Aai Fyroamia

Australian asthma indicators
Five-year review of asthma monitoring in Australia

The Australian Institute of Health and Welfare is Australia’s national health and welfare
statistics and information agency. The Institute’s mission is better information and statistics
for better health and wellbeing.
Australian asthma indicators
Five-year review of asthma monitoring in Australia
Australian Centre for Asthma Monitoring
2007
Australian Institute of Health and Welfare

Canberra
AIHW cat. no. ACM 12
© Australian Institute of Health and Welfare 2007
This work is copyright. Apart from any use as permitted under the Copyright Act 1968, no part may be
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and Publishing, Australian Institute of Health and Welfare, GPO Box 570, Canberra ACT 2601.
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ISBN 978 1 74024 730 6
Suggested citation
Australian Centre for Asthma Monitoring 2007. Australian asthma indicators: Five-year review of
asthma monitoring in Australia. Cat. no. ACM 12. Canberra: AIHW.
Australian Institute of Health and Welfare

Board Chair
Hon. Peter Collins, AM, QC
Director
Penny Allbon
Any enquiries about or comments on this publication should be directed to:

Australian Centre for Asthma Monitoring
Woolcock Institute of Medical Research
GPO Box M77
Missenden Road
Camperdown NSW 2050
Phone: (02) 9515 5226 (International +61 2 9515 5226)
Fax: (02) 9516 1207 (International +61 2 9516 1207)
Email: [email protected]
Published by the Australian Institute of Health and Welfare

Contents
Acknowledgments.............................................................................................................................vii
Abbreviations................................................................................................................................... viii
Summary .............................................................................................................................................. ix
1 Introduction....................................................................................................................................1
2 Status of current recommended asthma indicators ................................................................2
2.1 Prevalence of ever having doctor-diagnosed asthma ...................................................2
2.2 Prevalence of current asthma ...........................................................................................3
2.3 Prevalence of recent wheeze .............................................................................................5
2.4 Prevalence of airway hyperresponsiveness....................................................................6
2.5 Impact of asthma on quality of life ..................................................................................6
2.6 Index of asthma control .....................................................................................................8
2.7 Death rate for asthma, all ages .........................................................................................9
2.8 Death rate for asthma, persons aged 5–34 years ..........................................................10
2.9 Prevalence of smoking in people with asthma.............................................................11
2.10 Prevalence of smoking in the household where children with asthma reside ........12
2.11 Prevalence of occupational asthma................................................................................13
2.12 Proportion of schools using the Asthma Friendly Schools program ........................14
2.13 Hospital separation rate for asthma ..............................................................................15
2.14 Hospital patient days for asthma ...................................................................................16
2.15 Hospital re-admissions for asthma within 28 days .....................................................17
2.16 Number of individuals with separations for asthma ..................................................18
2.17 Rate of emergency department attendance for asthma ..............................................19
2.18 Rate of asthma-related general practice encounters....................................................20
2.19 Rate of Asthma 3+ Visit Plan payments........................................................................21
2.20 Health-care visits for acute episodes of asthma...........................................................22
2.21 Proportion of people with asthma who have a written asthma action plan............23
2.22 Proportion of people with asthma who use ‘preventers’ regularly ..........................24
2.23 The proportion of people with asthma who have had recent spirometry ...............25
2.24 Costs of asthma.................................................................................................................26
v
3 Review of data development activities ...................................................................................28
3.1 Survey questions................................................................................................................28
3.2 Data linkage .......................................................................................................................29
3.3 Validation of coding..........................................................................................................30
3.4 Other data development...................................................................................................31
4 Future directions..........................................................................................................................35
4.1 Ongoing monitoring .........................................................................................................35
4.2 Refining asthma indicators ..............................................................................................36
References............................................................................................................................................37
Appendix A..........................................................................................................................................39
vi
Acknowledgments
Contributors
The following staff from the Australian Centre for Asthma Monitoring were responsible for
the preparation of this document:
Patricia Correll
Guy Marks
Leanne Poulos
Anne-Marie Waters
Australian System for Monitoring Asthma

The members of the Australian System for Monitoring Asthma Steering Committee are also
acknowledged for their guidance in the preparation of this report. In particular, we wish to
thank Nicholas Glasgow for his helpful comments.
Special acknowledgements
Special acknowledgement goes to Associate Professor Teresa To for her valuable input into
the section ‘Refining asthma indicators’ and to Dr Madeleine King for the section on
‘Dynamic Health Assessment’.
This publication was funded by the Australian Government Department of Health and
Ageing through the Asthma Management Program 2005–09.
vii
Abbreviations
ABS Australian Bureau of Statistics
ACAM Australian Centre for Asthma Monitoring
AIHW Australian Institute of Health and Welfare
ASMA Australian System for Monitoring Asthma
BEACH Bettering the Evaluation And Care of Health
CATI Computer-Assisted Telephone Interviews
COPD Chronic obstructive pulmonary disease
DoHA Australian Government Department of Health and Ageing
GP General practitioner
ICD International Classification of Diseases
ICD-9 International Classification of Diseases version 9
ICD-10 International Classification of Diseases version 10
NCCH National Centre for Classification in Health
NHMD National Hospital Morbidity Database
NHS National Health Survey
PBS Pharmaceutical Benefits Scheme
PIP Practice Incentive Program
SAND Supplementary Analysis of Nominated Data
viii
Summary
Health indicators are measures of aspects of health and the health system that can be used to
monitor the effectiveness and impact of the health system and of specific interventions to
improve health and provide effective, accessible and quality health care.
An initial set of indicators for asthma monitoring was developed in 2000 by the Australian
Institute of Health and Welfare after asthma was made a National Health Priority Area in
Australia in 1999. In 2004, the Australian Centre for Asthma Monitoring (ACAM) reviewed
the proposed indicators under the auspices of the Australian System for Monitoring Asthma
and published a set of recommended national asthma indicators. A detailed asthma data
development plan was released in 2005, which outlined a range of projects that would
address the data deficiencies that had been identified for the purposes of monitoring the
recommended asthma indicators.
This report reviews the outcomes of the indicator review, the lessons learnt through
experience with various data sources, progress so far with asthma data development and
suggests future directions for national asthma monitoring.
What have we achieved so far?

The asthma data development plan outlined a range of projects to address data deficiencies
related to monitoring the recommended asthma indicators. These included:
• developing a module of recommended survey questions;
• data linkage;
• validation of hospital and mortality data coding;
• development of general practice data;
• further investigation into dynamic health assessment to study health outcomes;
• working with multiple cause of death and multiple diagnosis hospital data; and
• input into national data development processes.
ACAM has reported on the recommended asthma indicators for which national or state-
level data are available. Table 1 provides a summary of progress towards reporting and data
development activities for each of the 24 recommended asthma indicators.
Where to next?
In this report, we explore future options including reviewing the list of asthma indicators.
Future work will aim to provide a reduced set of indicators. This will be achieved by
focusing on those indicators that provide useful information about asthma and that can
guide policy and practice; and also by identifying opportunities to select one of several
closely correlated indicators, hence removing redundant indicators. We expect that this list
of core indicators will be the primary focus of ongoing monitoring and will be the basis for
benchmarking standards in Australia and other countries.
ix
Table 1: Reporting and development of national asthma indicators
Reporting and whether or not recom-

Indicator mended definition used (yes 9 or no 8) Data development
Prevalence of ever Asthma in Australia 2003 9 Recommended survey question: ‘Have you ever been
having doctor-diagnosed diagnosed with asthma by a doctor or a nurse?’
asthma Asthma in Australia 2005 9
Asthma in Australia: findings from 9

the 2004–05 National Health Survey
(a)
Prevalence of current Asthma in Australia 2003 9 Recommended survey question: ‘Have you had symptoms
asthma (ever diagnosed (a) of asthma or taken treatment for asthma in the last 12
Asthma in Australia 2005 9
plus symptoms or months?’
treatment in last 12 Asthma in Australia: findings from 8 The ABS will include the recommended question in the
months) the 2004–05 National Health Survey 2007–08 NHS after input from ACAM in the NHS
consultation process.
(a)
Prevalence of wheeze in Asthma in Australia 2003 9 Recommended survey question: ‘Have you had wheezing or
the preceding 12 months (a) whistling in your chest at any time in the last 12 months?’
(b)
Prevalence of airway Asthma in Australia 2003 8 Further work is required to select the appropriate measure
hyperresponsiveness (b) of airway hyperresponsiveness for surveillance purposes
and to identify appropriate data sources.
Impact of asthma on Reporting on several elements of A number of questionnaires and individual questions have
quality of life this indicator in: been recommended to report on this indicator.
Asthma in Australia 2003

Asthma in Australia: findings from
Index of asthma control Reporting on elements of this Survey questions to monitor this indicator have been
indicator in: developed.
Death rate for asthma, Asthma in Australia 2003 9 The NCCH proposed further study to improve the codes for
ages 5 to 34 years asthma after a review of the ICD-10 and ICD-10-AM codes
Asthma in Australia 2005 9 used for asthma found that there were limitations in the
Death rate for asthma, all Asthma in Australia 2003 9 ability of these codes to provide information about the types
ages of asthma that may have clinical relevance.
Prevalence of smoking in Asthma in Australia 2003 8 (c) Recommended survey question: ‘Do you smoke at least
people with asthma (c) once a week?’
(c)
Asthma in Australia: findings from 8
Prevalence of smoking in Asthma in Australia 2003 8 (c) Recommended survey question: ‘Which of the following best
the household where describes your home situation?
children with asthma Asthma in Australia 2005 8 (c) – My home is smoke free
reside Asthma in Australia: findings from 8 (c) – People occasionally smoke in the house
the 2004–05 National Health Survey – People frequently smoke in the house’
Proportion of schools None reported The proportion of pre-schools, child care centres and
using the Asthma hospitals using nationally accredited asthma education
Friendly Schools programs is recommended for data development and
Program monitoring in the future, when accredited programs have
been implemented at a national level.
Prevalence of None reported Further work is required. A workshop to bring together

occupational asthma experts in this area is planned in 2008 to consider options
for data development.
(continued)
x
Table 1 (continued): Reporting and development of national asthma indicators

Rate of hospital Asthma in Australia 2003 9 ACAM developed age-group-specific comparability factors
separations for asthma using a dual coded data set which should be incorporated
Asthma in Australia 2005 9 into the analysis of time series extending prior to 1998.
Asthma and COPD among older 9
people in Australia: deaths and
hospitalisations
Patient days for asthma Asthma in Australia 2003 9

