Annual Report 2017 18

Annual Report
1st July, 2017-30th June, 2018
Annual Report 2017-18
Omeed Ki Kiran Foundation (A Ray of Hope)

Gynae Welfare Hospital & Thalassaemia Center Mardan
Head Office: House #73, Street #01, Sector

K, Sheikh Maltoon Town, Mardan.
Gynae Welfare Hospital & Thalassaemia
Center: House No.03, Near Bilal, Masjid
Canal Road Bijli Ghar Mardan
Phone: +92-937-876329
+92-937-862789
+92-300-5723523
Email: [email protected]
[email protected]
www.okkf.org
Message by Chairman,
The Founder Omeed Ki Kiran Foundation (A

Ray of Hope)
Our aim and vision is to bring
hope of life among thalasseamia
children, and to serve humanity
and bring hope of life among
deprived people who are in
sufferings.
To achieve the aim and vision Omeed Ki Kiran
Foundation has been established as a welfare
hospital & thalasseamia center, which provide free
and safe blood transfusion to thalasseamia children
without any discrimination.
We appeal to all people who belong to different

spheres of life to come forward and help us
generously for this noble and pious cause and to
play best role for spreading happiness among
thalasseamia children and render the world
Thalassaemia free.
Imran A. Khan
Founder, Chairman
“The enjoyment of the highest attainable standard
of health is one of the fundamental rights of every
human being”
“To serve humanity and bring a hope of life among

deprived people who are in sufferings”
“To ensure free & standard health services for poor &
vulnerable people with kidney failures
and deadly disease of Thalassaemia”
“May Allah give us the strength to serve the humanity”

Table of Contents
S.NO Contents Page

1 Acknowledgement i
2 Forward by the Founder Chairman OKF 1
3 Forward by the Managing Director OKF 2
4 About Thalassaemia 3-13
5 Thalassaemia in Pakistan 14-16
6 About Blood and Donations 17-20
7 Islamic View of Blood Donation and Transfusion 21
8 About OKF (Omeed Ki Kiran Foundation 22
9 Management & Staff 23
10 OrganoGram 25
11 Advisory Council (BOG) 26
12 Registration Authorities 26
13 Pillars of the Organization 27
14 Thalassaemia Awareness Cell 27
15 Blood Donors Cell 27
16 Public Relations Cell 28
17 Waste Management System 28
18 Establishment of Welfare Hospital & Thalassaemia 29-30
Center
19 Objectives 31-32
20 Analysis of 30th June, 2017 Annual work plan 33-34
21 Years 2013-17 Activities 35-50
22 Audit Report 2016-17
ACKNOWLEDGEMENT
I would like to express my gratitude and appreciation to all those who extended me their
cooperation to complete the annual report 2017-18. Special thanks are done to our
blood donors who donate blood for Thalassaemia patients.
I acknowledge with much appreciation the crucial role of Mr. Imran A. Khan the
founder, Chairman Omeed Ki Kiran Foundation with regard to his efforts for the noble
cause of fighting Thalassaemia and his support for the poor and vulnerable people of
the region.
I appreciate the support of Social Worker Mufti Syed ul Abrar sb Sakakhot, Mardan,
Dr.Gulzar Ahamd, Anwar Ali Sup. Physics Department AWKUM; Prof. Muhammad
Nadeem, Prof. Jahangir and Prof. Zia ul Islam Govt.College of Management Sciences
Mardan; Naveed Khan Saffi, Jehangir Khan, Sahib Zada, Islamic International
University Islamabad; Dr. Maria, Prof. Ijlal, Aizaz Khan Student Amir Muhammad
Khan Campus Mardan; Principals Govt.College of Commerce2 Mardan, Ilham College
of Technologies, Managing Director Muhammad Iqbal MS & MIT College, Nice
College of Technologies, Govt.Degree College Mardan.
I am thankful to Mr. Bilal, Pakistan Center for Philanthropy Islamabad who gave a
direction towards documentation and policies development & implementation, Mr.
Bahadar Khan Superintendent income tax who always supports and helps us in affairs
of Omeed Ki Kiran Foundation.
Thanks to Dr.Tariq Khan, Founder, Chairman Ijaz sb Hamza Foundation Peshawar who
has been helping and supporting our activities since the beginning.
I also thank Mr. Ali Gohar President, District Foot ball Association Mardan, for his
coordination and support in the shape of blood donations.
Finally, I am highly thankful to Mufti Syed ul Abrar and his companions and all those
who are supporting Omeed Ki Kiran Foundation welfare hospital & thalassaemia center
in the shape of blood donations.
I am also indebted to Prof: Abdul Jabbar for correcting mistakes of language and
grammar while going through the contents of the report.
Rooh-ul-Amin
Managing Director
Omeed Ki Kiran Foundation 1
Forward by the Founder, Chairman Omeed Ki Kiran Foundation
“2017-2018 has been an extremely productive years - a years of major Steps forward and many
advances. A great deal of work is still needed to spread awareness on Thalassaemia and its
preventions and to aware carrier families of the deadly disease for future complications and strive
to reduce inequalities in healthcare and to improve the quality of life of all patients.”
On behalf of the Executive Committee and Staff of Omeed Ki Kiran Foundation Welfare Hospital &
Thalassaemia Center, it is my privilege to present to you the Annual Report for the years 2016-17,
which provides a summary of all major activities undertaken during the last four years and which
lightened goals, objectives, achievements and focus of the organization.
Omeed Ki Kiran Foundation’s activities in 2013-17 were promoted under the slogan “It’s a ray of
hope for every patient with thalasseamia: major and beyond”, focusing on safe blood transfusion and
spreading of awareness and the provision of up-to-date knowledge, research on the prevention and
management of thalasseamia.
Omeed Ki Kiran Foundation Focusing on Safe blood transfusion and spreading awareness on
thalassaemia and its prevention through press, Social Media, Seminars, workshops, lectures in
educational institutions and walks and to divert the government attention toward the issue which
becoming alarming day by day in Pakistan.
Omeed Ki Kiran Foundation has been established its own Thalassaemia awareness cell through which
guide the patient’s parents/guardians and it’s focusing on their families who are carrier of beta
thalasseamia and alpha thalassaemia. The organization has refers most of the families for chorionic
vinous sampling (CVS) to conformed their coming baby status regarding thalassaemia. Omeed Ki
Kiran Foundation has screened 200 families with HB Electrophoresis free of cost at Omeed Ki Kiran
Foundation. The welfare hospital & thalasseamia center treats general OPD without cost and providing
medicine and free screening facilities to poor and vulnerable. The organization has future planning that
to purchase land and construct their own hospital building, for thalassaemia, Gynae obstetrics, and
general patients of Khyber Pakhtunkhwa, Pakistan.
Imran A. Khan
Founder, Chairman
House No.03, Near Bilal Masjid Canal Road Bijli Ghar Mardan, KPK. Pakistan 1
Phone No.0937-876329, 0937-862789. Email: [email protected], [email protected]
www.okkf.org
Forwarded by Managing Director Omeed Ki Kiran Foundation
“It has been a matter of happiness to express my views about Omeed Ki Kiran Foundation Welfare
Hospital & Thalassaemia Center, the spectrum of work and activities undertaken by Omeed Ki Kiran
Foundation and the challenges faced by OKF in the first year of its establishment in April, 2013.I am
very glad to have achieved the objectives in the first year, despite shortcomings, difficulties and due
to limited resources, electricity shortfall, terror and uncertain situation of the country, OKF
management handle this difficult task and gave practical shape in provision of blood transfusion to
thalassaemia patients, awareness on thalassaemia prevention, general patients and affected donors
treatment”and establishment of Gynae-Obs section in the start of 2016, and Hemo-Dialysis Welfare
Center to be established in the mid of 2018.
Omeed Ki Kiran Foundation got its first registration with Registrar Joint stock companies & Societies
under society act XXI, 1860 in April, 2013 and Health Regularity Authority (HRA) in June, 2013,
government of Khyber Pakhtunkhwa, Pakistan, and has been awarded Pakistan Center for
Philanthropy (PCP Islamabad) certification and recognized NPO (Non-Profit Organization) by Federal
Board of Revenue (FBR, Pakistan) under section 2 (36) of income tax ordinance 2001.
The organization comprising qualified, experienced, hardworking and dedicated staff, who’s shines
organization and become a prominent health care institution of KPK where students come for training
and the researchers for research on thalassaemia and hematology , hemoglobin and other blood
disorder.OKF welfare hospital & thalassaemia center is not limited to thalassaemia, also covers other
blood disorder such as anemia, hemophilia, a plastic anemia.OKF has close coordination with
organizations who, affiliated with thalassaemia, such like Thalassaemia Foundation of Pakistan (TFP),
Hamza Foundation and blood transfusion, Care 2 Children Foundation, Islamabad. Omeed Ki Kiran
Foundation is led by Mr. Imran A. Khan its Founder, and Chairman; He is a social worker, sincere and
dedicated personality who always plays his best role in difficult situation and helps those who are in
sufferings, OKF is not limited to health but also helps and supports the poor children and youth with
books, uniforms, admissions and fees. Omeed Ki Kiran Foundation will inaugurate Dialysis Welfare
Center in the mid of 2018, and we will establish Physiotherapy & Rehabilitation Center in near Future.
www.okkf.org
Rooh-ul-Amin
Managing Director
1 About Thalassaemia
Thalassaemia is actually a group of inherited diseases of the blood that affects a person's ability to
produce hemoglobin, resulting in anemia. Hemoglobin is iron containing protein in red blood cells that
carries oxygen and nutrients to cells in the body. About 100,000 babies worldwide are born with
severe forms of thalasseamia each year. Thalassaemia occurs most frequently in people of Italian,
Greek, Middle Eastern, Southern Asian and African Ancestry.
The two main types of thalasseamia are called "alpha" and "beta," depending on which part of an
oxygen-carrying protein in the red blood cells is lacking. Both types of thalasseamia are inherited in
the same manner. The disease is passed to children by parents who carry the mutated thalasseamia
gene. A child who inherits one mutated gene is a carrier, which is sometimes called "thalasseamia
trait." Most carriers lead completely normal, healthy lives.
A child who inherits two thalasseamia trait genes - one from each parent - will have the disease. A
child of two carriers has a 25 percent chance of receiving two trait genes and developing the disease,
and a 50 percent chance of being a thalasseamia trait carrier.
Most individuals with alpha thalasseamia have milder forms of the disease, with varying degrees of
anemia. The most severe form of alpha thalasseamia, which affects mainly individuals of Southeast
Asian, Chinese and Filipino ancestry, results in fetal or newborn death.
1.2 Alpha Thalassaemia

It a type of blood disorder that results in anemia in an individual due to defective haemoglobin
synthesis caused by alpha gene deletion on chromosome number 16.You need four genes (two from
each parent) to make enough alpha globin protein chains. If one or more of the genes is missing, you'll
have alpha thalasseamia trait or disease. This means that your body doesn't make enough alpha globin
protein.
 If you're only missing one gene, you're a "silent" carrier. This means you won't have any signs of
illness.
 If you're missing two genes, you have alpha thalasseamia trait (also called alpha thalasseamia minor).
You may have mild anemia.
 If you're missing three genes, you likely have hemoglobin H disease (which a blood test can detect).
This form of thalasseamia causes moderate to severe anemia and requires blood transfusions if
haemoglobin is low.
Very rarely, if a baby is missing all four genes. This condition is called alpha thalasseamia major or
hydrops fetalis. Babies who have hydrops fetalis usually die before or shortly after birth.
www.okkf.org
1.3 Example of an Inheritance Pattern for Alpha Thalassaemia
The picture shows one example of how alpha thalasseamia is inherited. The alpha globin genes are
located on chromosome 16. A child inherits four alpha globin genes (two from each parent). In this
example, the father is missing two alpha globin genes and the mother is missing one alpha globin
gene.
Each child has a 25 percent chance of inheriting two missing genes and two normal genes
(thalasseamia trait), three missing genes and one normal gene (hemoglobin H disease), four normal
genes (no anemia), or one missing gene and three normal genes (silent carrier).
1.4 What is beta thalasseamia?

