Management Strategies For Multiple Handicap: "Multiply Disabled". Caring For Multiply and Severely Disabled Children Is
Management Strategies For Multiple Handicap: "Multiply Disabled". Caring For Multiply and Severely Disabled Children Is
Management Strategies For Multiple Handicap: "Multiply Disabled". Caring For Multiply and Severely Disabled Children Is
MULTIPLE HANDICAP
Introduction
Children who have a combination of severe disabilities are called
“Multiply Disabled”. Caring for multiply and severely disabled children is
never easy and they need an enormous amount of time & patience.
The combination of disabilities and degree of severity is different in each
child. The time at which the disability occurs in the child, what is known as the
‘age of onset’, may also range from birth to a few days after birth, from early
childhood till late teens. Sometimes children are born with one disability but
acquire the second or third disabling conditions during childhood. The
characteristics and the needs of the children depend on the nature of
combination of the disabilities, the age of onset and the opportunities that have
been available to a child in his environment.
Definition of Multiple Disabilities
According to the Persons with Disabilities Act (1995), “Multiple
Disabilities” means a combination of two or more disabilities.
Disabilities under the National Trust Act are in fact Developmental
Disabilities caused due to insult to the brain and damage to the central nervous
system. These disabilities are Autism, Cerebral Palsy, Mental Retardation and
Multiple Disabilities. These are neither diseases nor contagious nor progressive.
They cannot be cured by drugs or surgery. But early detection and training
improve outcome. This is done using the services of Physio-Occupational and
Speech Therapists, Community Based Rehabilitation Workers and Special
Educators.
Multiple Disabilities refer to: a combination of two or more disabling
conditions that have a combined effect on the child’s communication, mobility
and performance of day-to-day tasks.
Multiple disabilities: can be combination of
Mental retardation Autism
Cerebral palsy Hearing impairment
Learning disabilities Attention deficit hyperactive
Visual impairment disorder
Orthopedic involvement
Incidence
In India the disability information has been collected through sample
surveys and censuses. The most recent is the National Sample Survey
Organization (NSSO) which conducted a survey of disabled persons in India.
The NSSO estimated the number of disabled persons in the country to be 18.49
million, which formed about 1.8 % of total population.
NSSO 2002 Total Male Female
% Numbers % Numbers %
Loco-motor Disability 10634000 58 6633900 36 4000100 22
Hearing disability 3061700 17 1613300 9 1448400 8
Speech disability 2154500 12 1291100 7 863400 5
Blindness 2013400 11 928700 5 1084700 6
Mental Illness 1101000 6 664500 4 436500 2
Mental Retardation 994700 5 625800 3 368900 2
Low vision 813300 4 369300 2 444000 2
Any disability 18491000 100 10891300 59 7599700 41
MANAGEMENT OF PEOPLE WITH DISABILITIES
Unlike for hearing-impaired people without additional handicaps, for hearing-
impaired individuals with other disabilities such as mental retardation, visual
impairment, CP, and autism the goals of aural rehabilitation may vary. The
extent to which functional residual hearing can be maximized does not depend
solely on the degree of the hearing impairment but more so on the extent,
degree, or impact of other dominant or multiple existing handicaps that may be
present.
DEAF BLIND
The term deaf-blind makes us often imagine a person who is unable to
hear and see anything. Deaf-blind is used to define a heterogeneous group of
individuals who may suffer from varying degrees of visual and hearing
impairment, perhaps combined with learning and physical disabilities which can
cause severe communication problems. Visions and hearing are two primary
sensory modalities by which the individual experiences the world.
Individuals with deaf-blindness are categorized into 4 groups on whether the
deaf-blindness is due to:
1) Congenital or early onset hearing and visual impairment
Impact of deaf-blindness:
1) Finding out/getting information: individuals who are deaf-blind have more
difficulty in finding out information about our everyday ordinary
experiences like seeing familiar person, facial expressions, objects or people
beyond their reach.
Communication in deaf blind: The effect of deaf blindness has a major impact
on communication development. For a baby who is born deaf-blind, the normal
process of communication is affected from the moment the child is born.
Depending on the severity of the impairments the cues the child will be getting
from environment will be very limited and may be even threatening to the child
as she/he cannot anticipate what is happening or going to happen.
Modes of communication: There are various methods/modes of communication
will depend on factors such as age of onset, cause and degree of hearing and/or
visual impairment, language capabilities and previous experiences.
Communication by a deaf -blind individual (who has little useful hearing &
vision) use the sense of touch. Touch can be classified as-
Passive touch involves skin sensitivity to pressure, temperature, pain and
other sensation when objects make direct contact with the skin. Information
obtained by passive touch is called tactile.
The type of communication modes, aids and devices are grouped into 3
categories depending on the primary sense used by the deaf blind individual
that is
1) Residual vision They may use any one of the three or
• A hearing aid or implant is of no help to the child if the child doesn't wear
it regularly.
• Each child will have a unique blend of abilities in the areas of hearing,
vision, thinking and communication.