(a)
Hospital re-admissions Asthma in Australia 2005 9 Complexities in linking hospitalisation records for the same
for asthma person to enable the observation of individuals, rather than
overall hospital episodes, need to be overcome before this
indicator can be monitored with a national data source.
Number of individuals None reported Further work is required to establish data linkage models
with separations for enabling this indicator to be measured.
asthma
(a)
Rate of emergency Asthma in Australia 2003 9 Further development is required to establish a national
department attendance (a) database of emergency department attendances.
for asthma Asthma in Australia 2005 9
Rate of asthma-related Asthma in Australia 2003 9 Options for new means of developing primary care data are
general practice being investigated.
encounters Asthma in Australia 2005 9
Rate of Asthma 3+ Visit Asthma in Australia 2003 9 It is envisaged that this ‘program-specific indicator’ will be
Plan payments monitored for the duration of the Plan and its replacement,
Asthma in Australia 2005 9 the Asthma Cycle of Care.
Health-care visits for None reported Data sources require development. ACAM have
acute asthma recommended a series of survey questions:
‘At any time in the last 12 months, was your asthma worse
or out of control?’ If yes,
‘In the last 12 months, how many times have you gone to a
hospital or ED because your asthma was worse or out of
control?’
‘In the last 12 months, how many times have you consulted
a GP or local doctor because your asthma was worse or out
of control?’
Proportion of people with Asthma in Australia 2003 8 (c) Recommended survey question:
asthma who have a (c)
written asthma action Asthma in Australia 2005 8 ‘Do you have a written asthma action plan; that is, written
instructions of what to do if your asthma is worse or out of
plan
control?’
Proportion of people with Asthma in Australia 2003 8 Recommended survey question: ‘What are the names or
asthma who use brands of all the asthma medications you have used in the
preventers regularly Asthma in Australia 2005 8 last 4 weeks?’
Patterns of Asthma Medication Use 8 If any medications identified: ‘How often did you use {name
in Australia of medication} in the last 4 weeks?’ (loop for each type of
Asthma in Australia: findings from 8 medication)
(continued)
xi
Table 1 (continued): Reporting and development of national asthma indicators

Proportion of people with Asthma in Australia 2003 8 Development of a data source that is able to identify when
asthma who have had spirometry is performed for the assessment of asthma, as
recent spirometry Asthma in Australia 2005 8 opposed to other respiratory conditions, is needed if this
indicator is to be monitored accurately.
Expenditure on asthma Reporting on elements of this The ability to do a formal economic analysis of the
indicator in the following: expenditure on asthma is currently beyond the role of
monitoring using routinely available data sources. Further
Health Care Expenditure and the development of this indicator is required.
Burden of Disease Due to Asthma in
Australia
(a) State-level data reported using recommended definition.
(b) Reported in association with prevalence of recent wheeze, not AHR alone.
(c) Questions used to define current asthma not in line with the recommended definition.
xii
1 Introduction
Health indicators are measures of aspects of health and the health system that can be used to
monitor the effectiveness and impact of the health system and of specific interventions to
improve health and provide effective, accessible and quality health care. Indicators may be
disease-specific or focus on particular aspects of the health system. They summarise data
that allow the regular reporting of disease levels, burden and trends and can be used to
monitor changes over time. They are used to examine social, geographical and
environmental differentials in the medical condition of interest. Indicators can identify
problems that need action, but are usually unable to identify the reasons for the problem.
Health indicators can monitor and help in the development of potential prevention and
management strategies as well as tracking the impact of such strategies. In addition,
indicators allow the evaluation of the impact of health policy and monitoring of progress
towards targets.
Asthma was made a National Health Priority Area in Australia in 1999. As a part of this
action, there was recognition of the need for data to support an informed response to this
disease. Therefore, a workshop conducted in August 2000 by the Australian Institute of
Health and Welfare (AIHW 2000) developed a proposal for an initial set of indicators that
could be useful for asthma monitoring. These were to be developed under the auspices of
the Australian System for Monitoring Asthma (ASMA).
The Australian Centre for Asthma Monitoring (ACAM) was established in 2002 as a
collaborating unit of the Australian Institute of Health and Welfare (AIHW) to develop a
system for population-based monitoring of asthma. Since its inception, ACAM has been
overseen by the ASMA Steering Committee, which comprises members from the Australian
Government Department of Health and Ageing (DoHA), the AIHW, the National Asthma
Council Australia and the Asthma Foundations of Australia, as well as content area experts.
In 2004, ACAM published a review of the proposed indicators (Baker et al. 2004), which
assessed their feasibility and value and, where possible, provided data definitions and
identified suitable data sources. In addition, the report proposed a number of new indicators
for monitoring asthma and highlighted issues that needed to be resolved before appropriate
indicators could be incorporated into an asthma-monitoring system.
In parallel with this process, ACAM has also published several reports including Asthma in
Australia 2003 and 2005 that used a wide range of administrative and research data
collections from federal and state agencies and other sources, including industry, to publish
a comprehensive record of asthma statistics (ACAM 2003; 2005a). A further key component
of ACAM’s activities has been to undertake a program of data development to follow on
from the indicator review and to develop the data sources for monitoring the recommended
indicators. This was guided by ACAM’s data development plan, published in 2005 (ACAM
2005b).
This report reviews the outcomes of the indicator review, the lessons learnt through
experience with various data sources, progress so far with asthma data development and
suggests future directions for national asthma monitoring.
1
2 Status of current recommended
asthma indicators
This section will examine each of the asthma indicators that were recommended by ACAM
in the technical review (Baker et al. 2004) and provide an update of how each is being
monitored.
2.1 Prevalence of ever having doctor-diagnosed

asthma
Four indicators were recommended for monitoring asthma prevalence. The first of these is
the prevalence of ever having doctor-diagnosed asthma. This indicator is considered a
‘supplementary’ indicator because it is necessary to measure this in order to measure the
core prevalence indicator; ‘Prevalence of current doctor-diagnosed asthma’ (see 2.2).
Operational definition
Numerator: The number of people who report having ever been diagnosed with asthma
by a doctor or nurse.
Denominator: Australian population as at 30 June for same calendar year as numerator.
Data sources
This indicator can be monitored using data from the National Health Survey (NHS) and
other state and local health surveys.
Summary of monitoring activities

The main source of data for this indicator has been the NHS, which is conducted every three
years by the Australian Bureau of Statistics (ABS). Data have also been analysed from state
Computer-Assisted Telephone Interview (CATI) surveys.
ACAM have presented data for this indicator from the 2001 NHS, state CATI surveys and a
number of other local area studies in both the Asthma in Australia 2003 (ACAM 2003) and
Asthma in Australia 2005 (ACAM 2005a) reports. More recently, ACAM updated this
information using the 2004–05 NHS in the report: Asthma in Australia: findings from the
2004–05 National Health Survey (ACAM 2007a).
While, as indicated in the technical review, it is possible to present these data by age and sex,
state, rural and remote areas of residence, socioeconomic status (using residential
postcodes), English-speaking background status (using country of birth) and Indigenous
status, only breakdowns by age and sex have been recently published for this indicator
(ACAM 2007a). This is because it is supplementary to the indicator ‘Prevalence of current
asthma’. The latter indicator (see 2.2) is considered to have more relevance for informing
policy and practice.
2
Summary of findings
From the 2004–05 NHS, it was estimated that 3,979,486 Australians (20%) had ever been
diagnosed with asthma by a doctor (ACAM 2007a). In addition, a number of state, territory
and locally based surveys have estimated that, among adults, the prevalence of reporting
ever having been diagnosed with asthma ranges from 17% to 25%, with most estimates
between 19% and 21%. In four surveys conducted among children, estimates of the number
who had ever been diagnosed with asthma ranged from 20% to 26% (ACAM 2005a).
Data development issues

As the indicator has an established national data source, there has been no further data
development required. For monitoring this indicator, ACAM have recommended (ACAM
2007c) that surveys use the following question:
‘Have you ever been diagnosed with asthma by a doctor or a nurse?’.
2.2 Prevalence of current asthma
Numerator: The number of people who report having ever been diagnosed with asthma
by a doctor or nurse and who have experienced symptoms (wheeze, shortness
of breath or chest tightness) of asthma or taken treatment for asthma in the
last 12 months.
Data sources
Data relating to this indicator are available in the NHS and other state and local health
surveys.

At the time ACAM recommended this indicator, state CATI surveys were the most feasible
source of data for this indicator. The NHS was limited in being able to monitor this indicator
because the questions asked did not clearly identify those people who met the above
operational definition.
Within the NHS, the prevalence of current asthma was assessed by asking the following
question among respondents who had indicated they had ever been diagnosed with asthma:
‘Do you still get asthma?’
People who answered ‘yes’ to this question have been analysed (with qualification) as those
with current asthma in ACAM reports (ACAM 2003; 2005a; 2007a). However, this is not
completely consistent with the operational definition because this question does not
establish that current asthma was based on self-reporting of asthma symptoms or treatment
in the last 12 months.
3
Data from state CATI and other smaller surveys were also available, and some have been
consistent with the ACAM operational definition. The results from these surveys have also
been reported by ACAM (ACAM 2003; 2005a). However, there was variation in the survey
methods used, the age ranges surveyed, the sample sizes and, most importantly, the way in
which current asthma was measured. Therefore, it is necessary to examine the range of
values obtained in these surveys to get an idea of the likely true prevalence of current
asthma in the population.
Both NHS and CATI survey data have been analysed by age, sex, state, remoteness and
socioeconomic status. It should be noted that CATI surveys have sampled insufficient
numbers of Aboriginal and Torres Strait Islander Australians to yield reliable estimates of
prevalence in this population—more reliable information has generally been obtained from
the ABS National Aboriginal and Torres Strait Islander Health Survey. However, as with the
NHS, this survey has also not applied the recommended ACAM operational definition.
Summary of findings
In the 2004–05 NHS, 2,010,212, or 10.3% of the population, stated that they ‘still get asthma’
(ACAM 2007a). Among other state and locally based surveys, the prevalence of current
asthma among adults has ranged from 9% to 15%, with most estimates falling between 10%
and 12%. The proportion of children with current asthma ranged between 14% and 16%
(ACAM 2005a). These estimates are high by international standards.
Several findings have been consistent across the range of data. Among children, boys have a
higher rate of asthma than girls. However, after the teenage years, asthma is more common
in women than in men. The prevalence of asthma is higher among Aboriginal and Torres
Strait Islander people than among other Australians, particularly women aged 35 years and
over. It is also lower among those from non-English-speaking backgrounds.