Beta thalasseamia is a blood disorder that reduces the production of hemoglobin and is caused by
mutations in chromosome number 11.
In people with beta thalasseamia, low levels of hemoglobin lead to a lack of oxygen in the body.
Affected individuals also have a shortage of red blood cells (anemia), which can cause pale skin,
weakness, fatigue, and more serious complications. People with beta thalasseamia are at an increased
risk of developing abnormal blood clots inside body, are prone to infections, etc.
Beta thalasseamia is classified into three types depending on the mutations in beta genes of
haemoglobin: thalasseamia major (also known as Cooley's anemia), thalasseamia intermedia and
thalasseamia minor. Of the three types, thalasseamia major is more severe.
www.okkf.org
The signs and symptoms of thalasseamia major appear within the first 2 years of life most of the time
when child is 6 months old. Children develop life-threatening anemia. They do not gain weight and
grow at the expected rate (failure to thrive) and may develop yellowing of the skin and whites/scleras
of the eyes (jaundice). Affected individuals may have an enlarged spleen, liver, and heart, and their
bones may be misshapen. Some adolescents with thalasseamia major experience delayed puberty.
Many people with thalasseamia major have such severe symptoms that they need frequent blood
transfusions to replenish their red blood cell supply. Over time, an influx of iron-containing
hemoglobin from chronic blood transfusions can lead to a buildup of iron in the body, resulting in
liver, heart, and hormone problems.
Thalassaemia intermedia are milder than Thalassaemia major. The signs and symptoms of
thalasseamia intermedia appear in early childhood or later in life. Affected individuals have mild to
moderate anemia and may also have slow growth and bone abnormalities. These children require
blood during stressful situations.
Thalassaemia minor is causing no problem to the individual but is carrier of the disease and can
transfer the disease to their offsprings.It is sometimes called carrier.
1.5 How common is beta thalasseamia worldwide?
• Beta thalasseamia is a fairly common blood disorder worldwide. Thousands of infants with
beta thalasseamia are born each year. Beta thalasseamia occurs most frequently in people from
Mediterranean countries, North Africa, the Middle East, India, Central Asia, and Southeast Asia.
Aprox. 1.5% of the world's population is carriers of β thalasseamia. The Southeast Asia Region
accounts for about 50% of the world’s carriers. Prevalence of Beta Thalassaemia major are 5-7% in
Pakistan.
www.okkf.org
1.6 How do people inherit beta thalasseamia?
Inheritance of hemoglobin genes from parents with thalasseamia trait. As illustrated, the couple has
one chance in four that a child will inherit two thalasseamia genes. The child would have a severe
form of thalasseamia (thalasseamia major or thalasseamia intermedia). The severity varies, often
significantly. The nature of the particular thalasseamia genes greatly influences the clinical course of
the disorder.
www.okkf.org
Clinical and Genetic Classification
Clinical and Genetic Classification
Gene
deletions
Robbins
1.7 What Are the Signs and Symptoms of Thalassaemia?

A lack of oxygen in the bloodstream causes the signs and symptoms of thalasseamia. The lack of
oxygen occurs because the body doesn't make enough healthy red blood cells and hemoglobin. The
severity of symptoms depends on the severity of the disorder.
1.8 No Symptoms
Alpha thalasseamia silent carriers generally have no signs or symptoms of the disorder. The lack of
alpha globin protein is so minor that the body's hemoglobin works normally.
1.9 Mild Anemia
People who have alpha or beta thalasseamia trait can have mild anemia. However, many people who
have these types of thalasseamia have no signs or symptoms.
Mild anemia can make you feel tired. Mild anemia caused by alpha thalasseamia trait might be
mistaken for iron-deficiency anemia.
1.10 Moderate to severe Anemia and Other Signs and Symptoms
People who have beta thalasseamia intermedia have moderate to severe anemia. They also may have
other health problems, such as:
 Slowed growth and delayed puberty. Anemia can slow down a child's growth and
development.
 Bone problems. Thalassaemia may cause bone marrow to expand. Bone marrow is the spongy
substance inside bones that makes blood cells. When bone marrow expands, the bones become wider
than normal. They may become brittle and break easily.
www.okkf.org
 An enlarged spleen. The spleen is organ that helps your body fight infection and removes
unwanted material. When a person has thalasseamia, the spleen has to work very hard. As a result, the
spleen becomes larger than normal. This makes anemia worse. If the spleen becomes too large, it must
be removed.
1.11 Severe Anemia and Other Signs and Symptoms
People who have hemoglobin H disease or beta thalasseamia major (also called Cooley's anemia) have
severe thalasseamia. Signs and symptoms usually occur within the first 2 years of life. They may
include severe anemia and other health problems, such as:
 A pale and listless appearance

 Poor appetite
 Dark urine (a sign that red blood cells are breaking down)
 Slowed growth and delayed puberty(Endocrinal/Hormonal problems)
 Jaundice (a yellowish color of the skin or whites of the eyes/scleras)
 An enlarged spleen, liver, or heart
 Bone problems (especially with bones in the face, skull)
 Shortness of breath/dyspnoea.
1.12 Diagnosing thalasseamia
Most children with moderate to severe thalasseamia are diagnosed by the end of their second year.
People with no symptoms may not realize until they have a child with thalasseamia and are then
diagnosed as carriers.
If the doctor suspects thalasseamia, certain blood tests may be ordered:
 A complete blood count (CBC) - to measure hemoglobin levels, quantities of red blood cells
and their size. Not only patients with thalasseamia have less hemoglobin than normal, their red blood
cells may be particularly small.
 A reticulocyte count - this blood test measures how fast red blood cells (reticulocytes) are
being made by the bone marrow and released into the blood. Reticulocytes are usually in the
bloodstream for approximately two days before they develop into mature red blood cells. Between 1%
to 2% of a healthy person's red blood cells are reticulocytes.
1.13 Hb electrophoresis. It detects abnormal hemoglobin
 Genetic testing - DNA analysis will help either diagnose thalasseamia or tell whether a person
is carrying faulty hemoglobin genes.
 Prenatal testing for thalasseamia - to find out whether the fetus has thalasseamia and how
severe it might be. The following tests may be done.
 Chorionic villus sampling - a piece of the placenta is taken out and checked in the laboratory. This
is usually done at the end of the first trimester, around the 11th week of pregnancy.
www.okkf.org
 Amniocentesis - a sample of amniotic fluid is taken. This usually occurs during the 16th week of
pregnancy. Amniotic fluid is a clear, slightly yellowish liquid that surrounds the fetus.
How is Thalassaemia Treated?
Treatments for thalasseamia depend on the type and severity of the disorder. People who are carriers
or who have alpha or beta thalasseamia trait have mild or no symptoms. They’ll likely need little or no
treatment.
Doctors use three standard treatments for moderate and severe forms of thalasseamia. These
treatments include blood transfusions, iron chelation (ke-LAY-shun) therapy, and folic acid
supplements. Other treatments have been developed or are being tested, but they're used much less
often.
1.14 Standard Treatments

1.15 Blood Transfusions
Transfusions of red blood cells are the main treatment for people who have moderate or severe
thalasseamia. This treatment gives you healthy red blood cells with normal hemoglobin.
During a blood transfusion, a needle is used to insert an intravenous (IV) line into one of your blood
vessels. Through this line, you receive healthy blood. The procedure usually takes 2 to 4 hours.
Red blood cells live only for about 120 days. So, you may need repeated transfusions to maintain a
healthy supply of red blood cells.
If you have hemoglobin H disease or beta thalasseamia intermedia, you may need blood transfusions
on occasion. For example, you may have transfusions when you have an infection or other illness, or
when your anemia is severe enough to cause tiredness.
If you have beta thalasseamia major (Cooley's anemia), you’ll likely need regular blood transfusions
(often every 2 to 4 weeks). These transfusions will help you maintain normal hemoglobin and red
blood cell levels.
Blood transfusions allow you to feel better, enjoy normal activities, and live into adulthood. This
treatment is lifesaving, but it's expensive and carries a risk of transmitting infections and viruses (for
example, hepatitis). However, the risk is very low in the United States because of careful blood
screening.
After red blood cell transfusion patients are advised to take vitamin c which helps in removal of iron
from body in urine.
1.16 Iron Chelation Therapy
The hemoglobin in red blood cells is an iron-rich protein. Thus, regular blood transfusions can lead to
a buildup of iron in the blood. This condition is called iron overload. It damages the liver, heart, and
other parts of the body.
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To prevent this damage, doctor’s use iron chelation therapy to remove excess iron from the body. Two
medicines are used for iron chelation therapy.
 Deferoxamine is a liquid medicine that's given slowly under the skin, usually with a small
portable pump used overnight usually 8 to 12 hours. This therapy takes time and can be mildly painful.
Side effects include problems with vision and hearing.
 Deferasirox is a pill taken once daily. Side effects include headache, nausea (feeling sick to the
stomach), vomiting, diarrhea, joint pain, and tiredness.
 Deferiprone.Given based on body weight of patients but causes body aches and pains.
1.17 Folic Acid Supplements
Folic acid is a B vitamin that helps build healthy red blood cells. Your doctor may recommend folic
acid supplements in addition to treatment with blood transfusions and/or iron chelating therapy. It is
given once a day.
1.18 Other Treatments
Other treatments for thalasseamia have been developed or are being tested, but they're used much less
often Hydroxyurea which is anti cancerous drug is used in some centers like in Hamza foundation
Peshawar Pakistan which in some patients decreases the frequency of blood transfusions.
1.19 Blood and Marrow Stem Cell Transplant
A blood and marrow stem cell transplant replaces faulty stem cells with healthy ones from another
person (a donor usually sibling). Stem cells are the cells inside bone marrow that make red blood cells
and other types of blood cells.
A stem cell transplant is the only treatment that can cure thalasseamia. But only a small number of
people who have severe thalasseamia are able to find a good donor match and have the risky
procedure.
1.20 Possible Future Treatments
Researchers are working to find new treatments for thalasseamia. For example, it might be possible
someday to insert a normal hemoglobin gene into stem cells in bone marrow. This will allow people
who have thalasseamia to make their own healthy red blood cells and hemoglobin.
Researchers also are studying ways to trigger a person's ability to make fetal hemoglobin after birth.
This type of hemoglobin is found in fetuses and newborns. After birth, the body switches to making
adult hemoglobin. Making more fetal hemoglobin might make up for the lack of healthy adult
hemoglobin.
1.21 Treating Complications
Better treatments now allow people who have moderate and severe thalasseamia to live longer. As a
result, these people must cope with complications that occur over time.
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An important part of managing thalasseamia is treating complications. Treatment might be needed for
heart or liver diseases, infections, osteoporosis, and other health problems.
1.20 What are the complications of thalasseamia?
The most common complications include:
Iron overload - this may be because of the frequent blood transfusions or the disease itself.
Iron overload raises the risk of hepatitis (swollen liver), fibrosis (enlarged liver) and cirrhosis (liver
becomes progressively damaged by scarring).
The endocrine system includes glands that produce hormones. The pituitary gland is particularly
sensitive to iron overload and can become damaged, which may lead to delayed puberty and
restricted growth. Later on after puberty the patient may be at a higher risk of developing diabetes,
and having either an underactive or overactive thyroid gland.
Iron overload raises the risk of arrhythmias (abnormal heart rhythms) and congestive heart failure.
 Enlarged spleen (spleenomegaly) - also known as hypersplenism. The spleen recycles red
blood cells. In patients with thalasseamia the red blood cells may have an abnormal shape, making it
harder for the spleen to recycle them; the red blood cells accumulate in the spleen, making it grow. An
enlarged spleen can become overactive - it starts destroying healthy blood cells the patient receives
during transfusions. Sometimes the patient may need a Spleenectomy (surgical removal of the spleen).
Infection - if the patient has had his/her spleen removed, there is a greater risk of infection.
Bone deformities - in some cases the bone marrow expands, which deforms the bone around it. The
bones of the skull and face may be affected. As the bone marrow expands, the bone around it becomes
brittle, increasing the risk of fracture.
1.21 What is the life expectancy for someone with thalasseamia?
According to the American Academy of Family Physicians, a patient with thalasseamia trait has a
normal life expectancy. Those with beta thalasseamia major, on average live 17 years and generally
die before their thirtieth birthday.
The majority of deaths are caused by the heart complications of iron overload.
1.22 How Can Thalassaemia Be Prevented?
You can’t prevent thalasseamia because they’re inherited (passed from parents to children through
genes). However, prenatal tests can detect these blood disorders before birth.
Family genetic studies may help find out whether people have missing or altered hemoglobin genes
that cause thalasseamia. If you are known carrier of thalasseamia and you're thinking of having
children, consider talking with your doctor and a genetic counselor. They can help determine your risk
for passing the disorder to your children.
www.okkf.org
1.23 Living with Thalasseamia
Survival and quality of life have improved for people who have moderate or severe thalasseamia. This
is because:
 More people are able to get blood transfusions now.