1) American one-hand alphabet: The letter a-z and numbers are formed by
positioning the fingers of one hand into specific hand shapes. Letters are
presented in succession to form words and sentences. This method assumes
proficiency in English language.
When using the residual vision, the letters must be presented within the
visual field of deaf-blind person. To assure effective reception, it is advisable
for the deaf-blind person to position the speaker’s hand. The most commonly
used method of tactile communication is tactile finger spelling which uses the
same hand shapes as the visual modes.
2) British two-hand alphabet: This alphabet is used in Great Britain and
members of the commonwealth. This alphabet uses both hands to represent
the letters of the alphabet, and numbers. The tactile modifies its usage by
having the deaf-blind person keep one hand stationary, while the speaker
uses his or hand on the appropriate position on the deaf blinds persons,
hand.
Braille: It is a system of touch reading that uses raised dots to represent the
letters of the alphabet and numbers 0-9. Six dots are arranged in two vertical
columns of three dots each. The six dots of the cell are numbered 1, 2, 3
downward the left and 4, 5, 6 downward on the right.
Braille has two levels or grades - Grade 1 and grade 2
In Grade 1 braille, each word is spelled out, letter by letter. It consists of
the letters of the alphabet, punctuations, numbers and composition signs.
Aural/oral method (speech): This method is used by deaf blind persons who
have sufficient residual hearing to hear and understand speech with the use
of amplification, and/or who can express themselves through speech. The
deaf blind person will determine the appropriate distance from speakers to
facilitate the use of amplified residual hearing and the speaker should be
sensitive to this cues.
Print in the palm: This is a tactile form of communication and the palm is
used as the writing surface. The speaker holds the deaf-blind persons hand
and prints (using the finger index) the letters of the alphabet to from words
and sentences. The end of the word is indicated by the speakers hand placed
flat on the receiver’s hands. Mistakes are corrected by rubbing the receivers
hand as if erasing the word. The same procedure can be used for printing
another part of the body, usually the arm, if the persons palm is not
sufficiently sensitive.
3) Hearing aids and cochlear implants: Hearing aids and external electronic
devices and cochlear implants are surgically implanted electronic gadgets
with an external device, both which aims at amplifying sound thus making
it available to the deaf-blind individual to effectively make maximal usage
of their residual hearing.
Talking gloves:
Gloves that can translate sign language into English are currently being
developed at the University of New South Wales.
A signer wears gloves that are connected to a computer that has been
programmed to tell the signs apart and can translate the signs into
written words on a monitor.
Each glove worn by the signer has 20 ways of measuring the movement
in their hand and the information is translated to the computer via two
wires.
Brown and Stevens (2005) pointed out that the stimulation of the major
trunk may result in muscle stimulation. The wrist is a favored site for
two channel aid and the abdomen or sternum for multiple arrays.
Tellatouch:
- This device is portable and weighs less than four pounds.
- The deaf-blind person sits opposite the typist and places a finger on a
small Braille "screen."
- Each letter that is typed appears briefly under the finger of the deaf-blind
person.
- The letter can be felt as long as the typist holds down the key. Only one
letter can be felt at a time.
- Fifty words per minute is probably the maximum speed of the device.
- The chief advantage of the Tellatouch is that it allows people who have
no specialized training to communicate quickly with the deaf-blind.
Functional approach:
Kaiser et al (1987) advocated this approach. The main goal of the functional
approach is to enable child to use communication functionally and socially
during their daily activities.
Child specific and situation specific the functional words are taught to the
child so that the child can interact communicatively with in his environment.
They suggested beginning functional language through a process of
encouraging nonverbal interactional strategies including-
a) Directed attention to the conversational partner
Van Dijk (1986) provides a curriculum for deaf-blind children. The first
step begins with developing attachment or bonding between
teacher/professional or caregiver and the child. Attachment process
involves 3 steps.
a) Coactive movement
b) Structuring the child’s daily routine and
c) Characterization.
Calendar systems
Calendars also provide a way to make clear the beginning, middle, and end of
an activity, as well as time concepts, such as before, after, later, and now
Scripts/routines:
It is generally known that deaf-blind children benefit in a numerous ways
from the establishment of strong routines for the day. A script can be
developed around any activity which can be carried out frequently and
regularly by an adult and child in fairly close contact. It may be routine such as
eating lunch, a sensory experience such as message or a physical routine such
as movement sequence.
Developing nurturance:
This relates to helping children develop a sense of well-being arising
directly from their contact with adults. It is essential that adults engaged in the
physical care of children do so in such a way that the children feel relaxed and
cared for. One of the effective ways of establishing contact with deaf-blind
children and so encouraging a communicative response is to share activities
with a high level of physical contact and pleasant sensations.
Sequencing experiences:
This is key concept in the education of deaf-blind children.
Promotes the understanding of contingencies, that certain behaviors are
likely to be followed by specific responses.
Encourages communicative behavior by helping the child to anticipate
the next step and so to signal appropriately.
CEREBRAL PALSY
Cerebral palsy is a non-progressive, nonfatal, non-curable, irreversible chronic
motor disability resulting from damage to the growing brain due to pre, peri &
postnatal causes.
