Dmntia Guide House Buying

Dementia-friendly
housing guide
Guidance on delivering a dementia-friendly
approach to housing: from planning and
design, to management and adapting
B Dementia-friendly housing guide
Document purpose
To inform housing organisations, corporate bodies and sector professionals on how
housing, its design and supporting services can help improve and maintain the wellbeing
of people affected by dementia.
Title
Dementia-friendly housing guide
Guidance on delivering a dementia-friendly approach to housing: from planning
and design to management and adapting
Publication date
Originally published March 2017
Version number
3 (updated March 2020)
Target audience
Housing providers, planners, architects, builders, surveyors, landlords, occupational
therapists, home improvement agencies, property maintenance companies, building
control, telecare providers, property developers.
Acknowledgements
Members of the Prime Ministers’ Champions’ Group for housing, Alzheimer’s Society,
Housing 21, Anchor Hanover, ARCO, Care & Repair England, The Guinness Partnership,
Pozzoni, Housing LIN, Keepmoat, McCarthy & Stone, Members of the Dementia & Housing
Working Group, National Housing Federation, Royal Town Planning Institute, Tunstall,
Your Life, Causeway Service User Review Panel (SURP), Chichester Positive thinkers,
League of Minds, North Somerset Living With Dementia Group, South Eastern/Belfast
SURP group, Notting Hill Genesis, Pentan Architects, Together Housing, Thorngate Living,
The ExtraCare Charitable Trust, The Dementia Friendly London Group, The University
of Worcester, Walker Simpson Architects, RDT Architects, BRE, Hyndburn Homewise,
Worcestershire District Council, Motionspot.
Authors
Bruce Moore, Vanessa Pritchard-Wilkes, Sara Miles, Robyn Sweeney,
Alice Billin, Emma Bould.
Stakeholder endorsements
Jeremy Porteus, Housing LIN; Damian Utton, Pozzoni Architecture;
Ali Rogan, Hornsey Consulting; Paul Broadbemt, Keepmoat;
Simon Evans, Association for Dementia Studies and the Housing and
Dementia Research Consortium; Sue Adams, Care and Repair England;
Trudi Elliot, Royal Town Planning Institute; Ruth Eley, Life Story Network.
Contact
Publisher Alzheimer’s Society Programme
© Alzheimer’s Society 2020. All rights reserved. No part of this work Partnerships team at
may be reproduced, downloaded, transmitted or stored in any medium programmepartnership@
without written permission of the publisher, except for personal or alzheimers.org.uk
educational use. Commercial use is prohibited.
This report uses the term ‘people affected by dementia’ to include people with dementia and
Web
those important to them, which may include friends or family members (including family carers). alzheimers.org.uk/housingcharter
1
Contents
Foreword by Kate Lee 2
Foreword by Bruce Moore 2
Introduction 3
The scale of the challenge 4
Why do we need the housing sector to be more dementia friendly? 8
Key issues for the housing sector 10
People: Supporting staff, residents and customers affected by dementia 12

Key actions 13
Dementia Friends 14
Additional training 16
Supporting everyone affected by dementia 18
Supporting staff affected by dementia 19
Process: Communication, signposting and the local community 20

Key actions 21
Audit of processes, procedures and support mechanisms 22
Communicating with people with dementia 23
Signposting to information 24
‘Tell me once’ policies 27
Dementia Friendly Communities 28
Working with local partners 29
Safeguarding and managing risk 30
Walking around 31
Place: The physical environment 34

Key actions 35
Building regulations and best practice for accessible design 36
Physical environment checklist 38
Funding the cost of adaptations 44
Adaptations and assistive technology 46
Further steps 47
The benefits of becoming more dementia friendly 48

Useful resources 50
Useful organisations 51
References 52
2 Dementia-friendly housing guide
Forewords
Dementia is the UK’s biggest killer and Dementia and other conditions pose
is a challenge that all areas of the challenges for the housing sector.
housing sector can contribute to This includes housing associations,
fighting. From planners to builders owner occupiers and the private rented
and homecare providers to housing sector, as well as organisations
with care, everyone has a part to play. responsible for the design and
construction of new housing and for
We want to see an increased number of people
with dementia being able to live longer in their
making adaptations to existing housing.
own homes when it is in their interests to do so,
with a greater focus on independent living. This Awareness and understanding of dementia is
will only be achieved with greater support in increasing, which is leading to a wealth of
people’s own homes from trained professionals information, knowledge and resources on how to
and by improving the homes that people live in to improve the wellbeing of people affected by
ensure they are adaptable as circumstances and dementia. This presents an ideal opportunity for
needs change. everyone in housing to play their part and plan,
develop and manage housing which helps maintain
At Alzheimer’s Society, we believe that life doesn’t the wellbeing and independence of people living
end when dementia begins. Designing more with dementia and their carers.
dementia-friendly housing or becoming a more
dementia-friendly housing provider means being We hope that your organisations will commit to
able to help people stay in the setting of their making a positive difference to enable people
choice for as long as possible. living with dementia to live in housing that is
appropriate to their needs.
By developing an understanding of the condition,
organisations in the housing sector can make a
huge difference to people living with dementia
and their quality of life.
Kate Lee Bruce Moore

Chief Executive Chief Executive
Alzheimer’s Society Housing 21
Guidance on delivering a dementia-friendly approach to housing 3
Introduction
People with dementia face a range of challenges. These may include memory loss
or difficulty communicating, mobility and navigation issues and other associated
problems. Across every part of the housing and built environment sector,
organisations can make a valuable contribution to supporting people with dementia
facing these challenges to continue to live well in their own homes and community.
There is an increased need and demand for

suitable housing for older people, including those
living with dementia. This dementia-friendly
housing guide seeks to make the housing sector Dementia-friendly actions
aware of the challenges of living with dementia
so that all projects consider ways of minimising The guide outlines a number of
risks and enhancing wellbeing for people living dementia-friendly actions to inform
with dementia. your work in becoming more dementia
friendly. Every individual and organisation
The guide is aimed at the full range of working in the housing sector can make
professionals working in the housing sector, a difference to the lives of people living
from planners and architects to landlords and with dementia by committing to become
developers, housing managers and handypersons. more dementia friendly in three key areas:
It is designed to encourage the creation of
dementia-friendly environments, help all
professionals support people living with dementia
in their homes and facilitate consistency and good People
practice. Organisations are urged to improve Supporting staff,
existing action plans or develop new ones in order residents and customers
to future-proof their organisations and services. affected by dementia
See page 12
This dementia-friendly housing guide contains
dementia-friendly actions that we encourage
organisations to commit to. These actions can
have a huge impact on the lives of people affected
Processes
by dementia.
Communication,
signposting and
the local community
See page 20
Places
‘We want to see an increased number
of people with dementia being able to The physical environment
See page 34
live longer in their own homes when it
is in their interests to do so, with a
greater focus on independent living.’
4
The scale of
the challenge
Dementia affects large numbers of people,
so it’s likely you’ll regularly come into contact
with people living with or caring for someone
with the condition.
The following numbers show how many people are affected.
850k+
Over 850,000 people are living with dementia in Dementia is one of the leading causes of death
the UK. There will be 1 million in 2025 (CPEC, 2019) in England and Wales – the only one we cannot
cure, prevent or slow down (ONS, 2018)
42k+ 1.8 million

Over 42,000 people under the age of 65 There are 1.8 million carers of people
are living with dementia with dementia (CEBR, 2019)
80+
1 in 6 people over the age of 80 have dementia 225,000 people will develop dementia this year
(that’s one person every three minutes)
60+ £26 billion

Alzheimer’s disease is the biggest The cost of dementia is £26 billion per year
concern among people aged over 60 (based on 2013 cost data)
(Alzheimer’s Society, 2015)
The statistics above are from Alzheimer’s Society, 2014, unless specified otherwise.
What is dementia?
The word ‘dementia’ describes a group of
symptoms that may include memory loss,
difficulties with thinking, problem-solving
or language, and often changes in mood,
perception or behaviour.
These changes are usually small to begin with,

but for someone with dementia they can quickly
begin to have an effect on daily life. Everyone experiences dementia
differently. Some symptoms a person
Dementia occurs when the brain is damaged with dementia might experience include:
by diseases, such as Alzheimer’s disease or a
series of strokes. It is not a natural part of the ■ M
emory loss – this will include problems
ageing process. recalling things that happened recently
(such as what they had for breakfast) and
Dementia is not just about memory loss – it may lead to asking the same question
is a very multi-faceted condition. Some of the over and over. Longer term memories will
symptoms of dementia are also symptoms of also be affected as dementia progresses.
other conditions, disabilities and impairments.
Supporting people with dementia can therefore ■ D
ifficulty thinking things through and
also help you to support people with a range planning – for instance, struggling with
of conditions. problem solving, grasping new ideas or
following a series of steps. A person might
also have problems with familiar everyday
tasks such as managing bank accounts
or paying bills.
■ P
roblems with language – difficulty
finding the right word or struggling to
follow a conversation.
■ B
eing confused about time or place –
losing track of the time or date or getting
lost even in familiar places, such as their
own home or community.
■ D
ifficulties with sight and perception –
problems judging distances (for example,
on stairs), seeing objects in 3D or
misinterpreting things in the environment
(such as patterns and reflections).
■ C
hanges in mood or difficulties controlling
‘When you’ve met one person with emotions – becoming unusually anxious,
dementia, you’ve met one person sad, frightened, more easily annoyed,
with dementia’ or losing interest in things and becoming
withdrawn.
Professor Tom Kitwood

7
Living well with dementia

It is possible to live well with dementia. A person who has
dementia can often continue to enjoy their hobbies, daily
activities, friendships and relationships. As their condition
progresses, they may need adjustments or extra support
with these things. Everyone can play a part in supporting a
person with dementia to live well and remain independent
for as long as possible.
Why do we need the

housing sector to be more
dementia friendly?
We want people with dementia to continue living in their own homes for as
long as possible. The housing sector needs to step up to the challenge to
help support people with dementia.
5%
Two-thirds of people with dementia live in the There is only enough specialist housing to
community, mostly in mainstream housing. accommodate 5% of the over 65 population.
A third live on their own, predominantly in the (Joseph Rowntree Foundation, 2012)
owner-occupied sector. (Alzheimer’s Society, 2012)
93%
93% of homes lack even basic accessibility By 2040, a third of people aged 60+ could
features. (APPG on Dementia, 2019) be living in private rented accommodation.
(Centre for Ageing Better, 2017)
90% 25%
Home adaptations improved the quality of life eople with dementia occupy 25% of general
P
for 90% of recipients and can reduce falls by 26%. hospital beds. Housing organisations play a role
(Heywood, F. and T. Lynn, 2007) in supporting people with dementia to live well
in their own homes. (Alzheimer’s Society, 2016)
9
What have people with dementia told us?