 Blood screening has reduced the number of infections from blood transfusions. Also,
treatments for other kinds of infections have improved.
 Iron chelation treatments are available that are easier for some people to take.
 Some people have been cured through blood and marrow stem cell transplants.
Living with thalasseamia can be challenging, but several approaches can help you cope.
1.24 Follow Your Treatment Plan
Following the treatment plan your doctor gives you is important. For example, get blood transfusions
as your doctor recommends, and take your iron chelation medicine as prescribed.
Iron chelation treatment can take time and be mildly painful. However, don't stop taking your
medicine. The leading cause of death among people who have thalasseamia is heart disease caused by
iron overload. Iron buildup can damage your heart, liver, and other organs.
Several chelation treatments are now available, including injections and pills. Your doctor will talk
with you about which treatment is best for you.
Take folic acid supplements if your doctor prescribes them. Folic acid is a B vitamin that helps build
healthy red blood cells. Also, talk with your doctor about whether you need other vitamin or mineral
supplements, such as vitamins A, C, or D or selenium.
1.25 Get Ongoing Medical Care

Keep your scheduled medical appointments, and get any tests that your doctor recommends.
These tests may include:
 Monthly complete blood counts and tests for blood iron levels every 3 months
 Yearly tests for heart function, liver function, and viral infections (for example, hepatitis B and
C and HIV)
 Yearly tests to check iron buildup in your liver
 Yearly vision and hearing tests
 Regular checkups to make sure blood transfusions are working
 Other tests as needed (such as lung function tests, genetic tests, and tests to match your tissues
with a possible donor if a stem cell transplant is being considered)
Children who have thalasseamia should receive yearly checkups to monitor their growth and
development. The checkups include a physical exam, including a height and weight check, and any
necessary tests.
www.okkf.org
1.26 Take Steps to Stay Healthy
Take steps to stay as healthy as possible. Follow a healthy eating plan and your doctor's instructions
for taking iron supplements.
Get vaccinations as needed, especially if you've had your spleen removed. You may need vaccines for
the flu, pneumonia, hepatitis B, and meningitis. Your doctor will advise you about which vaccines you
need.
Watch for signs of infection (such as a fever) and take steps to lower your risk for infection (especially
if you've had your spleen removed). For example:
 Wash your hands often.

 Avoid crowds during cold and flu season.
 Keep the skin around the site where you get blood transfusions as clean as possible.
 Call your doctor if a fever develops.
1.27 Emotional Issues and Support
If you or your child has Thalassaemia, you may have fear, anxiety, depression, or stress. Talk about
how you feel with your health care team. Talking to a professional counselor also can help. If you’re
very depressed, your doctor may recommend medicines or other treatments that can improve your
quality of life.
Joining a patient support group may help you adjust to living with thalasseamia. You can see how
other people who have the same symptoms have coped with them. Talk with your doctor about local
support groups or check with an area medical center.
Support from family and friends also can help relieve stress and anxiety. Let your loved ones know
how you feel and what they can do to help you.
Some teens and young adults who have thalasseamia may have a hard time moving from pediatric care
to adult care. Doctors and other health professionals who care for these children might not be familiar
with adult issues related to the disorder, such as certain complications.
Also, it might be hard for adults who have thalasseamia to find doctors who specialize in treating the
disorder. Ask your child's doctor to help you find a doctor who can care for your child when the time
comes to make the switch. Planning and good communication can help this move go smoothly.
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2 Thalassaemia in Pakistan
Β-thalasseamia is not only common in the Mediterranean region, South-East Asia, the Indian
Subcontinent including Pakistan and the Middle East but has now become a global problem Owing to
migration of people from these regions. Approximately 1.5% of the global population is carriers. The
carrier rate varies from country to country. Greece has a carrier rate of 6-19%, Cyprus 15-17%, Iran 4–
5%, Saudi Arabia 1-2% while Pakistan 1–8%.Many countries like Greece, Cyprus, Iran, and Saudi
Arabia, Italy and Sardinia are running thalasseamia prevention programs at national level. The
incidence of ß-thalasseamia has decreased significantly after the introduction of these programs in
these countries. These programs are cost effective. There is no thalasseamia prevention program in
Pakistan at national level. Although there are a number of thalasseamia programs being run by non-
governmental organization e.g. Fatimid Foundation and “Thalassaemia Free Pakistan” in Pakistan but
their main purpose is to provide palliative services to the patients and little attention is being paid to
the prevention of the disease. The public awareness about the disease in Pakistan is very poor. Even
the parents of thalassaemic children residing in Pakistan know very little about the disease. There is
great impact of cultural values, religion, finance and education on the formulation of any national
prevention program.50, 000 to 100,000 patients are suffering from Thalassaemia in Pakistan and every
year 5,000-6000 babies are born with the deadly disease, around 8 million population is Thalassaemia
carrier. “Thalassaemia International Federation has designated May 8, as World Thalassaemia Day to
show solidarity with patients and ever year like other parts of the world, this day is observed in
Pakistan,”, carriers of this disease can live a healthy life but if they marry another person having the
disease gene then they are chances of that they can transmit it to next generation, which may cause the
Thalassaemia. The carrier rate in Pakistan is 1–8%. There is no program for its prevention at national
level. Public awareness about the disease is poor. The cut off points for various screening tests along
with their validity in our set up is yet to be defined. The program must include mandatory informed
premarital extended family screening. Religious issues should be resolved before launching of the
program understanding about thalasseamia and carrier screening can be improved if education to
public about the disease is being provided. The public awareness may be improved by celebrating
thalasseamia days, introducing the topic in school syllabus, using pamphlet, posters and mass media,
involvement of health personal including lady health workers and vaccinators and lectures presented to
the general public as well as before screening the persons. Being a carrier in Pakistan may render an
individual unfit as a suitable marriage partner. The stigma associated with being a carrier can only be
reduced significantly through greater awareness and public education. Reduction of stigma will take
years and years of public education.
Blood transfusion costs alone are in the region of £1000-1500 per child per year – and that is before
other medical and travel costs have been included. State of the art life-prolonging treatment is out of
reach for up to 95% of patients and life expectancy can be as low as 15-20 years.
In a country like Pakistan, where children with thalasseamia are refused registration in even private
hospitals, prevention is a necessity.
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Prevention is better than Cure

Prevention may take several forms:
Pre-nuptial blood screening allows potential partners to assess their chances of having a child with
thalasseamia. Blood tests for potential parents (already married).
Pre-natal blood tests during weeks 18-20 of pregnancy.
In countries ranging from Iran and Saudi Arabia to Cyprus, pre-nuptial screening for certain diseases
is compulsory and mandated by religious authorities. The success of prevention in these countries is
evident. In Iran, a national thalasseamia-screening program led to a drop in new cases from 1200 to
just 70 over a 5-year period. Furthermore, they estimated that the ratio of cost of treatment to
prevention of thalasseamia is 10:1 – that is, the cost of treatment is 10 times the cost of prevention.
In the UK, there is an emphasis on educating people through the media, and then offering help and
advice when asked. This is particularly the case with respect to genetic diseases. While the ethical
implications of compulsory pre-nuptial screening program are likely to be questioned here, their
impact in countries where they have been implemented is conclusive – they work.
The current campaign for prevention of thalasseamia in Pakistan targets these areas: Raising
awareness of the disease, Educating the population about genetic diseases
stressing the importance of screening carriers providing genetic counseling for carrier parents.
Thalassaemia Societies across the country are working on these aims. Securing support from
influential individuals including doctors, politicians and businessmen has furthered their cause.
However, to completely eradicate the disease and achieve results such as those seen in Iran, a
coordinated government-led effort to provide a national screening and prevention program is needed.
2.1 The Hand that Stirs the Pot
Thalassaemia was brought to the forefront of Pakistani politics when a bill was drafted in Parliament
to make pre-nuptial screening compulsory. Contrary to expectations, it was patient groups who were
the driving force behind political change, supported by Pakistani MNAs and doctors, as well as British
MPs including Dave Anderson.
The law, which has already been implemented in several provinces, does not ban couples from getting
married if they find out they are both, for example, thalasseamia minor carriers; it does however, give
them the advantage of knowing what the future might hold for them and any child they might have.
It is evident that thalasseamia is a problem around the world, yet many countries have been successful
in driving rates of the disease down. In the UK, adequate treatment is available to help a child with
thalasseamia survive; however, in a country like Pakistan which has limited resources and expensive
health-care, life expectancy is very low. While improved access to treatment is needed in the short-
term, radical genetic screening program may be the key to a long-term decline in cases.
2.2 Who Is at Risk for Thalassaemia?
Family history and ancestry are the two risk factors for thalasseamia.
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2.3 Family History
Thalassaemia are inherited—that is, the genes for the disorders are passed from parents to their
children. If your parents have missing or altered hemoglobin-making genes, you may have
thalasseamia.
2.4 Ancestry
Thalassaemia occur most often among people of Italian, Greek, Middle Eastern, Southern Asian, and
African descent.
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3 About Blood and Donations
Blood, vital fluid found in humans and other animals that provides important nourishment to all body
organs and tissues and carries away waste materials. Sometimes referred to as “the river of life,” blood
is pumped from the heart through a network of blood vessels collectively known as the circulatory
system.
An adult human has about 5 to 6

