Rising-to-new-heights-of-communication-and-learning-for-children-with-autism-the-definitive-guide-to-using-alternative-augmentative-communication-visual-strategies-and-learning-supports-at-home-and-school.pdf
Rising-to-new-heights-of-communication-and-learning-for-children-with-autism-the-definitive-guide-to-using-alternative-augmentative-communication-visual-strategies-and-learning-supports-at-home-and-school.pdf
Rising-to-new-heights-of-communication-and-learning-for-children-with-autism-the-definitive-guide-to-using-alternative-augmentative-communication-visual-strategies-and-learning-supports-at-home-and-school.pdf
Communication and
Learning for Children
with Autism
of related interest
Assessing and Developing Communication and Thinking Skills in
People with Autism and Communication Difficulties
A Toolkit for Parents and Professionals
Kate Silver
With Autism Initiatives
ISBN 978 1 84310 352 3
Enabling Communication in Children with Autism
Carol Potter and Chris Whittaker
ISBN 978 1 85302 956 1
Communication Issues in Autism and Asperger Syndrome
Do we speak the same language?
Olga Bogdashina
ISBN 978 1 84310 267 0
Rising to New Heights
of Communication and
Learning for Children
with Autism
The Definitive Guide to Using
Alternative-Augmentative
Communication, Visual Strategies, and
Learning Supports at Home and School
www.jkp.com
All rights reserved. No part of this publication may be reproduced in any material form
(including photocopying or storing it in any medium by electronic means and whether
or not transiently or incidentally to some other use of this publication) without the
written permission of the copyright owner except in accordance with the provisions
of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued
by the Copyright Licensing Agency Ltd, Saffron House, 6–10 Kirby Street, London
EC1N 8TS. Applications for the copyright owner’s written permission to reproduce
any part of this publication should be addressed to the publisher.
Warning: The doing of an unauthorized act in relation to a copyright work may result
in both a civil claim for damages and criminal prosecution.
It is to the families who have risen above the struggles and challenges
of autism, to soar and triumph like the phoenix, that we dedicate
this work. It is to educators, therapists, aides, professionals, and other
interested parties devoted to improving the lives of children with
autism and other developmental disabilities, that we offer this resource
guide. All of you have inspired us through your tireless efforts. We
hope to facilitate your endeavors.
It is with a promising vision of the future that we dedicate this
work to all children diagnosed with autism and other pervasive
disabilities. You have touched our souls, and it is in you that we
have found our lives’ work. It is our intent that this book should be
useful to those in your life, making your learning experiences, social
situations, and communication efforts more successful.
It is to our husbands, Darren and Hugh, that we dedicate this
work. We are truly thankful for the sacrifices you made in order for it
to come to fruition. You encouraged, supported, and loved us as you
kept the home fires burning to illuminate our journey to completion.
Finally, in all that we do, we acknowledge our Creator who was
in the midst of this project from conception to completion. We give
all the praise and glory to our Father-Mother-God.
Sincerely,
Carol and Vicki
Contents
Introduction 11
List of Boxes
Box 5.1 Sample Social Story for home 93
Box 5.2 Sample Social Story for home 94
Box 5.3 Sample Social Story for an older child for home 95
Introduction
Increasing knowledge
A number of words are emotionally laden, but few as much so as
the term “autism”. Kubler-Ross’s (2005) stages of mourning (shock,
denial, anger, bargaining, depression, testing, and acceptance) are
similarly experienced by families who receive the pronouncement
that their children have a pervasive developmental disorder (PDD) of
autism or other disability. Hopes, aspirations, goals, and dreams for
their children are typically replaced by a grieving process of despair
and fear. Fear of the unknown prevails due to a lack of immediately
available information, resources, and support. The primary purpose
of this introductory chapter is to provide basic information on autism
and other PDDs. Second, our aim is to assist families through the
final stages of seeking solutions and finding ways to rise above the
fear that is often inherent in a diagnosis of developmental disability,
communication deficit, or behavior disorders.
If there is any consolation to families, we reveal that some
educators, therapists, and other school staff are equally fearful of
autism and other pervasive developmental disabilities. The genesis
of the emotions may be different, but the underlying cause is the
same—fear. We have witnessed many teachers going into shock, not
unlike families, when first learning that they are to be assigned a
student who has been diagnosed with autism. There is anger and
denial that the child has been placed appropriately. This resource
guide assists educators, therapists, and other interventionists in rising
above the fear of the unknown by providing them with proven
11
Rising to New Heights of Communication and Learning for Children with Autism
Definitions
The American Psychiatric Association (APA) has designated the
category of PDD to indicate children with delay or deviance in
their social, language, and/or cognitive development (APA 2000).
PDD is not a single disorder, but rather a range of delays of differing
magnitude, across different domains. The diagnostic terms that fall
within the broad category of PDD include:
• autism spectrum disorder (ASD)
• Asperger syndrome
• Rett’s disorder
• childhood disintegrative disorder
• pervasive developmental disorder not otherwise specified
(PDD-NOS) (Centers for Disease Control and Prevention
2007; The National Dissemination Center for Children with
Disabilities (NICHCY) 2010).
An ASD is a neurological condition affecting a child’s ability to
comprehend and express language, relate to others, and learn. A
diagnosis of PDD-NOS indicates that a child is impaired in the
development of reciprocal social interaction or communication, or
exhibits stereotyped behavior, but does not meet the criteria for a
specific PDD.
