Experiences of Parents of Children With Disabilities in Peñafrancia Daraga, Albay

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Department of Education

Region V
Division of Albay
DARAGA NATIONAL HIGH SCHOOL
SENIOR HIGH DEPARTMENT
Sagpon, Daraga, Albay

EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES IN PEÑAFRANCIA


DARAGA, ALBAY

A Senior High School Research


Presented to
The Senior High School Faculty
Daraga National High School- Senior High School Department

In Partial Fulfillment
Of the Requirements for the Subject
PRACTICAL RESEARCH
SY 2019-2020

By

Joshua Bermejo, Roselyn N. Belista, Mark Angelo Brillante, Kyla M. Lorilla, Shine Arneth R.
Maraño, Rodante M. Pabillar, Trisha Angela S. Nidea, Paolo M. Malate

March ___ 2020

1 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
APPROVAL SHEET

This research entitled “EXPERIENCES OF PARENTS OF CHILDREN WITH

DISABILITIES IN PEÑAFRANCIA DARAGA, ALBAY’’ prepared and submitted by HUMSS 4,

Group 1; Joshua Bermejo, Roselyn N. Belista, Mark Angelo Brillante, Kyla M. Lorilla, Shine Arneth

R. Maraño, Rodante M. Pabillar, Trisha Angela S. Nidea, Paolo M. Malate in partial fulfillment of the

requirements for Practical research has been examined and recommended for acceptance and approval

for Research final oral defense.

EDELYN M. BRIZUELA
3 I’s Adviser

2 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
ORAL EXAMINATION COMMITTEE

Approved by the Committee on Final Oral Examination with a grade of

_________________

_____________________ _____________________

Member Member

_____________________ _____________________

Member Member

Research Coordinator

Accepted and approved in partial fulfillment of the requirements

for the subject Practical Research.

LENIE LORAYES-LOZARES

3 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
ACKNOWLEDGEMENT

We wish to recognized the assistance and support extended by the following persons in the

preparation and completion of our research.

The Daraga National High School for the privilege of being able to delve into the School files

for the information, data inputs needed by this study;

Merle A. Lupo, Asst. Principal II, for the moral support and for not giving the researchers a

hard time by her candid answers to our inquiries;

Edelyn M. Brizueala, HUMSS 4 3I’s adviser, whose encouragement and support gave focus

and direction to this research;

HUMSS 4 Group , who helped a lot;

Lenie Lorayes-Lozares, our Practical Research 1 and 2 teacher, for the many times she has to

listen over and over to the account of our experiences and for never tiring of it and always

encouraging us to do more.

Our Parents, for their belief, financial assistance and unconditional love.

The ALMIGHTY GOD for his Unending Blessings.

Thank You.

4 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
ABSTRACT

Title: EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES IN


PEÑAFRANCIA DARAGA, ALBAY

Authors: Joshua Bermejo, Roselyn N. Belista, Mark Angelo Brillante, Kyla M. Lorilla,
Shine Arneth R. Maraño, Rodante M. Pabillar, Trisha Angela S. Nidea, Paolo M.
Malate

Date: March 2020

Raising or parenting a child with disabilities is a challenge to most parents. The study explored

the experiences of parents of children with disabilities in Peñafrancia Daraga, Albay. Specifically, it

sought to identify the various experiences of parents of children with disabilities encounter at home,

school and community. This study was also identified the socio demographic profile of the

respondents and the type of children’s disabilities. Participants were parents, (30) females and (20)

males who were purposively being interviewed. A questionnaire was used for data collection. The

study uses interview in data collections. The findings revealed that parents encounter challenges at

home, school and community such as feeling of isolation, feeling of guilt, financial instability, scarcity

of time, fear and worry and the most challenges experienced by the parents was stress, however,

parents recounted the valuable nature of their dealing strategies including spiritual beliefs, keeping

focus, and hope in raising their children with disabilities. It is also revealed that the help they get from

the local government and other private sectors are not regular and some of them were totally don’t

received any assistance. The findings suggest the need for the development training programs which

will empower parents with knowledge to better partner with educators for the benefit of the child,

knowledge in parenting and livelihood programs to support themselves financially. To address these

challenges, government shall need to put in place policies which will look at the needs of parents of

children with disabilities. Local government and other private sectors should devise a wide range

5 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
of programs aimed at meeting the parent’s needs for their children with disabilities in terms of health,

education and employment.

KEYWORDS: Challenges, special, needs, disabilities, parents

INTRODUCTION according to Phil Health, there are around 5.1

Parents are among the most important people in million Filipino Children are living with

the lives of young children. From birth, disability.

children are learning and rely on mothers and


Raising children with special needs requires so
fathers, as well as other caregivers acting in the
much time, energy, and resources. The child
parenting role, to protect and care for them and
needs more patience and understanding because
to chart a trajectory that promotes their overall
their situation eventually affects their emotional
well-being. 
and psychological state.

