Support, Communication, and Hardiness in Families With Children With Disabilities
Support, Communication, and Hardiness in Families With Children With Disabilities
Support, Communication, and Hardiness in Families With Children With Disabilities
The purpose of this study was to examine how support and communication
are related to hardiness in families who have young children with
disabilities. A sample of 108 parents (54 couples) of preschool-age
children with disabili-ties completed the measures. Among demographic
variables, family income was positively correlated with family hardiness.
Hierarchical regression analyses revealed perceived family support as a
predictor of family hardiness for both parents. Incendiary communication
was negatively related to family hardiness for mothers, whereas income
was positively associated with fathers’ assessments of hardiness. Results
provide family nurses with a foun-dation for exploring constructs
important to help families with children with disabilities.
Theoretical Foundations
Family Hardiness
the internal strengths and durability of the family unit and is character-ized
by a sense of control over the outcomes of life events and hard-ships, a view
of change as beneficial and growth producing, and an active rather than
passive orientation in adjusting to and managing stressful situations. (M. A.
McCubbin et al., 1991)
Family Support
Family Communication
The purpose of this research was to examine how family support and
perceptions of family incendiary communication are related to hardiness
in families where there is a child with disabilities. We obtained data from
both parents on all variables. We asked two spe-cific research questions:
(a) How are demographic control variables, family communication, and
family support linked to family hardi-ness in families where there is a
young child with disabilities? and (b) Are the patterns of relationships
different for fathers and mothers?
METHOD
Design
Participants
abilities were defined as any condition that qualified the child for services
of federally mandated early intervention educational pro-grams in the
United States. A variety of disabilities was represented, including speech
disorders, visual and hearing impairments, cerebral palsy, autistic
disorders, developmental delays, Down syndrome, and other types of
mental retardation. Most of the children had multi-ple disabilities.
Approval was obtained from review boards of all agencies involved.
Procedures
Instruments
reported coefficient alpha for the entire scale was .77. Test-retest reli-
ability, taken 1 month apart, was .75. Criterion validity was sup-ported in
a number of studies that examined relationships between the total scale
score and subscales and family, parent, and parent-child outcome
measures. For this study, mothers and fathers evalu-ated their perceptions
of helpfulness of different sources of support using a 5-point Likert scale
anchored by 1 (not helpful at all) and 5 (extremely helpful). Mean scores
for the immediate family and formal kinship subscales (measuring the
helpfulness of spouses, parents, and relatives) were summed. Cronbach’s
alpha for this measure was .86 for fathers and .77 for mothers.
Data Analysis
Descriptive statistics for each measure for mothers and fathers were
first calculated. Zero-order correlations and hierarchical regres-sion
analyses were then performed to examine the relationships
Mothers Fathers
M SD M SD Possible Range
RESULTS
Descriptive Statistics
Means, standard deviations, and ranges for the predictor and outcome
variables are shown in Table 1. Means for family hardiness (mothers =
2.35, fathers = 2.39) are comparable to the mean of 2.37 reported by H. I.
McCubbin, Thompson, and Pimer (1986) in a sample of 304 parents. The
means of the hardiness scores in this study were higher than those found
by Failla and Jones (1991) in a study of 57 families with children who
have developmental disabilities. H. I. McCubbin and colleagues (1986)
reported a mean for incendiary com-munication of .84, with a standard
deviation of .56. Our sample had lower means and standard deviations
than found in McCubbin’s study, suggesting there were fewer negative
interactions and com-munications. Examination of the social support score
suggests that for both parents, immediate family ties generally ranged
from helpful to very helpful.
Preliminary Analyses
Family Incendiary
Hardiness Income Support Communication
Hardiness 1.00
Income .31* (.37**) 1.00
Family support .34* (.51***) .09 (–.01) 1.00
Incendiary
communication –.49*** (–.34**) –.07 (–.26*) –.03 (–.27*) 1.00
hardiness (mothers: r = .31, p < .05; fathers: r = .37, p < .01). As a result,
that variable was controlled in the multiple regression analyses. In
addition, two unpaired t tests were performed with gender of the child
with a disability as the independent variable and fathers’ and mothers’
hardiness as the dependent variables. There were no signifi-cant
differences between groups on either dependent variable; there-fore,
gender was not used as a control in the multiple regression analyses.
Bivariate Correlations
Model 1
Income .31* .10* .10 .37* .14* .14
Model 2
Income .28 .10* .20 .38** .26*** .40
Family support .32* .51***
Model 3
Income .25 .21*** .41 .35** .01 .42
Family support .31* .48***
Incendiary
communication –.46*** –.12
2
Adjusted R .36 .37
ness, and fathers’ scores predicted fathers’ hardiness. For mothers, the
final model accounted for 36% of the variance and for fathers, 37% of the
variance.
Specifically, in the final model for mothers, incendiary communi-cation
was the strongest predictor (β = –.46, p < .001), followed by fam-ily
support (β = .31, p < .05). In the final father model, family support was the
strongest predictor (β = .48, p < .001); income also was a sig-nificant
predictor (β = .35, p < .01).
DISCUSSION
Research Implications
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Elaine Sorensen Marshall, R.N., Ph.D. (University of Utah), is the associate dean of
research and scholarship at the College of Nursing at Brigham Young University. She
has done research on children’s stress and coping as well as on family adaptation to a
child with disabilities. Recent publications include (with C. O. Conger) “Recreating
Life: Toward a Theory for Relationships in Acute Home Care” (Qualitative Health
Research, 1998) and “Daily Stressors and Coping Responses: A Comparison Between
Rural and Suburban Children” (Public Health Nursing, 1994).
Tina Taylor Dyches, Ed.D. (Illinois State University), is an assistant professor in the
Department of Counseling Psychology and Special Education at Brigham Young
University. She is involved in research on the education and treatment of individuals
with severe disabilities and autism. Publications include “Effects of Switch Training on
the Communication of Children With Autism and Severe Disabilities” (Focus on
Autism and Other Developmental Disabilities, 1998) and (with G. S. Gibb, C. F.
Ingram, K. W. Allred, M. W. Egan, & J. R. Young) “Developing and Evaluating an
Inclusion Program for Junior High Students With Disabilities: A Collaborative Team
Approach” (B.C. Journal of Special Education, 1998).
Nancy Sansom, M.S. (San Francisco State University), is a doctoral candidate in the
School of Family Life at Brigham Young University and an occupational therapist.