According to the APA (2000), the DSM IV-TR diagnostic criteria
for an autism disorder are as follows:
A. A total of six (or more) items from (1), (2), and (3), with at least
two from (1), and one each from (2) and (3):
1. Qualitative impairment in social interaction, as manifested by
at least two of the following:
(a) Marked impairment in the use of multiple non-verbal
behaviors such as eye-to-eye gaze, facial expression, body
postures, and gestures to regulate social interaction.
12
Introduction
13
Rising to New Heights of Communication and Learning for Children with Autism
14
Introduction
15
Rising to New Heights of Communication and Learning for Children with Autism
Expert answers
With increasingly high numbers of children diagnosed daily with
a PDD, both private and governmental entities have turned their
attention to learning more regarding the disorders. The CDC
responds to questions about who is affected by ASDs by reporting
that the condition occurs in all racial, ethnic, and socio-economic
groups (CDC 2009). ASDs occur four times more often in boys than
girls. The CDC’s recent studies indicate that in 2009 approximately
1 in 110 eight year old children in several regions of the United
States had an ASD (CDC 2009). According to the CDC, autism can
be detected in children as young as 18 months of age. Children in
high-risk groups, such as siblings of those previously diagnosed, or
children of parents with autism, should be monitored closely for
acquisition of developmental milestones or warning signs of an ASD
or other developmental disabilities. The CDC lists specific behaviors
as “possible red flags” for an ASD. These are when children:
• do not play “pretend” games (e.g. pretend to “feed” a doll)
• do not point at objects to show interest (e.g. point at an
airplane flying over)
• do not look at objects when another person points at them
• have trouble relating to others, or not have an interest in
other people at all
• avoid eye contact and want to be alone
16
Introduction
17
Rising to New Heights of Communication and Learning for Children with Autism
Further reading
American Psychiatric Association (APA) (2000) Diagnostic Criteria for 229.00 Autistic
Disorder (DSM-IV-TR). Arlington, VA: APA.
Center for Disease Control and Prevention (CDC) (2004) What Are Developmental
Disabilities? Available at www.cdc.gov/ncbddd/dd/default.htm. Accessed
August 2010.
Center for Disease Control and Prevention (CDC) (2007). www.cdc.gov/ncbdd/
autism/signs.html. Accessed 12 January 2009.
Center for Disease Control and Prevention (CDC) (2009) CDC Press Briefing
on Autism Surveillance Summary. Available at www.cdc.gov/media/
transcripts/2009/t091218.htm. Accessed 2 July 2010.
Kubler-Ross, E. and Kessler, D. (2005) On Grief and Grieving. Sribner, NY: NY.
National Dissemination Center for Children with Disablilities (NICHCY) (2010).
www.nichcy.org
18
PART I
Alternative-Augmentative
Communication
Methods
19
Rising to New Heights of Communication and Learning for Children with Autism
20
1 Speech
Generating
Devices
21
Rising to New Heights of Communication and Learning for Children with Autism
22
Speech Generating Devices
23
Rising to New Heights of Communication and Learning for Children with Autism
24
Speech Generating Devices
25
Rising to New Heights of Communication and Learning for Children with Autism
Social interaction
According to Burns (2005), opportunities for social interaction exist
in infinite quantities for verbal children at school and at home. These
interactions are generally short in duration and they are often not
school-related even though they occur in school. Social interactions
occur before, after, and during structured school, home, and
community activities. It is therefore recommended to include some
social vocabulary on an SGD unless it is not a high priority either
because of limits on the amount of vocabulary that can be included
on the SGD, or because it is not deemed important by the SGD user.
Figures 1.1–1.6 are examples of different SGDs that are
programmed with vocabulary for communication during social
situations. For example, Figures 1.1 and 1.2 show SGDs with
greetings to staff and peers on arrival at school, and Figures 1.3 and
1.4 show SGDs with messages to allow for communication regarding
arrival topics. Figures 1.5 and 1.6 demonstrate how students can be
helped to respond to possible questions on arrival such as:
26
Speech Generating Devices
“Good morning
Mr. Jones.”
“How are
“Good morning
you today?”
Mr. Jones.”
“Good to
see you.” “What’s
up?”
27
Rising to New Heights of Communication and Learning for Children with Autism
“I would
“I have my like to eat
homework.” breakfast.”
“no”
“yes”
“water”
“cheese
croissant”
“chocolate
milk”
“Peanut butter
and jelly
sandwich”
“white
milk”
“French “juice”
toast
sticks”
“cereal”
28
Speech Generating Devices
Curricular interaction
Communication opportunities exist during structured class activities
embedded in the school day. Typical school activities such as
reading groups, circle time, show and tell, and oral reports provide
opportunities for expressive language. The level and type of
expressive opportunities are dependent upon the type of classes in
which the student is enrolled, the make-up of the classroom, and
the developmental level of the student. It is therefore important to
recognize the communication opportunities and teach the student to
use the SGD to communicate successfully in the school environment
(Burns 2005).
Figures 1.7–1.9 are examples of devices with programmed
messages that can be used during structured activities at home or
at school. The student with an SGD that provides these types of
messages, and who has been trained on the use of the SGD, now
has the potential to independently respond, interact, and successfully
access the curriculum in the least restrictive environment.
For example, Figure 1.7 shows how students can participate in
typical group weather activities. Figure 1.8 shows how students may
respond to structured group questions such as:
• How old are you?
• Who do you want to be your helper?
• Whose turn is it?