We asked people with dementia what difficulties ■ onsidering dementia-friendly design features
C
they have in relation to housing and what actions can help people to continue living in their own
they would like the housing sector to take. homes. For example, the importance of wet
We’ll explore these ideas throughout the guide. rooms, step-free access, open plan layouts,
People affected by dementia told us that the dementia-friendly signage and considering the
issues they most wanted the housing sector to possible need for another room for a carer or
focus on are: another member of the family.
■ S
upport with difficulties recognising familiar ■ A
ccessibility to the local community and
places, objects or people which can mean they amenities is key, to alleviate the risk of social
struggle to identify their house. They need to be isolation, loneliness and boredom. Within
able to distinguish it from others with an item, housing complexes, wellbeing areas and
familiar symbol or colour. meeting rooms can facilitate social connections.
■ D
ementia awareness training for housing staff ■ echnology can support independence,
T
and planners, to enable them to support people from reminder alarms when cooking or to
with dementia who may become distressed, be take medication, to movement sensors and
unable to retain information about services, or automatic lights.
have challenges with communication.
Importantly, housing should meet people’s needs
■ P
eople with dementia may leave the house and be adaptable as their dementia progresses
and walk for a long period of time and become and these needs change.
disorientated. They may become lost or are
unable to find their way which can lead to other The range of issues identified above shows
issues, such as dehydration and exhaustion. the necessity for all housing professionals to
Having dementia-friendly staff and a wider influence and create a better living environment
community who understand can help. for people with dementia, at all stages and
aspects of housing. Hearing directly from people
■ C
lear and appropriate signage – such as doors with dementia highlights the scale of this issue.
labelled with pictures of the room’s use, signs However, their insight also shows how sometimes
on cupboard doors of what items are inside and small changes can make a significant difference.
‘hot’ and ‘cold’ written on taps.
Key issues for the

housing sector
People
There is a lack of Those working in Staff members
understanding the design and may develop
by staff of the construction of dementia or need
different needs new housing lack to care for a loved
of people with awareness of how one with dementia
dementia and to create more and there may not
associated stigma. dementia-friendly be appropriate
housing. processes and
policies available
to support them.
Process
Processes and Staff do not People with
systems are not understand dementia may
appropriately where to access lack capacity
designed and specialist advice to maintain a
are not dementia and information tenancy.
friendly. or there is
incomplete
and unclear
information
available.
Place
The built There is a lack People living in
environment of appropriate their own homes
raises a number adaptations in may need support
of challenges for properties to to ensure that
people affected provide a more their home is safe
by dementia and dementia-friendly and suitable and is
housing is not environment. adapted to meet
being designed or their needs.
built to address
these challenges.
Who is the guide for?

All areas of the housing sector have a ■ A
rchitects, planners, builders, developers and
responsibility to support people affected by surveyors who are responsible for implementing
dementia to live happier, healthier and more dementia-friendly design into their work
independent lives, regardless of how much
direct contact they have with people affected The guide can also be used to influence policy and
by dementia. It is not only the responsibility of decision-making by the following bodies in regards
specialist supported housing providers but to their work within the housing sector:
organisations and individuals throughout the
whole lifecycle of housing: designing, building, ■ ocal authorities and commissioning bodies
L
managing and adapting. This includes: ■ Adult social care services
■ Clinical commissioning groups
■ S
upport workers, scheme managers and (primary care services)
occupational therapists who directly support ■ NHS hospital trusts (acute health services)
people affected by dementia ■ Other local networks, organisations and partners
■ Regulators and funders
■ state agents, landlords, housing associations
E
and housing managers whose residents or The following services are not considered within
customers may be living with dementia and the scope of this guide: care homes, hospices,
may require additional support independent homecare organisations (other than
those delivering care in specialist housing).
■ Home improvement agencies and handypersons
who will have access to and carry out
maintenance and improvements in properties
where people affected by dementia live
Importance of
dementia-friendly landlords
and estate agents
Importance of designing
dementia-friendly Older households make up 13% of the private
rented sector, which has almost doubled from
mainstream housing 2007 (Government Office for Science, 2016).
It is estimated that by 2040, a third of people
Only 7% of older people live in specialist aged over 65 could be living in private rented
housing (Government Office for Science, 2016). accommodation (University of York, 2015).
Therefore, while making specialist housing
more dementia friendly is important, this is This is a huge potential customer base whose
only a small part of the problem. Two-thirds independent living landlords and estate agents
of people with dementia live in mainstream can help to support by being more dementia
housing so ensuring mainstream housing is friendly. As well as this, the older people that are
dementia friendly will have a larger and longer- currently renting are likely to have lived at their
lasting impact. current private rented accommodation for an
average of 17 years, meaning they are a reliable
customer base that needs supporting (ONS 2018).
12
People:
Supporting staff,
residents and
customers affected
by dementia
People
Raising awareness of dementia, including how it might affect people and how
employees can support staff, residents and customers who are affected, will
create a more person-focused environment. Staff in all areas of housing should
have a good understanding of dementia. Considerations include how to interact
with, communicate with and support people.
The breadth and depth of knowledge and skills by dementia. For example, if more architects
needed by the workforce depends on how closely understood more about dementia, we would
they work with people who may have dementia, see an improved understanding about the
the nature of the organisation they work for, their importance of engaging in dementia-friendly
particular role in it and the customer base. design.
Your colleagues should improve their awareness Staff should also be attentive to the needs of
about dementia regardless of whether they family carers and others who support people
have regular direct contact with people affected with dementia on an unpaid basis.
Key actions
■ ll staff to become Dementia Friends:
A
www.dementiafriends.org.uk
Appoint a senior-level Dementia

■
Friends Champion
Additional training for staff who regularly

■
interact with people affected by dementia
or need additional knowledge about
accessible design
Ensure staff are aware of advice and

■
advocacy services
Ensure HR policies are supportive of

■
staff living with or caring for someone
with dementia
Dementia Friends
Alzheimer’s Society’s Dementia Friends To ensure Dementia Friends is sustainable, it needs to
programme is the biggest ever initiative to change be embedded within organisational procedures, such
people’s perceptions of dementia. It aims to as employee inductions and refresher training.
transform the way people think, act and talk
about the condition. To find out more information about Dementia
Friends or register your organisation go to
Anyone, at any level of an organisation, can dementiafriends.org.uk/orginfo.
become a Dementia Friend. As more people
become Dementia Friends, more people with This gives you access to a dashboard to access
dementia will feel understood and supported in resources such as videos and to view how many of
their communities. your employees have become Dementia Friends.
Dementia Friends is incredibly easy to embed into For larger Dementia Friends rollouts,
an organisation and is completely free – you can organisations can also use face-to-face
become a Dementia Friend in just ten minutes by presentations and e-learning modules.
watching our Dementia Friends online videos.
If you are interested in rolling out
Dementia Friends for your staff and
members please contact:
[email protected]
Think about
■ im for 60% or more of all staff to become
A
Dementia Friends.
■ nsure that all resident- and customer-facing

E
staff become Dementia Friends by embedding it
in inductions and refresher training or elearning.
■ on’t just stop with your staff! Include external

D
contractors, volunteers and board members.
■ ometimes there can be negative reactions

S
from residents and/or communities towards
people living with dementia. Increase awareness
and reduce this stigma by rolling out Dementia
Friends to residents and the wider community.
Dementia Friends case studies
Housing 21 Notting Hill Genesis

Housing 21, a not-for-profit provider of Retirement Notting Hill Genesis (NHG), one of the largest
Housing and Extra Care for older people, has housing associations in London and the
rolled out Dementia Friends for their staff, South-East, has found how running Dementia
residents and contractors. Friend sessions has improved their relationship
with their residents. One resident involvement
All staff receive a Dementia Friends session officer noted how few residents would attend
as part of their induction and can then access their resident meetings, so she decided to
further training. To ensure that all staff work in arrange some Dementia Friends sessions during
a way to support people living with dementia, all Dementia Action Week. She created invitations
contractors are required to become a Dementia to the local residents and they found they had
Friend prior to working at any of their housing four times as many people attend the sessions
schemes. The requirement to commit to the as usual.
Dementia Friends initiative is also written into the
procurement process. ‘When it was over the residents stayed talking
to one another,’ she reported, ‘sharing stories of
Housing 21 have a target for 50% of their residents caring for family members living with dementia.
– that’s 10,000 people – to become Dementia People who had lived near one another, but had
Friends by 2022. Colleagues are also encouraged never talked, had something in common and
to create Dementia Friends in their local became friends.’
community within their normal working hours.
NHG have found that this has helped them to
build a community: ‘Since then we have residents
Pentan Architects engaging with us more, they say they can relate to
us more. We are no longer a faceless organisation.
Pentan Architects, an architecture firm based in They say they see us as people too and they are
Cardiff, goes beyond their direct workforce and more open to report housing issues.’
educates their contractors about dementia.
Contractors need their work to be cost effective

but Pentan believes that it is important
for contractors to understand more about
dementia to help them understand why certain ‘Since the Dementia Friends session we
decisions are taken. For example, matte tiles
are sometimes deliberately chosen over glossy have residents engaging with us more,
tiles because glossy tiles can cause confusion they say they can relate to us more. We
and look wet to a person with dementia who has are no longer a faceless organisation.’
perception difficulties. If contractors understand
this, it is easier to have them on board with the
architects’ decisions. Notting Hill Genesis
Additional training
Further dementia awareness training is Training is important to ensure that staff are
available through Alzheimer’s Society and equipped to support residents and customers
other organisations, for Continued Professional who are affected by dementia and for design and
Development (CPD) accredited courses and architecture firms to improve their understanding
qualifications. These can be tailored to your about dementia-friendly and accessible design.
industry or employee groups. We recommend that Organisations could consider how to embed
any community-facing employees take part in the dementia awareness within existing staff training
Dementia Friends programme as well as further and e-learning packages.
training appropriate to their specific role. These
courses can be a great tool for increasing staff To find out more contact
understanding of dementia. [email protected]
Additional training case studies
McCarthy and Stone Housing 21