Hearing impairment is common in children with CP.
The educational program for a cerebral palsied must encompass the total
educational process with a consideration to the special distinct need of the
children with CP. The educational program must be planned to meet the
differing intellectual, physical and personality problems of the CP group.
- This has the potential to lead to delays or failure to develop the full range
of communication skills such as initiating or taking the lead in
conversation, using complex syntax, asking questions, making commands,
or adding new information.
MENTAL RETARDATION
The effect of mental retardation is aggregated considerably when there is
hearing impairment. Teaching sign language is a better option in such cases.
Teaching sign language is to be carried out in a relaxed atmosphere with
emphasis on socialization.
Signs should be initially thought from flash cards whenever possible and
reinforced buy use of appropriate objects and remedial language material.
The magnitude of the management for the mentally handicapped depends
upon the severity of the problem.
Trainable level: moderate to severe mental retardation with hearing loss where
basic training is daily living like marketing, simple arithmetic are rendered.
Educable level: mild to moderate MR with HL with basic education according
to circumstances provided.
AAC for Mental Retardation:
- Prior to the mid-1980s, individuals with mental retardation were often not
provided with AAC devices as it was believed that they did not demonstrate
prerequisite skills for AAC or because of the notion that AAC would
interfere with speech development.
- From simple single-switch VOCAs to dynamic displays with visual scenes,
studies have shown that appropriate use of AAC devices can modify
classroom, home, and social environments for children and adults with
intellectual impairments to increase participation, make choices enhance
communication skills, and even influence the perceptions and stereotypes of
communication partners.
- AAC interventions in this population are highly individualized, taking into
account specific abilities of language comprehension, social-relational
characteristics, learning strengths and weaknesses, and developmental
patterns for specific types of MR.
- While most individuals with mental retardation do not have concomitant
behavioral problems, it is known that behavioral problems are typically
more prevalent in this population than others.
- In the past, strategies to "manage" behavioral problems included
incarceration, medication and aversive behavior modification techniques.
Since the mid-1980s, greater emphasis has been placed on teaching
functional communication skills to individuals as an alternative to "acting
out" for the purpose of exerting independence, taking control, or informing
preferences. This paradigm shift in the management of behavioral problems
for this population has placed new emphasis on AAC because many of these
individuals do not have functional speech for communication.
- Individuals with mental retardation face challenges in developing
communication skills, including problems with generalization (the transfer
of learned skills into daily activities).They also often lack naturally
occurring communication opportunities and responsive communicators with
whom they can interact in the home, school and community environments.
As a result, AAC intervention for this population emphasizes partner
training as well as opportunities for integrated, natural communication.
People with Down syndrome may experience hearing losses while in their
early twenties or younger.
- Have conductive HL resulting from frequent ME infections in childhood.
- People born with malformations of the OE typically have very small ear canals
that can be blocked by small amounts of earwax.
- Many people with Down syndrome, as well as people with other
developmental disabilities, may have narrow ear canals.
People with Down syndrome, who may experience hearing losses earlier in life,
should have periodic hearing tests throughout their life.
Voice output communication aid used for children who do not have
speech.
LEARNING DISABILITY
Learning disability is a classification including several disorders in which
a person has difficulty learning in a typical manner, usually caused by an
unknown factor or factors. A common reason for referral of children with
learning disabilities is a conflict between parents and the school over the
management of child’s difficulties.
Speech therapy techniques for children with Hearing impairment with learning
disability/ADHD/PDD:
The following are the important goals to be achieved in children with HI with
additional problem:
Establishing Eye Contact Behavior:
Any activity used to create this behavior should concentrate on getting the
child to look at the therapists face, either directly or indirectly by attracting the
child’s attention with some other object of interest. The following are some
activities the therapist can use to engage and maintain eye contact behavior in
children with HI with additional impairment.
Activities:
- Peek-a-boo - Follow the candle
- Attention
Building of attention:
The following are some activities that the therapist can use to try and build
attention.
Activity
- Fill the bucket/Empty the - Picking grapes
bucket - Let’s look at pictures
- Joining the pictures - Find the ball
- Let’s clean up
RESEARCH STUDIES
Pyman, Blamey, Lacy, Clark, and Dowell (2000)
• Examined speech perception outcomes following CI
• They found that the former group was significantly slower in developing
speech perception skills following implantation
Results:
Total of mild mental retardation in eight cases (13.33 per cent); moderate
mental retardation in five (8.33 per cent); learning disability in 20 (33.33
per cent); attention deficit/hyperactivity disorder in 15 (25 per cent);
cerebral palsy in five (8.33); congenital blindness in three (5 per cent);
and autism in four (6.66 per cent). Implanted in multiple handicap
children.
All patients showed significant development in speech perception, except
for autistic and congenitally deaf-blind patients.
Conclusion:
Although cochlear implantation is not contraindicated in prelingually deaf
persons with additional disabilities, congenitally deaf-blind and autistic
patients showed limited development in auditory perception as a main
outcome of cochlear implantation.
These patients require unique rehabilitation in order to achieve more
auditory development.
References