29
Rising to New Heights of Communication and Learning for Children with Autism
Communication personality
Communication personality considers the specific attributes of a
student’s personality when determining use of an SGD. As with verbal
students, there are extroverted and introverted AAC users. Students
exhibit varied levels of desire to speak in a classroom environment
irrespective of their ability to generate messages on their device. Some
students seek the center of attention and will communicate freely in
the classroom setting while others prefer not to interact. These same
cloudy
sunny
rainy
Today is snowy
cold
hot
30
Speech Generating Devices
31
Rising to New Heights of Communication and Learning for Children with Autism
Communication technique
Communication technique involves how the SGD is used and affects
the speed of communication. SGD users who know how to access
vocabulary are more adept in their communication. Those who are not
familiar with their device may have a difficult time generating desired
messages within a reasonable time. They may become discouraged
when impatient communication partners interrupt or respond prior
to message completion. It is therefore essential to teach the use,
purpose, function, and operation of the device to ensure maximum
communicative success (Burns 2005).
32
Speech Generating Devices
33
Rising to New Heights of Communication and Learning for Children with Autism
Teaching activity
Teaching activities for device users include, but are not limited to, the
classroom assignments presented to all the students in a class. All too
often, SGD users are handed a device and expected to communicate.
This is done when many non-verbal students have deficits in language
34
Speech Generating Devices
Communication activity
Communication activities may include show and tell, oral book
reports, games, and story telling. These kinds of activities provide
opportunities for long varied language utterances that can be pre-
planned and rehearsed. Additionally, students are provided with the
opportunity for inclusion in talk time activities along with classmates
providing practice with SGDs. Being the caller in a Bingo game or
playing a game of Uno can offer varied, yet predictable, opportunities
for expression.
Figure 1.13 is an example of a Bingo overlay that may be used
in an SGD. Figure 1.14 is an overlay that offers vocabulary for
communicating information between school and home.
The messages can be elaborate, describing activities or events that
occurred at school. They can also be as simple as using the SGD to
let parents know to look in the book bag for a note from the teacher.
Students can also use the device to:
• request desired food items
• indicate when they are hungry
• express when more is desired
• choose a TV program to watch
• express feelings
• express need for help.
Peer activity
Peer activities utilize other students as communicative partners.
Including the students’ friends as in expressive language activities
offers a less threatening, more fun opportunity to use SGDs. The
student is in a more casual and comfortable situation, removed from
the sense of being tested and timed, and released from the fear of
35
Rising to New Heights of Communication and Learning for Children with Autism
“ I played in the
“School was
playground.”
fun today.”
36
Speech Generating Devices
37
2 Picture Exchange
Communication System
(PECS)
W What is PECS?
H
a PECS is an augmentative communication system designed to facilitate
t quick, effective, functional communication. Vicker (2002) describes it
as a modified applied behavior analysis program established to teach
non-verbal symbolic communication. It is a concrete visual-based
program that does not require the more difficult motor planning that
many signs in sign language require. Although speech emerges with
some individuals and verbal speech is indirectly encouraged, PECS
is not specifically designed to teach speech. Its primary objective
is to establish an understanding about the purpose and method
38
Picture Exchange Communication System (PECS)
39
Rising to New Heights of Communication and Learning for Children with Autism
40
Picture Exchange Communication System (PECS)
with an item that is desirable for the user along with a non-desirable
or neutral item to facilitate discrimination.
41
Rising to New Heights of Communication and Learning for Children with Autism
with various populations. The training is not limited by age and can
be offered to an adult with a cognitive impairment as well as to a
young child with no cognitive impairments (Vicker 2002).
PECS is often introduced to students with autism; however, it is
not limited to this population. Careful consideration of the program
and its strengths and weaknesses should play an important role in
program selection for each prospective communication learner.
There is a small set of criteria that helps determine when PECS
may be used (Vicker 2002).
Figure 2.1 Phase 1 Picture exchange (a) In Figure 2.1 the communicator (child)
is being physically prompted by the facilitator to exchange a picture with the
message receiver. The physical prompts are faded as soon as possible.
Intention to communicate
The candidate for PECS training should demonstrate at least some
instances of intention to communicate by trying to gain attention
in conjunction with a purposeful communicative attempt. The child
who pulls another person to a desired object has at least some
understanding of intentionality. Those who make attempts and
42
Picture Exchange Communication System (PECS)
Figure 2.2 Phase 2 Picture exchange (b) Figure 2.2 shows training in the exchange
of pictures when a desired item is placed on top of the communication binder
while opportunities are created to encourage multiple trials for the communicator
to exchange the picture. The communicator is then taught to locate the binder
and travel to the message receiver.
43
Rising to New Heights of Communication and Learning for Children with Autism
44
Picture Exchange Communication System (PECS)
Figure 2.4 Phase 4 “I want” The phrase “I want” is used as a sentence starter to
introduce sentence structure. The communicator completes the phrase with the
desired item and exchanges the complete phrase.
45
3 Symbolic
Language
Systems
46
Symbolic Language Systems
Communication page
The communication page is a topic-specific page of symbols to
relay messages with a variety of partners in different environments.
Vocabulary necessary for the topic of the page is combined on one
sheet. Sample topics might include a restaurant order page, circle time
vocabulary page, TV channel or program choice page, or student
personal information page.
Figure 3.1, on p.56 is an example of a communication page. These
pages are used to communicate rapid, simple, predictable vocabulary
during appropriate communicative settings.
Communication board
The communication board is a single-layer type of symbolic language
system that offers varied vocabulary within boundaries. It differs from
a communication page in that the vocabulary is not topic-specific and
vocabulary options are limited to the space available on the board.
47
Rising to New Heights of Communication and Learning for Children with Autism
Communication binder
The communication binder is often a three-ring notebook that
contains sheets to which communication symbols may be attached.