The major data development issue for this indicator is to establish national data that are
based on a consistent and meaningful definition of current asthma. This has been an
important area of survey question development and a question to monitor current asthma
that had been recommended in ACAM’s review of indicators, has been field-tested and
recommended for use among people who indicated they had ever been diagnosed with
asthma (ACAM 2007c):
‘Have you had symptoms of asthma or taken treatment for asthma in the last 12 months?’
Through its NHS consultation process, the ABS have indicated that they will include the
recommended question in the 2007–08 NHS to monitor current asthma. The previous
question used by the NHS will also be asked, so that the difference in estimates of current
asthma obtained by each question can be evaluated.
Application of this recommended definition for identifying people with current asthma is
also important for many of the other indicators which are monitored among the subset of
Australians with current asthma.
4
2.3 Prevalence of recent wheeze
It is proposed that this indicator be monitored separately in children and adults.
Numerator: The number of children/adults (age 18–44 years) who report wheeze or
whistling in the chest in the previous 12 months.
Data sources
This indicator can be monitored using data from state and local health surveys; however,
there is no single, national data source.

Data relating to this indicator from a range of surveys and studies were reported in Asthma
in Australia 2003 (ACAM 2003).
While some data can be analysed by age and sex, state, remoteness, socioeconomic status
(using postcode of residence) and English-speaking status, these disaggregations have not
been included in ACAM reports to date as, similarly to the ‘Prevalence of ever asthma’ (2.1),
it is not considered to have key importance for policy and practice compared to the
‘Prevalence of current asthma’ indicator (2.2).
Summary of findings
The prevalence of recent wheeze is substantially higher than the prevalence of asthma,
particularly among children. Between 1992 and 2002, estimates of current wheeze in studies
of children ranged from 16% to nearly 34%. Among adults during the 1990s these estimates
ranged from 22 to 26%. The age ranges sampled in these surveys varied widely and the
extent to which this higher prevalence of wheeze represents undiagnosed asthma, as
opposed to non-asthma, viral-associated wheeze, cannot be ascertained from the available
data (ACAM 2003).

There has been no further data development required for this indicator. For monitoring this
indicator, ACAM have recommended that surveys use the following question:
‘Have you had wheezing or whistling in your chest at any time in the last 12 months?’ (ACAM
2007c).
5
2.4 Prevalence of airway hyperresponsiveness
This indicator was recommended by ACAM because it provides an objective measure of
asthma prevalence in contrast with the three previous measures, which are all based on self-
reporting. An operational definition for this indicator has not been established.
Data sources
No national data source has been identified, although some local and regional data
collections have been recognised.

ACAM have cited data from the Belmont (Toelle et al. 2004) and Wagga Wagga (Downs et
al. 2001) studies, which used airway hyperresponsiveness to indicate the prevalence of
current asthma in children. In Asthma in Australia 2003, data from these studies on the
presence of both airway hyperresponsiveness and self-reported wheeze in the last 12 months
were used to define current asthma.
Summary of findings
As previously stated, the availability of data for this indicator is extremely limited. The
prevalence of both wheeze in the last 12 months and airway hyperresponsiveness among
children in the Belmont area of coastal New South Wales was 11.3% in 2002 (Toelle et al.
2003 cited in Asthma in Australia 2003).

Further work is required to select the appropriate measure of airway hyperresponsiveness
for surveillance purposes and to identify appropriate data sources. For further information
see Section 3.4.
2.5 Impact of asthma on quality of life
The proportion of people with current asthma who report having poor health-related quality
of life.
It is proposed that this indicator be monitored separately in adults and children and with
consideration for the domains of health-related quality of life. This is discussed in the report:
Measuring the impact of asthma on quality of life in the Australian population (ACAM 2004).
6
Data sources
Data relating to this indicator are available in the NHS and other state/territory and local
health surveys.

Some measures relevant to quality of life were reported by ACAM in Asthma in Australia
2003 and 2005 (ACAM 2003; 2005a) and from the 2004–05 NHS (ACAM 2007a). These
include self-assessed health status, levels of psychological distress, days off work or study
and sick days due to asthma.
Summary of findings
Findings from survey data consistently find that people with asthma rate their health worse
than people without asthma. In the 2004–05 NHS, fewer people with current asthma (42%)
rated their health as ‘excellent’ or ‘very good’ than people without current asthma (52%)
(ACAM 2007a), and more rated their health as ‘poor’ (28%) than people without current
asthma (14%). However, based on data from the 2004–05 NHS, people with current asthma
were more likely to rate their health better than their counterparts in the 2001 NHS.
Data from the 2004–05 NHS also identified that a greater proportion of people with asthma
have days away from work or study (16.6%) than people without asthma (10.7%) or other
days of reduced activity (19% and 10%, respectively). Again, these proportions had
decreased for people with current asthma compared with those reported in the 2001 NHS,
suggesting some improvement in these impacts over time.
People with asthma also generally scored higher on the psychological distress scale and, in
the 2004–05 NHS, people with current asthma were 1.9 times more likely to have high or
very high psychological distress than people without current asthma (ACAM 2007a).

In 2004, ACAM published its report Measuring the impact of asthma on quality of life in the
Australian population (ACAM 2004). The purpose of this report was to further develop an
approach to monitoring the effects of asthma on quality of life. This report reviewed and
identified a range of questionnaire-based measures that could be used to assess the impact of
asthma on quality of life. Further development occurred in the process undertaken by
ASMA to develop survey questions for monitoring asthma indicators (Section 3.1). ACAM
have recommended a number of questionnaires and individual questions to report on this
indicator (ACAM 2007c).
7
2.6 Index of asthma control
This is a composite indicator comprising measures of asthma severity and control among
people with current asthma.
Data sources
There is currently no identified national data source. However, some data relating to this
indicator are available in state/territory and local health surveys and the situation will
improve if there is implementation of the ACAM recommendations for a module of survey
questions to monitor asthma indicators (ACAM 2007c).

Some data were reported from state/territory and local surveys in Asthma in Australia 2005
for the proportion of adults with current asthma whose sleep was disturbed by asthma.
Evaluation of sleep disturbance has been recommended as a component of this index (see
below).
Summary of findings
Approximately 40% of adults with current asthma report disturbed sleep due to their
asthma in the last month. Among children with current asthma the interruption is more
prevalent, with almost half reporting one or more nights of disturbed sleep in the last month
(ACAM 2005a).

Survey questions to monitor this indicator have been developed as a part of the ASMA data
development activities (see Section 3.1). Recommended measures include:
• proportion of people who experience severe enough wheezing to limit speech
• frequency of asthma symptoms in the last 4 weeks
• proportion of people with asthma who have been woken from sleep due to asthma
symptoms in the preceding week.
• rate of use of short-acting bronchodilator medication
These have been recommended in the module of survey questions to monitor asthma
indicators (provided in Appendix A). It is expected that the implementation of the
recommended asthma question module (ACAM 2007c) would provide data for this
indicator.
8
2.7 Death rate for asthma, all ages
Numerator: Total number of death occurrences in Australia assigned to ICD-9 code 493 or
ICD-10 code J45 or J46 as underlying cause of death for a particular calendar
year.
Data sources
National data for this indicator are available in the National Mortality Database.

This indicator was included in the Asthma in Australia 2003 and 2005 reports. Time trends
since 1979, using 3-year moving averages, and seasonal variations were reported. Data
where deaths occurred in people aged five years and over from the most recent five years
were disaggregated by sex, age, state or territory, English-speaking background status,
socioeconomic status and remoteness of residence.
Summary of findings
The death rate due to asthma in Australia is moderately high by international standards.
However, trends in asthma deaths have declined since the most recent peak in 1989. There
were 318 deaths in which asthma was the underlying cause in 2004—representing 0.2% of all
deaths in that year (ABS 2006).
Death rates are higher among people aged 35 to 64 years who live in outer regional and
remote areas, people of lower socioeconomic status and older people (ACAM 2005a). From
1992, mortality rates have been higher in females than males.

The accuracy of coding will impact on the accuracy of mortality data. This is discussed
further in Section 3.3. Validation of coding in all ages, particularly in older age groups, is
needed.
Analysis has not been carried out using the Aboriginal and Torres Strait Islander status
variable as it is not sufficiently reliable in most states. At this stage, data for South Australia,
Western Australia and the Northern Territory can be considered sufficiently reliable from
1990 and Queensland from 1998. Trend analysis of Aboriginal and Torres Strait Islander
status data is not considered reliable.
9
2.8 Death rate for asthma, persons aged 5–34
years
Numerator: Total number of death occurrences in Australia (among people aged 5 to
34 years) assigned to ICD-9 code 493 or ICD-10 code J45 or J46 as underlying
cause of death for a particular calendar year.
Denominator: Australian population (aged 5 to 34 years) as at 30 June for same calendar year
as numerator.
Data sources
National data for this indicator are available in the National Mortality Database.

This indicator was included in Asthma in Australia 2003 and 2005 (ACAM 2003; ACAM
2005a). Time trends since 1979, using 3-year moving averages, and seasonal variation were
reported. Data from the most recent five years were disaggregated by sex, English-speaking
background status, socioeconomic status and remoteness of residence.
Summary of findings
Deaths due to asthma among people aged 5 to 34 years have declined since the most recent
peak in 1986, although the decline is less marked than that observed among all ages. In 2004
there were 31 deaths due to asthma in people aged 5 to 34 years (0.37 per 100,000 population,
95% confidence interval (CI): 0.26–0.51) (ABS 2006).

These are the same as those described under the previous section (2.7). This indicator, which
includes only the subset of people aged 5 to 34 years, is considered more specific for
monitoring asthma than using all ages because there may be diagnostic confusion and
misclassification with chronic obstructive pulmonary disease (COPD) in older age groups.
No additional data development issues have been identified.
10
2.9 Prevalence of smoking in people with asthma
Numerator: The number of people aged 18 years and over who have current asthma and
who smoke any tobacco product weekly or more frequently.
Denominator: The estimated number of Australians aged 18 years and over with current
asthma.
Data sources
surveys.

The NHS was limited in being able to monitor this indicator because the questions asked did
not clearly identify those people who met the above operational definition. However, the
NHS includes the question:
‘Do you currently smoke?’
ACAM has used this question in conjunction with those used to identify current asthma to
report on people with current asthma who smoke from the 2001 and 2004–05 NHS. Despite
not being completely consistent with the recommended operational definition, these data
were used to present information relevant to this indicator in Asthma in Australia 2003 and
2005 and the report Asthma in Australia: findings from the 2004–05 National Health Survey. Data
were disaggregated by age, sex and socioeconomic status, with additional comparisons
drawn between those with and without current asthma and those who were current and
ex-smokers. Further data disaggregations, such as remoteness, English-speaking background
status and Indigenous status have not been undertaken because of small numbers.
Summary of findings
In the 2004–05 NHS, it was reported that 24.5% (95% CI 23.5–28.2%) of people with current
asthma were current smokers. This rate was not significantly different from that observed
among people without asthma. Among people with asthma, those who are younger and live
in localities that are relatively socioeconomically disadvantaged are most likely to smoke.