McCarthy and Stone, a developer and manager of Everyone can access Dementia Awareness
retirement communities, have recently improved Training in Housing 21 and for the majority of
their dementia training for their workforce across roles a dementia session (from Awareness to
the business. Their Virtual Dementia Tour was Intermediate) forms part of their expected
licensed for McCarthy and Stone and has been learning pathways. Their internally designed
adopted to the program to ensure everyone sessions have been informed by Skills for Care
has access to the training, including care staff, Standards and the Dementia Core Skills Training
customer services, sales teams and directors Framework and their Housing Products have
across the regions. The training allows colleagues been recognised by the Chartered Institute for
to open up and discuss how they can improve Housing. Across all roles, dementia training plays
practice in their job roles. an important role in enabling all of their people to
connect with the unique and diverse people they
They have also ensured the training is relevant provide housing and care to.
to each person’s job role: with their care teams
they make sure the conversation is around
improving a person’s quality of life through their
everyday engagements, whereas with customer
services and executive boards they shape the
conversation around what initiatives can be ‘Dementia training plays an important
put into place to ensure they are improving the
persons quality of life, whether they are living with
role in enabling all of their people
or affected by dementia. to connect with the unique and
diverse people they provide housing
and care to.’
Housing 21
17
Think about
■ ementia training plays an important role in
D ■ ey staff groups should have awareness about
K
enabling all of your people to connect with the Mental Capacity and Deprivation of Liberty
unique and diverse people they provide housing Legislation including Lasting Powers of Attorney.
and care to. This will develop staff’s ability to People with dementia may lack capacity to
communicate more effectively and operate maintain a tenancy and staff may be able to
within a legal framework. identify a decreasing lack of capacity in existing
residents and customers. Organisations
■ dditional training is especially important for
A should be aware that Deprivation of Liberty
front line staff who need to be able to identify Legislation is due to change as of October 2020
the signs of dementia and know how to seek to apply to all settings, rather than just hospitals
support for early diagnosis as appropriate. and care homes.
■ Increase staff awareness to identify the signs

of social isolation or loneliness and take action.
Supporting everyone affected by dementia

LGBT+ communities BAME communities
For people in the lesbian, gay, bisexual and People affected by dementia who are part
transgender (LGBT+) community, living with of Black, Asian or Minority Ethnic (BAME)
dementia can be additionally stressful. LGBT+ communities may also face additional challenges.
people may be less likely to have family members There are nearly 25,000 people with dementia
and children who can support them as they deal from BAME communities in England and Wales
with dementia and might also be more likely to (APPG on Dementia, 2013). Some people with
live on their own and be single than heterosexual dementia from BAME groups will be overseas-
people. Even with a ‘family of choice’, LGBT+ born. As people with dementia begin to rely more
people often have an increased need to use on their longer-term memories, distress can be
social care services for support and help as their caused by remembering experiences of hostility
disease progresses. Many fear that mainstream and racism from earlier in their lives. Some people
care services will not be willing or are not able to may also revert back to their native language,
understand how to meet their needs. so where possible information should be made
available in a variety of languages or translators
made available. It’s important to note that
everyone’s experiences are different and to bear
this in mind during reminiscence work.
Supporting everyone
affected by dementia
Think about case study
■ rganisations should take a person-
O
centred approach to their residents, The Guinness Partnership
customers and end users and be
sensitive to needs. The Guinness Partnership, one of the largest
providers of affordable housing and care in
■ rovide additional training for staff
P England, have partnered with LGBT Foundation
to understand the nuanced issues. to ensure the continuation and roll out of their
innovative Bring Dementia Out programme.
■ nsure your organisation has a zero
E This programme was designed and developed
tolerance policy to discrimination by the LGBT Foundation together with partners
of any kind, including in your other including Alzheimer’s Society, National Dementia
residents. Action Alliance, the National LGB&T Partnership
and Switchboard. Guinness want to build stronger
■ nvironments should be as inclusive
E relationships with LGBT+ customers and ensure
as possible – consider including their needs are met and so are delighted to be
multifaith rooms pointed to mecca lead funder for the roll out of the Bring Dementia
and inviting local faith services in to Out programme around England.
accommodate for different religions
and cultures. Find out more at
lgbt.foundation/bringdementiaout
Supporting staff affected by dementia

It is important for housing organisations to be Review your staff policies:
equipped to support any employees who are
affected by dementia. Reasonable adjustments ■ eview HR policies and procedures to ensure
R
should be made to enable them to continue to they are supportive of people who develop
work for as long as they can: dementia or have caring responsibilities,
tailoring the support to the individual.
■ iscuss the variety of options to support the
D
person to stay in work ■ reate a Carers’ Policy or a paid carers’
C
leave scheme, as well as advertising existing
■ djustments could be made, such as switching
A policies, for example flexible or special leave
roles or changing working hours arrangements.
■ Encourage and champion flexible working ■ rovide support for carers to manage their
P
own health. This could include online tools and
■ ake use of memory aids, clear signage and
M training and the use of occupational health
quiet areas (see the physical environment assessments, as well as access to counselling
check list on page 38 for more details on making or employee assistance programmes.
the workplace more dementia friendly)
■ raining for managers to support them to
T
■ nsure that staff know who to contact in their
E understand some of the difficulties that caring
organisation for greater support may involve and help them overcome their
own concerns about managing employees with
caring responsibilities.
■ evelop an internal support network, a

D
workplace network or support group offering
18% of people diagnosed the opportunity to link with other employees
with dementia under the in a similar situation to exchange experiences.
age of 65 continue to work
■ ignpost to external information, relevant
S
sources of information and support on
dementia available internally or externally.
Nearly 1 in 9 employees
in the UK have a caring For more information and guidance
responsibility on supporting your employees
affected by dementia please see
our Dementia Friendly Business Guide
at alzheimers.org.uk/business
1 in 5 people with
dementia are unable
to find or stay in work
Rolling out Dementia Friends
across your organisation will
Nearly 1 in 10 of people help to create an environment
with dementia report where your staff feel supported
discrimination at work and understood.
20
Process:
Communication,
signposting and the
local community
Process
Processes should be designed to reduce barriers, all policies should be
dementia friendly and your organisation should signpost clearly to support
for people affected by dementia.
This includes housing systems and infrastructure Dementia-friendly processes should support
used in all housing settings, planning, design residents, customers and employees affected
and development, and housing-related services by dementia.
such as repairs, maintenance, adaptations
and management.
Key actions
■ udit your existing processes,
A
procedures and support mechanisms
to ensure all your products can meet
the needs of people affected by
dementia using the auditing tool on
the next page.
■ I mprove your communication with

people affected by dementia to
increase your staff’s understanding
of how best to communicate with
people with dementia and develop
policies that helps individuals
communicate freely and openly.
■ ignpost to key local services for

S
residents, customers and staff.
■ upport your local community.

S
Work with local organisations
and become part of your local
Dementia Friendly Community:
alzheimers.org.uk/
dementiafriendlycommunities
Audit of processes, procedures

and support mechanisms
Organisations should review current processes Are assistance aids available (for example,
and systems and identify and make possible magnifying glasses and screen readers)?
changes. The list below provides a guide to the
areas of an organisation which should be audited, Are the needs of people affected by
and the considerations to keep in mind. dementia considered in the development
of services?
Strategy
Is supporting residents, customers or
employees affected by dementia included Processes and procedures
within your organisation’s aims, ethos Do you have a well advertised feedback
or objectives? mechanism that people with dementia,
their family, friends and carers can use?
Do you have a vulnerable customers’
strategy or team? How are complaints that are made by people
affected by dementia recorded or logged to
How does dementia fit in to your vulnerable understand their issues or concerns?
customers’ strategy or policy?
Do you have an efficient method of
How are the needs of people with dementia recording the preferences of people
considered when making business with dementia, such as how they prefer
change decisions, such as renovations to be contacted?
or altering services?
Support mechanisms
Do residents, customers or end users have Support
an opportunity to inform staff about their
dementia and do they know that they can mechanisms
do this? case study
Are employees aware of, and do they
understand, flags and markers that Together Housing
somebody may have dementia or
be vulnerable? Together Housing are a housing
association managing over 36,000
Are residents or customers asked if homes across Yorkshire and Lancashire.
they require support? They have developed a dementia pathway
which assists individuals wanting to
move into their accommodation or those
Services already living there to ensure that support
Are services suitable for people living is provided to access any help that they
with dementia? may need. They also encourage the use
of all aspects of telecare/telehealth to
How could adaptations be made to assist and support.
support people with dementia?
Is written information clear and in an easy-

to-read font on products or instructions?
Communicating with people with dementia