The sheets are typically a collection of communication pages in that
each sheet within the binder is a topic-specific page of symbols to
communicate messages for a communicative situation. The pages
being organized by topic or category assist the user in the ease of
locating desired symbols. The binder may be created to have as many
or as few pages as the individual can physically and cognitively
handle. The vocabulary is dependent on the communicative desires
and needs of the individual. Figure 3.5 has examples of vocabulary
separated by category on communication pages that may be included
in a communication binder.
Communication wallet
The communication wallet is similar to the communication binder
but smaller. The wallet provides categorized pages of vocabulary in a
smaller wallet size so it can be transported more readily.
Symbolic communication methods are not limited to picture-
based materials. Other representations are classified under the
umbrella of symbolic language systems. Any method that gives a
specific communicative meaning to a previously general or generic
item or action is a type of symbolic language system.
48
Symbolic Language Systems
Objects
Using objects to represent a message is one of the most concrete
symbolic language systems. They are easier for some individuals to
interpret and understand. Generally, an object commonly used or
associated with the desired message is presented as a symbol for the
message. For example, a spoon is used to represent “eat” and a CD
is used to represent “listen to music”. Objects are sometimes bulky,
making it more difficult, cumbersome, or unrealistic to always have
them readily available. A portion or piece of an object may be used
when actual items are too large to use as an expressive representation
for a message. A few pieces of a chain link may be used to represent
“I want to go on the swing” and a swatch of a towel to represent “I
want to take a bath”. A shortcoming with objects is that it is difficult
to represent some abstract messages with an object. A common desire
for many individuals is to express “leave me alone”. Finding an object
to adequately represent this message is challenging.
Sign language
Sign language is a system that employs gestures made with the hands
and other cues, including facial expressions and postures of the body.
The use of this structured language system provides a comprehensive,
rapid method of communication. A disadvantage of sign language is
that it is complex, requiring learned knowledge in order to interpret
it. Any communication partner unfamiliar with sign language will not
comprehend the message.
Gestures
The use of gestures is a crude method of communication that is
used to relay messages learned between the communicator and the
partner. Any movement that is consistently used for specific desired
messages and is learned by the communication partner can be
considered a type of gestural symbolic language system. The inability
of unfamiliar partners to interpret some gestures, and the limitation
of the number of gestures that can be consistently used, are a couple
of the shortcomings of this method.
49
Rising to New Heights of Communication and Learning for Children with Autism
Vocal approximations
Often individuals with speech impairments do not have the ability
to execute the intricate fine motor movements of the articulators and
coordinate them with respiration in order to render intelligible speech.
These same individuals, however, often do possess the ability to
produce distinct variations in their vocalizations. Varied vocalizations
may be used consistently for specific messages. Just as in gestures, any
vocalization that is consistently used for specific desired messages
and is learned by the communication partner can be considered a
symbolic language system. The disadvantages of vocal approximations
mirror those of gestures in that unfamiliar listeners who have not
learned the patterns of the approximations cannot interpret them.
Individuals who rely on this method of communication are also
limited in the number of vocal approximations that can be included
in their communicative repertoire.
50
Symbolic Language Systems
51
Rising to New Heights of Communication and Learning for Children with Autism
52
Symbolic Language Systems
53
Rising to New Heights of Communication and Learning for Children with Autism
Predictable vocabulary
Symbolic language systems are used in communicative settings
that offer predictable, static vocabulary. There should be reasonable
limitations in the number of vocabulary options that may be
expressed. An example of this is a restaurant topic page where menu
items are listed or pictured and the child’s desired choices may be
readily accessed.
Figure 3.1 depicts an example of a fast-food menu that may be used
for ordering. This menu page may be used specifically for instances
when a child is going to a fast-food restaurant while at school or with
a family. Using this page makes it easier to communicate the order.
It is faster to generate the message, easy to carry, and requires less
effort to relay the message. The available vocabulary is limited to the
communicative needs for this occasion.
Classroom group activities (e.g. morning circle, weather, activity
requests, and counting activities) that require a predictable finite
number of vocabulary options is another example of a communicative
setting that would be appropriate for a symbolic language system.
54
Symbolic Language Systems
55
Rising to New Heights of Communication and Learning for Children with Autism
(a) Basic
vocabulary
56
Symbolic Language Systems
Limitations in vocabulary
Symbolic language systems are used when there are limitations in
communicative or vocabulary needs. A symbolic language system may
sufficiently accommodate the communicative needs of individuals
who have limited language capacity or communicative needs. Due
to limitations in the number of pictures that may be included in
symbolic systems, the most desired or needed vocabulary is selected.
Figure 3.3 is an example of an eye gaze chart that may be used by
children to relay basic wants and needs, especially when physical
limitations prohibit the use of symbolic language systems that require
the ability to point or turn pages.
57
Rising to New Heights of Communication and Learning for Children with Autism
58
Symbolic Language Systems
59
Rising to New Heights of Communication and Learning for Children with Autism
60
Symbolic Language Systems
61
Rising to New Heights of Communication and Learning for Children with Autism
62
PART II
Strategies
to Support
Learning
63
Rising to New Heights of Communication and Learning for Children with Autism
64
4 Visual
Supports
65
Rising to New Heights of Communication and Learning for Children with Autism
Schedules
A picture schedule is an example of a visual tool that offers
information to children with autism or other challenges to learning
and communication (Hodgdon 2003). Schedules may inform
students of regular events that are to occur, new activities that might
ensue, changes to the normal routine, the sequence of daily activities,
or when an activity is to happen or end (Hodgdon 2003, PaTTAN
2006).