It is noteworthy that the NHS question used by ACAM to identify current smoking does not
define people who smoke weekly or more frequently. In addition, this indicator requires the
identification of people with current asthma and, as noted in Section 2.2, the questions used
from the NHS do not clearly identify current asthma consistently with the operational
definition for that indicator.
11
In the 2004–05 NHS, people who answered ‘Yes’ when asked if they currently smoke were
asked an additional question:
‘Do you smoke at least once a week?’
This question was endorsed in the ASMA survey question development process and can be
used in the future to identify individuals who meet the operational definition criteria for a
current smoker (ACAM 2007c). Furthermore, as already noted, the ABS indicated that they
will modify their questions to identify current asthma to be consistent with the ASMA
operational definition in the 2007–08 NHS. With these changes, the NHS will be a feasible
source of national data for monitoring this indicator in accordance with its recommended
operational definition.
2.10 Prevalence of smoking in the household where

children with asthma reside
Numerator: The number of people aged less than 15 years with (a) current asthma or
(b) wheeze in the previous 12 months and who live in a household where one
or more regular smokers resides.
Denominator: The number of people aged less than 15 years with (a) current asthma or
(b) wheeze in the previous 12 months.
Data sources
surveys.

National data relating to this indicator have been examined from the NHS by analysing data
for children aged 0 to 14 years with current asthma who live with a current smoker (current
smokers were identified in the NHS, see 2.9). These data have been presented in Asthma in
Australia 2003 and 2005 and the report Asthma in Australia: findings from the 2004–05 National
Health Survey. Data were disaggregated by age, sex and socioeconomic status, with
comparisons of the proportion of children with and without asthma. Further disaggregations
were not undertaken due to small numbers.
Information was also published from two state CATI surveys (New South Wales and
Western Australia) that related to this indicator but which focussed on whether the child
lived in a household in which smoking occurred. This issue is explored further below.
Summary of findings
Similar proportions of children with and without asthma live with one or more regular
smokers (39.1% and 36.2%, respectively). Of these, 11% and 9.4%, respectively, resided in
12
homes in which smoking occurred indoors (ACAM 2007a). The higher rate of household
exposure to smokers is most evident in more socioeconomically disadvantaged areas.

While operational definitions provided in the review of asthma indicators (Baker et al. 2004)
defines passive smoke exposure as living with a smoker, more recent recommendations are
that information should focus on whether a child lives in a household in which smoking
occurs (ACAM 2007c). Some CATI surveys currently collect data using the question:
‘Which of the following best describes your home situation?
–My home is smoke free
–People occasionally smoke in the house
–People frequently smoke in the house’
This question has been recommended for this indicator (ACAM 2007c). Currently it has been
included in South Australia and New South Wales health surveys. Revisions to the
operational definition may also be appropriate. For example, it may be more meaningful to
monitor the number of children with current asthma who live in houses in which smoking
occurs as opposed to those who reside with adults who currently smoke. Also, it may be
relevant to quantify the extent of exposure to passive smoke.
2.11 Prevalence of occupational asthma
Numerator: The total number of asthma cases attributed to exposure at work at a given
time within the survey population.
Denominator: Denominator populations for the two surveys.
Data sources
No national or reliable state/local data sources have been identified.

There is no ongoing data source for reporting on this indicator. Various ad hoc collections
provide some data to report on the prevalence of occupational asthma at the present time.
Summary of findings
There has been no information reported for this indicator to date. A review of the literature
on this topic has been carried out under the auspices of the Australian System for
Monitoring Asthma in 2006, but this is yet to be published.
13
This is an important area for asthma monitoring because it concerns cases of potentially
preventable asthma. However, it is also very difficult to ascertain these cases in data that can
be used for monitoring purposes.
The review of asthma indicators (Baker et al. 2004) provided an evaluation of available data
that included two ad hoc surveys carried out in Victoria and New South Wales and a
voluntary reporting scheme: Surveillance of Australian workplace Based Respiratory Events
(SABRE) that operates in New South Wales, Victoria and Tasmania. All of these data sources
are prone to selection bias arising from low response rates in surveys and low reporting
rates to SABRE. The method of attribution of asthma to an occupational exposure is also
indirect.
Data development is required to enhance the currently available data on the incidence of
occupational asthma. Currently, a workshop to bring together experts in this area is planned
in 2008 to consider options for further data development. It seems likely that the definition
will need to be revised.
2.12 Proportion of schools using the Asthma

Friendly Schools program
Operational definitions
Numerator: Number of schools recognised as using the Asthma Friendly Schools
program.
Denominator: Total number of schools in Australia.
Numerator: Number of students in schools recognised as using the Asthma Friendly

Schools program.
Denominator: Total number of students in Australian schools.
Data sources
Data are recorded at state level by the individual Asthma Foundations after a follow-up to
check that the essential criteria for Asthma Friendly Schools have been met. However, there
are differences in the way compliance with the criteria for accreditation is assessed. While
Asthma Foundations in some states require evidence to support the claim that the
accreditation criteria have been met, in other states accreditation is awarded on the basis of
the signed statement of compliance from the school principal.

This indicator has not been reported on as further data development is required before this
can be reported using a national data source.
14
The proportion of schools and students can be disaggregated into primary and secondary, as
well as the type of school (government, Catholic or independent).
Individual schools will be disaggregated by remoteness classification.
Schools and students will also be analysed by state, as there have been slight variances in the
rollout of the Asthma Friendly Schools program in each state due to differences in the time
frames and methods of approaching the schools.
Summary of findings
No information on this indicator has been reported in any ACAM reports.

The proportion of pre-schools, child care centres and hospitals using nationally accredited
asthma education programs is recommended for data development and monitoring in the
future, once accredited programs have been implemented at a national level. The relevance
of this indicator as a core asthma indicator will be reviewed in future work.
2.13 Hospital separation rate for asthma
Numerator: Total number of hospital separations from Australian private and public
hospitals assigned to a principal diagnosis of ICD-9-CM code 493 or
ICD-10-AM code J45 or J46 for a particular calendar year.
Data sources
State/territory hospital separations data are compiled from all public general and
psychiatric hospitals, private hospitals and private day surgery facilities. These data are
considered to be close to complete and are, therefore, largely representative of the
population who use hospital services. Each state/territory contributes an agreed subset of
variables from their hospital data collections for inclusion on the National Hospital
Morbidity Database (NHMD). Therefore, the NHMD held at the AIHW provides a national
source of data to monitor this indicator.

This indicator has been reported in Asthma in Australia 2003 and 2005 (ACAM 2003; 2005a).
Time trends since 1993 and seasonal variation were reported. Data from the most recent year
were disaggregated in these reports by age, sex, English-speaking background status,
socioeconomic status, remoteness and Indigenous status. Information on the number of
separations for asthma among people aged 55 years and over was also reported in Asthma
15
and chronic obstructive pulmonary disease among older people in Australia: deaths and
hospitalisations (ACAM 2006).
Summary of findings
There are approximately 40,000 hospital separations each year in which the principal
diagnosis is asthma. The highest hospitalisation rates have occurred among children,
particularly those aged less than 5 years, and these rates decreased by 43% between 1993–94
and 2003–04. Among adults, hospitalisation rates have also decreased by 17% over this time.
Among people aged 65 years and over, rates of hospitalisation for asthma are highest in the
winter months, whereas among children, the peaks occur in February and May.
Among children, boys have higher rates of hospitalisation for asthma than girls, which
reflects the higher prevalence of asthma in boys. However, this trend is reversed after the
age of 15 years when more females than males are admitted to hospital for asthma. Rates of
hospitalisation are higher among people living in more remote areas, Indigenous
Australians and people living in more socioeconomically disadvantaged areas (ACAM
2005a).

Changes to coding practice will affect the quality of this indicator. Validation studies have
demonstrated that diagnostic accuracy is higher in younger age groups. The impact of
changes to ICD coding has been less well studied. A dual coded data set has been used to
quantify age-group-specific comparability factors. These need to be incorporated into the
analysis of time series extending prior to 1998. This is also discussed in Section 3.3.
2.14 Hospital patient days for asthma
Numerator: Total number of patient days from Australian private and public hospitals
assigned to ICD-9-CM code 493 or ICD-10-AM code J45 or J46 for a particular
calendar year.
Data sources
As for the previous indicator (2.13), the NHMD held at the AIHW is the best data source for
monitoring hospital patient days for asthma.

Included in the NHMD are both admission date, separation date and the total number of
days hospitalised. This indicator has been monitored using these variables in both Asthma in
Australia 2003 and 2005 (ACAM 2003; 2005a). Time trends in the total number of hospital
16
days were provided since 1993, and data were disaggregated by age, sex, English-speaking
backgrounds status, socioeconomic status, remoteness, and Indigenous status.
Summary of findings
The overall number of hospital bed-days occupied by patients with asthma has declined by
49% between 1993–94 and 2003–04. The reduction in hospital bed-days, combined with the
decrease in hospital separations for asthma, has resulted in a fall in the average length of
stay for all age groups from 2.9 days to 2.2 days (ACAM 2005a).

These are the same as those described under Section 2.13.
2.15 Hospital re-admissions for asthma within

28 days
Numerator: Number of people discharged from hospital with a principal diagnosis of
asthma (ICD-10-AM code J45 or J46) who are re-admitted within 28 days to
the same hospital with a diagnosis of asthma.
Denominator: (1) number of hospital separations for asthma in the year.
(2) Australian population as at 30 June for same calendar year as numerator.
Data sources
Currently, state hospital data collections, particularly in New South Wales, Victoria and
Western Australia, are the most feasible data sources for this indicator. In future, the NHMD
may be used as a data source.

Data relating to this indicator were reported for the first time in Asthma in Australia 2005
(ACAM 2005a). However, reporting was limited to two states: namely New South Wales and
Victoria. These data were disaggregated by age and sex, and represent 60% of the Australian
population.
An extension to this indicator was foreshadowed in the indicator review (Baker et al. 2004).
This was to include both hospital emergency department visits and admissions to hospital to
ascertain overall ‘re-attendances’ at hospital for asthma. This was also reported in Asthma in
Australia 2005 (ACAM 2005a) for Victoria and New South Wales by age and sex.
17
Summary of findings
Analysis of data for New South Wales and Victoria has shown that, following a
hospitalisation for asthma, 5% of people are re-admitted to hospital for asthma within
28 days. The highest rate of re-admissions is among people aged 15 to 64 years and re-
admission rates are higher in females than males.

Currently, this indicator has only been monitored in two states using state-based data
sources. There are a number of complexities that have to be overcome before it is possible to
report on this indicator with a national data source. In Australia, hospitalisation data are
based on hospital admissions, rather than the individuals hospitalised. Therefore,
hospitalisation records for the same person need to be linked to be able to track individuals
rather than overall hospital episodes.
For national monitoring purposes, it is desirable to identify a single national source of data.
The most likely source is the NHMD because it contains data routinely forwarded from all
states and territories. However, the data forwarded are very limited, and data development
is required in order to determine the feasibility of linkage within this data set. This is
discussed further in Section 3.2.
2.16 Number of individuals with separations for

asthma
Numerator: Total number of individuals who had hospital separations from Australian
private and public hospitals assigned to a principal diagnosis of ICD-9-CM
code 493 or ICD-10-AM code J45 or J46 for a particular calendar year.
Data sources
Currently, state hospital data collections, particularly in New South Wales, Victoria and
Western Australia, are the only feasible data sources for this indicator. In future, it is
envisaged that the NHMD may be used as a data source.