Raising a child with disability needs great


Indicating the number of PWD in Philippines
patient and understanding. Parenting a child
continues to increase and some are serious
with disabilities can increase the risk of family
disabilities. Therefore, it is important for us to
relationship problems, stress and depression.
understand the concerns regarding the child's
Few people realize how difficult it is to be a
disability and provide necessary support and
parent until they themselves become the
further treatment. Through the study, we'll be
parents. It is even more difficult to be a parent
able to know and address the support needed by
of a child with special needs. Although having
parents and children.
a disabled child will not inevitably lead to

family difficulties. Families having children with disabilities want

the same thing things as other families. They


Parenting a child is difficult role to a parent,
want to see their children reach their full
especially to children with disability. Estimates
potential they want to be included and accepted
suggest that there are at least 93 million
by their community and they want to enjoy
children with disabilities in the world and
6 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
things together and have fun (Baker & Fenning, Some may react in an emotionally and

2007). physiologically negative way to the diagnosis

of their child. The transition in a family brings


For these to happen, professionals need to
about significant changes in the families social
recognize each children capabilities rather than
life. Some experience considerable stress, as
seeing only disability. They must also
well as feeling of depression, anger, shock,
recognize the values and expertise of parents.
denial, self-blames guilt, and confusion
The support of the parents caring for a child
(Heiman, 2002). Therefore, the sequence and
with disabilities or long-term condition can
time needed for adjustment different for every
concentrate on specific needs or medical
parent.
treatment.

According to Smith, (2002) parents of child


In the case of parents, the birth of a child or the
with disabilities experience greater stress and a
discovery that a child with disabilities is an
larger number of caregiving challenges, such as
intense and traumatic event when it is learned
health problems, greater feelings of restriction,
at birth that a child is in some way abnormal,
and higher levels of parental depression that
the effect on the parents can be devastating.
parents of children without disabilities. Some
There is an initial reaction may be numbness. A
families experiences difficulties in financial
parent’s initial reaction is likely to be negative
assistance and inadequate support from the
and similar to those related bereavement
members of the family and communities.
(Blachar & Bakar, 2007; Hill &Rose, 2009).

Disability is the consequence of an impairment


This is followed by a period of questioning
that may be physical, cognitive, mental,
which may go on many years as to why these
sensory, emotional, and developmental or some
should have happen to them. The parents may
combination of these, and it may be present
tend to blame themselves or each other
from birth or may occur during a person’s
(Scoregie & Sobsey, 2000).
lifetime (World Health Organization 2011)

7 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
Like all other children, a disabled child is born Hayden & Goldman, 1996 for a review). yet,

into a family and remains a lifelong family research on this subject has suggested varying

member. Among all the social institutions, for outcomes for families. In support of the view

example the church, the school and the that disability leads to negative outcomes, a

community, family is the most significant and couple of comparative studies have noted

is universally regarded as exerting the most greater stress in parents of children with

influence on the child’s development as it disabilities than parents of children without

provides care, love, support, protection, disabilities (Baker-Ericzen, Brookman-Frazee,

guidance and direction to children (Monk & & Stahmer, 2005; Dyson, 1997). Although

Wee 2008:104). these studies suggest a relationship between

childhood disability and parent stress or


Families are a critical source of support for
depression, it is important to note that they did
children with disabilities. Family members
not control for variations related to the
absorb the added demands on time, emotional
diagnosis or care demands associated with the
resources, and financial resources
disability.
(BakerEriczen, Brookman-Frazee, & Stahmer,

2005) that are associated with having a child Families of children with special needs face

with a disability. yet, rewards from having a both the normal pressures and tensions of

family member with a disability, such as family life and in addition, adjustments to the

personal and spiritual growth, have also been presence of a child with disability. Such family

noted (Scorgie & Sobsey, 2002). usually requires assistance in order to re

organized their lives towards positive


The view that having a child with an
adaptation.
intellectual or developmental disability creates

negative family outcomes including added The study was designed to determine the

stress and parental depression has underpinned difficulties experienced by parents with

much of the research of the past three decades disabled children of Simon of Cyrene

(see Baxter, Cummins, & yiolitis, 2000; Peñafrancia Daraga, Albay. Participants are
8 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
parents, (30) females and (20) males who are Table 1: Socio Demographic Profile of the

purposively being interviewed. The research Respondents

did not cover parents from other place.


