Assessment Related To Developmental Disabilities and Psychological Disorders During Early Childhood
Assessment Related To Developmental Disabilities and Psychological Disorders During Early Childhood
Keywords Early childhood developmental disabilities Early assessment of aut-
ism spectrum disorder Preschool ADHD Early childhood oppositional defiant
disorder Autism screening measures BASC-3 preschool CBCL-preschool
Introduction
Literature Review
settings and over time. The cause of developmental disabilities, including autism
and ADHD, is generally considered to be a combination of complex variables,
some of which begin prenatally, including genetic factors, exposure to toxins,
infection, and injury. For each of the disorders considered in this chapter, there is no
known definitive cause, biological marker, or single test that can be used to diag-
nose a child. Further, there is heterogeneity of symptoms for each child who meets
diagnostic criteria, as all children have a unique constellation of resources, family
support, and individual strengths and limitations that influence functioning and
ongoing development.
A comprehensive psychological evaluation begins with timely screening for
common risk factors. Selecting and administering reliable and valid screening mea-
sures and collecting adequate background information from parents is often a first step
to determine when a referral for an evaluation or diagnostic assessment should be
made. While early childhood psychologists’ roles in an initial developmental screening
might vary, they should be able to understand and interpret screening measures and
assessment methods for developmental disabilities. Once a referral for a diagnostic
assessment is made, psychologists might be required to conduct the evaluation inde-
pendently or as part of a multidisciplinary team. They will need to know both typical
and atypical behavior during early childhood from infancy to school entry.
Understanding typical development in early childhood will help to appropriately frame
parent or caregiver concerns. It is also important for diagnostic decisions, as behaviors
that indicate a developmental disability need to be markedly inconsistent with a child’s
age and developmental level. Psychologists need to know established diagnostic and
differential diagnosis criteria; best practices in assessment, including selection of valid
measures; and how to interpret results within a biopsychosocial framework that
informs treatment planning and takes into account cultural background and environ-
mental facilitators and barriers. For example, maternal psychosocial adversity has been
associated with poorer emotion regulation for infants to children 5 years of age
(Halligan et al., 2013).
There are a variety of standardized measures that are commonly employed as
part of screening or diagnostic evaluations in young children. A number of these
measures are broad-band, meaning that they cover a wide range of symptoms and
problematic behaviors. Many of these are parent-report instruments, which pose
both strengths and limitations as part of the evaluation process. Parental input is
necessary and valuable to provide a comprehensive picture of the child’s func-
tioning, though parents might present a biased perspective. A sample of these
measures is summarized in Table 10.1.
Table 10.1 General Measures of Social-Emotional and Behavioral Functioning in Young Children
Screening Measures
Ages and Stages Questionnaires: • Parents complete this measure to identify
Social-Emotional, Second Edition (ASQ: social—emotional difficulties for children
SE-2) (Squires et al., 2015) ages 1–72 months of age
• 9 different age questionnaires, 30 items per
questionnaire
• Administration time 10–15 min
Brief Infant Toddler Social Emotional • The BITSEA scales and newly calculated
Assessment (BITSEA) (Briggs-Gowan & BITSEA Autism score have good
Carter, 2006b) discriminative power to differentiate children
with and without ASD (Kruizinga et al.,
2014)
• For children 12–36 months of age
• Parent report, total problems score,
competence score, autism composite
• 7–10 min to complete
• 12–36 month
The Devereux Early Childhood Assessment DECA-P2
Preschool 2nd Edition (DECA-P2) (LeBuffe (DECA-I/T)
& Naglieri, 2012) • Both are strengths based, standardized norm
The Devereux Early Childhood Assessment referenced behavior rating scales
for Infants and Toddlers (DECA-I/T) • Both have three key protective factors related
(Mackrain, LeBuffe, & Powell, 2007) to resilience: initiative, self-regulation and
attachment/relationships both yield a total
protective factors score
• DECA-P2 is the parent report measure for
children ages 3–5 years
• DECA-P2 includes a behavior concerns
screener score
• DECA-I/T is for children ages 1 month–
2 years
Strengths and Difficulty Questionnaire • Parent or teacher completed questionnaire as
(SDQ)(Goodman, 2007) a general psychosocial screening
• 10 min to complete
• For children ages 3–17
• 25 items; 5 scales (extended versions include
items about impact)
• Scales include: Emotional Symptoms,
Conduct Problems,
Hyperactivity/Inattention, Peer Relationship
Problems and Prosocial Behavior
Available for free at: http://www.sdqinfo.com/
a0.html
Diagnostic Assessment Measures
Behavior Assessment System for Children • Norm referenced, standardized rating scale
Third Edition (BASC-3) (Reynolds & that assesses current level of social and
Kamphaus, 2015) emotional functioning. It assesses a wide
range of child behavior problems and
psychopathology, including attention
(continued)
