SINews Issue Number 1
SINews Issue Number 1
SINews Issue Number 1
Colorado
http://www.strengthinnumbers.org/
The Official Newsletter for the Colorado Chapter of Strength in Numbers
W i n t e r 2 0 0 7— 0 8
V o l u m e I , Is s u e I THE START OF DENVER’S UB2
December 14, 2007
By Rod Rushing
Inside this issue
Welcome Sin members, community members, service providers and future SIN mem-
Start of Denver’s UB2 1 bers:
This is the first edition of the Strength In Numbers (SIN) newsletter. It has been so
Letter from SIN Founder 1 much fun connecting with other men and putting this together. It certainly is not per-
fect, but hopefully it will get better over time with your help and input. Individually, we
Changes to Ryan White Part 2 all have a good working knowledge of how to take care of ourselves. Imagine how much
B Program stronger that effort can be if we put that knowledge together. We definitely welcome
your feedback and your input to help make this newsletter a useful tool for both new
SIN Trip to Pike’s Peak 3 positives and for those long-term warriors.
Updated ADAP-Approved 4 When Bryan Levinson wrote me a note informing me that he made me the moderator for SIN Colorado, I
Medications thought he was crazy. I had so many things going on; I did not imagine I had the time to devote to such
an undertaking. But I knew things might be a bit up in the air following Chuck Lane’s passing. Therefore,
Community Ed. Forums 5 I thought I would temporarily take the responsibility to help out.
As it turns out, this has been one of the must fun responsibilities I’ve had in quite awhile. I have met so
Coffee Talk 6 many great guys who happen to be poz. I have had laughs, and my share of coffee, resulting in a rekin-
dled desire to take better care of my own health. It has also afforded me to offer some of my own insight
Shadowcliff Retreat 2008 6 to other poz guys. I have learned quite a bit these last few months, but most importantly, how good it
feels to share what I have lived.
Clinical Trials Update 7
(Continued on page 3)
Men4Men4Life.com 7
Sincerely,
Rod Rushing
Strength In Numbers Colorado
Rebuilt + Committee
U P DA T E D ADAP A P P ROV E D M E D I C A T I O N S
AS OF DECEMBER 7, 2007 THE FOLLOWING MEDICATIONS HAVE BEEN ADDED
TO THE COLORADO ADAP FORMULARY.
Smoking Cessation:
• Varenicline (Chantix)
Women's Care:
• Low dose Birth Control pills
• (Alesse) or Generics: Aviane,
Strength in Numbers Page 5
C O M M U N I T Y E D U C AT I O N A L F O RU M S
The Educational Forums are programs on HIV and HIV-related topics. They strive
to be informative and useful for people living with HIV. They are organized and con-
ducted with the belief that KNOWLEDGE IS POWER! The Education Forums afford
an opportunity for POZ individuals to socialize and network.
They typically start between 6 and 6:30 p.m., and offer a free dinner. The Education
Forums were started and organized by the PWA Coalition (now defunct) about 12
years ago. Then they were organized by CAP for several years. Currently, they are
being coordinated each month by a small group of individuals. These individual are
not associated with any agency (hence the motto: “by the community, for the com-
munity”). If you would like to help plan the Educational Forums, please send an e-
mail to Michael at [email protected] or call 303.587.0233. We would like
to have more community involvement.
The September forum was about co-morbidities (how other health issues affect HIV
& vice versa). The October forum was in conjunction with BCAP in Boulder on living
better with new treatments and ways to deal with complications. The November forum was about the immune system and therapies.
In December, the Forum entailed a treatment update from the very knowledgeable doctors at the University of Colorado Clinic.
The Educational Forums are programs on HIV and HIV-related topics. They strive to be informative and useful for people living with
HIV. They are organized and conducted with the belief that KNOWLEDGE IS POWER! The Education Forums afford an opportunity
for POZ individuals to socialize and network.
They typically start between 6 and 6:30 p.m., and offer a free dinner. The Education Forums were started and organized by the PWA
Coalition (now defunct) about 12 years ago. Then they were organized by CAP for several years. Currently, they are being coordi-
nated each month by a small group of individuals. These individual are not associated with any agency (hence the motto: “by the com-
munity, for the community”). If you would like to help plan the Educational Forums, please send an e-mail to Michael at
[email protected] or call 303.587.0233. We would like to have more community involvement.