1.1 Gender Frequency Percentage

The purpose of this study is to identify the (%)


Males 20 40
different experiences of parents of children Females 30 60
Total 50 100
with disabilities in Peñafrancia Daraga, Albay. 1.2 Age Frequency Percentage

Specifically, it sought to answer: (%)


25-29 1 2
1. What is the socio demographic profile 30-34 0 0
35-39 9 18
of the respondents? 40-44 9 18
45-49 13 26
(Age, gender, economic status, educational 50-54 6 12
55-59 7 14
attainment, ethnicity, marital status)
60-64 5 10
Total 50 100
2. What are the types of disabilities?
1.3 Ethnicity Frequency Percentage
3. What are the various challenges which
(%)
parents of children with disability encounter at Bikolano 50 100
Total 50 100
home, school and community, which may 1.4 Marital Frequency Percentage

hinder them to work collaboratively with Status (%)


Single 7 14
educators for the betterment of the children? Married 30 60
Separated 2 4
METHOD Widowed 11 22
Total 50 100
This descriptive research study was carried out 1.5 Frequency Percentage

in Simoun of Cyrene Peñafrancia Daraga, Employmen (%)

Albay. A questionnaire was used for data t Status


Unemployed 17 34
collection. The study uses interview in data Self- 23 46

collections. Questions formulated accordingly Employed


Employed 10 20
to the objective of the study. Total 50 100
1.6 Frequency Percentage
RESULTS AND DISCUSSIONS Economic (%)

Status
9 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
Below 5,000 38 76 1.1 Table 1.1 indicates that the majority of the
5,000-10,000 9 18
10,000- 2 4 respondents were females comprising of 30

15,000 or 60% of the total respondents and 20 or


15,000 1 2
40% of the respondents were found males.
Above
Total 50 100 1.2 Table 1.2 indicates the age bracket of the
1.7 Frequency Percentage
total respondents, that about 1 or 2% of the
Educational (%)
50 respondents fell in the 25-29 year age
Attainment
Elementary 14 28 category, 9 or 18% of the respondents fell
Secondary 28 56
Tertiary 7 14 in the 35-39 year age category same with
Vocational 1 2
Total 50 100 40-44 year age category which also have 9
1.8 Religion Frequency Percentage
or 18% of the total respondents, the age
(%)
range 45-49 had the highest number of
Christian 2 4
Muslim 0 0
participants which is 13 or 26% of the total
Roman 46 92
respondents, 6 or 12% of the respondents
Catholic
Iglesia ni 1 2 fell in the 50-54 year age category and the
Cristo remaining 7 or 14% of the respondents fell
Protestant 1 2
Total 50 100 in the 55-59 year age category.
1.9 Gender Frequency Percentage
1.3 Table 1.3 shows the ethnicity of the
of Child (%)
Males 27 54 respondents, that 50 of 100% of the
Females 23 46
Total 50 100 respondents were found bikolano.
2.0 Age of Frequency Percentage
1.4 Table 1.4 shows the marital status of the
Child (%)1
5-9 6 12 respondents, that overwhelming number of
10-14 11 22
15-19 19 38 the respondents 30 or 60% were married,
20-24 9 18
25-29 3 6 11 of 22% were found widowed, 7 or 14%
30-34 2 4
Total 50 100 were found single and remaining 2 or 4% of

the respondents were separated.

10 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
1.5 Table 1.5 shows the employment status of also have 1 or 2% and almost of the total

the respondents , that 10 or 20% of the total respondents were found Roman Catholic

respondents were found employed, 17 or which is 46 or 92% of the overall

34% were found unemployed and almost respondents.

half of the total respondents 23 or 46% 1.9 Table 1.9 shows the gender of children with

were found self-employed disabilities, that overwhelming number of

1.6 Table 1.6 shows the economic status of the parents children with disabilities were

respondents, that overwhelming number of males which is 27 or 54% and the

the respondents earned 5,000 below which remaining 23 43% were found females.

is 38 or 76%, 9 or 18% of the respondents 1.10 Table 1.10 indicates the age bracket of

earned 5,000-10,000, 2 or 4% earned children with disabilities, that about 6 or

10,000-15,000 and the remaining 1 or 2% 12% fell in the 5-9 year age category, 11 or

of the respondents earned 15,000 above per 22% fell in the 10-14 year age category, the

month. age range 15-19 had the highest which have

1.7 Table 1.7 shows the educational attainment, 19 or 38%, 9 or 18% fell in the 20-24 year

that about 14 or 28% of the respondents age category, 3 or 6% fell in the 25-29 year

were educated up to elementary level, 28 or age category, and the remaining 2 or 4%

56% were educated up to secondary level, 7 fell in the 30-34 year age category.

or 14% of the respondents were found


Table 2: Types of Disability
educated up to tertiary or college level and
Indicators Frequency Percentage
relatively lesser number of them, 1 or 2%
(%)
were only in vocational.
Visual 5 10
1.8 Table 1.8 shows the religion of the
Impairment
Intellectual 2 4
respondents, that 2 or 4% of the total
Disability
respondents were Christians, 1 or 2% were
Mental 2 4
Iglesia ni Cristo same with Protestant that
Health