This indicator has not been monitored as further data development is required before a
national data source becomes available.
Summary of findings
This indicator has not been reported in any ACAM publications to date.
18
Data development will be required to establish data linkage models to enable this indicator
to be measured. It is most likely that this linkage will be developed once it is possible to also
measure hospital re-admissions for asthma (see Section 2.15).
2.17 Rate of emergency department attendance for

asthma
Numerator: Number of hospital emergency department attendances with a principal
diagnosis of asthma (ICD-9 code 493 or ICD-10 codes J45 or J46) for a
particular calendar year
Data sources
Currently, state data collections, particularly in New South Wales, Victoria and partial data
from Western Australia, are the only feasible data sources for this indicator.

Data relating to this indicator were reported in Asthma in Australia 2003 and 2005 (ACAM
2003; 2005a). However, reporting was limited to two states: New South Wales (both reports)
and Victoria (2005 report only). Time trends and seasonal variation over the period 1999 to
2004 were reported and data were disaggregated by age, sex, attendance outcome (for
example, hospital admission), triage category and socioeconomic status.
Summary of findings
The highest rate of emergency department visits for asthma occurs among children aged 0 to
4 years. Children in this age group, along with the elderly, are most likely to be admitted to
hospital as a result of going to the emergency department (ACAM 2005a). Visits to
emergency departments peak among children in mid February, while, among adults, the
peaks occur during the winter months.

Ideally, a national database of emergency department attendances would be developed.
Further development is needed to determine the feasibility of such an undertaking.
However, at the time of this review, there were no plans for such development to occur.
19
2.18 Rate of asthma-related general practice
encounters
Numerator: Estimated proportion of general practice encounters where asthma was
managed (for designated year) multiplied by the number of claims for
Medicare reimbursement for Professional Attendances group A1 and A2
(for that year).
Data sources
This indicator has been predominantly monitored by ACAM using the survey known as
BEACH (Bettering the Evaluation And Care of Health). This survey invites a sample of
20 general practitioners (GPs) per week to complete the survey for 100 consecutive patient
encounters. The findings can then be applied to total Medicare Benefits Scheme claims for
GPs to extrapolate on the national patterns of general practice encounters.

BEACH data were used to monitor this indicator in Asthma in Australia 2003 and 2005
(ACAM 2003; 2005a). Time trends in BEACH data have been reported from 1998 and data
have been disaggregated by age, sex, socioeconomic status, and remoteness. In addition to
rates being reported as a rate of the estimated resident population, rates were also reported
as a rate of total general practice encounters.
Summary of findings
During the period 1998–99 to 2003–04, the rate of general practice encounters for asthma
decreased from 3.1% to 2.5% of all general practice encounters. Boys aged 0 to 4 years have
the highest rate of asthma-related general practice encounters.

There are limitations to this data source because of the low participation rates by GPs (28.1%
in 2004–05) in the BEACH program. Although post-stratification weighting is used to adjust
for differences between the sample and the GP population, the sample may not be
representative of general practice and, therefore, data on morbidity may not be an accurate
reflection on the current situation in general practice. However, BEACH still remains the
most reliable and representative source for these data.
The future of the BEACH data collection is currently being reviewed and options for new
means of developing primary care data are being investigated.
20
2.19 Rate of Asthma 3+ Visit Plan payments
Numerator: Number of claims for completed Asthma 3+ Visit Plan Practice Incentive
Program Payments.
Data sources
The Asthma 3+ Visit Plan Practice Incentive Program (PIP) was replaced by the Asthma
Cycle of Care in November 2006. The Program is funded by the Australian Government and
aims to improve general practice care for patients with moderate or severe asthma. It entails
the development and ongoing review of an asthma management plan over at least two
general practice visits (DoHA 2002; 2003). Data from the Asthma Cycle of Care Program are
reported through Medicare Australia, based on claims for remuneration for structured
asthma review visits made by GPs.

ACAM have summarised data reported through Medicare Australia by age and sex, and by
state/territory of residence in Asthma in Australia 2003 and 2005 (ACAM 2003; 2005a). In
these reports, ACAM also presented the rate of claims using ‘people with current asthma’ as
the denominator.
Summary of findings
Since being introduced in 2001, it is estimated that 3.9% of people with current asthma, or
12.9% of people with moderate or severe asthma, have used the Asthma 3+ Visit Plan.
Children and older adults were the most likely to access it, and young adults aged 15 to
34 years were least likely (ACAM 2005a).

This indicator was proposed as a temporary, ‘program-focused’ indicator to report on the
uptake of the Asthma 3+ Visit Plan PIP. With the recent changes, the number of claims for—
the replacement program—the Asthma Cycle of Care PIP, will be measured for the duration
of the Program, using total counts, cumulative counts and rates.
21
2.20 Health-care visits for acute episodes of asthma
This is a composite indicator that would include rates of general practice visits for acute
episodes of asthma as well as emergency department visits and hospitalisations for asthma.
Numerator: Number of acute asthma-related general practice visits, number of emergency
department visits with a principal diagnosis of asthma (ICD-9 code 493 and
ICD-10 codes J45 and J46) and hospital separations with a principal diagnosis
of asthma (ICD-9-CM code 493 and ICD-10-AM codes J45 and J46).
Denominator: Australian population as at 30 June for same year as numerator.
Data sources
surveys. There may also be other sources of data that could inform this indicator,
particularly hospitalisation, emergency department and general practice data.

Data are only complete for the hospital separation component of this indicator and further
development is required before it can be monitored.
Summary of findings
No information has been reported on this indicator in any ACAM reports to date.

While existing administrative data may be useful for informing this indicator, it is more
likely that it will be monitored using self-reported data from health surveys. The data
sources for this indicator require development. ACAM have recommended questions to
monitor this indicator in its module of survey questions to monitor national asthma
indicators (ACAM 2007c) which are summarised in Appendix A of this report.
22
2.21 Proportion of people with asthma who have a
written asthma action plan
Numerator: Number of people with current asthma who have an individualised, written
asthma action plan incorporating information on how to recognise the onset
of an exacerbation of asthma and information on what action to take in
response to that exacerbation, developed in consultation with a health
professional.
Denominator: Total population of people with asthma.
Data sources
surveys. However, these data often fail to adequately define the criteria defining a written
asthma action plan as stated in the above operational definition.
There may also be other sources of data that could inform this indicator, particularly from
general practices.

Among people with current asthma, the NHS collected information about possession of a
written asthma action plan in the 2001 and 2004–05 surveys. These data have been analysed
and presented in Asthma in Australia 2003 and 2005 (ACAM 2003; 2005a) and the report
Asthma in Australia: findings from the 2004–05 National Health Survey (ACAM 2007a). Data
were disaggregated by age, sex, state, remoteness, socioeconomic status and Indigenous
status. Data have not been disaggregated by English-speaking background status due to
small numbers.
Data on rates of possession of action plans were also compiled from state surveys (New
South Wales, South Australia and ‘Eastern’ Australia) in Asthma in Australia 2003 and 2005
(ACAM 2003; 2005a).
Summary of findings
Less than a quarter (23%) of people with current asthma have a written asthma action plan
(ACAM 2007a). The possession of asthma action plans increased in the early 1990s and then
decreased until 2002 (ACAM 2005a). However, the latest figures from the 2004–05 National
Health Survey indicate a small increase in the rate of possession. Adults, particularly men,
and the elderly, and persons living in less well-off areas are least likely to have a written
asthma action plan.
23
The questions used to accurately define individuals who possess a written asthma action
plan as described in the above operational definition have been the subject of survey
question development. Reliable questions to monitor this indicator have been suggested in
the recommended module of survey questions to monitor national asthma indicators
(ACAM 2007c). Further data development for this indicator may occur using general
practice data (see Section 3.4).
2.22 Proportion of people with asthma who use

‘preventers’ regularly
Numerator: Number of people with current asthma for whom preventers are indicated
and who report using a ‘preventer’ medication daily.
Denominator: Number of people with current asthma for whom preventers are indicated
(that is, who meet the National Asthma Council Australia criteria for
preventer medication or similar).
Data sources
Data relating to this indicator are available in the NHS and in state/territory CATI health
surveys. Data are also available form the Pharmaceutical Benefits Scheme (PBS) and IMS
Health pharmaceutical supply data. However, these data do not show whether the
medications were used for asthma or for other obstructive respiratory diseases.

Information relating to this indicator using data from the 2001 NHS, the PBS and IMS Health
was published in Asthma in Australia 2003 and 2005 (ACAM 2003; 2005a). More recently,
ACAM have used newly available PBS data that links the prescription history of individuals
and includes their basic demographic characteristics. This has been published in the report:
Patterns of asthma medication use in Australia (ACAM 2007b). These data were able to assess
the use of the main ‘preventer’ medication, inhaled corticosteroids, and disaggregate data by
age group, sex, socioeconomic status and remoteness of residence. However, they were not
able to identify those individuals who were prescribed the treatment specifically for asthma.
More recent NHS data have been reported in ACAM’s report: Asthma in Australia: findings
from the 2004–05 National Health Survey (ACAM 2007a).
Summary of findings
The data consistently suggest that many people with asthma who would benefit from using
inhaled corticosteroids do not use them regularly. Analysis of individuals in PBS data
identified that most people who purchased inhaled corticosteroids only filled one to three
24
prescriptions over a two-year period. Also, the majority of inhaled corticosteroids were
taken in the most potent formulation. It is likely that, for many people, their asthma could be
well controlled with less potent inhaled corticosteroids that carry fewer risks of side effects.
The majority of inhaled corticosteroids are now administered in a combined formulation
with long-acting beta agonists. This should also allow the use of lower potency of inhaled
corticosteroids, with equivalent efficacy.
Inhaled corticosteroids were used more than twice as much among people who obtained
them at a concessional rate, which suggests that the price of these medications impedes their
regular use by many individuals (ACAM 2007b).