208 K.M. Ellingsen et al.
Toddlers (CHAT) and has been recently revised as the M-CHAT-R/F (Robins,
Fein, & Barton, 2009) as a two part-screener with simplified language, a few less
items and recommended follow-up interview for positively screened children. The
M-CHAT-R/F was designed and validated to address issues of sensitivity and high
false positives from the M-CHAT. The addition of the parent interview with
follow-up questions to the M-CHAT-R/F also follows recommended best practices
and helps clinicians better understand parental responses (Zwaigenbaum et al.,
2009). The most common early signs captured by the M-CHAT are impairments or
delays in early emerging social communication behaviors, though sensory sensi-
tivities or restricted play might also be early indicators of later ASD. Clinicians are
cautioned about interpreting the early signs documented in the screening because
these behaviors are not necessarily specific to ASD and might be representative of
other neurodevelopmental disorders (Charman & Gotham, 2013). Having a parent
expand upon the concerns they identified in the screening (e.g., what do they notice,
when, how often, and under what circumstances) will provide necessary informa-
tion to understand the child’s functioning and determine if referral for a compre-
hensive psychological evaluation is warranted. Information about how the child
interacts in other social environments (e.g., child care) should also be gathered
when possible. Hearing should be assessed by an audiologist.
The CDC provides information about other common measures used in autism
screening, including the Ages and Stages Questionnaire (ASQ), the Parents
Evaluation of Developmental Status (PEDS) and the Screening Tool for Autism in
Toddlers and Young Children (STAT) (See http://www.cdc.gov/ncbddd/autism/
hcp-screening.html for information regarding these measures. In addition, there are
instruments that aim to screen for ASD with infants. For example, The First Year
Inventory (FYI; Baranek, Watson, Crais, & Reznick, 2003; Reznick, Baranek,
Reavis, Watson, & Crais, 2007) is a parent-report measure that contains items in the
social communication and sensory regulatory domains. Although the FYI is still
only available for research purposes, the developers have conducted several vali-
dation studies, a retrospective study, and an outcomes study and translated the tool
into several different languages, including Spanish, Hebrew, Dutch-Flemish, Italian,
and Chinese.
Following a developmental screening, a child determined to manifest risk for
autism should be referred for a diagnostic assessment. Diagnosis of an ASD is most
valid and reliable when derived from a multifaceted assessment approach. Use of
standardized measures as well as interviews, behavioral observations, and review of
records are essential for accurate diagnosis. Interviews with parents and/or other
caregivers should be thorough and cover information about pregnancy, delivery,
medical history, and developmental milestones, as well as psychosocial stressors
and trauma exposure, both to rule out other disorders and better understand the
child’s functioning. Behavioral observations should be conducted across settings to
the greatest extent possible to provide information about the consistency of the
child’s skills and functioning in different contexts. Vision and hearing screens
should be performed to understand sensory functions. Standardized cognitive,
language, and motor tests should be administered. For children under age 3, the
214 K.M. Ellingsen et al.
diagnosis based upon parental report (Visser et al., 2014). ADHD can profoundly
affect children’s social interactions, interpersonal relationships, educational per-
formance, and overall wellbeing (American Academy of Pediatrics, 2011).
Common referral concerns for ADHD include behaviors such as high activity level,
impulsivity, and poor attention. Most referrals for an evaluation and diagnosis occur
between the ages of 7–9 years (Smith & Corkum, 2007) with the average age of
diagnosis at 7 years of age. However, initial age of symptom onset often occurs
earlier, between ages 3–4 (Smith & Corkum, 2007). Also, Visser et al. (2015) note
that children who exhibit more severe symptoms are generally diagnosed earlier,
usually around 4 years of age.