11 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
Condition What is the Frequency Percentage
Deaf and 5 10
cause of (%)
Mute
Physical 13 26 your child’s

Disability disability?
Autism 8 16 Heredity 1 2
Cleft Palate 3 6 By Birth 32 64
Cerebral 10 20 Acquired 17 34
Total 50 100
Palsy Table 3 shows the cause of child’s disability,
Muscular 1 2
that about 1 or 2% cause by heredity, 32 or
Dystrophy
Down 1 2 64%, the most higher percentage were found

Syndrome cause by birth and the remaining 17 or 34%


Total 50 100
Table 2 shows that most children in Simon of were acquired.

Cyrene Village area have physical disabilities


Table 4: Challenges faced by the Parents
(orthopedically impaired, bone fractured,
What is the Frequency Percentage
paralyzed, and mild stroke) which has 13 or
biggest (%)
26%. The parents gave different types of
challenges
disabilities such as visual impairment which
you faced as
has 5 or 10%, intellectual disability which has 2
a parent?
or 4%, mental health condition which also has Feeling of 9 18
2 or 4%, deaf and mute which has 5 or 10%, isolation
autism which has 8 or 16%, cleft palate which because you
has 3 or 6%, second highest numbered miss out on
disability was cerebral palsy which has 10 or family-
20%, muscular dystrophy which has 1 or 2% oriented
and same with down syndrome which also has activities
Stress 20 40
1 or 2%.
Feeling of 9 18

Table 3: Cause of Child’s Disability guilt


Financial 9 18

12 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
Instability listener
Scarcity of 2 4 God’s grace / 16 32

time prayers
Fear and 1 2 Patient 2 4
Total 50 100
worry Table 5 shows how parents deal with their
Total 50 100
Table 4 shows the challenges faced by the children with disabilities, that about 17 or 34%

parents of children with disabilities, that about of the total respondents deals by keeping the

9 or 18% of the total respondents faced feeling focus to their child (Setting aside your personal

of isolation, the most higher percentage was issues and prioritizing your child), 15 or 30%

stress which has 20 or 40% of the total were being a good listener, the second higher

respondents, 9 or 18% was feeling of guilt, percentage of the total respondents deals with

same with has challenges in financial instability their child’s disability through prayers or god’s

which also has 9 or 18%, 2 or 4% were scarcity grace and the remaining 2 or 4% were found

of time and the remaining 1 or 2% were found patient.

fear and worry.


Table 6: Assistance from the Local

Table 5: Dealing with Child’s Disability Government

How do you Frequency Percentage Do you get Frequency Percentage

deal with (%) enough (%)

your child’s training or

disability? assistance
Keep the 17 34
from the
focus
local
(Setting aside
government
your personal
? If yes,
issues and
what
prioritizing
training or
your child)
Be a good 15 30 assistance it
13 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
is? muscular dystrophy and down syndrome. The
YES 25 50
Medical 7 14 study revealed that some children were born

Assistance like that or inborn and in some the disability


Educational 8 16
was discovered or developed after a years they
Assistance
Financial 8 16 were born. A child’s disability is a triadic

Assistance experience involving three way interactions


Supply of 2 4
among the child who experience the
Goods
NO 25 50 dysfunction, the family that is affected by it,
Total 50 100
Table 6 shows the assistance from the local and the external environment where the

government get by the parents of children with disability is manifested (Zilalem, 2002).

disabilities, that about half of the total Raising a child with disability is an

respondents respond yes which has 25 or 50%, experience which lives the parents with

this includes the following assistance namely, stress and a number of caregiving challenges.

medical assistance which has 7 or 14% of the From the research findings it has been revealed

total respondents that respond yes, 8 or 16% that the parents encounter a lot of challenges.

were found educational assistance, same with Some of the challenges they encounter include

financial assistance which also has 8 or 16% the following; social isolation, stress, feeling of

and the remaining 2 or 4% of the total guilt, financial instability, scarcity of time and

respondents that respond yes were found fear and worry.

supply of goods, and the half of the total Mrs. Florida who had a child with autism had
respondents (50) respond no which also has 25 this to say “sometimes I’m blaming myself for
or 50%. the cause of my child’s disability, I tend to

The types of disability ranged from visual argue with my husband and start overthinking,

impairment, intellectual disability, mental start thinking negatively, but after a several

health condition, deaf and mute, physical time just like that I already control my

disability, autism, cleft palate, cerebral palsy, emotions and start thinking positive things and

14 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
keep focus on my child to give them the children. Friends have become few, relatives,

attention he want” Beresford et al. (2007) some of them are supportive and some are not.