liters (1 to 2 gal) of blood, which is
roughly 7 to 8 percent of total
body weight.
In fants and children have

comparably lower volumes of
blood, roughly proportionate to
their smaller size. The volume of
blood in an individual fluctuates.
During dehydration, for example
while running a marathon, blood

volume decreases. Blood volume
increases in circumstances such as
pregnancy, when the mother’s
blood needs to carry extra oxygen
and nutrients to the baby.
Male donors can give

blood/donate every 12 weeks.
That's approximately every 3
months or 4 times in a 12 month
period. Female donors can give every 16 weeks or approximately every 4 months.
3.1 Why give blood?
Donated blood is a lifeline for many people needing long-term treatments, not just in emergencies.
Your blood's main components: red cells, plasma and platelets are vital for many different uses.
3.2 Red cells, plasma and platelets
Red cells are used predominantly in treatment of anemia, in surgeries and major burns. Plasma
provides proteins, nutrients and clotting factors that are vital to stop bleeding after trauma - it is the
most versatile component of your blood. Platelets are tiny cells used to help patients at a high risk of
bleeding as they help in coagulation of blood.
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3.3 Short shelf-life
Maintaining a regular supply of blood to all the people who need it is not easy. Blood components
have a short shelf life. By giving blood, every donor is contributing to a nation-wide challenge to
provide life-saving products whenever and wherever they are needed.
Red cells - up to 35 days(2 to 8 centigrade)

Plasma - up to one year(frozen)
Platelets - up to seven days(Room temperature)
3.4 Balancing blood types
Ever since a national blood service was first created in 1946, we have relied on the generosity of blood
donors not only to maintain stock levels for all our hospitals, but to provide the necessary range of
eight blood types. We are indebted to our regular donors for their role in helping us to save lives.
We sometimes need to target specific blood types to increase stock levels. This is particularly true of
O Rh negative blood, which is rare but essential because it is the only blood type that can be given to
anyone, regardless of their blood type. Donors with the blood group B Rh negative are more often
found in black and south Asian minority ethnic communities. Because only 2 per cent of the
populations have this blood group, we often appeal for more B- donors.
3.5 Who can give blood?
Most people can give blood. As long as you are fit and healthy, weigh over 7 stone 12 lbs (50kg) and
are aged between 17 and 66 (up to 70 if you have given blood before) you should be able to give
blood. If you are over 70, you need to have given blood in the last two years to continue donating.
However, if you are female, aged less than 20 years old and weigh less than 65kg (10st 3lb) and are
under 168cm (5' 6") in height, we need to estimate your blood volume before donating.
3.6 Who Can't Give Blood?
Although most people are potentially able to give blood, some are not.
There are a variety of reasons why we might ask you not to give blood, but they fall into two main
categories. Firstly, if evidence suggests that donating blood could potentially harm you, then to protect
your safety we would ask you not to donate. Secondly, if evidence suggests that your donation could
potentially harm the patient receiving it, then we would ask you not to donate.
This would include the situation where a specific behavior may have put you at a higher risk of an
infection which could be transmitted to a patient by blood.
Many of the rules implemented in the UK on who can give blood are a requirement of European law.
However, there are a number of expert committees that regularly review the evidence relating to
exclusions and deferrals from blood donation. Policies which specifically relate to the safety of blood
for patients are recommended to the Government by the independent advisory committee on the Safety
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of Blood, Tissues and Organs (SaBTO). A key part of their work is to ensure that the policies applied
by the UK Blood Services are based on the best available scientific evidence.
If you are not able to give blood we know this can be disappointing. However, we hope you will
understand that our overriding responsibility is to ensure the safety of donors and the safety of blood
for patients.
3.7 How to prepare yourself to give Blood
Eat
Eat regular meals to help you avoid feeling lightheaded.
Sleep
A good night's sleep will boost wellbeing.
Drink
Drink plenty of fluids 24 hours before donating, but avoid alcohol.
Wear
Put on loose and comfortable clothing, avoid tight sleeves.
Distract
Nervousness is normal, come with a friend or bring along a book or MP3 player so you can relax
during your visit.
Know
Knowing your medical, body piercing and travel history will save you time.
3.8 Keep well hydrated
Keep well hydrated always important for donating blood, and while we do urgently want donors,
please don't rush and wear cool loose clothing. It's better if you can be cool and relaxed for your
donation
3.9 Component Donation
Component donation is a specialized way of donating using a cell separator machine. These machines
separate the blood into all its various components: platelets, red cells, plasma & white cells. We take
out just what we need and put back into your body what we don't. Because the large majority of blood
components are returned, the donor can safely donate more frequently than every 16 weeks. In some
cases, this can be every two weeks.
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A component donation is very important as this allows us to collect individual parts of the blood as
and when we need them most. If there is a need for we can quickly ask platelet donors to come into
one of our blood donation suites to donate. There we can collect platelets to meet the required demand.
In fact, sometimes a donor will donate for a specific patient's planned treatment.
3.10 Welcome and Preparation
Before donating blood, please eat regular meals, drink plenty of fluid (non-alcoholic) and avoid
vigorous exercise or exertion. When you attend your donation session please read our Welcome leaflet
provided. This explains the importance of Blood Safety. It’s important to read this whenever you
attend because advice does change. We must give you sufficient information so that you can make an
informed choice, on the benefits and risks of donating blood and samples for testing. We will provide
500ml of fluid just before you donate. By drinking this over about five minutes, it will help with your
wellbeing during and after donation.
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3.11 Islamic view of blood donation and transfusion
Islam enjoins preserving human life and protecting it against all potential harm, affliction and
hardship, and it insists on ensuring peace and security for human beings.
In the Quran, Allah says, "To save one life is to save all humanity".
Islamic law urges every Muslim to be in constant support of his community, and make it a legal
requirement in many cases. According to a Hadith (saying by the Prophet Mohammed (Peace Be Upon
Him)),"He who relieves a believer of one form of distress, in this life shall be relieved by God of a
greater distress on the Day of Resurrection" and "God will help any servant of His, as long as he
continues to help his brother".
"A Muslim is a brother to every Muslim; he neither lets him down, nor does him injustice, nor gives
him away".
Therefore, if giving blood to a patient is necessary for his survival, then, according to Islam, it
becomes mandatory to donate blood`, as a case of implementing a basic Islamic principle which makes
it imperative to preserve human life. Two important main Islamic rules are also applicable here,
namely: "Harm must be eliminated" & "Necessity overrules constraints". Furthermore it is in
agreement with the Islamic principles of social justice.
The Prophet (Peace Be upon Him) says, "Cupping is a most useful type of medical treatment". He also
says, if any of your methods of treating the ill is effective, an incision by phlebotomy scalpel is
certainly one".
In the Hadith, there is an earnest call for phlebotomy and cupping, because of their proven benefits to
man. It indicates that blood donation is not only harmless to the donor, but it is also useful to him, as it
activates the process of replenishing blood cells. When blood is needed in the community, blood
donation becomes a community as well as a person's individual obligation. If they fail to fulfill it, they
shall be considered as having committed a sin.
God has given man a position of honor. "We have honored the sons of Adam". That is why, the selling
of the human body, its organs or blood is forbidden.
The inferred meanings of three other Hadiths are: -
"Cut your vein with a scalpel and allow your blood to flow and you can do this once in three months".
"You can allow your blood to flow every 17 days, 19 days and 21 days" This is applicable to modern
day Plasma and Platelet Pharisees
"Removing blood from your body improves your health and enhances your eyesight".
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Back Ground of Omeed Ki Kiran Foundation
Omeed Ki Kiran Foundation is a social, non-Profitable and non-governmental Organization in the

field of Health, established by Mr. Imran Ahmad. The foundation is registered with Registrar joint
stock companies and societies under societies act XXI, 1860 & Health Care Commission (HCC)
government of Khyber PakhtunKhwa and has been awarded Pakistan Center for Philanthropy (PCP
Islamabad) certification and recognized NPO (Non-Profit Organization) by Federal Board of Revenue
(FBR, Pakistan) under section 2 (36) of income tax ordinance 2001.Omeed Ki Kiran Foundation has a
Gynae Welfare Hospital and Thalassaemia Center in Mardan, The hospital is providing health services
to poor and vulnerable patients suffering from deadly disease of Thalassaemia and general patients of
the region, Omeed Ki Kiran Foundation has been established Gynae-Obs. Section round the clock
services is providing under the supervision of qualified Gynecologist and Doctors.
Omeed Ki Kiran Foundation Gynae welfare hospital & thalasseamia center is a safe blood transfusion,
hematological center, which register the new and old patients of thalasseamia without any
discrimination of race, color, religious or ethnic community of region.
VISION: To serve humanity and bring hope of life among deprived people who are in
sufferings.
Mission: To ensure free & standard health services for vulnerable and poor People,
Prevention of thalasseamia and Gynae-obs. Services for all women.
Goal:
To ensure equal rights of Children such as, Health, Education.
Clean Drinking water, to protect the child from abuse and child Labour.
Objectives:
(1) To ensure free cure to children through welfare hospital & thalasseamia center.
(2) To ensure standard health services for poor & vulnerable people with kidney failures and
deadly disease of thalasseamia.
(3) Protection of human rights and clean and clear environment.
(4) Peace & security, Legal Aid, HRD & Political Education.
(5) Free Medical Camps, Emergency Relief and rehabilitation.
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Management and Staff
Omeed Ki Kiran Foundation Management