The data sources for this indicator require development so that use of medications for
asthma can be more accurately ascertained. Questions have been proposed in the
recommended module of survey questions to monitor national asthma indicators that would
obtain self-reported measures of medication use for acute asthma (ACAM 2007c).
2.23 The proportion of people with asthma who

have had recent spirometry
Numerator: Number of claims for spirometry in a given year for people with asthma.
Denominator: Total number of people with current asthma.
Data sources
Limited information relating to this indicator has been reported in Asthma in Australia 2003
and 2005 (ACAM 2003; 2005a) using claims data from the Medicare Benefits Scheme. A
major limitation of these data is that there is no clinical information that enables the
identification of spirometry that was performed for asthma as opposed to other respiratory
conditions. This is particularly a problem among older people who may have spirometry to
assess COPD. Therefore data were separately presented in these reports for people aged 5 to
34 years, for whom it was highly probable that spirometry was used in the management of
asthma.

Available data relating to this indicator were reported in Asthma in Australia 2003 and 2005
(ACAM 2003; 2005a). These analyses presented information about the overall use of
spirometry based on claims for these services in Australia. Time trends since 1994 were
provided and differentiated between lab-based and office-based claims. The most recent
three years of data were disaggregated by age, sex, state, and socioeconomic status. As it was
not possible to differentiate claims made for asthma, data were presented as a rate per
100,000 population rather than as a proportion of people with asthma. In addition,
25
subsidiary analyses were carried out to estimate the rate of spirometry among people aged
5 to 34 years because this subgroup would have been most likely to have had the procedure
for asthma rather than some other chronic respiratory condition.
Summary of findings
Most claims for spirometry occur in the winter months. Between 1994 and 2004, spirometry
claims decreased slightly, particularly among people aged 5 to 34 years. This decrease was
mainly observed among office-based spirometry, while laboratory-based spirometry (which
comprise a minority of all claims) increased.
The highest rate of spirometry was among elderly people aged 65 to 84 years among whom
it was more common among males than females. Spirometry was also more common among
boys than girls; however, among people aged 15 to 64 years, spirometry was more common
among women.
There was substantial variation between states and territories in spirometry rates.

At present the indicator is not measurable in the recommended form. Data on Medicare
Benefits Schedule (MBS) claims for the performing spirometry are available, but it is not
possible to separately identify the occasions of service for the performance of spirometry in
people with asthma.
Development of a data source that is able to determine when spirometry is performed for the
assessment of asthma, rather than for other respiratory conditions, is needed if this indicator
is to be monitored accurately. At the time of this review, plans for enhancing the currently
available data source were not under development.
2.24 Costs of asthma
This is a composite indicator that uses data from a range of sources.
Data sources
Two data sources have been used for this indicator; the AIHW National Health Expenditure
Database, and data from the Australian Burden of Disease Study.

ACAM have produced a report: Health care expenditure and burden of disease due to asthma in
Australia (ACAM 2005c) which covers the above data sources. Expenditure data were also
included in Asthma in Australia 2005 (ACAM 2005a). These data were examined by age, sex
and health-care sector.
26
Summary of findings
In the 2000–01 financial year, health expenditure on asthma was $693 million. This was 1.4%
of total health expenditure in that year. Over half (54%) of expenditure allocated to asthma
in 2000–01 was attributed to pharmaceuticals. The proportion of health expenditure
attributed to asthma care was highest (over 25%) among children; particularly boys aged 5 to
14 years.
Overall, health expenditure on asthma increased by 21% between 1993–94 and 2000–01
(adjusted to 2000–01 dollar values). However, expenditure for asthma due to GPs and
specialists decreased.
The Australian Burden of Disease Study estimated that asthma was the leading contributor
to burden of disease among children aged 0 to 14 years—accounting for an estimated 18% of
disability adjusted life years in this age group in 1996. The estimated financial equivalent of
the burden of disease in Australia due to asthma in 1996 was $4.3 billion (2000–01 dollars).

The ability to carry out a formal economic analysis of the costs of asthma is currently beyond
the role of monitoring using routinely available data sources and further development of
this indicator is needed to ensure its intent is clear.
27
3 Review of data development activities
In 2005, a detailed asthma data development plan was released (ACAM 2005b), which
outlined a range of projects that would address the data deficiencies for monitoring the
recommended asthma indicators. These projects were grouped into a number of areas that
would engage specific collaborations including:
• development of survey questions
• data linkage
• validation of coding (hospital and mortality data)
• development of general practice data
• further investigation into dynamic health assessment to study health outcomes
• working with multiple cause of death and with multiple diagnosis hospital data
• input into national data development processes.
Here, these project areas are reviewed to evaluate the extent to which the data development
plan has been implemented.
3.1 Survey questions

In 2004, ASMA implemented a process of survey question development to identify reliable
and valid questions that can be used in health surveys to monitor the recommended asthma
indicators. This process involved key groups including the ABS and CATI Health survey
experts. The following indicators were considered in this process:
• prevalence of ever having diagnosed asthma
• prevalence of recent wheeze
• rate of exacerbations of asthma
• number of people with current asthma who have an asthma action plan
• impact of asthma on quality of life
• asthma control in people with current asthma
• prevalence of smoking in the household where children with asthma reside
• prevalence of smoking in people with current asthma
• proportion of people with current asthma who use ‘preventers’ regularly.
The process involved a detailed review of available survey questions, development of new
questions where existing questions were not available, and testing of questions for which
reliability was uncertain. The outcome was a recommended module of questions for
monitoring Australian asthma indicators (ACAM 2007c).
It is expected that the implementation of the asthma question module in a range of surveys
will facilitate improved data for asthma monitoring as well as strengthen comparisons
between surveys. Already a number of key surveys have agreed to adopt these
recommendations. The ABS have indicated that they will include the recommended question
for the ‘Prevalence of current asthma’ in the 2007–08 NHS to monitor current asthma. The
previous question used by the NHS will also be asked, so that the difference in estimates of
28
current asthma obtained by each question can be evaluated. The New South Wales Health
Survey program has also indicated that they will implement most of the recommended
questions in their asthma modules in future health surveys.
The module of recommended questions has been included in Appendix A of this report.
3.2 Data linkage

While survey data are a key source of information for monitoring several national asthma
indicators, there are important limitations in the use of surveys including:
1) most measurements are based on self-report.
2) an increasing problem with low response rates in community-based surveys leading to
possibly biased results.
3) surveys are expensive to implement.
Alternative data sources are required to complement the data obtained from surveys. One
approach has been to use routinely collected administrative health data, such as
hospitalisation and mortality statistics. In addition to their administrative purposes, these
data may provide valuable epidemiological information. They have the advantage of being
readily available and are usually complete, or nearly complete. The main disadvantage is
that, because these data have been collected for administrative purposes, they are often not
ideal for use as a source of epidemiological information. Furthermore, they represent a
limited range of information about the burden and management of asthma in the
community.
One way of enhancing the value of routinely collected administrative data has been to link
information from related data sets and also to link data for individuals within data sets (Hall
et al. 2005). Data linkage is a potentially powerful and cost effective means of achieving
health research goals, provided consideration is given to ensuring that individual privacy is
not compromised. To contend with this, anonymous linkage methods have been developed
that might increase the feasibility of this approach to research (Kelman et al. 2002).
There are two recommended asthma indicators for which data linkage would be relevant.
Both relate to hospital admissions:
• 2.15 Hospital re-admissions for asthma
• 2.16 Number of individuals with separations for asthma.
In Australia, hospitalisation records are based on hospital separations, rather than on the
individuals hospitalised. In order to monitor indicators 2.15 and 2.16, hospitalisation records
for the same person need to be linked to observe ‘people’ rather than hospital separations.
This requires that the data contain suitable information to be able to group records that
pertain to the same individual, such as a unique number for each person, or personally
identifying information such as name, address and date of birth. State-level hospital data
include personally identifying information that can be used to ‘link’ records of the same
person with a high level of accuracy. Several states already undertake hospital record
linkage on either a routine or ad hoc basis (for example, New South Wales, Victoria and
Western Australia).
However, for national monitoring purposes, it is desirable to identify a single national
source of data. The most obvious is the NHMD because it contains hospital data forwarded
from all states and territories. However, the information in this data set is more limited than
29
that held by the states and does not include variables such as names and addresses that
would typically be used in data linkage.
A major undertaking in this area by ACAM has been to investigate whether, with the more
limited range of variables, it is still possible to link hospital separations that pertain to the
same person in the NHMD. To do this, ACAM carried out a study in New South Wales
using state hospitalisation data. This study compared linkage that used all available
personally identifying information (that is names, addresses, dates of birth and other
variables) with a ‘restricted’ linkage method that used only those variables that are
forwarded to the NHMD (that is date of birth, postcode and sex) (Ringland et al. 2006). This
study was applied only to records in which the principal diagnosis code was asthma, and
found that over 95% of records identified by the first method were also identified in the
restricted linkage method.
The results of ACAM’s study suggest that hospital re-admissions for asthma can be reliably
monitored using the NHMD. The next stage will be to implement this method in the
NHMD, and approval has been given by all states and territories except Queensland to do
this. If this is successfully implemented, it will provide a national data source for monitoring
the relevant asthma indicators.
Linkage has also been used in analysing the data from the PBS database to investigate the
patterns of use of asthma medications in Australia. Since early 2002, PBS prescriptions have
included the patients’ Medicare numbers. Use of the Medicare number, which is encrypted
to protect patient confidentiality, has created the ability to anonymously identify
prescriptions for the same individuals within the PBS data and also to link information on
age, sex and home postcode. ACAM obtained these data from the DoHA for people who
were prescribed asthma medications during the period July 2002 to July 2004 and the results
of the analysis were presented in the report Patterns of asthma medication use in Australia,
published in May 2007 (ACAM 2007b).
3.3 Validation of coding

As already stated, administrative health data are a valuable source of data for monitoring a
range of the agreed national asthma indicators, particularly hospital and mortality data. The
variables within these data sets use codes from the International Classification of Diseases
(ICD). These are essential for selecting records that pertain to people with asthma.
As such, the quality of coding across the range of data sets is critical for ensuring accuracy of
the information obtained from these sources. Coding of hospital and mortality data is
carried out by individuals trained in coding. The standards for coding hospital and mortality
data are managed in Australia by the National Centre for Classification in Health (NCCH).
With each revision of ICD, an associated set of ‘coding rules’ is provided to direct
professional coders in the application of the codes. The NCCH also releases additional
guidelines to ensure that coders interpret the coding rules consistently in all jurisdictions.
The ICD is reviewed regularly and updated. Currently in Australia, mortality data are coded
using the 10th revision of ICD (ICD-10) and hospital data are coded using the Australian
Modification of the 10th revision of ICD, (ICD-10-AM).
30
Comparability factors
ICD-10 replaced ICD-9 in Australia in the late 1990s at different times in various
jurisdictions. During the transition period, dual coding projects were undertaken so that the
impact of the revised ICD could be assessed. A change in ICD-10 rules, from the previous
ICD-9, was that death certificates and hospital records that included both asthma and COPD
were more likely to be coded to COPD, rather than asthma. ACAM obtained dual coded
hospital and mortality data for asthma diagnoses to assess the impact of this change. This
study found that the change from ICD-9 to ICD-10 had a substantial impact on asthma
mortality and hospital separations data for persons aged over 35 years, but not for younger
people (Baker et al. 2003). ACAM were able to use these data to calculate comparability
factors for three broad age groups: 5 to 34 years: 1.0; 35 to 64 years: 0.84; and 65 years or
over: 0.68. Time trends that span the period when ICD-9 changed to ICD-10 can be adjusted
by multiplying data coded in ICD-9 by these comparability factors. It is now recommended
that these be applied to time series analyses of hospital and mortality data that span across
both ICD revisions so that trends are represented consistently over time (Baker et al. 2004).
Review of asthma codes