Whether in object, photographic, symbolic, or written form,
schedules have the potential to provide structure to both classroom
and home routines. Schedules help clarify verbal instructions, aid
children in organizing and predicting activities, and may motivate
them to complete tasks when notified of upcoming transitions or
reinforcing activities (TEACCH 2006).
Schedules may be constructed for home implementation, general
classroom use, customized for individual use, or created to visually
represent steps within a routine (a mini-schedule). In the schedule
shown in Figure 4.1, the vertical schedule instructs the child on
66
Visual Supports
67
Rising to New Heights of Communication and Learning for Children with Autism
(a) (b)
68
Visual Supports
69
Rising to New Heights of Communication and Learning for Children with Autism
70
Visual Supports
(a) Home
1 2 Library 3 Art 4 No
school
(b) Classroom
71
Rising to New Heights of Communication and Learning for Children with Autism
72
Visual Supports
73
Rising to New Heights of Communication and Learning for Children with Autism
information, (c) offer support throughout life routines, (d) teach skills,
(e) prevent problems, and (f ) intercede when a problem occurs. While
these are explicit advantages for children, adults in their world may
also benefit from the use of visual tools. The overwhelming fear factor
may be dissipated through the understanding and completion of
strategies that improve a child’s comprehension, expression, behavior,
and social interactions. The intention of this guide is to assist families
and interventionists in equipping children with the tools needed to
succeed.
74
Visual Supports
75
Rising to New Heights of Communication and Learning for Children with Autism
raisins
76
Visual Supports
Must do
Team up!
Elicit commitment and input from all team members (e.g parents,
teachers, paraprofessionals, speech-language pathologists,
occupational therapists, other interventionists)
Get organized!
Plan for use of the support.
Who’s who?
77
Rising to New Heights of Communication and Learning for Children with Autism
Do be choosy!
Select type of representation (e.g. objects, photographs, drawings,
words), size, and color.
All aboard!
Train all members on appropriate use of the support.
Must not do
78
Visual Supports
Must have
79
Rising to New Heights of Communication and Learning for Children with Autism
80
Visual Supports
81
Rising to New Heights of Communication and Learning for Children with Autism
Using mini-schedules
When including the major routines of the day is not enough for
children who require increased structure and support, then mini-
schedules may be utilized.
One type of schedule that belongs in this category is a “FIRST/
THEN” board. Using pictures or small objects to represent what is to
be done, children learn that first they must complete one action, then
another one is to occur.
Figure 4.5a is a mini-schedule informing the child that the first
activity will be reading group, followed by math work. Figure 4.5b
is similar; however, this support assists the student with transitioning
from the preferred routine of computer time to the next activity of
going to the vocational workshop. This visual strategy informs the
students of what they are to do and where they are to be now, while
preparing them for what will happen next. As discussed previously,
when the work or activity has been completed, the picture or object
is to be placed in the FINISHED container.
D’Amore (2005) published a similar mini-schedule (Figure 4.3)
that follows a “NOW/NEXT” hierarchy. This tool is most effective
when used to display what the child is currently doing, and what
comes next, thus lessening anxiety due to uncertainty and transitions.
A similar visual tool is the “IF/THEN” board. This support
differs, however, in its use as a reward system. Families may use
82
Visual Supports
the board in Figure 4.4 to indicate that IF the child eats breakfast,
THEN painting is next. Upon completion of the activity, pictures are
put in the designated FINISHED location, keeping consistency and
expectancy in the routine.
Mini-schedules are useful in targeting certain events or tasks in
the daily schedule that a child has difficulty completing. It breaks a
larger task into smaller steps that are easier for the child to handle.
As children begin their day, the use of schedules is to start at
home. Families will likely find their morning activities proceed more
smoothly when children are provided with a visual representation of
each upcoming activity. The day gets off to a smooth start, which is
then continued at school. In this manner, not only is the fear factor
reduced in adults, but for children as well. In Rising to New Heights, we
contend that visuals reduce children’s anxiety regarding the unknown
or resistance to change by preparing them with information and
strategies to cope.
Figure 4.5a shows a mini-schedule of “Getting ready for school”
routine, while Figure 4.5b illustrates the steps children take when
arriving at school.
When visual strategies are utilized, whether a visual support of
the “Arrival at school” routine, or a real object depicting the departure
activities at the end of the school day, the unfolding of the day is
anticipated and controlled. Continuity of expectations and control
is paramount; therefore, there is never a time to abandon the use of
schedules. Students’ appropriate use indicates their understanding of
the schedule and ability to gain from it, not that they have “learned”
it and no longer need the support.
83
Rising to New Heights of Communication and Learning for Children with Autism
84
Visual Supports
85
Rising to New Heights of Communication and Learning for Children with Autism
86
5 Social
Stories™
87
Rising to New Heights of Communication and Learning for Children with Autism
88
Social Stories™
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Illustrations
A child is provided with illustrations or photographs on each page
depicting social situations and adding interest and visual cues about
the intended message. It is important to use images that are simple,
in order to ensure that a child with autism focuses on the intended
image and not the background.
Symbols
The text of a Story may be supplemented with pictures representing
any of the words or ideas in the Story. A true object-based icon,
such as a cereal box label, may be used. A detailed drawing, a line
drawing, or symbols generated from computer software such as
Boardmaker are additional options that may be used in Social Stories.
For beginning readers, PECS symbols or simple line drawings may
be used instead of text for words that are unknown. A complete
idea may be represented by one large symbol on a particular page.
Figure 5.1 is an example of a Social Story augmented with pictures
included to assist in the comprehension of the text.
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Social Stories™
There are lots of fun things to do at I like to color, play with blocks, and
school. play with the doll house.