Communication can be challenging for people ■ on’t talk about the person as if they are not
D
with dementia. For example, they might find it there or talk to them as you would to a young
difficult to find the words they want to use, have child. Be patient and have respect for them.
difficulty reading information or may need more
time to process what someone is saying to them. ■ ry to avoid asking too many or complicated
T
questions.
■ ry to make sure the environment is as quiet
T
as possible, reduce distractions or take the ■ ake time to explain what support you can
T
person somewhere quiet to talk. provide and what you would like the person
to do to reassure and support the resident
■ Speak clearly and calmly. or customer.
■ peak at a slightly slower pace and allow time

S ■ reak down actions into small segments,
B
between sentences for the person to process offering encouragement.
information and respond.
■ If the person doesn’t understand what you are
■ tand or sit where the person can see and hear
S saying, rephrase it rather than just repeating it.
you as clearly as possible. Try to be at eye-level
with them, rather than standing over them. ■ heck if the person has any other conditions
C
that may impact how they communicate.
■ se short, simple sentences with clear
U For example, if they have hearing loss and use
instructions. a hearing aid, check that it is on and working.
■ ry to find a common ground – this could be

T
mentioning a family member or friend
(if appropriate) or finding out a bit about the
Talking about people person to initiate conversation.
with dementia
People with dementia are individuals first
and their diagnosis should not be treated as
the defining aspect of their life. The following
terms and phrases are preferred when
talking about a person with dementia:
■ A person/people with dementia
■ A person/people living with dementia Written information for

■ person/people with a diagnosis
A
people with dementia
of dementia Written information can be helpful for people
with dementia as a permanent record of
■ A person/people affected by dementia an event or conversation which can be
re-read as many times as needed and shared
Terms such as ‘sufferer’, ‘victim’ and ‘patient’ with relevant people. This can help reduce
should not be used to describe people with anxiety and be a memory prompt. Flag this
dementia. They are disempowering as they information on their account so that all
make people with dementia seem passive, colleagues know how best to contact them.
childlike or worthy of pity.
Signposting to information
The support that is available for residents, ■ ocal specialists for local advice and support,
L
customers and staff should be well- such as Occupational Therapists to support
communicated across all levels of the business. wellbeing in the home
Ensure staff are aware of services locally that
they can signpost residents and customers Use Alzheimer’s Society’s Dementia
affected by dementia to, including: Directory to find local support services
for people with dementia and their carers
■ dvice and advocacy services, for example
A in England, Wales and Northern Ireland
Citizens Advice alzheimers.org.uk/find-support-near-you
■ upport services for help and advice for unpaid

S Organisations should also work with other
carers through the local authority or specialist agencies who come into contact with people
local carers organisations with dementia to share learning and improve
responses, such as Alzheimer’s Society, Age UK,
■ elevant organisations, groups and activities
R Dementia UK and AT Dementia. Make links with
in the local area, such as for care and support other local services to ensure people with long
at home term health conditions are able to access the
correct support.
■ uidance concerned with physical and sensory
G
impairments (See RNIB, 2016)
Dementia Connect
Dementia Connect, from Alzheimer’s Society,
is a new personalised dementia support service.
It provides people affected by dementia with the
support they need, when they need it, by phone,
online and face to face.
The service operates at a local and national

level, connecting people with support in their
community, while offering phone and online
help seven days a week.
Anyone can refer someone into Dementia Connect

(with their permission), including all organisations
in the housing sector. By doing so, you will be
helping us to reach people affected by dementia
who may not currently be using our services.
See alzheimers.org.uk/refer to become a referrer.

Signposting to information case studies
McCarthy and Stone Thorngate Living

McCarthy and Stone recognised that people were Thorngate Living are a provider of independent
not aware of the resources available to support assisted living and residential care in Hampshire.
their loved ones. They have introduced a dementia They have created a resource file located in each
support pack and website so that people can scheme which contains information on dementia
access the important things they need to ensure for residents. This provides information on
a loved one can remain living an improved quality dementia, helps tackle stigma around dementia,
of life. Resources include local services around and signposts people to appropriate services.
them, support with using technology, entitlements They hope that having this information available
advice and much more. This pack should ensure will help to encourage early diagnosis.
that people have the right information while
McCarthy and Stone can deliver the right support.
The Guinness Partnership
The ExtraCare Charitable Trust Guinness has been taking great strides to
become a more dementia-friendly organisation.
Working in collaboration with Cruse Bereavement They identified that colleagues did not know
Care, the ExtraCare Charitable Trust has developed where to access specialist advice or information
resources for residents and staff in their housing to support customers living with dementia.
communities around supporting bereaved people In response, they now:
living with dementia and informal carers.
■ ignpost to the Dementia Directory to help
S
They have developed two guides: find local services.
Responding to distress and behaviours that ■ pdate web pages with reports, resources
U
challenge – this guide advises on how to respond and guidance on dementia. By moving these
in an empathetic and supportive way to people online they have improved the accessibility
living with dementia whose understanding of of their information.
loss and bereavement may fluctuate, causing
confusion or distressed behaviour. ■ ave a dedicated contact to lead on their
H
dementia programme, to develop services
Carers Stories: Loss along the journey – this and update staff on changes and innovations.
was developed by carers for carers, who very
honestly discussed their experience of a changing ■ eview their housing policies to take into account
R
relationship with someone they care about. the needs of their customers with dementia.
Some residents still lived with their partner, others
had seen their partner relocated to another care Following their successful two year Housing and
setting, and others had been bereaved. Dementia project, providing a dementia-friendly
service to their customers is now business as
The value of this work for ExtraCare as housing usual. The work they have done led to them
professionals has improved when and how becoming finalists in the Large Organisation of
they offer bereavement support in the context the Year category at the national Alzheimer’s
of dementia. Society Dementia Friendly Awards 2019.
26
Documents to support communication and understanding

Communication is important to ensure a person with dementia gets the right care and support,
whether at home, in hospital or any other care setting. Encourage any visitors to leave a short note
for any carers, friends or family members, as well as having a written record of your visit.
My visitors book (code 923) This is me (code 1553)

This is a resource for people with Alzheimer’s Society produces a document
dementia to use so they can keep track called ‘This is me’ to support people with
of the professionals who visit them in communication difficulties. It can give health
their home. My visitors book is available and social care staff information about a
online at alzheimers.org.uk/publications person, including their preferences, likes
or call 0300 593 3333. and dislikes. It is available to download at
alzheimers.org.uk/thisisme or you can order
packs of 25 via Alzheimer’s Society’s online
shop at alzheimers.org.uk/shop
Websites ‘Tell me once’ policies

Organisations must ensure that their website
has consistent and up-to-date information, with Disclosing a diagnosis of dementia can be
written copies available. People affected by daunting. It can become frustrating or distressing
dementia complain that most information they for someone to have to disclose a diagnosis on
look at online is incorrect and does not match multiple occasions with the same organisation.
the processes and procedures that companies Organisations should therefore review the
follow. Websites should also: information they are able to hold on their residents
and customers, in line with the General Data
■ Only hold key information Protection Regulation (GDPR), to help individuals
communicate freely and openly, and only have
■ e well-designed and concise, with as few
B to disclose a dementia diagnosis once. It should
‘click-throughs’ as possible to get to the also be possible for organisations to record how
information people need people prefer to communicate, or any other
preferences they might have (for example,
■ Have typeface that is large and clear following up calls in writing or being given a certain
amount of time to process conversations).
■ nly use images if they are relevant and
O
enhance the message
Not everyone has access to or the ability to use

the internet. Information should therefore be ‘Tell me once’
available in other formats, including large print
or ‘easy-read’ formats. policies
case study
For more information about
designing accessible websites, go to
dementiavoices.org.uk/deep-guides The Guinness Partnership
and alzheimers.org.uk/blog/how-design-
website-someone-affected-dementia Guinness has devised a system to make
notes of the individual requirements of their
customers. This flagging system ensures they
can adequately capture their residents’ needs
and understand what support they require and
how residents want their services delivered.
This avoids residents being contacted in ways
that don’t suit them or having to remind staff
of their challenges every time.
‘Flagging system ensures they can

adequately capture their residents’
needs and understand what support
they require.’
The Guinness Partnership

28
Dementia Friendly Communities
Dementia Friendly Communities are geographical Housing organisations can:

communities that are committed to making their
local area accessible, inclusive and supportive for ■ evelop community-based activities
D
people affected by dementia. Everyone shares where appropriate
the responsibility for ensuring that people with
dementia feel understood, valued and able to ■ rovide or support people to access
P
contribute to their community. meaningful activities, points of interest
or stimulation
Whether a housing association, an estate agent
or an architecture firm, housing organisations ■ ork with local areas/authorities to aid
W
should be an active part of their local community wayfinding and orientation in local areas
by supporting and engaging with the issues that
matter to local people. To enable this, Dementia To find your local Dementia Friendly
Friendly Communities provide a support Community go to alzheimers.org.uk/
mechanism, a network of local businesses and dementia-friendly-communities
a platform to engage the local community and or email dementiafriendlycomm@
people affected by dementia. alzheimers.org.uk
Working with local partners

To help people with dementia to stay safe, you Working with
can work with different organisations and people
in your local area on various different initiatives. local partners
Working with local specialist organisations case study
including Alzheimer’s Society, Age UK and care
providers will ensure people living with or affected
by dementia are aware of the support you offer.
Organisations should also work in partnership The Dementia Friendly
with key aspects of the community, for example London Group
transport hubs, emergency services and retailers.
The Dementia Friendly London Group is an
Reach out to other local partners to provide example of how lots of organisations can work
support for residents and customers to access together to be more dementia friendly.
their wider community and the things that matter
to them. From supermarkets, pharmacists, The group comprises of members from
opticians, dentists, hair salons, banks and local across London’s sizeable housing sector,
heritage sites, you can support your residents and from housing associations and socially
customers affected by dementia to continue to minded, innovative housing providers through
live well. to private landlords, architects and designers.
All are welcome to join at quarterly meetings,
where the group shares best practice and
challenges each other to be better in how
they deliver dementia-friendly housing in the
capital. Together and in support of each other,
Remember… the group are confident of achieving their key
objectives, including:
1 Members to have made 20,000