1. Imran Ahmad Khan ----------------------------------- Chairman
2. Naeem Ahmad Khan ---------------------------------- Secretary General
3. Fateh Muhammad --------------------------------- Manager Admin & Finance
4. Miss.Dur-e-smeen Imran ---------------------------- Sec, Gender & Development
5. Nouman Ahmad Khan --------------------------------- Sec, Planning & HRD
6. Junaid Habib ------------------------------------- Sec, Information & Media
7. Zulfiqar ------------------------------------- Sec, Human Rights
8. Miss. Uzma Noreen ----------------------------------- Sec, Health & Education
9. Miss. Kanwal Maqsood ------------------------------ Sec, Office & Coordination
Gynae Welfare Hospital & Thalassaemia Center
1. Rooh-ul-Amin ----------------------------------- Managing Director
2. Dr. Noor Ahmad ------------------------------------ MBBS,RMP,MCPS (MO)
3. Dr. Afshan Waris ------------------------------------- MBBS,RMP (WMO)
4. Dr.Aman ul Mulk---------------------------------------- Homeopathic Doctor
5. Hilal Udin --------------------------------------- Laboratory Technicians
6. Dr. Aisha Begum -------------------------------------- Homeo Doctor & Lady Health Visitor
7. Hussan Zada --------------------------------------- Laboratory Technicians
8. Dr. Sundas --------------------------------------- Pharmacist
9. Miss. Salma Elahi ---------------------------------- Lady Health Visitor (LHV)
10. Miss. Uzma Bakht --------------------------------- Manager Finance
11. Miss. Ayesh ---------------------------------- Lady Health Visitor (LHV)
12. Zuhra BiBi ---------------------------------- Staff Nurse
13. Bas Jehan ------------------------------------ Staff Nurse
14. Nazoo Begum ------------------------------------- Staff Nurse
15. Haroon Khan ----------------------------------------- Laboratory Technician
16. Istikhar Ali --------------------------------------- Laboratory Technician
17. Miss. Aisha --------------------------------------- Assistant
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18. M. Shafeeq ---------------------------------------- Computer Operator

19. Miss. Hina Iqbal ---------------------------------------- Social Mobilizer (Internship)
20. Adel Khaliq ---------------------------------------- Pharmacist (Internship)
21. Rasheed Khan ---------------------------------------- Finance Assistant (Internship)
22. Kamran Khan ----------------------------------------- Social Mobilzer (Internship)
23. AbdUllah ----------------------------------------- Social Mobilizer (Internship)
24. Muhammad Iqbal ---------------------------------------- Cook
25. Sher Muhammad ---------------------------------------- S/Guard
26. Amna (Hala) --------------------------------------- Hala
27. Sehroon Gill ----------------------------------------- Assistant (Receptionist)
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ORGANO GRAM
Advisory Council (BOG)
Executive Committee Technical Committee
Chairman
CEO
Executive Director
(Or Managing Director)
Admin/M.O GM Finance & GM Admin & GM P&D Admin

Thalassaemia Procurement HR Legal Advisor WMO/Gyneco
Section logist
Gynae Section
Field Officers Education Health Human Rights

Coordinator Coordinator coordinator
Social
Chief Finance & Establishment Legal Advisor Senior LHV

Laboratory procurement in charge
officers Senior Staff
Technician supporting
Nurse
staff
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Advisory Council (BOG)
They meet twice a year and can hold emergency meetings any time anywhere.
1. Sher Zaman Khan (Chief Executive Bear Mix Baring)

2. Ahmad Shah (Senior Executive HBL )
3. Faisal Khan (General Manager Mobile Company)
4. Baccar (R,Maj.Senior Manager Mobilink )
5. Dr.Qaisar (Health Directorate Peshawar )
6. Nauman Ahmad Khan (Social Worker )
7. Dr.Aman ul Mulk (Homeopathic Doctor )
8. Imran Ahmad Khan (Ex-Officio Chairman Omeed Ki Kiran Foundation)
Registration:
Registrar Joint Stock Companies & Societies Act 1860.

Registration Date: 9th April, 2013
Omeed Ki Kiran Foundation (A Ray of Hope)
Registration Authority:
Health Regularity Authority (HRA)
Registration No.HRA/500/F/MR/H/29
Registration Date: 19th June, 2013
Pakistan Center for Philanthropy (PCP) Islamabad, awarded certification
Recognition as Non-Profit Organization (NPO) by Federal Board of Revenue (FBR), Pakistan
Member Thalassaemia Federation of Pakistan
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Pillars of The organization

The work of the organization in addressing effectively the needs of the
thalassaemia family and achieving its objectives has been based on four
pillars.
Thalassaemia Awareness Cell:
Objectives:
1. TO spread awareness about Thalassaemia and its Prevention.
2. To Discourage COUSIN Marriages for Thalassaemia Prevention.
3. To Prepare the People for Hb Electrophoresis before Marriage.
The foundation has established Thalassaemia Awareness cell, Through Thalassaemia awareness Cell
the foundation aware people through Seminars and walks and distribution of brochures, Pamphlets and
discouraging the cousin marriages, guiding the people and consulting with the doctors for HB
Electrophoresis and CVS tests during pregnancy.
Blood Donors Cell:
Objectives:
1. To Screen the Donors who are donating Blood.

2. To aware the Donors about blood donation and its effects on donors.
3. To facilitate the donors with treatments in case any donor suffers from
infectious disease.
4. To facilitate the Donors with Blood Grouping and Anti HBS,
HCV, VDRL & HIV AIDs tests.
The blood donor’s cell has a vast number of Blood donors who belong to different communities,
institutions and societies. The blood donor cell has prime responsibility to mobilize the community
and arrange blood camps for thalassaemia patients and to arrange awareness sessions on blood
donation and to elaborate the importance of blood donation, its benefits and effects on donors. The
blood donor cell has the responsibility to provide the reports in time to donors usually within two days
after completing screening of donated blood. Those donors who are positive for Hepatitis virus, HIV,
Syphilis are facilitated for further investigations and treatment.
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Public Relation Cell:
Objectives:
1. To keep Close Coordination with Patients and Attendants regarding

care.
2. To Guide the Patients in a polite way and give the right directions.
3. To facilitate the patients & attendants inside and out the hospital.
The Public relation cell has responsibility to keep friendly relationship with patients and attendance as
well as donors and guide the patients, visitors, attendants about the foundation rule and regulation. The
public relation cell provides a clean friendly environment and solves any disciplinary issues.
Waste Management System
The organization has developed waste management system for the hospital disposable items to tackle
and protect the patients and guardian as well as staff of OKF from the infectious diseases.
The organization has developed the following committees for accuracy and smooth running
1. Blood Donors Cell

2. Thalassaemia Awareness Cell
3. Public Relations Cell
4. Disciplinary Action Committee
5. Purchase Committee
6. Inquiry Committee (In order to implement “Protection against Harassment of
Women at the Workplace Act. 2010″)Govt. of Khyber Pakhtunkhwa, Pakistan.
7. Waste Management Committee
8. Strategic Committee
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Establishment of Welfare Hospital & Thalassaemia Center

Blood Transfusion and Thalassaemia prevention program
Narrative Summary (Thalassaemia in Pakistan)
Thalassemia is a blood disorder passed down through families (inherited) in which the body makes an
abnormal form of hemoglobin, the protein in red blood cells that carries oxygen. The disorder results
in excessive destruction of red blood cells, which leads to anemia. Anemia is a disorder in which your
body doesn’t have enough normal, healthy Red Blood Cells (RBC). This disease is inherited, meaning
that at least one of the parents is a carrier of the disease. It is caused by either a genetic mutation, or a
deletion of certain key genes. According to a report approximately 120,000 patients are suffering
from Thalassemia in Pakistan and every year 6,000 babies are born with this deadly disease. These
patients’ needs regular blood transfusion and iron chelation after consultation with a qualified
Hematologist along with regular diagnostic investigations on monthly basis which is unaffordable by
the poor families in Pakistan.
Treatment of Thalassaemia
Specific treatment for Beta Thalassaemia major will be determined by doctor based on:
 Age, overall health, and medical history
 Extent of the disease
 tolerance for specific medications, procedures, or therapies
 Expectations for the course of the disease
 Patient’s opinion or preference
Treatment may include:
 Regular blood transfusions

 Medications (to decrease the amount of iron in the body called iron chelation therapy)
 Splenectomy (surgical removal of the spleen, if necessary)
 Daily doses of folic acid
 Possible surgical removal of the gallbladder
 Regular checks of heart and liver function
 Genetic tests
Bone Marrow Transplant
Cure of β-thalassaemia can only currently be achieved by haemopoietic stem cell transplantation
(HSCT), which includes bone marrow transplantation (BMT). This has been shown to be successful in
the majority of cases, provided that a fully matched (HLA compatible) sibling (brother or sister) can
be identified, and the patient is in a very good condition clinically, i.e. he or she has been receiving
appropriate clinical management from the early years. However, only a relatively small percentage of
patients (about 20%) will have a fully matched family donor, and considering that this procedure is
still an expensive one, BMT cannot be the solution to the total cure of this disease for the majority of
patients. BMT for β-thalassaemia is available in Pakistan.
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Prevention of Thalassaemia
Thalassaemia can be prevented. European countries have quite successfully demonstrated that the
births of affected children can be prevented or reduced.
Carrier Status:
Laboratory tests for thalassaemia include a routine blood test known as a Complete Blood Count
(CBC), which includes measuring the level of haemoglobin and other parameters related to the number
and volume of red blood cells, known as Mean corpuscular Volume (MCV) and Mean Corpuscular
Haemoglobin (MCH). MCV levels may be lower in children and vary according to age. Red blood
cells are also examined under a microscope in order to examine their size and shape. The red blood
cells of a thalassaemia carrier will be a paler shade of red and be various shapes (poikitocytosis),
compared to normal red blood cells which are a darker red and round and concave in shape.
Tests to determine the presence of the β -trait and confirm that the individual is a carrier of β -
thalassaemia include a laboratory process known as haemoglobin electrophoresis, which enables
quantitative measurement of haemoglobin. Other haemoglobins normally present in adult red blood
cells such as foetal haemoglobin (HbF) may also be measured by electrophoresis. In most cases, the
above tests are sufficient to determine whether an individual is a carrier or not.
In some circumstances, genetic or DNA tests need to be carried out in order to confirm whether one is
a carrier. Such genetic tests are beginning to be more and more widely used to test for the thalassaemia
trait.
Screening should be considered when a relative is known to be a carrier or a thalassaemia patient.
Moreover, people who are anemic and do not respond to iron treatment should also have their carrier
status done.
Prenatal Diagnosis
The birth of Beta Thalassaemia major child can be prevented. Couples, who are aware that they are
carriers of β-thalassaemia, may undergo prenatal diagnosis (Amniocentesis, Cordocentesis and
Chorionic Villus Sampling (CVS) to prevent the birth of an affected child. The prenatal diagnosis
method used in Pakistan is Chorionic Villus Sampling (CVS):
Chorionic villus sampling (CVS) is a test done during early pregnancy to see if the child is affected or
not. Chorionic Villi are tiny finger-shaped growths found in the placenta. The genetic material in
chorionic villus cells is the same as that in the baby's cells. Using ultrasound as a guide, the specialist
obstetrician removes a small sample of cells from the chorionic villi. The cells are removed either with
a thin needle inserted through the mother's abdomen (transabdominal) or a thin catheter inserted
through the vagina (transcervical). The cells are then analyzed and a diagnosis made.
Chorionic villus sampling can be done earlier in pregnancy (at 10 to 12 weeks). CVS allows the
parents to know the health of their baby and make an earlier decision whether to continue or end the
pregnancy. Results of CVS usually take less than a week. Risk of miscarriage in CVS is about 0.5 -
1%.
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Objectives
Blood Transfusion & Thalassaemia Prevention Program
Objective 1-
To provide free of cost blood products to the registered and non-registered patients of
thalassaemia and other blood disorders.
Facilitate patients, who are eligible candidates for blood products according to protocols. In order to
reduce the risk of hemolytic, allergic, febrile reactions caused by blood transfusions, grouping of the
blood is reconfirmed and then properly cross matched in the laboratory by trained blood bank
personnel. OKF left no stone unturned in getting blood from different sources and providing donated
blood free of cost to its, poor, needy patients.
Objective 2-
To promote awareness regarding blood born infectious diseases in the community.
Awareness of the patients as well as Blood donors about the infectious diseases of blood like HIV AID, HBS,
HCS and VDRL. The blood is transfused after screening to patients. The collected after through screening of
donors, those donor who accidently come out to be positive for any infectious disease (blood born) is help out
and educated along with its family members.
Objective 3-
To prevent blood born infectious disease, caused by blood transfusion to the patients.
OKF is working on thalassaemia & other blood disorders as, blood born infectious diseases have increased now
a days, so to avoid thalassaemic patients getting these infectious (blood born), blood is properly screened for
such infectious diseases and after screening is transfused.
Objective 4-
To facilitate the social acceptability of thalassaemia patients and helping to lead
normal life like other members of the community.
Assessment quality of life of thalassaemic child by physical & psychological means which includes
examination of the child as a whole which includes general physical and systemic examinations.Many
of the people in the community consider thalassaemic patients to be neglected.This is not so, OKF is
spreading awareness in the community about these patients already in misery. Life expectancy of
thalassaemic patients is almost equal to a normal individual who properly managed by safe blood
transfusion and also iron chelations.This messaged is conveyed to community.
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Objective5-
To reducing the number of Thalassaemia patients by guiding trait families to follow
Thalassemia prevention measures.
Screening of thalassaemic families for searching trait & discouraging cousin marriages in those traits
families. It is done via HB Electrophoresis. Spread awareness regarding thalasseamia and its
prevention in different institutions, communities and universities through seminars, workshops, and
media and distribution of Brochures, pamphlets and hand bills.
Objective 6-
To create awareness among people for blood donations and its benefits.
The qualified staff and Doctors of the organization has focus on the blood donations while,
Thalassaemia patients need as they are dependent on blood life long, therefore, the doctors and staff
aware the local community, students and young healthy people of different area to donate blood for the
sake of Thalassaemia patients. It is done by arrangement of seminars in different institutions both
Govt. and non-govt.
www.okkf.org
Analysis of the 30th June, 2018 Annual work plan

