SHAI: Short Health Anxiety Inventory; SSQ: Stop Signals Questionnaire; WHOQOL: World Health Organisation Quality of Life Assessment.
38
Table 5. Cyberchondria scales other than the Cyberchondria Severity Scale and its modifications.
Scale Country of Number Response Cut-off point and/or scoring Factor structure (identification of Internal consistency (Cronbach α) Correlations with other
origin of items format details factors/subscales) scales
CS [8] Turkey 27 5-point NR Exploratory factor analysis and - Total: 0.93 Total score correlations:
confirmatory factor analysis: - Anxiety-Increasing Factors: 0.88 - INAS: 0.43 (subscale
1. Anxiety-Increasing Factors - Compulsion/Hypochondria: 0.83 correlations: 0.25-0.44)
2. Compulsion/Hypochondria - Anxiety-Reducing Factors: 0.80 - HAI: 0.53 (subscale
3. Anxiety-Reducing Factors - Physician-Patient Interaction: 0.80 correlations: 0.23-0.64)
4. Physician-Patient Interaction - Non-Functional Internet Usage: 0.84 - BSI: 0.33 (subscale
5. Non-Functional Internet Usage correlations: 0.10-0.41)
SCS Croatia 4 5-point NR Exploratory factor analysis and - 0.73 - CSS: NR
[9] confirmatory factor analysis: - HAQ: 0.48*; 0.53*
One factor/dimension - ASI: 0.35*; 0.51*
BCS Puerto 10 5-point 0-7: Minimal symptoms Exploratory factor analysis: - Total: 0.92 Total score correlations:
[29] Rico/USA 8-13: Mild symptoms 1. Online Health Information Search - Subscales: NR - IAS: 0.68
14-24: Moderate symptoms 2. Health Anxiety - GAD-7: 0.43
25-40: Severe symptoms
CTS Turkey 30 5-point 30-60: Low level of cyber- Exploratory factor analysis and - Total: 0.94 NR
[30] chondria tendencies (CT) confirmatory factor analysis: - Reflection: 0.94
60-90: Moderate level of CT 1. Reflection - Information seeking: 0.87
90-120: High level of CT 2. Information Seeking
NR: Not reported.
* These correlations were based on the longer (7-item) version of the Short Cyberchondria Scale.
BCS: Brief Cyberchondria Scale; CS: Cyberchondria Scale; CTS: Cyberchondria Tendency Scale; SCS: Short Cyberchondria Scale.
ASI: Anxiety Sensitivity Index; BSI: Brief Symptom Inventory; CSS: Cyberchondria Severity Scale; GAD-7: Generalized Anxiety Disorder 7-Item Scale; HAI: Health
Anxiety Inventory; HAQ: Health Anxiety Questionnaire; IAS: Illness Anxiety Scale; INAS: Internet Addiction Scale.
39