Dementia Friends between 2019 and
2022, to promote the Dementia Friends
programme to any procurement
‘If you’ve met one person with partners and to ensure Dementia
dementia … You’ve met one person Friends sessions are part of
with dementia.’ organisational inductions
Everyone affected by dementia 2 Members to champion, and where

possible implement, adaptations
for future ageing and dementia
is unique and will have unique to properties
challenges and these challenges
will change over time. Ensure you
are developing individual strategies 3 Members to use dementia-friendly
principles for void works and cyclical
improvements by 2022
to support each person that can be
adapted as needs change. For more information about
the group, or for dates of future
meetings please contact
ProgrammePartnerships@
alzheimers.org.uk
Safeguarding and managing risk

It can be hard to know what to do if you’re concerned ■ Self-neglect – where a person isn’t looking after
about someone’s wellbeing. This could be the case themselves as well as they should be. This can
whether or not they have dementia, though you get worse and lead to many problems.
might have particular worries if they do. There are a
number of other signs of possible abuse or neglect ■ Noticing signs of financial abuse – for example,
that could be reasons to raise a safeguarding the person lacks money for basics like heating
concern with social services, including: or for other things they’d usually spend it
on, they’re befriended by someone new who
may be taking advantage of them, or they’re
repeatedly buying items from sales callers.
■ Physical wellbeing – be aware of any bruising,

cuts, burns or other marks on the person.
■ Witnessing or hearing arguments that appear

more severe than you’d expect, including verbal
or physical abuse.
Think about
■ ot seeing someone for a long time –
N
■ hrough training, ensure staff understand,
T especially if you’d usually expect to see them,
respond sensitively and keep a record so that an or if they miss something they regularly go to.
emerging pattern can trigger appropriate action, For example, you might notice their bins not
for example speaking to family. being put out or post not being picked up.
■ evelop a referral pathway to manage risks

D
where additional support is needed. If you believe
that someone is in any immediate danger, you
should of course call 999. In other cases, a call to
social services to raise a safeguarding concern The Herbert protocol
could lead to them finding out what can be done
to help.
case study
■ ork with local emergency services to embed
W
procedures such as the Herbert Protocol or Housing 21
home fire safety visits. The Herbert Protocol is a
risk reduction tool for people and their families A Housing 21 scheme has used the Herbert Protocol
living with dementia. In some areas this is called since 2017 to help protect their residents.
an ‘At risk of going missing’ form. It’s a simple
form designed to make sure that, in the event The staff involve residents’ families as they
of someone going missing, the police can get know them better than anyone. On the Herbert
access to important information about that Protocol form, they provide the addresses where
person as quickly as possible. It can also help the resident who leaves the scheme is likely
relieve the pressure on a person’s friends or to go, along with photographs of the resident.
family as they don’t have to try remembering lots This information is handed to the police when
of information at an already distressing time. a resident leaves the scheme. The photographs
help the police with identification.
Download the dementia-friendly
emergency services guide for On one occasion, a gentleman who had left the
more information: scheme was found exactly where his family said
alzheimers.org.uk/emergencyservices he would be at the local cricket club.
Walking around
When people with dementia walk around, this is ■ esign of the physical environment – design
D
often labelled as ‘wandering’ and ‘problematic safe indoor and outdoor walking routes, with
behaviour’. However, walking around offers an places to rest and interesting things to see
activity that can provide pleasure and exercise and do along the way.
and shouldn’t necessarily be viewed negatively.
‘Wandering’ also suggests aimlessness, when in ■ ssistive technology can alert carers when
A
fact there is often a purpose behind this activity. a person leaves their room, bed or chair, and
There are of course a number of challenges track their location, to help find the person if
with people walking around, such as ensuring they become lost.
the resident’s safety, but there are a number of
actions we can take to support them: ■ oster good relationships with the local
F
community and organisations who can help
■ et to know the resident to understand their
G people who want to walk find their way back.
life story and reasons for walking around.
To find out more about supporting
■ ccompany the resident on a walk outside
A a person with dementia who walks
if they are happy for you to do this. about see Alzheimer’s Society
factsheet 501, Walking about at
■ taff training in understanding how to safely
S alzheimers.org.uk/publications
support people living with dementia to continue
walking around.
32
Walking around case studies
The University of Worcester Walker Simpson Architects

and Housing 21 – ‘All those Designers and architects also have a role to play
who wander are not lost’ in supporting people to continue to walk around.
The University of Worcester and Housing 21 Walker Simpson Architects are a Manchester-
undertook research to better understand and based practice with experience designing
to develop good practice guidelines around dementia-friendly public buildings. One of their
residents who walk around, something they have buildings, the Great Sankey Neighbourhood Hub,
termed ‘walking with purpose’. has been awarded the world’s first Dementia
Friendly Gold Accreditation for a public building
They found that each person’s ‘walking with by the Dementia Services Development Centre
purpose’ story was unique. They also faced (DSDC).
different risks depending on their personality,
mobility, where and for how long they walked and Walker Simpson Architects are strong advocates
their ability to get back. of allowing people to walk around freely, what is
sometimes termed ‘wandering’. They consider
Successes experienced in relation to this in their design of buildings, such as in the
‘walking with purpose’ were connected with: layout of corridors and making use of internal
courtyards. They also use design to help people
■ improving staff understanding so that they find their way and retain independence, such
can better support residents; as doors painted all different colours and
personalised areas outside of bedrooms.
■ r aising awareness of dementia amongst
other residents; use of technology;
■ improving activities provided;
■ orking with families to improve their

w
awareness and find solutions;
reater understanding in wider community,

g
‘It is worth the risk to let a person live
■
such as local shopkeepers, and providing a
secure environment. as they want to… Encourage positive
risk taking approaches.’
In schemes with good dementia awareness
among residents, other residents play a part in
ensuring people living with dementia can walk University of Worcester, 2019
around safely by keeping an eye on them, alerting
staff, redirecting the person and even returning
them to their apartment.
34
Place:
The physical
environment
Place
Physical spaces should be easy to navigate and be accessible for people with
dementia, as well as other conditions, to enjoy a more meaningful and inclusive life.
This includes the creation and maintenance of When planning new housing or other properties,
suitable housing which incorporates space and dementia-friendly design features should be
design that can support people with dementia. considered. However, existing places can also
Making your spaces dementia friendly includes be retrofitted to support people with dementia.
both the interior and exterior of buildings, areas Recognition should be given to the fact that
around buildings and the location in which they people living with dementia will react differently
are built. to their surroundings and their needs will change.
Key actions
■ omplete an audit to understand what small changes
C
can make your environment accessible to people
affected by dementia. Where possible, this should be
done with input from people affected by dementia.
■ Future proof your environments by considering

dementia-friendly design features when designing
and planning new buildings.
■ e aware of potential barriers and challenges

B
that people affected by dementia might face.
Put proactive support measurements in place
to overcome these barriers.
■ nsure your new buildings are going above and beyond

E
relevant accessibility building regulations and standards
to make your environments as inclusive as possible.
■ Review the signage throughout your premises to make

sure all signs are clear and prominent.
■ eview the lighting to ensure it is consistent and

R
natural, and reduce shadows, glares and pools of light.
The King’s Fund (2013) found that for Building regulations

people with dementia, improving an
environment can:
and best practice for
accessible design
■ educe the incidence of agitation and
R
behaviours that challenge There are two key documents to consider when
ensuring the design of new buildings is accessible
■ Reduce the need for antipsychotic medication and inclusive. These are Building Regulations
Approved Document Part M and the British
■ Reduce falls Standard 8300 (BS 8300).
■ Promote independence Building Regulations Approved

Document Part M
■ Increase engagement in meaningful activities Approved Document Part M provides information
about the accessibility of buildings for visitors or
■ Encourage greater carer involvement occupants with disabilities. It covers guidance on
the use of:
■ Improve employee morale, recruitment
and retention ■ amps and steps to ensure accessible and
R
safe approach
■ Accessible widths of doorways and corridors
■ Easy access to toilet facilities
■ all-mounted switches, socket outlets and

W
other controls are reasonably accessible to
90%
people who have reduced reach.
Home adaptations improved Part M is in three categories:

the quality of life for 90% of recipients.
1 Category 1 – Visitable dwellings: This

category states that reasonable provision
should be made for people to gain access
to and use the dwelling and facilities;
2 Category 2 – Accessible and adaptable

dwellings: This category goes further to
‘Designing accessible buildings ensure that the provision made must be
sufficient to meet the needs of occupants
looked quite demanding at the with differing needs, including some older
outset, such as installing wider or disabled people, and ensure the dwelling
corridors, but once we were can be adapted to meet the changing needs
implementing it we found that of occupants;
it was benefiting everyone,

3
Category 3 – Wheelchair user dwellings:
including young families and This category goes further still to ensure
people with autism.’ reasonable provision is made for a
wheelchair user to live in the dwelling and
use any associated private outdoor space,
Walker Simpson Architects parking and communal facilities.
37
Currently only Category 1 (Visitable Dwellings)

is a mandatory design regulation. Alzheimer’s
Society strongly recommends taking this further
to ensure both Category 2 and 3 are considered
in the design of all your built environments.
BS 8300
BS 8300 offers best practice guidance on making Think about
buildings accessible and welcoming to people
with disabilities. It offers design solutions that ■ I nclusive design should not mean just
go beyond Building Regulations’ requirements meeting the minimum legal requirement.
for a whole range of disabled access scenarios. Go above the legal requirements and
ensure your built environments are also
The guidelines cover aspects such as: BS 8300 compliant.
■ Entrances
■ Door fittings ■ ocal authorities and large bodies in
L
■ Steps, stairs and ramps the housing sector should consider
■ Corridors and passageways how they can lobby for building
■ Surface finishes regulations to be made more inclusive
■ Visual signs and dementia friendly.
■ Lighting
■ Storage facilities
■ Provision of seating
Physical environment checklist