states that no matter how severe the special The families have enough challenges to

needs of the child are, the parents are overcome, to secure the support they need

inevitably affected in one way or the other. without also having to cope with prejudice and

He further states that parents often struggle isolation. They want the same things as other

with guilt; they feel as though they somehow families, they want to be included and

caused the child to be disabled, whether from supported by their communities and they want

genetics, alcohol use, stress or other logical or to enjoy time together and have fun. The

illogical reasons. This guilt can harm the parents of children with disabilities revealed

parent’s emotional health if it is not dealt that they sufferers from extreme tiredness and

with, some parents experience a spiritual stress due to the degree of the amount of care

crisis or blame the other parent may be for not needed by their children with disabilities,

giving the support which is needed. playing with them, feeding, clothing, bathing

and diapering an infant is much easier


Parents of children with disability faced feeling
physically than doing the same tasks for
of isolation., they miss out on family oriented
someone who weighs 80 pounds. But Mrs.
activities. Taking care of the child with
Marjorie one of the parents of children with
disability requires a lot of time of the parent.
disabilities said that, she never faced or
The respondents revealed that most of their
suffered any kind of stress when her child was
time was spent taking care of their children
alive but rather when her child died. The
with disabilities. When the respondents were
respondents revealed that they have different
asked to respond to the issue of social isolation,
perspective in caring or having child with
they all said they were somehow isolated from
disability.
the community, friends and relatives, they said

their socializing time was no longer there, The interviews also revealed that parents of

because they now spent a lot of time with their children with disability also have financial

15 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
problems. The respondent said that raising a satisfied with the way teachers and normal

child with special needs can dig deeper into the children treat the children with special needs.

pocket of the parent. Raising a child with Some of the parents we’ve been interviewed

disability can be too expensive than raising a prefer to choose not to sent their child to school

normal or typical child. These expenses may to prevent some negative effect to their

arise from medical equipment and supplies children, because of the unequal treatment to

such as medical care, and care giving their child cause by negative attitudes by others

expenses, private education, wheelchairs, whom they interact in everyday. It is therefore

specialized transport or learning equipment . a need that government must train the teachers,

Most parents complained that they do not have communities of how to treat these children.

enough money for giving the child the right Negative attitudes and unequal treatment by

medication or for taking the child to the others should not be barriers which will make

hospital. When Mrs. Gina was asked to say these children with disability not to live a

some challenges she had faced as a parent of normal life. Parents of children with disability

children with special needs, she said “due to deals with the nature of their child’s disability,

financial problem we could not take our child some of them said that they deal with their

to the hospital for the second treatment, may child disability through resilience, keeping their

be that is why he died at a young age” another focus (setting aside their personal issues and

parent complained that they were not employed prioritizing their child), prayer or God’s grace,

so they were unable to give their children all keeping things in perspective, patient, courage

the medical attention they needed. Children and accepting the child as he/she is. The study

with special needs are discriminated, ridiculed revealed that resilience plays an important

and even somehow not considered in the role to the parents of children with disabilities.

community, when then choose people to Some of the parents said when they feel that

represent the community somewhere they are the burden is beyond them, they simply prayed

not considered. A majority of parents were not to God so that he can give them the strength

16 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
and courage they need. Most of parents of betterment of the child. All parents of children

children with disabilities doubted if the help with disability needs to be supported by every

they were giving to their children is enough member of the society especially the

and they also doubted if the assistance their government itself.. Parents are all in view of

children get from teachers in the inclusive assistance provided by the government. When

schools was enough, because they felt that even asked if they ever received training from

the teachers were not properly trained for government or any financial assistance, some

teaching these kind of children. Parents and of them said that they get medical assistance,

educators should work hand in hand in educational assistance, financial assistance and

providing the child with the education they supply of goods, but again all the parents

deserves. Some parents said they were trying to claimed that this help from the government are

collaborate with teachers and others said that not regular, means to say that these help are

they prefer to teach their children personally given if there is an event or program in their

about some important matters of course with community for the children with disabilities

the guidance of educators. Parents need to be and when it is most needed by the child with

motivated to become involved in the education disability especially in terms of health problem

of their children. Parents play a crucial role in or condition. With these grants and financial

the education of their children. Parents know services assisted by the government they can

their children better and are able to inform continue their lives positively, as one of the

educators with their child’s learning capacity parents said, “even though the help are not

and problems. They can help teachers to given regulary, it help a lot, for my child with

understand their children better, they can give disability and for my family”.

knowledge about their child behavior and


RECOMMENDATIONS
educators can help the parents in educating
Since the study has established that parents of
their children. This is the reason why parents
children with disabilities are faced with
and teachers should work collaborately for the
challenges of isolation, stress, feeling of guilt,
17 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
scarcity of time, fear and worry and poverty or the welfare of parents with disabled

financial instability in parenting or raising children and shall encourage

children with disabilities, to address tis we partnership in programs that address

recommend the following: their needs and concerns.