Snapshot preview of proposed activities
Objective 1-
To provide free of cost blood products to the registered and non-registered patients of
Thalassaemia and other blood disorder.
 Registered 446 thalassaemic patients.
 Registered 40 Other blood disorder patients like anemia, hemophilia, a plastic anemia.
 Transfused 14,250 point bags of different groupings.
Objective 2-
To promote awareness regarding blood born infectious diseases to the community
 203 affected blood donors come out during screening
 The same number patients treated with medicine
 14,250 blood donors screened for HIV AID, HCV, HBS and VDRL and blood groupings.
 14,250 blood donors Blood group identified and provide report with screening card.
Objective 3-
To prevent blood born infectious disease, caused by blood transfusion to the patients
 446 families aware regarding infectious diseases.
 The Thalassaemia patient families realized that unscreened blood cause HIV AID,HBS,HCV
and VDRL etc
 Seminars, workshops arranged in different communities, Colleges, and Universities.
 Dissemination of broachers, pamphlets, and Banners.
Objective 4-
To facilitate the social acceptability of thalassaemia patients and helping to lead normal
life like other members of the community
 154 Seminars Arranged on thalassaemia preventions.
 Thalassaemia patients care.
 HB level maintenance and iron chelation medicine provided.
 Proper care can lead normal life like other members of community
 Media participation in different events of OKF
Objective5-
To reducing the number of Thalassaemia patients by guiding trait families to follow
Thalassemia prevention measures
 Establishment of Thalassaemia Awareness Cell.
 HB Electrophoreses through different institutions.
 CVS during pregnancy.
 Thalassaemia awareness sessions.
 Dissemination of broachers, pamphlets, and Banners.
 Celebration of world thalassaemia day every year.
www.okkf.org
Objective 6-
To create awareness among people for blood donations and its benefits
 14,250 blood donors networking.
 Seminars, workshops arranged in different communities, Colleges, and Universities
 Dissemination of broachers, pamphlets, and Banners
 Establishment of Blood Donors Cell
 Cooperation and contribution with different institutions and communities in free
medical camps and blood availability in emergencies.
www.okkf.org
Year 2013-18 activities

Omeed Ki Kiran Foundation welfare hospital &
thalasseamia center started their services in the month of
April, 2013 and registered 446 thalasseamia patients at
the end of June, 2018 and transfused 14,250 bags of
packed red blood cells to Thalassaemia and other Blood
disordered patients, such as, Anemia, hemophilia, a
plastic anemia.
OKF Welfare Hospital & Thalassaemia Center blood transfusion

ward
Dr. Noor Ahmad Khan visiting Thalassaemia ward and checkup Omeed Ki Kiran Foundation staff Nurses caring patient
patients during transfusion
Romaisa Thalassaemia patient during transfusion in ward Dr. Aman Ul Mulk visiting thalassaemia ward
www.okkf.org
Gender wise thalasseamia registered patients.
S. No Thalassaemia Special/Blood Male Female Total Total

Patients Disorder Pat. Transfusion
1 406 40 249 190 446 14,250
Omeed Ki Kiran Foundation has been registered 406 patients of Thalassaemia and other blood
disordered from its establishment. There are 239 male patients and 196 female registered patients.
www.okkf.org
Month and yearly wise Transfusion and Blood Donations Detail
Total Transfusion HBS,HCV,HIV AID,VDRLS Positive Donors

year 2013
Month Transfusion B.Donors HBS+VE HCV+VE VDRL HIV AID Total
Apri,2013 29 76 0 1 1 0 2
May,2013 64 107 0 1 1 0 2
June,2013 98 133 0 1 0 1
July,2013 127 108 0 1 2 0 3
August,2013 98 159 0 1 0 0 1
September,2013 134 97 3 2 0 5
October,2013 136 163 2 0 0 0 2
November,2013 148 100 1 1 0 0 2
December,2013 154 196 3 1 1 0 5
Total 988 1139 9 6 8 0 23
Apr - Dec 2013

250
200
150
100
50
0
Apr May Jun Jul Aug Sep Oct Nov Dec
Donors 76 107 133 108 159 97 163 100 196
Transfusion 29 64 98 127 98 134 136 148 154
Total Donors: 1139

Total Transfusion: 988
Affected Donors: 23
HBS HCV HIV AID VDRL TOTAL
9 6 00 8 23
www.okkf.org
Year 2014
January,2014 165 194 2 2 2 0 6
February,2014 162 185 1 0 0 1
March,2014 172 116 2 0 0 0 2
April,2014 174 244 1 0 0 0 1
May,2014 165 109 0 0 0 0
June,2014 162 209 1 0 1 0 2
July,2014 108 76 0 0 0 0
August,2014 157 176 2 0 1 0 3
September,2014 185 178 3 0 0 0 3
October,2014 179 194 2 0 1 0 3
November,2014 173 225 6 1 0 0 7
December,2014 215 197 1 2 0 3
2017 2103 20 4 7 0 31
Jan - Dec 2014

300
250
200
Axis Title
150
100
50
0
Ma Ma Au Sep No De
Jan Feb Apr Jun Jul Oct
r y g t v c
Donors 194 185 116 244 109 209 76 176 178 194 225 197
Transfusion 165 162 172 174 165 162 108 157 185 179 173 215
Total Donors: 2103

Affected Donors:
20 4 00 7 31
www.okkf.org
Year 2015
January,2015 203 223 3 1 1 0 5
February,2015 181 191 1 0 0 0 1
March,2015 196 199 4 2 0 0 6
April,2015 194 179 3 1 0 0 4
May,2015 189 219 2 3 1 0 6
June, 2015 245 287 6 3 1 0 10
July, 2015 238 111 1 2 1 0 4
August, 2015 278 309 1 3 3 0 7
September,2015 237 110 3 0 0 0 3
October, 2015 269 249 4 1 0 0 5
November,2015 262 242 2 0 2 0 4
December, 2015 290 219 1 1 0 0 2
2782 2538 31 17 9 0 57
Monthly Transfusion & Donors
January, 2015 – December, 2015
Jan - Dec 2015

350
300
250
Axis Title
200
150
100
50
0
Janu Febr Marc Augu Septe Octo Nove Dece
April May June July
ary uary h st mber ber mber mber
Donors 223 191 199 179 219 287 111 309 110 249 242 219
Transfusion 203 181 196 194 189 245 238 278 237 269 262 290
Total Donors: 2538

Affected Donors: 56
31 16 00 09 56
www.okkf.org
Year 2016
January, 2016 294 262 2 1 0 0 3
February, 2016 272 270 1 0 0 0 1
March, 2016 286 219 3 0 0 3
April, 2016 277 338 0 1 1 0 2
May, 2016 302 300 2 2 1 0 5
June,216 259 163 0 0 1 0 1
July,2016 287 236 3 0 0 0 3
August, 2016 274 271 3 0 1 0 4
September, 2016 292 266 1 2 1 0 4
October, 2016 278 267 1 1 0 0 2
November, 2016 241 208 2 0 0 0 2
December, 2016 242 227 2 2 1 0 5
3304 3027 20 9 6 0 35
Monthly Transfusion & Donors

January, 2016 – December, 2016
Jan - Dec 2016

400
350
300
250
Axis Title
200
150
100
50
0
Januar Februa Septe Octob Nove Decem
March April May June July August
y ry mber er mber ber
Donors 262 270 219 338 300 163 236 271 266 267 208 227
Transfusion 294 272 286 277 302 259 287 274 292 278 241 242
www.okkf.org
Total Donors: 3027

Affected Donors: 35
20 09 00 06 35
Year 2017
Month Transfusion B.Donors HBS+VE HCV+VE HIV AID VDRL Total
January,2017 260 255 1 0 1 2
February, 2017 251 223 0 0 0 0
March, 2017 277 310 1 2 1 4
April, 2017 273 276 1 1 2 4
May, 2017 298 447 3 1 0 4
June, 2017 267 62 1 0 1 2
Total 1626 1573 7 4 00 5 16
500
450
400
350
300
250
200 Donors
150 Transfusion
100
50
0
Total Donors: 1573

Total Affected Donors: 16
www.okkf.org
Yearly comparison of blood transfusions
3500 2016, 3304
3000 2015, 2782
2500
2014, 2008
2000
1500
2013, 988
1000
500
0
2013 2014 2015 2016
www.okkf.org
Yearly Blood Transfusion and Blood Donors: Year 2017
Jan-Dec 2017
500
450
400
350
300
250
200
150
100
50
0
Jan Feb Mar Apr May Jun Jul Aug Sept Oct Nov Dec
Donors 255 223 310 276 447 62 162 358 340 213 244 228
Transfusion 260 251 277 273 298 267 288 338 249 277 271 267
Total Donors: 3118
Affected Donors: 32
HBS+VE HCV+VE HIV AID VDRL Total

16 7 0 9 32
www.okkf.org
Yearly Comparison of Transfusion
3,500 2016,3304 2017,3316
3,000 2015,2782
2,500
2014,2017
2,000
1,500
2013,988
1,000
500
0
2013 2014 2015 2016 2017 Transfusion
Total Transfusion/Blood Donors and HBS, HCV, HIV and VDRL affected Donors
Total Blood HBS HCV HIV VDRL