In 2005, a review by the NCCH of the ICD-10 and ICD-10AM codes used for asthma found
that there were limitations in the ability of these codes to provide information about the
types of asthma that may have clinical relevance. The NCCH proposed further study to
investigate how medical practitioners record patient information relating to asthma with a
view to making recommendations to improve the codes for asthma. This would inform
submissions into future revisions of ICD. ACAM have been invited to provide consultation
and advice on this activity.
3.4 Other data development
General practice data

GPs play a central role in managing asthma in the community. This role includes
assessment, prescription of regular medications, education and review, as well as managing
acute exacerbations.
Currently the BEACH survey has provided the most detailed source of data about general
practice activity in Australia. A sub-component of this survey are the SAND (Supplementary
Analysis of Nominated Data) modules. While the data items collected in the BEACH survey
are stable over time, SAND modules can be commissioned by organisations to survey issues
of interest.
It may be possible for ACAM to develop a SAND module to collect further information
about a number of indicators, including inhaled corticosteroid use, asthma severity and
asthma action plans. However, some caution is needed in the use of SAND modules
particularly in relation to the prescription of inhaled corticosteroids and the use of written
asthma action plans. As noted in the review of asthma indicators, these may incur bias due
to the Hawthorne effect (that is, the reporting GPs may be influenced by the survey itself to
provide asthma action plans or prescribe inhaled corticosteroids) (Baker et al. 2004). This
might be addressed by collecting information retrospectively, such as ‘before this visit, did
31
the patient have a written asthma action plan/was the patient prescribed regular inhaled
corticosteroids?’
The major limitation of BEACH and SAND data is that this survey has low response rates
and limited coverage. It is also not possible to distinguish general practice visits for routine
asthma maintenance from those for acute asthma episodes. ACAM carried out a study to see
if a combination of the variables available in BEACH among asthma-related records could
identify a subgroup of those with evidence of acute asthma (Belousova et al. 2005). This
study was not able to identify such a combination of variables.
Given the importance of GPs in managing asthma and the limitations of existing data on
primary care, developing new mechanisms for systematic collection of such data is crucial
for monitoring asthma indicators relevant to policy and practice. Virtually all GP
consultations are claimed on the Medicare Benefits Scheme. However, there is minimal data
reported through this scheme. The data set does not include any information about the
reason for the consultation or the actions undertaken. In the future, it may be possible to
include additional information or link Medicare Benefits Scheme data with other data
sources such as the PBS data set, hospital morbidity data and mortality data. This will
require collaboration among the jurisdictions responsible for these data.
Dynamic health assessment

In the report: Measuring the impact of asthma on quality of life in the Australian population
(ACAM 2004) dynamic health assessment was discussed as an option for improving the
precision of questionnaire measures, particularly those used to measure complex health
outcomes such as quality of life and asthma control.
This approach contrasts with standard questionnaire approaches in which the same
questions are administered to every person every time the instrument is used. Practical
considerations in this approach dictate that relatively few questions are used in many health
applications. This limits the precision that the questions can achieve, and may have
problems with ceiling and floor effects whereby respondents are over-represented at the
extreme ends of the scale (such as when most individuals respond ‘none’ or ‘always’ to a
question).
Dynamic health assessment seeks to address these limitations and implement questionnaires
more efficiently by using only those questions that are relevant to the individual. A way to
achieve this is by basing subsequent questions on the responses to earlier questions (Hays et
al. 2000). To do this, technology is used to select individually tailored questions from a large
pool of potential questions. This enables increased sensitivity and precision with far fewer
questions being asked.
As this is a developing area, the strengths and limitations of dynamic health assessment are
probably not yet fully realised or understood, ACAM have recommended further
investigation of this approach as a population monitoring tool (Baker et al. 2004). However,
whether or not this will be a feasible approach to use in population health surveys in
Australia is yet to be determined and currently this activity has not progressed.
32
Multiple diagnosis data
As well as the principal diagnosis in hospitalisation data, additional diagnoses are included
in routinely collected data that relate to the hospital admission. In a similar vein, mortality
data include both the underlying cause of death and also other associated causes of death.
These data may be of use either for population monitoring in asthma, particularly where
there is overlap in diagnosis such as between asthma and COPD in older people. ACAM
investigated the potential of these data in its report: Asthma and chronic obstructive pulmonary
disease among older people in Australia (ACAM 2006). It found that while there was limited
overlap between asthma and COPD, this may be a result of the requirements of ICD-10
coding rules rather than an inherent lack of overlap. Unfortunately, there were no dual
coded data for multiple diagnoses and causes of death. The study did, however, identify a
number of other interesting disease associations with both asthma and COPD, such as
increased rates of musculoskeletal disease associated with asthma. Further work in this area
is warranted.
Airway hyperresponsiveness data

The prevalence of airway hyperresponsiveness was recommended for inclusion in the set of
national asthma indicators as the only measure of the prevalence of asthma that is
completely objective and uninfluenced by labelling or diagnostic fashion (Baker et al. 2004).
Measurement of airway hyperresponsiveness requires the performance of a bronchial
challenge test. A range of challenge protocols are in current use (American Thoracic Society
2000). Substantial development is required to agree on a specific challenge protocol and a
methodology for its use in population monitoring and surveillance. As this indicator was not
likely to be able to be monitored in the foreseeable future, it was not included in ACAM’s
data development plan.
However, ACAM have since developed a detailed proposal for an Australian asthma survey
that would include a number of objective measurements including bronchial challenge
testing. Including this measure adds considerably to the complexity of the study design
because it requires that participants attend a local testing centre and consequently increases
the requirement for a clustered sample design. It also adds substantially to the cost of the
survey. Nonetheless data on airway hyperresponsiveness would be very advantageous for
monitoring asthma. At the time of this review, options for funding the proposed asthma
survey are being considered.
Input into national data development
National Data Dictionary

A number of the operational definitions from the review of indicators (Baker et al. 2004)
were recommended for inclusion in the National Data Dictionary. The submission of these
definitions for formal inclusion in the National Data Dictionary is scheduled into the
upcoming ASMA workplan, which runs from July 2007 to June 2009.
33
National emergency department minimum data set
Currently emergency department data are only available in some jurisdictions and coverage
within those jurisdictions is incomplete. The emergency department is an important point of
health-care use for asthma. Usually it reflects cases of acute asthma, although often these do
not progress to a hospital admission. Therefore, the absence of national emergency
department data may leave a substantial gap in our ability to monitor health service use for
acute asthma. Further work is needed in collaboration with health jurisdictions and the
AIHW to develop a national emergency department minimum data set.
34
4 Future directions
4.1 Ongoing monitoring

The major undertaking for monitoring asthma indicators to date has been the production of
the key reports: Asthma in Australia 2003 (ACAM 2003) and Asthma in Australia 2005 (ACAM
2005a). These reports have brought together data from a wide range of sources to describe
the current status of asthma in Australia. These documents mainly focused on reporting
information for national asthma indicators and included information on the prevalence of
asthma, medication use for asthma, possession of written asthma action plans, health service
use and deaths due to asthma.
The 2005 report also included information about health care expenditure for asthma and a
focus chapter on asthma in Australian children. Both of these reports drew on data from the
2001 NHS for a substantial proportion of the information presented. Therefore, a
supplementary report: Asthma in Australia: findings from the 2004–05 National Health Survey
was produced to provide updated information once data from the more recent NHS was
available. The next report planned will be Asthma in Australia 2008.
ACAM will continue to produce these reports that deliver information on national asthma
indicators in an accessible format. In 2006, ACAM made available a more readily accessible
version of Asthma in Australia 2005 with the inclusion of the html version on the ACAM web
site. This online version allows quick and easy movement between chapters with links to the
figures and tables. Some additional features of the online report are that all data tables have
been included with the figures and there is updated trend data.
A number of specific priorities identified by ASMA in the coming period may be addressed
through individual projects. One of these is to collate additional information about asthma in
children. Given the high level of disease burden attributed to asthma among children in
Australia, this is an important area for policy and intervention. Therefore, a project is
planned that will use a range of data sources that pertain to children to provide information
about the impact of asthma in this population.
Another area is the appropriate use of pharmaceuticals to manage asthma. ACAM have
already undertaken substantial work using PBS data. The next phase of ASMA work will
extend this by using PBS data that range over a longer time period to investigate time trends
and patterns of incident use of asthma medications.
It is important to note here that the list of asthma indicators needs to be periodically revised
to ensure that they remain relevant for national monitoring. Some indicators may become
obsolete with the evolution of knowledge and with changes in asthma-related public health
and clinical practice. With the nature of the ageing population, it will also be important to
consider the relevance of other conditions or comorbidities, which may influence outcomes,
and hence indicators, in people with asthma.
35
4.2 Refining asthma indicators
Health indicators are measures of selected aspects of health and the health system that can
be used to monitor the effectiveness and impact of the health system and of specific
interventions to improve health and provide effective, accessible and quality health care.
Disease-specific indicators, such as those for asthma, summarise data that allow the regular
reporting of disease levels, burden and trends and can be used to monitor changes over time.
They are used to examine social, geographical and environmental differentials that may
influence the development and burden of asthma.
As already stated, an important function of indicators is to track the impact of health policy,
and prevention and management strategies and to monitor progress towards targets.
In its report: Review of proposed national health priority area asthma indicators and data sources
(Baker et al. 2004); ACAM recommended 24 asthma indicators for inclusion in the Australian
System for Monitoring Asthma. Experience with the use of these indicators has led us to the
conclusion that there is a need to review them. Some are no longer relevant to policy needs.
Others are redundant: providing information that is closely correlated with other indicators.
Finally, some indicators will not be feasible to measure in the foreseeable future. The
complexity of monitoring and reporting on many indicators makes it desirable to simplify
the monitoring system where possible. This is likely to have the benefits of making
information easier for target audiences to interpret.
It is therefore worthwhile to refine the current set of asthma indicators and identify those
that provide the most information or which are most effective at signalling change. ACAM
propose to adopt a systematic approach with two components to revise the existing set of
indictors:
• Factor Analysis to identify domains of factors (that is, clusters of indicators) from data
collected on the current indicators
• A modified Delphi Survey of experts to solicit consensus opinions by ranking and
reducing the existing list to a shorter, higher priority list of indicators.
The factor analysis will yield a recommended set of independent indicators with robust
statistical properties and the expert consensus opinions will ensure clinical relevance of the
indicators. The key asthma indicators identified as a result of this process will provide high
quality information on asthma in the population.
These indicators will help ensure greater consistency in the provision of health services to
individuals with asthma; to provide important support and justification for future human
resource planning; and to inform and assist policy and decision-makers in addressing future
asthma health resource planning and allocation requirements.
36
References
ABS (Australian Bureau of Statistics) 2006. Causes of death, Australia, 2004. ABS cat. no.
3303.0. Canberra: ABS.
ACAM (Australian Centre for Asthma Monitoring) 2003. Asthma in Australia 2003. AIHW
Asthma Series 1. Cat. no. ACM 1. Canberra: AIHW.
ACAM 2004. Measuring the impact of asthma on quality of life in the Australian population.
Cat. no. ACM 3. Available at <www.asthmamonitoring.org>. Canberra: AIHW.
ACAM 2005a. Asthma in Australia 2005. AIHW Asthma Series 2. Cat. no. ACM 6. Available
at <www.asthmamonitoring.org>. Canberra: AIHW.
ACAM 2005b. Enhancing asthma-related information for population monitoring. Cat. no.
ACM 4. Available at <www.asthmamonitoring.org>. Canberra: AIHW.
ACAM 2005c. Health care expenditure and the burden of disease due to asthma in Australia.
Cat. no. ACM 5. Available at <www.asthmamonitoring.org>. Canberra: AIHW.
ACAM 2006. Asthma and chronic obstructive pulmonary disease among older people in
Australia: deaths and hospitalisations. Cat. no. ACM 7. Available at
<www.asthmamonitoring.org>. Canberra: AIHW.
ACAM 2007a. Asthma in Australia: findings from the 2004–05 National Health Survey.
Available at <www.asthmamonitoring.org>. Cat. no. ACM 10. Canberra: AIHW.
ACAM 2007b. Patterns of asthma medication use in Australia. Available at