4. To facilitate integration of disabled


1. There should be introduction of guiding
children and for their parents into the
and counseling curriculum at lower
mainstream of society, the government
levels of education to enable all parents
or public and private organizations shall
learn how to deal or overcome with any
advocate and encourage respect for the
situation that may affect their mental
parents who has disabled children and
health and for the better communication
also for their children with disabilities.
with their children with disabilities.
The government shall exert all efforts to
2. The Department of Social Welfare and
remove all social, cultural, economic,
Development shall design and
environmental and other barriers that
implement training programs that will
are prejudicial to parents and for their
provide parents of disabled children
children.
with vocational skills to enable them to
5. The government shall establish,
engage in livelihood activities or obtain
maintain and support a complete,
gainful employment, as well as for their
adequate and integrated system of
children with disabilities. The
inclusive education for the disabled
Department of Labor and Employment
child of the parents. For this to happen
shall likewise design and conduct
the Department of Education, Culture
training programs geared towards
and Sports shall establish special
providing parents with skills for
education classes in public schools in
livelihood.
cities, or municipalities. The Local
3. The municipal shall also recognize the
government units with the help or
role of the private sector in promoting

18 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
participation of the private sectors shall faced by most of parents, stress in caring or

allocate funds necessary for the success assisting their disabled children everyday. They

and effectiveness of this program. need to be supported by each and every

6. The government shall help the parents member of the family. Parents also need to be

of disabled children to be one of the trained or assisted with ways in which can help

grantees in Pantawid Pamilya Pilipino them to be better able to cope with their

Program (4Ps). The Department of children’s disability. Parents and educators

Social Welfare and Development should work hand in hand in providing the

(DSWD) is the lead government agency education the child deserves. Government

of the 4Ps. For the parents to have a needs to support the the parents financially for

monetary support that can be indeed a their children. Local government and private

big help for them in raising their sectors should devise a wide range of

children with disabilities. programs aimed at meeting the parent’s needs

7. The government shall provide health for their children with disabilities.

centers exclusive only for their village


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Explaining the parental stress of fathers and
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APENDICES

Communication Letters (School and Barangay)

22 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
23 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
Experiences of Parents of Children with Disabilities in Simoun of Cyrene Peñafrancia, Daraga,
Albay

A. SOCIO DEMOGRAPHIC PROFILE OF


THE RESPONDENTS B. DISABILITIES OF THE CHILD

Name of Parent:  Vision Impairment


__________________________________Gen  Intellectual Disability
der:  Female  Male  Mental Health Condition
Age:  Deaf and Mute
Address:  Autism
__________________________________Ethn  Physical Disability (please specify)
icity:  Others:__________________________
__________________________________Mari
tal Status: C. PERSONAL QUESTIONS
 Single
 Married 1. What is the cause of your child’s
 Widow disability?
 Separated  Heredity
Employment Status  By Birth
 Self-Employed  Acquired (specify)
 Unemployed _________________________________
 Employed 2. What is the biggest challenges you faced
Economic Status as a parent?
 Below 5,000  Feeling of isolation because you miss out on
 5,000-10.000 a month family-oriented activities
 10.000-15,000 a month  Stress
 15,000 above  Feeling of guilt
Educational Attainment  Financial Instability
 Elementary  Secondary  Scarcity of time
 Tertiary  Vocational  Fear and worry
Religion 3. How do you deal with your child’s
 Christian  Roman Catholic disability?
 Muslim  Iglesia ni Cristo  Keep the focus (Setting aside your personal
 Others:__________________________ issues and prioritizing your child)
 Be a good listener
Gender of Child:  Female  Male  God’s grace or prayers
Age of Child:_________  Patient
 Others:__________________________
4. Did you get enough training or assistance
from the local government? If yes, what
training or assistance it is?
Yes_____________________________
 No

24 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
Socio Demographic Profile of the Respondents and Disabilities of their Children

Name of Parent Gender Age Ethnicity Marital Employment


Status Status
1. Marjorie Female 38 Bikolano Married Self-Employed
2. Eddie Male 47 Bikolano Married Self-Employed
3. Leila Female 41 Bikolano Separated Self-Employed
4. Nida Female 59 Bikolano Single Employed
5. Rose Female 56 Bikolano Single Self-Employed
6. Gloria Female 64 Bikolano Widowed Unemployed
7. Dante Male 45 Bikolano Separated Self-Employed
8. Freddie Male 37 Bikolano Married Self-Employed
9. Nenita Female 49 Bikolano Married Self-Employed
10. Eva Female 49 Bikolano Married Unemployed