Transfusion Donors
14,250 13,594 113 45 00 45
Omeed Ki Kiran Foundation welfare hospital & Thalassaemia center treated all Thalassaemia patients
free of cost and provide them all the necessary medicine and guide their parents/guardian about
prenatal disease and forward them to institutions where, they treat and provide the opportunity of their
further treatment.
www.okkf.org
Blood grouping wise Thalassaemia patients
Gender A+VE B+VE O+VE AB+VE A-VE B-VE AB-VE O-VE Total
Male 64 74 76 20 6 6 2 4 249
Female 37 71 49 20 2 6 1 4 190
Grand
total 98 145 125 40 8 12 3 8 439
A-VE
2%
Blood Groupings Patients
B-VE O-VE AB-VE
AB+VE 3% 1% 2%
9%
A+VE
22%
O+VE
28%
B+VE
33%
HBS, HCV Affected Thalassaemia Patients
S.No HBS HCV Spleenectomy

1 Both HBS & HCV 167 12
General Patients:
The welfare Hospital & Thalassaemia Center treated (3600) patients in last 21 months; the patients
were facilitated with high quality laboratories tests and medicines. The foundation is providing health
facilities to every patient without any discrimination and free of Cost. The foundation helps those
patients who have no access to health institutions, such as patients of blood Cancer, brain tumor,
Diabetes mellitus, and other diseases. Details of general OPD are mentioned in following formats.
www.okkf.org
General OPD
General OPD Lab. Investigations

3600 70,443
The hospital provided health facilities to poor and vulnerable patients of different types of diseases and
facilitated them with screening free of cost. The OKF facilitated chronic patients and guide them
toward different institution and make sure their entrance to related health care centers who’ treat the
same disease.
Dr. Amanul Mulk during OPD Dr. Noor during general OPD
KPK Crisis and OKFs Response
In different crisis the OKF has performed its role on self basis, and provided food and non food items
to different communities of KPK.
The foundation has arranged free medical camps in different

communities and I.D.Ps camps in KPK.
Mr. Imran A. Khan distributing food item among poor

of Mardan Community
www.okkf.org
Education/ Helping Handicapped
The foundation is providing the school books and uniform to poor and vulnerable children, and
supported the handicapped children with wheel chairs, and paying the poor talented students
admissions and monthly fees as scholarships.
Mr. Imran A. Khan Chairman provide Wheel

Chair to deserve female
Mr. Imran A. Khan & OKF staff during camp with Skakot During the annual day of the sarhad moderl school Mardan
Community
Free Medical Camps

The Organization has arranged free medical camps in down trodden communities who have no access
to health services. This is regular activity of OKF, and arranged these camps where the people have no
access.
Dr. Noor during free medical camp at pir sadoo Takht Bhai, Mardan
www.okkf.org
Hb Electrophoresis
OKF is providing free health facilities to poor and downtrodden communities and those, people who
have no access to health institutions. The organization arranged hb electrophoresis tests facilities at
OKF welfare Hospital & Thalassaemia Center Mardan with the help of C2C Islamabad and collected
blood samples of 180 male, female and provide their reports free of cost.
The organization forwarded 16 families for Chorionic venous

sampling (cvs) to different institutions and health care centers to
know their coming baby and to stop thalasseamia expansions in
future.
C2C team collecting blood samples for Hb

Electrophoresis at OKF Mardan
8th May World Thalassaemia Day Celebration
Mr. Imran A. Khan Chairman Omeed Ki Kiran Foundation

leading Thalassaemia Walking on 8th May, 2016. Omeed Ki Kiran Foundation demanding from govt. to arranged thalassamia wards at
govt. hospitals and take measures for thalassaemia prevention.(2017)
www.okkf.org
Omeed Ki Kiran Foundation on the eve of World Thalassaemia Day (8th May, 2017) at Mardan Press
Club Mardan
Omeed Ki Kiran Foundation Gynae Welfare Hospital & Thalassaemia Center Celebrating world
Thalassaemia day every year on 8th May, the walk started from Hospital and ended on Mardan Press
Club Mardan, In the walk participants were social workers, different organizations and students of
different institutions. The participants displayed banners to aware the community about Thalassaemia
preventions, motivated community about Thalassaemia and role of Government and local community
about deadly disease of Thalassaemia. The main theme of walk is to aware local community about
thalassaemia and its prevention.
www.okkf.org
Thalassaemia Prevention Sessions.
Dr. Noor Ahamd Khan giving lecture on Thalassaemia Prevention at Govt. Degree College Yar Hussain, and Govt. Degree College Nizam
Pur, Nowshera.
Omeed Ki Kiran Foundation (A Ray of Hope) is arranging Thalassaemia awareness sessions in different
institutions, colleges and communities to aware community about thalassaemia prevention and
complications. The organization is spreading awareness message regarding thalasseamia and its
prevention in different institutions, communities and universities through seminars, workshops, and media
and distribution of Brochures, pamphlets and hand bills. Here is a depiction of awareness session in
educational institution of Khyber Pakhtunkhwa, Pakistan.
Provincial Youth Assembly (PYA) Visits to Omeed Ki Kiran Foundation
The Provincial Youth Assembly (PYA) Visited

Omeed Ki Kiran Foundation and meet with
Thalassaemia patients, Dr. Noor Ahamd Khan
briefed them regarding Thalassaemia.
Mr. Imran A. Khan Chairman Omeed Ki Kiran

Foundation briefed the provincial youth assembly
members about Thalassaemia prevention and advised
them to raise the issue regarding this deadly disease on
the platform of Youth assembly.
The government should take action on this issue and

establish separate wards in all district Head Quarter
www.okkf.org
Hospitals and ensure the H.B electrophoresis test before marriages.
Celebration of 14TH August (Pakistan Independence Day)
Mr. Imran A. Khan Chairman Omeed Ki Kiran Foudation celebrating Independence Day with thalassaemia patients at Omeed Ki Kiran
Foundation
Celebration of Pakistan Day (23rd March, 2017)
Mr. Imran A. Khan Chairman Omeed Ki Kiran Foundation celebrating 14th August (Pakistan
Independence Day) with Thalassaemia patients at Omeed Ki Kiran Foundation Gynae Welfare
Hospital & Thalassaemia Center Mardan.
www.okkf.org
Celebration of Anniversary of BCA Cricket Academy
The organization is always participating in social

activities and in events which are organized by
different organizations. The organization is
encouraging the young generation and promotes
healthy exercises in the community. Mr. Imran A.
Khan celebrating anniversary of Baghdada Cricket
Academy at Omeed Ki Kiran Foundation office with
captain Mr. Zahir Shah.
Mr. Rooh ul Amin MD OKF presented shield to DIG &DPO Police on the eve of Police Martyred day
Omeed Ki Kiran Foundation has been arranging Blood donation camp on 4th August on occasion of
KP Police “Martyred” day in District Mardan. The organization presented Certificates and Shields to
Officers and blood donors. Roohul Amin Managing Director Omeed Ki Kiran Foundation presented
shields to Alam Shinwari DIG Mardan Region and Dr. Mian Saeed District Mardan Police (DPO)
Mardan.
www.okkf.org
The Law College Students and Lecture Manzoor

ul Haq visited Omeed Ki Kiran Foundation and
Donated Blood for Thalassaemia Pateints.
Omeed Ki Kiran Foundation has trained fresh Graduates under Prime Minister Youth Training
Scheme (PMYTS) Islamabad in different sectors Like, Pharmacy, Field work, Accounts and
Documentation. And issued them one year Experience Certificates from Chairman of Organization.
Imran A. Khan Chairman OKF is presenting certificate to Roohul Amin MD OKF Presented Certificate to Nip training
NIP candidates on completion of one year training. completion candidate
www.okkf.org
The office staff of Prime Minister Youth Training Scheme Islamabad visited Omeed Ki Kiran
Foundation.The cluster in charge Mr. Sajjad Hussain and monitoring officer Tahir Abbas also
presented on this occasion.
www.okkf.org
Blood Donors of Omeed Ki Kiran Foundation
Omeed Ki Kiran Foundation has developed Blood Donor’s Cell. The cell is managed by a coordinator
and he is responsible for updating the donors list and reports. The blood donor’s cell has a vast number
of Blood donors who belong to different communities, institutions and societies. The blood donor cell
has prime responsibility to mobilize the community and arrange blood camps for thalasseamia patients
and to arrange awareness sessions on blood donation and to elaborate the importance of blood
donation, its benefits and effects on donors. The blood donor cell has the responsibility to provide the
reports in time to donors usually within two days after completing screening of donated blood. Those
donors who are positive for Hepatitis virus, HIV, Syphilis are facilitated for further investigations and
treatment. The blood donors’ cell is responsible for blood availability and assures the blood for
thalasseamia patients. The numbers of blood donors of OKF are the followings and those donors who
are affected by any disease and treated by OKF. (See on the next Page)
Students donating blood for OKF AWKUM students donating blood UET Mardan campus arranged blood camp for
thalassaemia patients thalassaemia patients of Omeed Ki Kiran Foundation (A
Ray of Hope)
www.okkf.org
Total Blood Donors in 2013-17
B.Camps Donation No. of Screenings HBS+VE HCV+VE VDRL+VE HIV+VE Total

in B.Donors Affected
Hospital Donors
125/3370 7010 10380 65,400 87 40 35 00 162
Omeed Ki Kiran Foundation welfare Hospital & thalasseamia center has arranged 125 blood camps in
different communities, institutions and societies in which different institutions have provided blood for
thalasseamia patients. The organization facilitating donors with groupings, HBS, HCV, VDRL and
HIV AIDS tests, during the screenings of blood 206 donors were found affected with different
diseases. The organization facilitated for further investigation and treatments.
Encouragement/Appreciation for Blood Donors
This is the prime responsibility of OKF (Blood Donors Cell) to encourage all the institutions and
blood donors who donate blood for thalasseamia patients. OKF awarded
institutions/colleges/universities with souvenirs and students as well as donors/students with certificate
of appreciation.
Chairman & M.D OKF presenting certificate of Mr. Imran A. Khan Chairman Presenting Certificate of Appreciation to VC IIU Islamabad
Appreciation to Students of IIU Islamabad
Dr.Noor& Roohulamin presenting saviouner