Although there is less information about ADHD in younger children, research
suggests that prevalence rates for preschoolers are similar to those in older children
(Egger & Angold, 2006; Egger, Kondo, & Angold, 2006). In addition, research
indicates that preschoolers with ADHD show profiles of symptoms (e.g., high
levels of inattention, impulsivity and overactivity) and deficits that are quite similar
to those in school-age and older children with the disorder (Gadow & Nolan, 2002;
Wahlstedt, Thorell, & Bohlin, 2008). Despite these factors, many researchers and
practitioners often regard accurate diagnosis of ADHD in younger children as more
difficult compared to diagnosis in school-age children and adolescents. Also, there
is ongoing controversy regarding assessment and diagnosis of the disorder for
younger children (Smith & Corkum, 2007). While the American Academy of
Pediatrics guidelines (2011) suggest that children as young as four can be diag-
nosed with ADHD, many question why an increasing number of ADHD diagnoses
are being given to preschool-age children each year and concerns remain about the
use of stimulant medication with young children.
Some research has examined etiology of ADHD as well as trajectories of
development. According to the research and conceptualizations of Larsson,
Larsson, and Lichtenstein (2004) and Daley, Jones, Hutchings, and Thompson
(2009), gene–environment interaction is the best predictive model in explaining
ADHD. According to Daley et al., there are two specific theoretical models that
have been examined to explain the development and maintenance of ADHD. One
of these is the model of cognitive dysregulation espoused by Barkley (1997) as well
as Thorell and Wahlstedt (2006). According to this model, children with ADHD
show deficits in executive functioning, particularly problems when it comes to
inhibiting responses. These deficits make it more likely for them to behave
impulsively and become distracted by stimuli in their environment as compared to
other children their age. The other primary model focuses on motivational processes
and posits that children with ADHD behave impulsively and become fidgety and
distractible because they are trying to avoid delay from preferred objects and
activities in their environment (Sonuga-Barke, Houlberg, & Hall, 1994). Both of
these models have received empirical support in studies of preschool children with
ADHD (Kuntsi, Oosterlaan, & Stevenson, 2001; Sonuga-Barke, Dalen, &
Remmingtom, 2003; Thorell & Wahlstedt, 2006).
One of the primary challenges with diagnosis in the preschool period is difficulty
differentiating true ADHD symptoms from behavior that would be considered
10 Assessment Related to Developmental Disabilities … 217
typical in younger children. For example, younger children are often quite active, so
practitioners might be hesitant to state that a three- or four-year old is showing an
excessive activity level, which is one of the possible symptoms of ADHD.
Similarly, from a developmental perspective, preschoolers do not have the same
attention span as school-age children, and teachers, parents, and clinicians might
have difficulty delineating a clear line as to what constitutes attentional difficulties.
Therefore, it is important for psychologists and mental health professionals to know
how to understand appropriate age-based behaviors; parent concerns about attention
and activity level are common during early childhood. One general guideline that
clinicians should apply in assessing ADHD in a younger child is to ask: Is this
behavior more frequent or intense than what is seen in other children of the same
age. This guideline requires knowledge and experience working with younger
children to understand what is considered typical and atypical.
Case Study 1
Discussion Questions:
1. What diagnoses are you considering based on the referral concerns and back-
ground information?
2. What domains will need to be assessed?
3. What other background information will you need to collect to understand
behavioral concerns?
4. Describe the measures and methods you will use as part of a diagnostic
assessment process.
Behavioral Observations: Charlie presented as an active and social young boy.
He demonstrated appropriate eye contact, warmed quickly to the examiner and
easily shared stories about activities he enjoyed. His interactions with his parents
during the intake interview were minimal and he chose to play alone with toys. He
ignored repeated requests by his mother to clean up before testing began; she picked
up the toys and grabbed his arm, expressing with frustration “he never listens.”
During the evaluation, his engagement and level of compliance varied by assess-
ment task; at times, he was highly engaged and excited to participate as well as
celebrate his accomplishments. Other times, Charlie refused to perform items,
particularly when tasks seemed more difficult. He impulsively touched items on the
table and had a hard time sitting still during the cognitive tasks, often choosing to
stand. To complete all of the standardized assessment activities, Charlie required
frequent breaks, as well as the implementation of a reward system with stickers.