Economic Educational Religion Gender of Age of Disabilities


Status Attainment Child Child of Child
Below 5,000 Tertiary Roman Catholic Male 11 Intellectual
Disability
Below 5,000 Elementary Roman Catholic Male 7 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Male 9 Intellectual
Disability
5,000-10,000 Elementary Roman Catholic Male 24 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Female 28 Physical
Disability
Below 5,000 Elementary Roman Catholic Male 33 Mental
Health
Condition
Below 5,000 Secondary Roman Catholic Male 19 Physical
Disability
Below 5,000 Elementary Roman Catholic Female 14 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Male 17 Visual
Impairment
Below 5,000 Secondary Roman Catholic Male 11 Intellectual
Disability

Name of Parent Gender Age Ethnicity Marital Employment


Status Status
11. Anabelle Female 43 Bikolano Married Self-Employed
12. Eleonor Female 39 Bikolano Married Employed
13. Maria Female 25 Bikolano Single Unemployed
14. Evelyn Female 53 Bikolano Single Unemployed
15. Ronnie Male 50 Bikolano Married Employed
16. Florida Female 59 Bikolano Married Unemployed
17. Nieves Female 60 Bikolano Single Unemployed
18. Celeste Female 39 Bikolano Married Unemployed
19. Janet Female 48 Bikolano Married Unemployed
25 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
20. Manuel Male 43 Bikolano Widowed Self-Employed

Economic Educational Religion Gender Age of Disabilities


Status Attainment of Child Child of Child
Below 5,000 Tertiary Roman Catholic Female 18 Physical
Disability
15,000 Above Tertiary Roman Catholic Male 6 Intellectual
Disability
Below 5,000 Tertiary Christian Male 15 Intellectual
Disability
Below 5,000 Elementary Roman Catholic Male 13 Intellectual
Disability
5,000-10,000 Secondary Roman Catholic Male 13 Intellectual
Disability
Below 5,000 Tertiary Roman Catholic Male 24 Intellectual
Disability
Below 5,000 Elementary Roman Catholic Female 16 Physical
Disability
Below 5,000 Secondary Roman Catholic Male 12 Visual
Impairment
Below 5,000 Secondary Roman Catholic Female 24 Intellectual
Disability
5,000-10,000 Elementary Christian Female 22 Physical
Disability

Name of Parent Gender Age Ethnicity Marital Employment


Status Status
21. Emily Female 45 Bikolano Married Self-Employed
22. Ariel Male 38 Bikolano Widowed Employed
23. Raul Male 50 Bikolano Married Self-Employed
24. Nelia Female 59 Bikolano Widowed Unemployed
25. Marissa Female 47 Bikolano Married Self-Employed
26. Oscar Male 36 Bikolano Married Self-Employed
27. Gina Female 48 Bikolano Married Unemployed
28. Cristy Female 39 Bikolano Married Unemployed
29. Adelaida Female 47 Bikolano Single Self-Employed
30. Aida Female 63 Bikolano Married Employed

Economic Educational Religion Gender Age of Disabilities


Status Attainment of Child Child of Child
Below 5,000 Secondary Roman Catholic Female 9 Intellectual
Disability
5,000-10,000 Secondary Roman Catholic Male 8 Deaf and
Mute
10,000-15,000 Secondary Roman Catholic Female 18 Physical
Disability
Below 5,000 Elementary Roman Catholic Male 20 Mental
Health
Condition
Below 5,000 Elementary Roman Catholic Male 18 Intellectual
Disability
26 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
Below 5,000 Secondary Roman Catholic Female 18 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Female 5 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Male 13 Intellectual
Disability
Below 5,000 Elementary Roman Catholic Female 14 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Male 33 Physical
Disability

Name of Parent Gender Age Ethnicity Marital Employment


Status Status
31. Letecia Female 42 Bikolano Married Employed
32. Christophe Male 40 Bikolano Married Employed
r
33. Antonio Male 40 Bikolano Married Employed
34. Elvies Female 60 Bikolano Married Self-Employed
35. Beverly Female 54 Bikolano Widowed Employed
36. Precy Female 48 Bikolano Married Self-Employed
37. Sandy Female 48 Bikolano Widowed Self-Employed
38. Cherry Female 41 Bikolano Widowed Unemployed
39. Elvira Female 42 Bikolano Married Unemployed
40. Marlyn Female 38 Bikolano Married Unemployed

Economic Educational Religion Gender Age of Disabilities


Status Attainment of Child Child of Child
5,000-10,000 Secondary Roman Catholic Female 18 Intellectual
Disability
10,000-15,000 Tertiary Protestant Male 6 Physical
Disability
5,000-10,000 Secondary Roman Catholic Male 15 Hard of
Hearing
Below 5,000 Elementary Roman Catholic Male 13 Visual
Impairment
5,000-10,000 Secondary Roman Catholic Male 13 Visual
Impairment
Below 5,000 Secondary Roman Catholic Male 24 Deaf and
Mute
Below 5,000 Secondary Roman Catholic Female 16 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Male 12 Physical
Disability
Below 5,000 Elementary Roman Catholic Female 24 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Female 22 Intellectual
Disability