Use this physical environment checklist to audit dementia. Temporary and low-cost changes
your places and make them more dementia are also a good starting point – for example
friendly. If possible, speak to people living with putting up temporary signs could be a useful
dementia and ask them how they find the area. way to encourage people to start thinking about
becoming more dementia friendly.
Remember: some of these changes don’t require
much time, effort or money! Small changes See examples of dementia-friendly signage in the
can have a huge impact for people living with Alzheimer’s Society shop: alzheimers.org.uk/shop
Physical environment checklist case studies
Pentan Architects Guinness Partnership

‘We make use of dementia-friendly principals Guinness are carrying out a programme of
throughout the process, from start to finish, such refurbishment around the country in all their
as planning, designing and choosing internal housing for older people to ensure that it follows
fittings. When we design care homes, we try and their dementia-friendly design principles.
strip back the institutional feel and make it feel
more like a home. For example, avoiding very large At an extra-care housing scheme near Plymouth,
kitchens, having living rooms directly outside they adapted the environment to support people
of bedrooms, and encouraging people to get with dementia. Each of the residential areas now
involved with making the meals. have carpets and walls that are colour coded to
create distinct zones. Each area has a theme, such
Even very small changes help massively.’ as flowers, trees, waterscapes or landscapes.
Visual prompts make it easier for residents to
Walker Simpson Architects navigate the building and orientate themselves.
Walker Simpson Architects demonstrate that

thinking about dementia-friendly design principles
in even very small ways can have a huge impact.
When choosing paint samples, they say it is

important to not just look at the colour but also the
Light Reflectance Value (LRV) of the paint, which
measures the amount of light that reflects from a
painted surface. They make sure that the paint has
a high contrast value between the door and the
floor. People with dementia perceive colours and
Think about
tones slightly differently and high LRVs can help to Future-proof all housing by building
reinforce the contrast between the walls and floor. dementia-friendly design into all housing
briefs from the very outset. Dementia-
This makes the whole space clearer for everyone, friendly design doesn’t have to be costly if
with or without dementia. it is engaged with at an early enough stage.
Physical environment checklist case studies
RDT Architects BRE, A dementia-friendly home

The design approach of RDT Architects, a RIBA BRE is an innovative group of researchers,
Chartered Architectural Practice, focuses on scientists, engineers and technicians who want
developing a homely feel to assist people living to make the built environment better for all. In
with dementia to navigate around their home with 2018 they and Loughborough University created
wayfinding markers and identification points. a dementia-friendly demonstration home on the
The interior design scheme adopts strong colour BRE Innovation Park in Watford. The home presents
themes, memory aids and signage together with evidence-based design, adaptations and support
shorter corridor lengths and open plan areas. To solutions which allow people to age well at home.
help reduce confusion or disorientation, signs are It is aimed at people living with dementia to live
clear and correctly oriented and residents’ rooms independently by addressing their day-to-day
are clearly marked. A number of points of interest needs. The home considers accessibility, lighting,
and areas that provide interactive stimulation are layout, comfort, colours, safety and security.
introduced both inside and in the garden areas
with appropriate colours and lighting. ‘While there is a British Standard (BS 8300)
which works for buildings, there should also be
The core design features considered of consideration of “suitability” for the occupant and
paramount importance are: an assessment of whether a building meets their
■ Personalisation needs. For example, is the oven too low as the
■ Flexible use of internal spaces occupant is tall and has trouble bending down?
■ Variety in environment, and Is there a clear line of sight into adjacent rooms
■ Use of natural light so that occupants can see carers?’
Go to www.bregroup.com/ipark/parks/
england/buildings/dementia-friendly-home/
for more information or to organise a visit.
Think about
As a landlord, sometimes all you need to do is
provide your consent to allow residents to make
changes to their property, such as painting their
front door a different colour or painting around a
light switch so it easier to see.
Checklist
Layout
Install wider corridors which are more accessible for everyone,

including people in wheelchairs and parents with pushchairs.
In housing schemes, create opportunities for ‘accidental’ contact

between people, such as incidental seating areas. Ensure the chairs
in communal areas are arranged in small clusters to encourage
conversation.
When designing new builds, ensure there is enough space to walk

around independently.
Décor
Architects and designers should consider the Light Reflectance Value

of paint. People with dementia perceive colours and tones differently –
making sure paint has a high contrast between door and floor can help
with perception.
Choose fabrics that are durable, attractive and easily cleanable.
Handrails along walls can help with mobility and should have at
least a 20% colour contrast between the rails and the walls.
Maximise views of nature with low windows.
Lighting
Entrances should be well lit and make as much use of natural light
as possible.
Areas with bright lights or deep shadows should be avoided,

such as pools of light or strips of shadows.
High windows allow deep natural light.
Ensure bedrooms can be made dark, through blinds or curtains,

to support normal sleep and wake patterns.
Flooring
Reflective flooring can cause confusion and look like water. Highly
reflective or slippery floor surfaces should be avoided where possible.
Flooring with bold patterns can cause problems to people with

perceptual problems – plain or mottled surfaces are easier.
Flooring near steps and other possible trip hazards should be clear and
defined, such as with brightly coloured tape or paint.
Avoid areas of contrast such as rugs or mats – to a person with dementia

these can look like holes in the floor.
Check that cables for lights and other appliances are not a trip hazard.
Furnishings
Check pictures and mirrors and cover or remove them if they are likely
to cause confusion.
Make sure the colour of the switches for lights and appliances contrasts
with the walls so that they are easier to see.
Fit cupboards with non-reflective, transparent and shatterproof fronts

so you can see inside.
If you need to replace equipment or appliances, like a kettle, try and

make sure they’re the same design or model as the old one, so it is easier
to remember how to use them.
Ensure the fixtures and fittings, such as kettles and ovens, are of
traditional design so that they are easy to use.
Seating
Having a seating area where people may be waiting can be a big help.
Seating should look like seating – traditional seating rather than

abstract, modern seating is much more helpful.
Seating is useful for people who want to walk around and may
become tired.
Signage
Signs can be used to for a variety of reasons, such as labelling doors

of the room’s use, on cupboard doors of what items are inside, and
‘hot’ and ‘cold’ written on taps.
Signs should be clear, in bold face with good contrast between text
and background.
There should be a contrast between the sign and the surface it is

mounted on. This will allow the person to recognise it as a sign.
Signs should be fixed to the doors they refer to. They should not be
on adjacent surfaces if at all possible.
Consider using pictorial signs as well as written signs, such as a picture

of a toilet.
Avoid using block capitals.
Signs should be eye level and well lit.
Signs should not be abstract images or icons.
Signs should be placed at key decision points for someone who is at the
building/area for the first time.
It is particularly important that signs for toilets and exits are clear.
Toilets
Toilet seats that are of a contrasting colour to the walls and rest of the
toilet are easier to see if someone has visual problems.
Put colour contrasted grab rails in showers, changing rooms and toilets.
Make sure there is clear signage inside and outside the toilet.
Ensure that door locks and taps are easy to use for a person with
limited dexterity.
Taps and plugs should be of traditional design so that they are

easy to use.
Navigation
Check that the entrance is obvious and the doorbell/entry phone is easy to use.
Check that the front door is easy to tell apart from the others in the road or
block, such as by painting it a different colour or having a recognisable tile
or door number.
‘Landmarks’, such as a painting or a plant, can be used to help people navigate

their way around, both inside or outside the building. The more attractive
and interesting the landmark is the more effective it is in aiding navigation.
These can be used to differentiate between floors or different areas.
Having minimal or no contrast is a useful way to de-emphasise features

that are not for public access. For example, make sure there is no contrast
for doors to store rooms so they blend in.
Lifts should be easy to find and have large control buttons.
Parking
Review the areas immediately outside the facility or home for safety,
particularly if there is an area for cars to park or drop/collect people.
Create larger parking spaces or offer ‘family spaces’ rather than ‘mother and
baby’ spaces. This can make a real difference if someone is not yet eligible for
a blue badge but is experiencing cognitive difficulties.
Check the route from the car park to the building, to ensure there are safe
walkways and designated crossing points.
Noise
For people with dementia, background noise can be distracting and

disorientating. For example, excessive background noise can affect their
ability to concentrate or interfere with hearing aids. This problem is often
exacerbated by music or radio. Consider switching off music and televisions
or providing a quiet area when communicating with someone with dementia.
Quiet space
At your workplace, there should be a quiet space for someone who might
be feeling anxious or confused. A few minutes with a supportive person might
be all that’s needed.
Funding the cost of adaptations

What are adaptations? What is a Disabled Facilities Grant?
Minor adaptations can have a huge impact for people A Disabled Facilities Grant (DFG) is available from
affected by dementia to continue to live independently local authorities to pay for housing adaptations to
in their own homes. These include installing: help people with a disability stay in their own homes.
Because the Equality Act 2010 classes dementia as
■ Hand and grab rails a disability, this means people with dementia can
qualify for a DFG (unless the means-test concludes
■ Lever taps that the tenant can pay for themselves).
■ Improved lighting Applying for a DFG