Managing Director with students of AWKUM Mardan
to Sir Nadeem
www.okkf.org
Mr. Jan Muhammad social worker receiving shidld from Mr. Imran DIG and DPO Mardan receiving shield from Dr. Noor Ahmad
Ahamd Chairman Omeed Ki Kiran Foundation
Mr. Jan Muhammad Social worker receiving Shield from Mr. Imran A. Khan Chairman Omeed Ki
Kiran Foundation and Mr. Tahir sb DIG Mardan Region and DPO Shehzad sb Mardan from Medical
Officer Dr. Noor Ahmad Khan.
www.okkf.org
Seminars/workshops
The organization is spreading awareness regarding thalasseamia and its prevention in different institutions,
communities and universities through seminars, workshops, and media and distribution of Brochurs,
pamphlets and hand bills. Here is a depiction of a seminar on thalasseamia awareness to students of UET
Mardan.
Mr. Imran A. Khan Chairman Omeed Ki Kiran Foundation expressing his view on thalasseamia
in UET Mardan Campus
Dr. Noor is giving lecture on thalasseamia awareness Dr. Noor is giving lecture to Mardan Cricket Academy
and blood donation to college students at Dist. swabi Players
www.okkf.org
The thalasseamia awareness is regular activity of the organization and the awareness sessions are
arranged by the thalasseamia awareness cell in different institutions, colleges, universities and
communities. Omeed Ki Kiran Foundation aware the community through lectures, seminars,
workshops, brochures, pamphlets, handbill and media regarding thalassaemia preventions.
OKF Staff and parents capacity building
The organization is providing training sessions for OKF staff as well as thalasseamia patients,
parents/guardians on the prevention of thalasseamia and the use of chelating agents
(disferrioxamine/deferasirox/deferiprone) for iron overload, and also counseling community about
thalasseamia preventions, early diagnosis and treatment.
www.okkf.org
Participation of the OKF in Social activity:
The organization is always participating in social activities and in events which are organized by different
organizations. The organization is encouraging the young generation and promotes healthy exercises in the
community.
Mr. Imran A. Khan inaugurating the office of Hamdard

Mr. Imran A. Khan as chief guest and presenting the
welfare Organization at Distt. Mardan
shield to Winner of the District foot ball champion team.
The organization is motivating youth in different sports activities and supports community persons
promoting healthy practices.
Organization networking
Omeed Ki Kiran Foundation welfare hospital & thalasseamia Center is in close relationships with
different organizations in the province who are working for the benefits of thalasseamia patients and
prevention of thalasseamia. The OKF is having sound relationships with Hamza foundation Peshawar
and is referring patients for further workup and treatment options. The hospital also participates with
other organizations in Mardan working on thalasseamia like Azhar foundation, Mardan thalasseamia
foundation. Patient care is the ultimate purpose of Omeed Ki Kiran Foundation.OKF is interested to
work with different organizations working on thalasseamia.
The organizational networking is regular activity of organization; still the organization has developed
a link/network with different organization that, working on thalasseamia and other the humanitarian
organizations. The organization has got its membership with Thalassaemia Foundation of Pakistan,
Lahore.
www.okkf.org
The list of networking organizations
S.No Name of Organization District/Province

1 Hamza Foundation blood Peshawar
2 Mardan Thalassaemia Foundation Mardan
3 Human Development Organization Mardan
4 Sundas Development Organization Mardan
5 Hamdard Welfare Organization Mardan
6 Kiran Welfare Organization Mardan
7 Child Protection Unit Mardan
8 Saiban Development Organization Mardan
9 Care 2 Children Foundation Islamabad
Research and Media
Omeed Ki Kiran Foundation Welfare Hospital & Thalassaemia Center is also facilitating students of
research from different universities in different topics on thalassaemia. The OKF has developed a
thalasseamia research cell which is collecting information from different resources and institutions
who are working on thalassaemia. Based on these studies, the hospital is providing help to
thalassaemic patients in their treatments. An example is treatment of thalassaemic patients through an
ant cancerous drug called hydroxyurea and Hamza foundation Peshawar is providing help. The
hospital is also providing homeopathic medications to thalassaemic patients and also their free
consultation by Homeopathic doctor. Omeed Ki Kiran Foundation welfare Hospital & thalasseamia
center is also proving unanai medications to thalassaemic patients and observe patients for results
which not only is helping children with thalasseamia but will also help thalassaemic children in future.
Establishment of Stitching/sewing
center
Omeed Ki Kiran Foundation has

established a stitching and vocational
training center at Mardan for the female,
which providing training to female, such
like the stitching/sewing of clothes and
other handicrafts.
Chairman Omeed Ki Kiran Foundation inaugurating the sewing center
www.okkf.org
PROTECTION AGAINST HARASSMENT OF WOMEN AT THE WORKPLACE ACT 2010
In order to implement “Protection against Harassment of Women at the Workplace Act. 2010″, Omeed
Ki Kiran Foundation has constituted an Inquiry Committee comprising the three Officers to enquire
into the complaints received under this Act.
The following sub-committees are being set up at Omeed Ki Kiran Foundation for effectiveness and
smooth running of the organizational affairs.

14. Inquiry Committee (In order to implement “Protection against Harassment of Women at the
Workplace Act. 2010″)
www.okkf.org
Establishment of Gynae welfare Hospital

Provision of Gynae-Obs Service at affordable cost for 24 Hours
It is a matter of fact that is our country & especially in our province maternal and child health facilities
are either few in number or situated in far flung rural areas, which are not in access to the urban
population. There is a huge burden on both public and private health facilities and this is the reason
most of the people are reluctant to go to a health care facility and conduct even deliveries at home. The
other reason for not attending a private health facility is the economic issue as most of the people in
KPK are average or below average. Also due to lack of extensive family planning programs in the
province, the population is increasing day by day. Majority of our province population is unaware of
antenatal and post natal care. There is also shortage of TBA (Traditional birth attendants) and skill
birth attendants in the rural areas and untrained ladies are conducting deliveries.
There is still a rise in maternal mortality rate and the reasons are multiple like anemia’s in pregnancy,
infections, obstetrical problems like obstructed Labour, uterine rupture and PPH, puerperal sepsis
etc.Also due to lack of proper education, the child mortality rates are also increasing. Most of the rural
population even is unaware of the early breast feeding, weaning time, early treatment of infectious
diseases such as Acute respiratory infections, acute diarrhea. This also raises the infant and under 5
year mortality rates.
The current MMR is 320, IMR 62 and Under 5 Mortality rate 85/94 on 14th Feb. 2015 in Pakistan.
Like other areas of KPK, Mardan has few MCH facilities at public and private levels. There is a need
to enlarge this circle to reduce MMR, IMR, and Under 5 year mortality rate. For this reason OKF has
decided to launch MCH program in Mardan city. This will provide round the clock facilities to the
female population at very minimum welfare rates which will be in access of every person.
Objectives of Gynae-Obstetrics Services
Objective -1
To provide health services to female population which addresses both Gynecological & non-
gynecological ailments/issues?
Objective -2
To educate female population about the importance of antenatal visits and registering pregnant ladies
in the MCH register.
Objective -3
To conduct normal vaginal deliveries/Episiotomies.
Objective -4
In time diagnosis of obstetric completions, like abnormal fetal lie, pregnancy related complications
like, diabetes mellitus in pregnancy, ecclampsia, hyper emesis gravidarum, PPH and in time referral to
tertiary health care facilities in order to reduce maternal and infant mortalities.
www.okkf.org
Objectives 5
To address females about early breast feeding, its durations and the benefits to the baby who is breast
fed.
Objective -6
To promote health education in the female population about anemia in pregnancy, Diabetes mellitus,
Pregnancy induced hypertension and treating those already suffering from such chronic diseases
during pregnancy.
Objective -7
To provide post natal care to female population.
Objective -8
Health education of female population about childhood early treatment of acute diarrhea, respiratory
tract infections and malnutrition issues. This will reduce infant mortality rate and under 5 year’s
mortality rates.
Summary of Gynae-Obs Services.

Omeed Ki Kiran Foundation’s established Gynae section on 1 st January, 2016 and treated 10,111
outdoor patients and general particularly at the end of 30th June, 2017.
General OPD Deliveries Male babies Female babies
delivered delivered
15,730 234 124 110
www.okkf.org
Ambulance Service
Omeed Ki Kiran will provide ambulance services in emergency situations to patients and high quality
emergency care to people. The services will be available for 24 hours. All ambulatory services is
available free of cost.
Omeed Ki Kiran Foundation team with local community of Skhakot,

Mardan
Future Planning
Hemo-Dialysis Services
Omeed Ki Kiran Foundation will extend the hospital to Hemo-Dialysis and provide Hemo-Dialyses
for the kidney failures from July, 2018.
www.okkf.org
SOPs / Constitution of Omeed Ki Kiran Foundation
SOPs and constitution of Omeed Ki Kiran Foundation can be furnished for any use upon request to the
organization.
Financial Management
The financial system of OKF is highly accountable, transparent and maintains all standard procedure
for the accounts.
Logistics
The OKF has developed the logistic system. The OKF has two active and functional offices with huge
assets.
Internal Control Mechanism

There is check and balance system inside the Foundation. Chairman makes all financial transaction,
having three signatories.
The organization has developed the following committees for accuracy and smooth running

6. Inquiry Committee (In order to implement “Protection against Harassment of
Women at the Workplace Act. 2010″)Govt. of Khyber Pakhtunkhwa, Pakistan.
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Annual Report 2017 18

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Annual Report 2017 18

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Annual Report

1st July, 2017-30th June, 2018

Annual Report 2017-18

Omeed Ki Kiran Foundation (A Ray of Hope)

Head Office: House #73, Street #01, Sector

The Founder Omeed Ki Kiran Foundation (A

We appeal to all people who belong to different

“To serve humanity and bring a hope of life among

and deadly disease of Thalassaemia”

“May Allah give us the strength to serve the humanity”

S.NO Contents Page

Forward by the Founder, Chairman Omeed Ki Kiran Foundation

Forwarded by Managing Director Omeed Ki Kiran Foundation

1.2 Alpha Thalassaemia

1.3 Example of an Inheritance Pattern for Alpha Thalassaemia

1.4 What is beta thalasseamia?

1.5 How common is beta thalasseamia worldwide?

1.6 How do people inherit beta thalasseamia?

Clinical and Genetic Classification

Clinical and Genetic Classification

1.7 What Are the Signs and Symptoms of Thalassaemia?

1.9 Mild Anemia

1.10 Moderate to severe Anemia and Other Signs and Symptoms

1.11 Severe Anemia and Other Signs and Symptoms

 A pale and listless appearance

1.12 Diagnosing thalasseamia

If the doctor suspects thalasseamia, certain blood tests may be ordered:

1.13 Hb electrophoresis. It detects abnormal hemoglobin

1.14 Standard Treatments

1.16 Iron Chelation Therapy

1.17 Folic Acid Supplements

1.18 Other Treatments

1.19 Blood and Marrow Stem Cell Transplant

1.20 Possible Future Treatments

1.21 Treating Complications

1.20 What are the complications of thalasseamia?

The most common complications include:

1.21 What is the life expectancy for someone with thalasseamia?

1.22 How Can Thalassaemia Be Prevented?

1.23 Living with Thalasseamia

 More people are able to get blood transfusions now.

1.24 Follow Your Treatment Plan

1.25 Get Ongoing Medical Care

1.26 Take Steps to Stay Healthy

 Wash your hands often.

1.27 Emotional Issues and Support

Prevention is better than Cure

2.1 The Hand that Stirs the Pot

2.2 Who Is at Risk for Thalassaemia?

2.3 Family History

3 About Blood and Donations

An adult human has about 5 to 6

In fants and children have

while running a marathon, blood

Male donors can give

3.1 Why give blood?

3.2 Red cells, plasma and platelets

3.3 Short shelf-life

Red cells - up to 35 days(2 to 8 centigrade)