Name of Parent Gender Age Ethnicity Marital Employment


Status Status
41. Vicente Male 56 Bikolano Widowed Self-Employed
27 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
42. Elizabeth Female 57 Bikolano Widowed Self- Employed
43. Tirso Male 46 Bikolano Married Self-Employed
44. Eliza Female 62 Bikolano Single Unemployed
45. Deomedez Male 49 Bikolano Married Self- Employed
46. Christian Male 38 Bikolano Married Unemployed
47. Lorna Female 54 Bikolano Married Self-Employed
48. Dominado Male 57 Bikolano Widowed Employed
r
49. Carolina Female 41 Bikolano Married Self-Employed
50. Carlos Male 51 Bikolano Widowed Unemployed

Economic Educational Religion Gender Age of Disabilities


Status Attainment of Child Child of Child
Below 5,000 Secondary Roman Catholic Female 18 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Female 21 Visual
Impairment
5,000-10,000 Vocational Roman Catholic Female 18 Physical
Disability
Below 5,000 Tertiary Roman Catholic Male 18 Physical
Disability
Below 5,000 Elementary Roman Catholic Male 15 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Female 17 Physical
Disability
5,000-10,000 Secondary Roman Catholic Male 21 Intellectual
Disability
Below 5,000 Secondary Roman Catholic Female 24 Deaf and
Mute
Below 5,000 Secondary Iglesia ni Cristo Female 14 Physical
Disability
Below 5,000 Elementary Roman Catholic Female 25 Deaf and
Mute

28 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
DOCUMENTATION Religion: Roman Catholic

Nationality: Filipino

Blood

Type: O

Mother’s

Name:

Melody

Bermejo

RESEARCHER’S PROFILE

Name: Joshua Bermejo

Age: 21

Gender: Male

Address: Binanuahan Legazpi City


29 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
Occupation: Business Owner Occupation: Security Guard

Father’s Name: Nehemias Deocareza

Decease

Name:

Name: Rodante M. Pabillar Jr.

Roselyn N. Belista Age: 17

Age: 18 Gender: Male

Gender: Female Address: Maroroy Daraga, Albay

Address: Peṅafrancia Daraga, Albay Religion: Roman Catholic

Religion: Roman Catholic Nationality: Filipino

Nationality: Filipino Blood Type: A

Blood Type: +A Mother’s Name: Brenda Pabillar

Mother’s Name: Ave Belista Occupation: House Wife

Occupation: House Wife Father’s Name: Rodante pabillar

Father’s Name: Roy Belista Occupation: Business Owner


30 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
Name:

Mark

Angelo
Name:

Kyla

M.
Brillante
Lorilla

Age: 17
Age:

16 Gender: Male

Gender: Female Address: Bascaran Daraga, Albay

Address: Kiwalo Daraga, Albay Religion: Roman Catholic

Religion: Roman Catholic Nationality: Filipino

Nationality: Filipino Blood Type: O

Blood Type: O Mother’s Name: Francia Llovit

Mother’s Name: Eleonor Lorilla Occupation: Utility Worker

Occupation: Teacher Father’s Name: Joel Llovit

Father’s Name: Aldrin Lorilla Occupation: Truck Driver

Occupation: Tricycle Driver

31 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY
Name: Shine Arneth R. Maraṅo Gender: Male

Age: 19 Address: Kilicao Daraga, Albay

Gender: Female Religion: Roman Catholic

Address: Kimantong Daraga, Albay Nationality: Filipino

Religion: Roman Catholic Blood Type: O

Nationality: Filipino Mother’s Name: Verna Malate

Blood Type: O Occupation: Vendor

Mother’s Name: Sonia R. Maraṅo Father’s Name: Ranny Malate

Occupation: Social Worker Occupation: Vendor

Father’s Name: Armando B. Maraṅo

Occupation: Painter

Name:

Trisha

Angela
Name:
S. Nidea
Paolo
Age:
Malate
18
Age:
Gender: Female
17

Address: Culiat Daraga, Albay


32 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES
IN PEÑAFRANCIA DARAGA, ALBAY
Religion: Roman Catholic

Nationality: Filipino

Blood Type: A

Mother’s Name: Sofia S. Nidea

Occupation: House Wife

Father’s Name: Roger R. Nidea Jr.

Decease

33 EXPERIENCES OF PARENTS OF CHILDREN WITH DISABILITIES


IN PEÑAFRANCIA DARAGA, ALBAY

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