The September forum was about co-morbidities (how other health issues affect HIV & vice versa). The October forum was in conjunc-
tion with BCAP in Boulder on living better with new treatments and ways to deal with complications. The November forum was about
the immune system and therapies. In December, the Forum entailed a treatment update from the very knowledgeable doctors at the
University of Colorado Clinic.
The community forums have been held in a variety of locations, but we think the rest of this year will be in the community room of Our
Saviors Lutheran Church at 9th & Emerson. It’s in a central location with decent parking & bus service, has a kitchen for catering and
preparation, plenty of tables & chairs, a screen, PA system, etc.
The Educational Forums do not require individuals to RSVP. They are typically scheduled on Monday, Tuesday, or Wednesday eve-
nings the first or second week of each month. For 2008, these will mostly be held on Tuesdays. A limited number of flyers are distrib-
uted at various agencies and clinics, as well as the food bank at CAP, and in the monthly CAP Notes newsletter. We also have an e-
mail distribution list. If you would like to be notified of these forums by e-mail, please request that in an e-mail to: fo-
[email protected]. Remember we will NOT share your e-mail and only use it for forum notification. We will always BCC (blind
carbon copy) to hide your e-mail address.
Coffee Talk
By Kevin Dougherty
S H A D OW C L I F F H I V R E T R E AT 2 0 0 8
The 2008 Shadowcliff Retreats will be held June 19-22 and July 17-20.
These annual retreats are held at the Shadowcliff Lodge in Grand Lake, Colorado. The Retreat begins on
Thursday afternoon and concludes on Sunday afternoon. Shadowcliff is a beautiful historic mountain lodge
adjacent to Rocky Mountain National Park (and several park trailheads), built on cliffs overlooking the lake,
the mountains, and the town of Grand Lake. Our retreat has exclusive use of all facilities for the entire week-
end.
The Shadowcliff HIV Retreat is always an exceptional, empowering experience for the participants and volun-
teers. The Retreat is a 3-day event with a full program of workshops & forums, a variety of body therapies, and
other social activities. The purpose of the Retreat is to provide a proactive environment where people can
empower themselves with skills and knowledge about health, healing, and coping, in a social setting of fellow-
ship, safety and acceptance, in conjunction with various body therapies and other activities.
Previous year’s presentations and workshops have included: HIV and Nutrition, Native American Healing Practices, Energy Work, HIV Treat-
ment Updates, Living Well with HIV & Coping with Side Effects, Meditation, T’ai Ji & Qi Qong, Journaling, Art Therapy, Cooking Classes, Yoga,
light exercise, breath work and healing circles. A variety of body therapies have always been offered – Massage, Reiki, Acupuncture, Reflex-
ology, Chiropractic, Energy Work, Belief-Shifting, and more (all volunteers are certified and/or licensed practitioners, in compliance with Colo-
rado laws). The presenters, workshop leaders, and therapists all volunteer their time.
Other activities include hikes and nature walks in Rocky Mountain National Park (which borders the property), boat rides on Grand Lake (also
known as Spirit Lake), and other social and group activities. The Retreat prohibits illegal drugs and alcohol, and Shadowcliff is a non-smoking
facility.
The cost of the retreat starts at $80 for persons with HIV. This includes 3 nights lodging, all meals, social & educational activities, workshops,
and all body therapies. Transportation to the site can be provided if needed (from Denver). Registration forms will be available February 1st
(or sooner) by e-mail, on the website, and also on paper through most AIDS service organizations and medical clinics in Denver and Colo-
rado.
If you have questions or would like more information, please contact Michael at:
[email protected] -or- 303.587.0233
www.shadowcliff.org/sc_programs/hivretreat.htm
Strength in Numbers Page 7
F A S T E N Y O U R S E A T B E LT S . . .
By Arthur W. Powers
For this first issue of SINEWS, and in future issues, this column will be devoted to the immense
importance of AIDS/HIV related public policy and political developments, generally, in Colorado.
AIDS/HIV public policy and political developments deserve our close, heart-felt attention and en-
gagement because, among the many facets that comprise our lives, being a Person Living With
HIV/AIDS is inherently political, in my view, whether we consciously acknowledge this (or not) as
we navigate through our daily lives and our endeavors to survive and THRIVE! (The abbreviated
name of the HIV/AIDS community advocacy organization this writer and colleagues founded this
year, see below).