When there are too many kids in an When the teacher says I cannot play
area I want to play in, my teacher right now, I sometimes get angry.
says I cannot play there right now.
I do not have to get angry because if When I wait, my classmates can play
I wait I will get a turn soon. There are too and they can have fun and this
other fun things I can do while I wait. makes them happy.
Having fun with the toys at school I will take turns when I play with toys
makes me happy. at school.
Figure 5.1 Sample Social Story for a young child for school
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Video
A child is videotaped acting out the expected behaviors in a social
situation. The text is captioned on a video and eventually faded.
The information about expected or appropriate behaviors in social
situations is eventually provided by text alone.
Story boxes
Understanding of information provided and interest in Social Stories
may be enhanced by children role-playing the social scene with
props like small toy figures. This method is particularly beneficial for
non-readers.
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Social Stories™
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I have toys.
I have a Walkman®.
This is okay.
These things are mine, but it is okay for Mom and Dad to borrow.
When Mom or Dad say, “Can I borrow this?” I can say, “Okay!”
I will try to say, “Okay” when Mom or Dad want to borrow my things.
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Social Stories™
When I find them I will try to use words to tell them that I am angry.
They will talk to me about what happened and about how I feel.
Box 5.3 Sample Social Story for an older child for home
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6 Structured
Environments
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Structured Environments
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Structured Environments
home. A small, cluttered space may interfere with sleep and attention
to tasks, or may reduce opportunities for social interaction with family
members and others in the home (TEACCH 2006). For children with
sensory sensitivities, environmental factors such as lighting and noise
levels must also be considered when determining location at home
or at school. If not well planned, behavior problems may result, in
response to over-stimulation, irritation, or distraction.
Once the space has been selected, the next step is to make specific
arrangements within the room. Strategies for effectual organization
may be based upon the basic configuration and subsequent
modification of the room. Determine where work areas and stations
are to be located within classrooms. For individual stations, the
availability of a blank wall is an advantage because it reduces visual
distractions. Desks and tables are faced toward the wall, helping the
children focus on the work at hand. The height of furniture, chairs,
sinks, and counters must be matched appropriately to the size of the
children.
Portable dividers may be placed in the classroom to separate each
child’s space and work areas. Cabinets, bookcases, and shelving units
may also be used to define specific areas and boundaries. Placing
work areas near storage units facilitates independence, because
the children are able to access required materials easily. The items
required to complete a task are to be located where the work is done.
For example, the table where puzzles are completed is located near
the shelf where puzzles are stored. A literacy corner will be furnished
with comfortable seating, including mats or beanbag chairs, and will
have books of high interest on hand.
Placement of furniture in a housekeeping corner defines the
boundaries, informs the children of what is expected to occur in that
area, and indicates where objects are to be stored when finished.
Additional methods of marking out a particular part of the room are
by placing a carpet or a taped area on the floor. The use of labels is
also helpful in structuring the environment. Labels can (a) indicate
where materials belong, (b) identify children’s work area, personal
belongings, lockers or coat area, mailboxes, etc., and (c) improve
language skills by showing the names of various objects in the room,
around the school, or in the house (Hodgdon 2003). Labeling has
the added advantage of increasing visual information to children,
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Structured Environments
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Structured Environments
Teacher/Parent
FINISHED/
container
Student
Tasks to be completed
Work presented from left to right
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Structured Environments
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PART III
Resources
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7 Information
on Related Topics
Sensory integration
Individuals with autism or other developmental disabilities may have
a dysfunctional sensory system, with one or more of the senses being
under- or over-reactive to stimulation (Hatch-Rasmussen 1995).
According to Mailloux and Smith Roley (2001), sensory integration
refers to neurological functioning, as well as to a specific theory
and intervention approach emerging from the field of occupational
therapy, propagated initially by Dr. A. Jean Ayres. Hatch-Rasmussen
(1995) explained that sensory integration, an innate neurobiological
process, refers to the brain’s integration and interpretation of sensory
stimulation from the environment. Sensory integrative dysfunction,
conversely, is a disorder in which sensory input is not integrated or
organized properly in the brain and may produce varying degrees of
problems in development, information processing, and behavior.
A child with dysfunction within the tactile, vestibular, or
proprioceptive systems may exhibit or fluctuate between the extremes
of an overly high or low response to sensory input or activity level, or
between constant motion and easy fatigue (Hatch-Rasmussen 1995). A
normal tactile system sends information to the brain regarding touch,
pain, temperature, and pressure, via nerves under the skin’s surface.
The vestibular system, within the inner ear, detects movement and
changes in the position of the head, while the proprioceptive system
refers to aspects of the muscles, joints, and tendons that provide one
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Information on Related Topics
Further information
American Occupational Therapy Association
4720 Montgomery Lane
PO Box 31220
Bethesda
MD 20824-1220
Tel: +1 (301) 652 2682
www.aota.org
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Information on Related Topics
Chaining
The skill to be learned is broken down into small units for easy
learning. For example, a person learning to brush teeth independently
may start with learning to unscrew the toothpaste cap. Once this is
learned, the next step may be squeezing the tube, and so on.
Prompting
The parent or therapist provides assistance to encourage the desired
response from the student. Prompts are faded systematically and as
quickly as possible from a more intrusive prompt to the least intrusive
prompt, with completely independent responding as the goal.
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Fading
The overall goal is for an individual, eventually, to not need prompts.
This is why the least intrusive prompts are used, so the child does not
become overly dependent on them when learning a new behavior
or skill. Prompts are gradually faded out as new behavior is learned.
Generalization
Once a skill is learned in a controlled environment (usually during
structured learning activities), it is taught in more general settings.