Depending on how the grant is applied for affects
■ Opening and closing aides for doors and windows. whether or not it is means-tested:
Minor adaptations are quite common and can be ■ DFG is means-tested if the tenant applies
A
funded up to the value of £1,000. These can be for the DFG themselves. This concludes whether
funded for your tenants through the social care they qualify for the funding or if they can pay for
budget. If you are a landlord, you will be contacted the adaptation themselves.
to ask for your consent to the work taking place,
usually by an occupational therapist or a trusted ■ DFG is not means-tested if the landlord applies
A
assessor. The installation of this won’t cost you for the DFG on their behalf. But bear in mind
anything personally. (Be aware that it is possible that it is possible for a land charge to be placed
that the removal of the installation at the end of on the property by the council for adaptations
the tenancy could incur a cost.) of more than £5000. See an example of how a
local authority applies this here:
More major adaptations, which tend to range www.surreyheath.gov.uk/residents/communities-
between £1,000-£10,000 but can be covered up wellbeing/grants-funding/disabled-facilities-
to £30,000, include: grant/disabled-facilities-grant
■ Installing ramps and stairlifts Your tenant can apply for a DFG themselves but
they will require your consent to carry out the
■ Providing level access showers and wet rooms work. This normally requires a tenant and owner
certificate in which the tenant states their intention
■ Through-floor lift to remain living in the property for five years. This is
about intention only and does not require a formal
■ Providing easy access to the garden commitment to live there for five years so should
not be a barrier to a successful DFG application.
As with minor adaptations, these adaptations
can make a huge difference for people affected To apply for the DFG on behalf of your tenant,
by dementia but still do not cost you anything you should go through your local council.
personally because these adaptations are funded
by Disabled Facilities Grants. Find out more about the process
and how to apply at www.foundations.
uk.com/dfg-adaptations/dfg-regulations/
disabled-facilities-grant-dfg/
You can usually find funding
for adaptations. They don’t
need to be costly for you or
your organisation.
45
Funding the cost of

adaptations case studies
Think about
Motionspot
■ enants qualify for funding whether
T
they are private, council or housing Motionspot is an award-winning design company
association tenants. (The funding recognised by RIBA who create environments that are both
process is slightly different for tenants accessible but also designed to be visually attractive.
in council housing but guidance
consistently says that this should not Motionspot has been working with Housing 21 to design
result in a worse service than for those bathrooms across their estate that are both accessible
in other housing.) and also intended to be attractive. The design and product
selection is both suitable and future-proofed for dementia.
■ s a landlord, you can apply for a DFG
A Particular time is spent ensuring style is not compromised
on behalf of your tenant. This can help in these spaces as Motionspot believe that too often
your tenant if they find it difficult or bathrooms adjusted for the needs of people with dementia
confusing filling out forms. This also can look institutional in appearance. Motionspot are proud
means the request will not be means to have helped create homes that are both accessible and
tested, making the process easier for aspirational and seek to inspire other providers to review
your tenant. how the design of their homes can be improved to help
empower people to live well with dementia.
■ uild a relationship and atmosphere
B
where your tenants feel comfortable
disclosing their dementia or
speaking to you about their need for
Dementia Dwelling Grants in
adaptations. The process of applying Worcestershire District Councils
can be stressful so support them
where you can. District Councils in Worcestershire, in partnership with the
NHS and Worcestershire County, provide non-means-tested
■ daptations generally only cause
A Dementia Dwelling Grants to people living with dementia.
minor disruption. This means that A £750 grant is made available to agree some adaptations
most work takes place with the tenant and changes designed to reinforce cognitive resilience. The
in situ and doesn’t require void periods. project is delivered through the local networks of Dementia
Advisers run by Age UK Hereford and Worcestershire and
■ daptations don’t have to be
A has assessed over 500 people in the year between April
institutional-looking. Consider 2017-18, over 380 of which were accepted.
adaptations that are inconspicuous and
multi-functional, such as plain carpets People choose their own preferred solution based on
to help people with dementia with the difficulties they are experiencing. This also allows
perception issues, as these won’t need them to feedback what works and what does not. It
to be removed for your next tenants. is therefore capable of informing the future design of
equipment and adaptations.
■ ocal authorities should look into how
L
they can implement something similar The average cost of Dementia Dwelling Grants is only £132
to the Dementia Dwelling Grant and for beneficiaries not living alone and £150 for those living
influential bodies and associations alone. Timely preventative responses to a diagnosis of
should lobby for the same. dementia do not need to be expensive to the public purse.
Adaptations and assistive technology

Technology can be used to support a person to ■ alking around (see page 31) – Some people
W
continue to live in their own homes by allowing choose to use GPS devices to support people
an individual to perform a task that they would who might go missing if they walk about.
otherwise be unable to do or increasing the ease Most GPS devices are worn either on the wrist,
and safety with which a task can be performed. like a watch, or around the neck on a lanyard,
This ranges from simple tools to high-tech devices and they send various kinds of alerts notifying
and can promote independence and reduce someone has gone outside of a certain
early entry into care homes and hospitals. When boundary. People with dementia and those
choosing a device, it is important to consider how supporting them must think carefully about
the person will react – they may find it helpful or it whether they want to use GPS devices, as there
may be confusing. Below are a few examples you are lots of questions to consider. It’s important
could consider making available or designing into that they have these conversations early on to
your properties. ensure consent.
■ eminder messages – when a person enters

R
or leaves their home, a personal voice prompt
recording can remind them to pick up their
keys or lock the front door, for example. Door
reminders can remind people not to trust
bogus callers. This can be useful as people with
dementia can be vulnerable to doorstop scams.
■ elecare – devices that monitor real-time

T
emergencies to manage the risks associated
with living alone by triggering an alarm to a
relative, key holder or call centre. Sensors
can be used to detect a range of situations,
including: floods, extreme temperatures,
gas and leaving the home. (See AT Dementia
for more information.)
■ evices that detect motion – these use a

D
sensor or pressure mat and play a pre-recorded
voice when there is movement. For example,
you could set one of these to play a message
when you walk out of the kitchen to remind you
to turn off the gas.
■ ooker locking valves – a simple safety feature

C
that prevents an oven door from opening.
Remember: assistive technology is not always

the best solution. Simple ideas such as a
noticeboard or labelling cupboards or rooms
can be very helpful.
For more information see

Alzheimer’s Society factsheet 439,
Using technology to help
47
Adaptations
and assistive
technology
case study
Further steps to creating
Hyndburn Homewise dementia-friendly
environments
A home improvement agency in Accrington,
Lancashire, Hyndburn Homewise runs Memory Further adaptations might involve some
Matters, supporting people living with memory investment. However, devoting additional
issues to stay at home, continuing to live resources can help to future-proof the business
independently, and keeps them safe and out of by making your buildings more accessible
hospital and residential care. for people affected by dementia. If you are
designing new properties or your office is being
Simple innovations in the home can make all the refurbished, consider the layout – as budgets
difference to people with dementia with visual allow. Improving accessibility in this way could
and orientation problems. Examples include benefit a large number of people living with
changing white grab rails in the bathroom to other long-term health conditions, not only
blue or light switches to red to improve visibility, people affected by dementia.
the use of memory aids to remind people to lock
doors or close the fridge and the use of signage
and pictures to aid orientation.
If the home is a safe environment, people can

remain there for longer, holding onto their
memories at home, which can improve their
quality of life. Memory Matters has helped over
414 families with focused work to meet a variety
of needs about the home – from £50 for improved
lighting to £4000 for a level access shower.
The benefits of becoming

more dementia friendly
Social benefits Business benefits
There are numerous social benefits in making Becoming a dementia-friendly organisation is not
your organisation more dementia friendly. just a socially responsible step – it can also benefit
These include: your business. There are clear economic benefits
in supporting people with dementia to use your
■ nsuring that the needs of residents,
E services. This does not mean prioritising dementia
customers and end users are met in a over other conditions or disabilities. But when a
consistent and appropriate manner business responds to the challenges faced by people
with dementia and takes positive action, it can:
■ reating an organisation in which residents,
C
customers and end users feel comfortable ■ emonstrate leadership within the sector by
D
discussing their needs proactively addressing the societal challenges
posed by an increasing incidence of dementia
■ aking changes now means housing
M
organisations can future-proof by anticipating ■ nderstand the cause of an issue early and tackle
U
a growing need from residents, customers, it appropriately
end users and staff.
■ eal more appropriately with risks to health
D
and safety
■ Reduce the risk and cost of litigation
■ educe the rate of property turnover and

R
the cost of voids
■ void or reduce decorating and repairs to

A
properties damaged by incidents that could
have been prevented
■ e alert to simple adaptations that can be installed

B
early as preventative measures
‘85% of people say if they developed

dementia they would want to stay at home
for as long as they want to or feel able to.’
(Alzheimer’s Society 2016)

49
The legal case for being

dementia friendly
Along with social and business benefits,
organisations also have a legal requirement to
be dementia friendly. As stated in the Equality
Act 2010, dementia is a disability, meaning
employers have a legal obligation to make
‘reasonable adjustments’ to ensure someone
is not disadvantaged because of their disability.
Reasonable adjustments include adapting
employees’ working hours, responsibilities and
management support. However, 98% of people
said that society still treats people with dementia
differently to people with other health conditions ‘People with dementia are being
or disabilities (APPG on Dementia, 2019). denied their right to live
independently in their own homes
Organisations need to ensure they are meeting
these legal challenges. where they are able to make their
own choices.’… ‘Part 4 of the
The BSI Code of Practice identifies the key Equality Act covers discrimination
provisions required in the housing sector for
people living with dementia as:
in housing, meaning that people
with dementia should not
■ Adaptations, built environment and design experience any form of
discrimination and that there are
■ Assistive technologies, including telecare
requirements for landlords to make
■ Access to outdoor spaces “reasonable adjustments”. For
example, a person with dementia
■ upport of family and paid carers in
S
private homes
might benefit from replacing signs
or notices, changing taps or door
■ raining of all staff in the housing sector –
T handles, replacing bells or entry
appropriate to the settings in which they
systems and changing colours of
work and their roles
walls or other surfaces.’
■ aintenance of tenancy if a person with
M
dementia is temporarily admitted to care. APPG on Dementia, 2019
Useful resources
Alzheimer’s Society
We produce a wide range of information for
people with dementia and their carers, family
and friends. You can read and order this information
at alzheimers.org.uk/publications
or call 0300 303 5933.
Alzheimer’s Society Dementia Directory