First, though, I wish to acknowledge the wonderful and watershed initiative-taking that Rod,
Chris, Henry, Kevin, and Ron have exercised in developing and publishing for SIN - Colorado the
newsletter that you are either reading from your E-mail or holding in your hands. When the Colo-
rado AIDS/HIV communities lost the historic P.W.A. Coalition and its superb publication, RESO-
LUTE, in 2004, we lost a crucial pillar of communication and information-sharing invented by Chad
Kenney in 1988 and refined by Jeff Davis, Chad, and Sarah Brighton subsequently over years of
service by both men and Sarah. Chad and Sarah remain among us, thankfully, Jeff tragically does
not. I see this SIN - Colorado newsletter as the harbinger of great things to come in terms of a
restoration of an information and communication vehicle for our communities statewide, poten-
tially, and, whatever may evolve with SINEWS in the future, right now our thanks are owed to Rod,
Chris, Henry, Kevin, and Ron.
Many of us are able to recall the famous line of Betty Davis from the film, ALL ABOUT EVE, "Fasten your seat belts; it's going to be a
bumpy night!" Well, the upcoming Colorado State Legislative Session of 2008 starting this January will have potentially vast implica-
tions for all of us in the AIDS/HIV community and for the majority of Coloradans, generally, because the most prominent, banner theme
of this next legislative session (and probably the 2009 legislative session, as well) will be HEALTH CARE REFORM which Colorado's woe-
fully inadequate and crisis-ridden health care system desperately needs. Approximately 800,000 persons in our state of just over 4
million residents have NO health insurance whatsoever, a difficult-to-determine number of whom are persons living with HIV including
this writer, making access to health care profoundly problematic and deeply anxiety provoking for all of us without insurance. {Many
others are painfully under-insured with high deductibles and co-payments for primary care and prescription drugs, as well.} Of course,
this is especially true for those of the uninsured (and under-insured) who, like us, experience chronic or terminal illness, and have to pay
"out-of-pocket" for some or all of our medical (and mental health) care such as the HIV anti-retroviral and opportunistic conditions fight-
ing drugs, and related T-cell and viral load testing, that are central to keeping you and me alive. As someone without health insurance
myself, I am keenly aware that in this upcoming legislative session as in the past, I will be advocating for our lives and well-being with
my colleagues in CORA (Colorado Organizations Responding to AIDS) as I join with many terrific advocates from other disability and
chronically-ill related communities (and others) who are members and/or representatives of "vulnerable populations" to achieve over
the next two years as beneficial a set of TRUE health care reform outcomes for all our communities as we may extract from a political
process which will present many challenges (and adversaries) for us. We have a bumpy ride ahead, indeed.
In the span of twenty-two years, since 1986, of Colorado State legislative advocacy in which I have engaged with wonderful col-
leagues and friends both living and, sadly, too many passed away on behalf of the interests of the AIDS/HIV communities of our state,
few legislative sessions have seemed to me as important as the two coming our way over these next two years. In these pages, I will
strive to keep our community, for me our family in a very real sense of the term, informed of broad developments, state legislatively, as
they unfold. Much work already has been done preparatory for the legislative session of 2008 on behalf of our communities - our inter-
ests have been represented at many of the key "tables," such as the Colorado Health Care Reform Commission, and in key organiza-
tions revolving around health care reform and other issues - and much lays ahead with deep meaning and significance for the well-being
of all of us.
Of course, we also have going on all around us the inestimably important election cycle of 2008, the reauthorization of the Ryan
White Care Act in two years, and a host of other, public policy related developments perpetually in motion to consider, track, and with
which to be DIRECTLY involved, too. After all, as my friends and colleagues in the disability communities emphasize, "If it is about us
and affects us, NOT WITHOUT US, ever!" Since the Spring of 1982 with the Gay and Lesbian Health Alliance of Denver (GLHAD) -
founded by Barry Gaspard and Barry Kryzweicki (may their contributions and those of many others with whom I have worked then and
since never be forgotten) - which is when my work on AIDS/HIV public policy and other issues started, I have dedicated my life and my
life force and health to this principle as a person living with HIV/AIDS for over twenty-six years, now.