Perhaps the skill will be taught in the natural environment. If the
child has successfully mastered learning colors at the table, the teacher
or parent may take the student around the house or school and then
re-teach the skill in these natural environments.
Shaping
Shaping involves gradually modifying the existing behavior into the
desired behavior. If a young boy engages with a dog by hitting it, he
could have his behavior shaped by reinforcing interactions in which
he touches the dog more gently. Over many interactions, successful
shaping would replace the hitting behavior with patting or other
gentler behavior.
Differential reinforcement
Reinforcement provides a response to the student’s behavior that will
most likely increase that behavior. It is “differential” because the level
of reinforcement varies depending on the student’s response. Difficult
tasks may be reinforced heavily whereas easy tasks may be reinforced
less heavily. Therapists must systematically change the reinforcement
so that the student will eventually respond appropriately under
natural schedules of reinforcement (occasional) with natural types of
reinforcers (social).
Video modeling
One teaching technique found to be effective with some students,
particularly young children, is the use of video modeling (the use of
taped sequences as exemplars of behavior). It can be used by therapists
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Information on Related Topics
ABA has experienced its share of controversy over the years and has
had many ethical challenges. Critics argue that it does not actually
improve the skills of individuals with autism, but instead only teaches
them to mimic neurotypical behavior without really understanding
the meaning of the social cues they are using. Critics also argue that
ABA teaches individuals with autism to suppress natural and harmless
stimulatory behavior (stimming). Since the use of ABA has become
widespread relatively recently, its long-term consequences and risks
have not been studied.There have been claims that ABA is successful
only because of the use of aversives that often cause post-traumatic
stress disorder, anxiety, and clinical depression later in life (Dawson
2004). Dawson, a researcher, autism rights activist, and individual
with autism, published an article challenging the ethical practices and
claiming the scientific effectiveness of ABA.
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Routines
Daily routines, such as dressing, mealtime, or getting ready for school,
can be shaped into repetitive interactions that help children make
sense of their world and improve the way they comprehend, express,
predict, and behave (Sussman 2004). Because one of the defining
characteristics of autism is resistance to changes in routine, frequently
to the extent of insistence upon following rigid individualized rituals,
it may be an effective strategy to incorporate the use of appropriate
routines into a child’s daily activities. The expected outcome is a
structured environment that increases calm behavior, attention, and
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Information on Related Topics
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experiences with others and have fun while doing so, and who learn
that communication is part of the process.
To be successful, it is advisable to teach routines in a meaningful
and functional context, use the child’s interests and strengths, set
up the environment, and then introduce the activity. In the previous
chapters on visual strategies and structuring the environment, we
first described how to integrate the use of routines into a child’s
daily activities, in order to improve communication, behavior, and
predictability.
Chileda
Chileda was selected for inclusion in this chapter, not because it
is a one-of-a-kind organization, but rather because it typifies the
kind of comprehensive vision, mission, and services that we adopt.
Chileda provides services to children and young adults who have
developmental disabilities, mental retardation, seizure disorders,
cerebral palsy, autism, physical handicaps, genetic liabilities, or
challenging behavior disorders. The members of Chileda are
committed to the progressive education and personal empowerment
of children with developmental disabilities, and focused on meeting
individual needs and assisting clients to realize their fullest potential.
Chileda offers residential, vocational, respite, outreach, evaluation,
day school, summer school, and emergency care support, through the
following programs:
• Special education.
• Vocational services.
• Occupational therapy.
• Speech and language pathology.
• Physical education and physical therapy.
• Creative arts.
• A 60-day to 9-month assessment program (SNAP).
Because of synergy with our views on utilizing visual supports,
structuring the environment, and enhancing communication,
Chileda’s list of ten of the most effective strategies for teaching
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Information on Related Topics
students with autism spectrum disorders serves as the model for the
following classroom approaches.
1. Use visual schedules to make daily routines predictable,
with clear expectations.
2. Consider visual and auditory stimulation in the classroom
environment.
3. Structure the environment visually, assisting children to see
clearly and understand expectations, through use of defined
work stations and boundaries, with cues indicating what
and how much work needs to be done, when the work will
be finished, and what to do next.
4. Use an AAC system for non-verbal children, such as PECS,
SGDs, or communication binders.
5. Provide direct instruction in social skills, to include social
stories.
6. Begin literacy instruction at an early age, as a support to
communication and SGD use.
7. Complete a sensory profile to create and implement sensory
integration and a sensory diet.
8. Offer a program that is consistent daily, with clear
expectations.
9. Build upon students’ strengths and interests.
10. Develop a strong functional curriculum that emphasizes
daily living skills, community skills, recreation, leisure, and
employment; and functional academics for students in an
inclusive setting.
With collaboration among all team members, these strategies may be
modified and implemented at home as well as at school. The methods
have been discussed throughout this book, and it is anticipated that
this comprehensive list will be a useful reminder of how to acquire
knowledge, implement strategies, and then rise above the fear factor
frequently associated with caring for or educating children with
autism and other developmental disabilities or challenges to learning.
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Information on Related Topics
Further reading
Chileda Organization (2005) 10 Effective Ways to Teach an ASD Child. Accessed 14
September 2008.
Scotese-Wojtila, L. (2003) The S.U.C.C.E.S.S Approach. Available at www.
awetismproductions.com, accessed on 1 May 2010.
Sussman, F. (2004) More Than Words. Toronto, ON: The Hanen Centre.
