Changing Patterns of Self-Management in Youth With Type I Diabetes
Changing Patterns of Self-Management in Youth With Type I Diabetes
Changing Patterns of Self-Management in Youth With Type I Diabetes
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3 authors, including:
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TeenCope: An Internet-based coping skills training program for youth with type 1 diabetes View project
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Changing Patterns of Self-Management in Youth Effect of a primary care based brief intervention trial
among risky drug users on health-related quality of
with Type I Diabetes life
Sebastian E. Baumeister, … +4 … , Ronald M. Andersen
Lynne S. Schilling
Schilling, RN, PhD Drug and Alcohol Dependence • 1 September 2014
Kathleen A. Knafl
Knafl, PhD, FAAN Preview View PDF Save PDF
Margaret Grey
Grey, DrPH, RN, FAAN
Type 1 diabetes and living without a partner:
Psychological and social aspects, self-management
Self-management of type I diabetes is key to good physical and psychosocial outcomes of the disease, yet little is known about behaviour, and glycaemic control
how youth and their parents share responsibility for illness management. This study describes the division of labor between
youth and their parents, self-management conflict, and three patterns of self-management in youth across four developmental Lene E. Joensen, Thomas P. Almdal and Ingrid Willaing
stages: preadolescence, early adolescence, mid-adolescence, and late adolescence. Twenty-two youth (8–19 years) with type I Diabetes Research and Clinical Practice • September 2013
diabetes and one of their parents were interviewed using semistructured interviews. Data were analyzed using qualitative
content analysis. Results indicated that parents of preadolescents (8–11 years) performed much of their children’s diabetes Preview View PDF Save PDF
care. Dyads reported some conflicts, particularly over food, amount of bolus, and blood glucose testing. The dyads
demonstrated a self-management pattern that we identified as parent-dominant. Most early adolescents (11–15 years)
performed much of their own daily care, but parents actively participated in their self-management and oversaw it. The
majority of dyads reported conflict over food and blood glucose testing. Most early adolescents demonstrated a transitional self-
management pattern whereby they managed their own daily care, with varying amounts of parental oversight. In mid-
adolescence (15–17 years), youth managed nearly all of their diabetes care; however, some dyads reported that parental
oversight of illness care was still considerable. Exercise was conflictual for the majority of these dyads. Over half of the youth
and, by late adolescence (17–19 years), all youth demonstrated a pattern of adolescent-dominant self-management. In
adolescent-dominant self-management, youth independently managed their diabetes. Half of the dyads reported that there
were sometimes conflicts over food and blood glucose testing. Understanding the nature of sharing self-management
responsibilities, the nature of conflict in carrying out such responsibilities, and the pattern of self-management may help nurses
provide more targeted assistance to youth with diabetes and to their parents.
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