Please write us at this newsletter by way of the SIN website or write me directly (constructively, please). Having an authentic dia-
logue or "conversation" in our "family" will only help our advocacy efforts in the future, and, gee, here's a thought, could be a whole lot of
fun, too!. Thank you for your attention. - Arthur W. Powers, Managing Director, THRIVE (!): The Persons Living With HIV/AIDS Initiative of
Colorado ([email protected]).
Strength in Numbers Page 9
C I RC L E S O F L I F E : P O Z I N R E C OV E RY
By Jim Erickson
I am in the flow of the circles of life so that I am never alone. This is a phrase from my daily mantra that keeps me grounded: Alive to
live, Awake to love, Alert to grow, Aware to forgive, I accept to welcome all.
I take my inspiration for circles from an essay by Ralph Waldo Emerson, in it, he writes: “The eye is the first circle; the horizon which it
forms in the second; and throughout nature this primary picture is repeated without end.” I tested positive in July 1995. I learned from
the outset that I was a person living with HIV. I grew in my acceptance of this from my first experiences at the AIDS Alternative Health
Project, in Chicago and then by moving to Colorado and being under the care of Dr. Charles Steinberg, founder of AIDS, Medicine and
Miracles in Boulder.
My life has been an ever changing of cycles, t-cells up and down and now back up to 800, 33 pills a day to 9 pills each day, not to men-
tion the endless articles I’ve read and conversations I have had about HIV, long before we knew what to call it. I lived when many others
I knew did not, and even that would not take away my desire to escape from how to cope with my feelings about this disease. It was my
diagnosis at 35 that made me seek the escape that would eventually lead me to my next acceptance: that I was addicted. It then took
me almost another 10 years of dancing with fate before one day I realized that I was also a person living with addiction.
My holistic approach to living with HIV served as my example of how I could grow with living with my addictions. My clean date is 2
March 2005, free from alcohol and drugs.
In recovery I live in the workings of the 12-Step Programs. I was attracted to my first sponsor because he identified himself as a person
with HIV. If I was learning to live with my HIV, then I also would need to integrate this knowledge into how I would live as an addict. To-
day, I do this on a daily basis, one day at a time.
In my experience with being poz, step one tells me that I am powerless and my life is unmanageable with being HIV positive. That is the
diagnosis, the next eleven steps tell me of the remedies to deal with being positive. I learned to take my meds with regularity and to be
thankful for the doctors that prescribe them to me, and the researchers that have afforded me an opportunity to live well beyond what I
first anticipated. Recovery has challenged me to grow spiritually and to deepen my first encounters with HIV, because these experiences
were positive. The circles of my life began to take shape as I see how my life has developed. I know today that the flow of my life, from
living with HIV as well as living with addictions is an amazing cycle of transformation. Today I am all about change because that is what
works in my life.
I find myself today in another cycle of change, one circle of life changing to another circle of life, and yet they each overlap. I find myself
in continuous change. I comprehend Emerson’s thought, when he says: “Our life is an apprenticeship to the truth that around every
circle another can be drawn; that there is no end in nature, but every end is a beginning.” Being an addict and being HIV positive are
only a series of definitions of who I am today. I am in the flow of the circles of life so that I am never alone. Today, my life centers around
my recovery and because of this my life has changed. I take my meds and attend lots of meetings and reach out to others. In learning to
live with the disease of addiction, I have been able to grow in my recovery. I have also been able to improve my health with being HIV
positive. I am never alone.
Several months ago a friend introduced me to SIN, and since then I have grown to believe that we are Strength in Numbers. My world
has brightened as I have grown in fellowship with others on this journey. The potential of ub2 poz gay men is limitless. I welcome this
challenge to grow in new ways. Today, I integrate my life with this acceptance, and once again I see how I am in the flow of the circles of
life. Thank you for allowing me to overlap into your flow of the circles of life. I look forward to change.
Strength in Numbers Page 10
WEBSITES:
www.aidsinfonet.org —great fact sheets on HIV / AIDS
www.aidsinfo.nih.gov
www.projectinform.org.index.shtml —comprehensive fact sheets
www.hivresources.com
www.aegis.com —AIDS Education Global Information System
The intention of the Resource section is to provide a concise practical HIV guide for the community
to reference. If you have a resource, or have accessed an HIV resource that has been beneficial,
please submit it to the SIN website, message section, so that it may be added.
Strength in Numbers Page 12
Numbers
SIN COLORADO
LIST OF UPCOMING EVENTS
January February