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Appendix 1
National organizations
Australia
Australian Advisory Board on Autism Spectrum Disorders
This board establishes and lobbies for appropriate policies to ensure the
needs of individuals with autism spectrum disorder (ASD) are met. They are
staunch advocates for the needs of individuals with autism, and distribute
pertinent information about issues surrounding ASD.
c/o 41 Cook Street Forestville
NSW 2087
Australia
Telephone: +61 (0)2 8977 8300
www.autismaus.com.au/
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Appendix 1 National organizations
Canada
Autism Awareness Centre, Inc.
This global website offers links to Canada, Europe, Global, United
Kingdom, and the United States. Visitors to the Canada link may click
on a province or territory on the map shown to find autism help in their
area. Each country lists organizations, professionals, research centers,
projects, and various aspects related to services provided to individuals
with autism and their families and caregivers, and healthcare providers.
Blogs, newsletters, conferences are included.
www.autismawarenesscentre.com
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causes and treatment for autism. The website offers current findings on
these topics, as well as opportunities to get involved, a calendar of events,
and other areas of interest.
www.autismcanada.org
United Kingdom
Autism Initiative UK
Addresses the unique abilities of individuals with autism to establish
individualized needs and provide support through a range of services.
7 Chesterfield Road
Liverpool
Merseyside
L23 9XL
UK
Telephone: 0151 330 9500
www.autisminitiatives.org/
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Appendix 1 National organizations
Research Autism
A cumulative directory of autism research exclusive to the topics of
interventions for education, social skills, health and other areas are offered.
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Rising to New Heights of Communication and Learning for Children with Autism
Westbourne House
14-16 Westbourne Grove
London
W2 5RH
UK
Telephone: 020 7317 5785
www. researchautism.net/
USA
Asperger Syndrome Education Network ASPEN
A national non-profit organization providing education and support to
families and individuals affected by Asperger syndrome, PDD-NOS, high-
functioning autism, and related disorders.
9 Aspen Circle
Edison
NJ 08820
Tel: +1 (732) 321 0880
www.aspennj.org
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Appendix 1 National organizations
Autism Society
The Autism Society, the nation’s leading grassroots autism organization,
improves the lives of all affected by autism by increasing public awareness
about the day-to-day issues faced by people on the spectrum, advocating for
appropriate services for individuals across the lifespan, and providing the
latest information regarding treatment, education, research, and advocacy.
4340 East-West Highway
Suite 650
Bethesda
MD 20814
Tel: +1 (301) 657 0881
www.autism-society.org
Autism Speaks
Autism Speaks’ goal is to change the future for all who struggle with ASDs.
It is dedicated to funding global biomedical research into the causes,
prevention, treatments, and cure for autism; raising public awareness about
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autism and its effects on individuals, families, and society; and bringing
hope to all who deal with the hardships of this disorder.
2 Park Avenue
11th Floor
New York
NY 10016
Tel: +1 (212) 252 8584
www.autismspeaks.org
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Appendix 1 National organizations
Yale University
230 South Frontage Road
New Haven
CT 06520
Tel: +1 (203) 785 3420
www.childstudycenter.yale.edu/autism
Gray Center
The Gray Center is a non-profit organization that strives to assist
individuals with autism spectrum disorder (ASD) and their communicative
partners with a mutual understanding of social learning. It is the goal of
the Gray Center to create more effective communication exchanges by
equipping both the individuals with ASD and those who interact with
them with information and strategies about social differences and why
they occur. The individual with ASD gains an improved understanding
of social rules and the reasons for them. Those who interact with this
person gain a clearer understanding of their perspective. In their efforts to
promote social understanding, members of the Gray Center provide many
worthwhile resources that benefit individuals with autism and others who
work alongside them.
100 Pine Street
Suite 121
Zeeland
MI 49464
Tel: +1 (616) 748 6030
www.thegraycenter.org
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Appendix 1 National organizations
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TalkAutism
TalkAutism is a communication service used by many organizations which
share a common database of resource directories, distance learning libraries,
and special message boards.
Box 1348
Princeton
NJ 08540
Tel: +1 (888) 355 7161
www.talkautism.org
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Appendix 1 National organizations
Global websites
Action for Autism (AFA)
AFA is the pioneering, national and non-profit autism society of India,
providing support and services to individuals with autism, their families,
and those who work with them in South Asia. The mission of AFA is
to facilitate a barrier-free environment, empower families of persons with
autism, and to act as a catalyst for change, enabling their full participation
as contributing members of the community. Research, training, events,
referrals, education and information dissemination are located on the
website and offered by the organization.
www.autism-india.org/afa_autisminindia.html
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Appendix 2
Goals and Objectives
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Appendix 2 Goals and Objectives
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Appendix 2 Goals and Objectives
GOAL: The child will use appropriate vocabulary when relaying messages
and sharing basic information, using an effective method of communication
consistently at home, school, or in the community.
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Appendix 2 Goals and Objectives
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Rising to New Heights of Communication and Learning for Children with Autism
GOAL: The teacher or family will organize and arrange the child’s
environment to facilitate learning, behavior, and communication.
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Appendix 2 Goals and Objectives
• Label and provide sufficient space for work areas; label storage
areas to identify where items belong.
• Remove distractions from work and rest areas.
• Make readily available and accessible the materials necessary to
complete an activity (e.g. hygiene items, dishes, shoebox-type
activities, structured assignments).
• Provide visual supports that indicate to the child how much work
there is to do, what the work is, when it will be finished, and where
to go next.
• Visually monitor the child’s activities at all times.
• Display and discuss visual cues that communicate information
about upcoming events (e.g. activity schedule, transition pictures,
calendar).
• Make readily available and accessible, and encourage use of the
child’s communication system (e.g. photographs, communication
binder, PECS, SGD).
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Index
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Index
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