Scores on Standardized Measures: Charlie’s full-scale IQ (FSIQ) on the
WPPSI-IV was 124, which falls in the 95th percentile compared to same age peers.
On the Bracken Basic Concept Scale-Third edition: Receptive Form, he obtained a
standard score of 118, which falls in the high average range compared to same age
peers. On the Drawing subtest from the Wide Range Assessment of Visual Motor
Ability (WRAVMA), Charlie’s visual-motor skills fell within the Average range
(Standard Score = 101; 55th percentile). Information obtained from parent ques-
tionnaires revealed significant, persistent impairments in social-emotional
226 K.M. Ellingsen et al.
functioning. On the BRIEF-P, Mr. and Mrs. Roberts indicated that Charlie has
significant difficulties with Inhibition and Emotional Control (99th percentile and
92nd percentile, respectively). Ratings by Charlie’s preschool teacher were con-
sistent with parent ratings. Charlie’s parents and teacher also completed the BASC-
3. On this measure, parents endorsed items resulting in clinically significant ele-
vations (i.e., standard T scores greater than 70) on the following scales:
Hyperactivity (T = 90, 99th percentile), Aggression (T = 73, 97th percentile),
Externalizing Problems (T = 84, 99th percentile), Atypicality (T = 73, 97th per-
centile), and Attention Problems (T = 71, 98th percentile). Ratings from his teacher
indicated somewhat less problematic behavior in this environment compared to
home, although he obtained elevated scores on the Hyperactivity (T = 87, 99th
percentile) and Attention Problems (T = 71, 98th percentile) scales.
On the DECA-C, Mr. and Mrs. Roberts reported significant concerns about
Charlie across all clinical scales. Specifically, scores for Attention problems fell
within the 99th percentile, suggesting that Charlie displays difficulty focusing on a
task and ignoring noise or other stimuli in his environment and has significantly
higher levels of distractibility, impulsivity, and hyperactivity than other same age
children. He was rated to have frequent problems associated with: temper tantrums,
becoming easily frustrated, high distractibility, short attention span, squirming, and
fidgeting. Parents rated Charlie as having low protective factors with respect to
Self-Control and Attachment but close to the normative range for Initiative.
Discussion Questions
1. Based upon the additional data, what would you describe as Charlie’s most
problematic areas of functioning? What are his strengths/areas of asset?
2. What information supports a diagnosis of ADHD and/or ODD?
3. What other diagnoses would you consider based on the referral concerns? What
additional information do you need to make a diagnosis?
Case Study 2
Liam is a three-year-old boy who was referred for an intake consultation by his
primary care pediatrician due to parent concerns about a suspected ASD. Parents
described persistent behavioral and sensory concerns, including problems with
sleep and eating, recently observed repetitive motor movements and limited social
interactions with peers. They reported that problems with feeding and sleep started
in infancy. Liam’s mother described her pregnancy as a highly stressful time, which
included the family’s move between states and her husband beginning a new job.
Liam was born at 35 weeks gestation. His early health history is remarkable for
10 Assessment Related to Developmental Disabilities … 227
chronic otitis media. Liam received several rounds of antibiotics from 18 months to
30 months of age. His sleep issues include frequent waking during the night and
difficulty falling asleep. Liam’s parents report that he more readily engages with
them and little with peers. Liam’s preschool teacher also has concerns about a
perceived lack of social interest and peer play. Liam started preschool two months
prior to his referral without participation in any other formal childcare on a regular
basis. Early motor and language developmental milestones were reported as
delayed. Liam did not begin speaking words until close to age of 2 years. He began
walking at 18 months of age. Liam’s current expressive language skills are
described by both his parents and teacher as limited. He does not use sentences and
tends to mix real words with other language that is garbled. Liam’s receptive
language skills are not as limited, but still below age expectations. He can point to a
range of pictures of common objects and events. Liam is inconsistent in following
directions. He cannot follow commands that are more than one step. Liam’s parents
indicate that he continues to show “clumsiness” and resistance to performing
complex fine motor tasks.
Discussion Questions
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