Find local support services for people with
dementia and their carers in England, Wales, and
Northern Ireland, using a simple postcode search.
Go to alzheimers.org.uk/dementiadirectory
Alzheimer’s Society Dementia Connect helpline

For information, support or advice about
dementia call our Dementia Connect support line
on 0333 150 3456 (open every day).
For welsh speakers please call us on 03300 947 400.
For up to date opening hours go to
alzheimers.org.uk/helpline
Useful organisations
Dementia Friends Housing and Safeguarding Adults Alliance
www.dementiafriends.org.uk www.housinglin.org.uk/AboutHousingLIN/HASAA
Learn more about what it is like to live with The Alliance focuses specifically on improving
dementia and turn that understanding into action. practice and co-operation between the
housing sector and adult social care and other
Dementia and Housing Working Group organisations. It has a website hosted by the
www.housinglin.org.uk/housing-networks/ Housing LIN with some excellent resources
dementia-and-housing-working-group/members/ focusing on housing and safeguarding.
The Dementia and Housing Working Group
(D&HWG), aims to promote the contribution Housing Learning and Improvement
of the housing sector to improving the health Network (LIN)
and wellbeing and quality of life for people living www.housinglin.org.uk
with dementia. Leading ‘knowledge hub’ for a growing network
of housing, health and social care professionals
Elderly Accommodation Counsel in England involved in planning, commissioning,
www.eac.org.uk designing, funding, building and managing housing
EAC holds the most comprehensive database with care for older people.
of accommodation available in the country.
It also runs the First Stop information and National Housing Federation
advice telephone line. www.housing.org.uk
National trade body for housing associations.
First Stop Advice The NHF has regional representatives keen to
www.firststopcareadvice.org.uk work in collaboration with health and social care
This website offers a range of leaflets including commissioners and providers.
one on housing options for older people.
Stirling University Dementia Services
Foundations Development Centre
www.foundations.uk.com dementia.stir.ac.uk/housing-dsdc
Foundations is appointed by the Department Stirling University, Dementia Services
of Communities and Local Government to Development Centre (DSDC) has gathered
oversee a national network of nearly 200 Home together a specialist team dedicated to helping
Improvement Agencies (HIAs) and handyperson commissioners and providers tackle the complex
providers across England. and practical issues which they are wrestling
with now.
Housing and Dementia Research Consortium
housingdementiaresearch.wordpress.com
This is the only group that brings together
housing providers, commissioners and others
specifically with the aim of achieving robust
research into accommodation and care for
people with dementia.
References
All-Party Parliamentary Group on Dementia. 2013. Dementia does not discriminate. The experience of black,
Asian and minority ethnic communities. Available online: alzheimers.org.uk/2013-appg-report, [accessed
10/01/2020].
All-Party Parliamentary Group on Dementia. 2019. Hidden no more: Dementia and disability. Available online:
alzheimers.org.uk/sites/default/files/2019-06/APPG_on_Dementia_2019_report_Hidden_no_more_dementia_
and_disability_media.pdf, [accessed 10/01/2020].
Alzheimer’s Society. 2012. Home truths: Housing services and support for people with dementia. Available
online: alzheimers.org.uk/sites/default/files/migrate/downloads/alzheimers_society_home_truths_report.pdf,
[accessed 10/01/2020].
Alzheimer’s Society. 2013. Creating a dementia-friendly workplace: A practical guide for employers. Available
online: alzheimers.org.uk/get-support/publications-factsheets/creating-dementia-friendly-workplace,
[accessed 10/01/2020].
Alzheimer’s Society. 2014. Dementia UK Update. Available online: alzheimers.org.uk/sites/default/files/migrate/
downloads/dementia_uk_update.pdf, accessed [10/01/2020].
Alzheimer’s Society. 2016. Fix Dementia Care: Homecare. Available online: alzheimers.org.uk/sites/default/files/
migrate/downloads/fix_dementia_care_homecare_report.pdf, [accessed 10/01/2020].
Alzheimer’s Society. 2017. Dementia-friendly business guide. Available online: alzheimers.org.uk/businesses
Centre for Ageing Better. 2017. The role of home adaptations in improving later life. Available online:
www.ageing-better.org.uk/publications/role-home-adaptations-improving-later-life, [accessed 10/01/2020].
CPEC (Care Policy and Evaluation Centre). 2019. Projections of older people with dementia and costs of dementia
care in the United Kingdom, 2019–2040. Available online: www.alzheimers.org.uk/sites/default/files/2019-11/
cpec_report_november_2019.pdf. [Accessed 06/01/2020].
Garwood, S.. 2013. Older people with high support needs in housing with care. 2013. Available online:
jrf.org.uk/report/older-people-high-support-needs-housing-care, [accessed 10/01/2020].
Government Office for Science. 2016. Future of an Ageing Population. Available online: www.assets.publishing.
service.gov.uk/government/uploads/system/uploads/attachment_data/file/816458/future-of-an-ageing-
population.pdf, accessed [10/01/2020].
Heywood, F. and Lynn, T. London: Office for Disability Issues/Department of Work and Pensions. 2007.
‘Better outcomes, lower costs. “Implications for health and social care budgets of investment in housing
adaptations, improvements and equipment: review of the evidence”’.
National Housing Federation. 2013. Dementia: finding housing solutions: the voice of housing associations.
ONS. 2018 UK private rented sector. Available online: ons.gov.uk/economy/inflationandpriceindices/articles/
ukprivaterentedsector/2018, accessed [10/01/2020].
The King’s Fund. 2013. Developing Supportive Design for People with Dementia.
Alzheimer’s Society. 2015. Making your home dementia-friendly. Available online at:
alzheimers.org.uk/get_support/making_your_home_dementia_friendly, [accessed 10/01/2020].
Statutory guidance: Access to and use of buildings: Approved Document M. 2016. Available online:
gov.uk/government/publications/access-to-and-use-of-buildings-approved-document-m, accessed
[10/01/2020].
Alzheimer’s Society is the UK’s leading dementia charity.
We provide information and support, improve care, fund research,
and create lasting change for people affected by dementia.
If you have any concerns about Alzheimer’s disease or
any other form of dementia, visit alzheimers.org.uk or call
Alzheimer’s Society on 0333 150 3456. (Interpreters are
available in any language. Calls may be recorded or monitored
for training and evaluation purposes.)
Alzheimer’s Society
43–44 Crutched Friars
London EC3N 2AE
0333 150 3456’

[email protected]
alzheimers.org.uk Registered charity no. 296645. A company limited
by guarantee and registered in England no. 2115499.
Alzheimer’s Society operates in England, Wales and
Code 963_2020 Northern Ireland.

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Dementia-friendly

People: Supporting staff, residents and customers affected by dementia 12

Process: Communication, signposting and the local community 20

Place: The physical environment 34

The benefits of becoming more dementia friendly 48

Kate Lee Bruce Moore

There is an increased need and demand for

The following numbers show how many people are affected.

42k+ 1.8 million

60+ £26 billion

These changes are usually small to begin with,

Professor Tom Kitwood

Living well with dementia

Why do we need the

What have people with dementia told us?

Key issues for the

Who is the guide for?

Appoint a senior-level Dementia

Additional training for staff who regularly

Ensure staff are aware of advice and

Ensure HR policies are supportive of

■  nsure that all resident- and customer-facing

■  on’t just stop with your staff! Include external

■  ometimes there can be negative reactions

Dementia Friends case studies

Housing 21 Notting Hill Genesis

Contractors need their work to be cost effective

Additional training case studies

McCarthy and Stone Housing 21

■ Increase staff awareness to identify the signs

Supporting everyone affected by dementia

Supporting staff affected by dementia

■  evelop an internal support network, a

■ I mprove your communication with

■  ignpost to key local services for

■  upport your local community.

Audit of processes, procedures

Is written information clear and in an easy-

Communicating with people with dementia

■  peak at a slightly slower pace and allow time

■  ry to find a common ground – this could be

■ A person/people with dementia

■ A person/people living with dementia Written information for

■  upport services for help and advice for unpaid

The service operates at a local and national

Anyone can refer someone into Dementia Connect

See alzheimers.org.uk/refer to become a referrer.

Signposting to information case studies

McCarthy and Stone Thorngate Living

Documents to support communication and understanding

My visitors book (code 923) This is me (code 1553)

Websites ‘Tell me once’ policies

Not everyone has access to or the ability to use

‘Flagging system ensures they can

The Guinness Partnership

Dementia Friendly Communities

Dementia Friendly Communities are geographical Housing organisations can:

Working with local partners

Ensure staff are aware of advice and

■ nsure that all resident- and customer-facing

■ on’t just stop with your staff! Include external

■ ometimes there can be negative reactions

■ Increase staff awareness to identify the signs

■ evelop an internal support network, a

■ I mprove your communication with

■ ignpost to key local services for

■ upport your local community.

Is written information clear and in an easy-

■ peak at a slightly slower pace and allow time

■ ry to find a common ground – this could be

■ A person/people with dementia

■ A person/people living with dementia Written information for

■ upport services for help and advice for unpaid

‘Flagging system ensures they can

■ Physical wellbeing – be aware of any bruising,

■ Witnessing or hearing arguments that appear

■ evelop a referral pathway to manage risks

■ improving activities provided;

■ orking with families to improve their

reater understanding in wider community,

■ Future proof your environments by considering

■ e aware of potential barriers and challenges

■ nsure your new buildings are going above and beyond

■ Review the signage throughout your premises to make

■ eview the lighting to ensure it is consistent and

■ Promote independence Building Regulations Approved

■ Accessible widths of doorways and corridors

■ Easy access to toilet facilities

■ all-mounted switches, socket outlets and

■ Improved lighting Applying for a DFG

■ eminder messages – when a person enters

■ elecare – devices that monitor real-time

■ evices that detect motion – these use a

■ ooker locking valves – a simple safety feature