<www.asthmamonitoring.org>. Cat. no. ACM 11. Canberra: AIHW.
ACAM 2007c. Survey questions for monitoring national asthma indicators. Cat. no. ACM 9.
Canberra: AIHW. Viewed 9 May 2007, < www.asthmamonitoring.org>.
AIHW (Australian Institute of Health and Welfare) 2000. National health priority area
indicators for monitoring asthma. Report of a consultation workshop. Canberra: AIHW.
American Thoracic Society 2000. Guidelines for methacholine and exercise challenge testing
- 1999. American Journal of Respiratory and Critical Care Medicine 161:309–29.
Baker DF, Marks GB, Walker S, Xuan W, Van der Hoek R & Hargreaves J 2003. The impact
of changes to disease coding on asthma mortality and hospital morbidity statistics.
Presented at Thoracic Society, Australia and New Zealand Conference, Adelaide, March.
Baker DF, Marks GB, Poulos LM & Williamson M 2004. Review of proposed National Health
Priority Area asthma indicators and data sources. AIHW cat. no. ACM 2. Available at
<www.asthmamonitoring.org>. Canberra: AIHW.
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Belousova E, Williamson M, Britt H, Correll PK & Marks G 2005. General practice
encounters for acute asthma. Respirology 10 (Suppl.):A36.
DoHA (Commonwealth Department of Health and Ageing) 2002. GP asthma initiative. 10

September 2002. Viewed 19 March 2003, <www.health.gov.au/pq/asthma/3plus.htm>.
DoHA (Commonwealth Department of Health and Ageing) 2003. The Asthma 3+ Visit Plan.
National Health Priorities and Quality. Viewed 12 May 2003,
<www.health.gov.au/pq/asthma/3visitpln.htm>.
Downs SH, Marks GB, Belousova EG & Peat JK 2001. Asthma and hayfever in Aboriginal
and non-Aboriginal children living in non-remote rural towns. Medical Journal of Australia
175:10–3.
Hall SE, Holman CDJ, Finn J & Semmens JB 2005. Improving the evidence base for
promoting quality and equity of surgical care using population-based linkage of
administrative health records. International Journal for Quality in Health Care 17:415–20.
Hays RD, Morales LS & Reise SP 2000. Item response theory and health outcomes
measurement in the 21st century. Medical Care 38:II–28–42.
Kelman CW, Bass CJ & Holman CDJ 2002. Research use of linked health data–a best practice
protocol. Australian and New Zealand Journal of Public health 26:251–5.
Ringland C, Correll PK, Lim KH, Williamson M & Marks GB 2006. Hospital readmissions for
asthma: a feasibility study comparing strategies for linking hospital morbidity data.
Australian and New Zealand Journal of Public Health 30:435–9.
Toelle BG, Ng K, Belousova E, Xuan W, Salome CM, Peat JK et al. 2003. Trends in the
prevalence of asthma over 20 years in Belmont, NSW, Australia. American Journal of
Respiratory and Critical Care Medicine 167:A470.
Toelle BG, Ng K, Belousova E, Salome CM, Peat JK & Marks GB 2004. Prevalence of asthma
and allergy in schoolchildren in Belmont, Australia: three cross sectional surveys over 20
years. British Medical Journal 328:386–7.
38
Appendix A
Table A1: Recommended questions to monitor selected national asthma indicators
Indicator Recommended questions Response categories
Prevalence of recent 1: Have you had wheezing or whistling in your chest at any time Yes
wheeze in the last 12 months? No
Prevalence of ever having 2: Have you ever been told by a doctor or a nurse that you have Yes
diagnosed asthma asthma? If yes, No
Prevalence of current 2a: Have you had symptoms of asthma or taken treatment for Yes
asthma asthma in the last 12 months? No
Rate of exacerbations of 3: At any time in the last 12 months, was your asthma worse or Yes
asthma out of control? If yes, No
3a: In the last 12 months, how many times have you gone to a Number of times
hospital or emergency department because your asthma was None / No times
worse or out of control?
3b: In the last 12 months, how many times have you consulted a Number of times
GP or local doctor because your asthma was worse or out of None / No times
control?
Number of people with 4: Do you have a written asthma action plan, that is, written Yes
current asthma who have instructions of what to do if your asthma is worse or out of No
an action asthma plan control?
Impact of asthma on quality 5.1: During the last 4 weeks how often did your asthma interfere All of the time
(a)
of life with your daily activities? Most of the time
Some of the time
None of the time
5.2: Sydney Asthma Quality of Life Questionnaire (20 items) Full questionnaire reproduced in
Appendix A of ACAM 2007c
5.3: Paediatric Asthma Quality of Life Questionnaire (23 items) Permission required for use from
Elizabeth Juniper
<www.qoltech.co.uk>
Asthma control in people 6.1: In the last 12 months, has wheezing ever been severe Yes
with current asthma enough to limit your speech to only one or two words at a time No
between breaths?
6.2: In the last 4 weeks, how often did you have symptoms of Every day
asthma; that is wheezing, chest tightness, coughing or 3 or more times a week
shortness of breath? 1 to 2 times a week
Less than once a week
6.3: In the last 4 weeks, have you been woken by asthma or Yes
wheezing? If yes, No
6.3a: In the last 4 weeks, how many nights have you been Number of times
woken by asthma or wheezing? None / No times
6.4: See also questions 9 and 9a. These questions will be used
to assess the use of reliever medications as an indicator of
asthma control.
(continued)
39
Table A1 (continued): Recommended questions to monitor selected national asthma indicators
Indicator Recommended questions Response categories
Prevalence of smoking in 7: Which of the following best describes your home My home is smoke free
the household where situation? People occasionally smoke in the
children with asthma house
(b)
reside People frequently smoke in the
house
Prevalence of smoking in 8: Do you currently smoke? If yes, Yes

people with current No
(b)
asthma
8a: Do you smoke at least once a week? Yes
No
Proportion of people with 9: What are the names or brands of all the asthma Interviewers will have an updated
current asthma who use medications you have used in the last 4 weeks? list of currently available asthma
preventers regularly If any medications identified: medications. All responses in the
list to be checked. Medications
stated but not in the list to be
recorded under ‘other’
9a: How often did you use {name of medication} in the last 4 Every day
weeks? (loop for each type of medication) 3 or more times a week
1 to 2 times a week
For this indicator, these questions will be used to assess the
Less than once a week
frequency of use of preventer medications.
Not at all
(a) Only asthma-specific health-related quality of life measures have been included in this asthma module. However, generic quality of life
measures may also be used in many surveys that, when used in conjunction with the questions identifying people with current asthma, can
be useful for making comparisons between people with and without asthma.
(b) These questions are not asthma-specific and, for asthma monitoring purposes, would need to be used in conjunction with the questions
identifying people with current asthma. However, the selected questions were included in the asthma module because they are able to
measure the established asthma indicator consistently with its operational definition.
40

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Australian asthma indicators

Five-year review of asthma monitoring in Australia

Five-year review of asthma monitoring in Australia

Australian Centre for Asthma Monitoring

Australian Institute of Health and Welfare

ISBN 978 1 74024 730 6

Australian Institute of Health and Welfare

Any enquiries about or comments on this publication should be directed to:

Published by the Australian Institute of Health and Welfare

Australian System for Monitoring Asthma

What have we achieved so far?

Reporting and whether or not recom-

Asthma in Australia: findings from 9

Asthma in Australia 2003

Asthma in Australia 2005

Asthma in Australia 2005

Prevalence of None reported Further work is required. A workshop to bring together

Reporting and whether or not recom-

Patient days for asthma Asthma in Australia 2003 9

Reporting and whether or not recom-

Asthma in Australia 2005

(a) State-level data reported using recommended definition.

2.1 Prevalence of ever having doctor-diagnosed

Summary of monitoring activities

Data development issues

2.2 Prevalence of current asthma

Summary of monitoring activities

Data development issues

Summary of monitoring activities

Data development issues

Summary of monitoring activities

Data development issues

2.5 Impact of asthma on quality of life

Summary of monitoring activities

Data development issues

Summary of monitoring activities

Data development issues

Summary of monitoring activities

Data development issues

Summary of monitoring activities

Data development issues

Summary of monitoring activities

Data development issues

2.10 Prevalence of smoking in the household where

Summary of monitoring activities

Data development issues

2.11 Prevalence of occupational asthma

Summary of monitoring activities

2.12 Proportion of schools using the Asthma

Numerator: Number of students in schools recognised as using the Asthma Friendly

Summary of monitoring activities

Data development issues

2.13 Hospital separation rate for asthma

Summary of monitoring activities

Data development issues

2.14 Hospital patient days for asthma

Summary of monitoring activities

Data development issues