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Aim. The purpose of this study was to explore the essence of family experiences in terms of family resources and how these assist
a single-parent caring for a child with cancer.
Background. When families face stresses caused by cancer, they need to readjust their roles, interactive patterns and relationships, both inside and outside the family. During the adaptation process, family resources may assist recovery from stress
and a return to equilibrium. Most research has emphasised the support resources available to two-parent families during the
treatment process. There is a lack of information on the experiences of single-parent families and their available resources
together with the functions and roles played by family resources during the adjustment process.
Design. Qualitative.
Results. Five major themes were identified: (i) facing the disease with courage; (ii) hope kindled by professionals; (iii) constructing parental role ability; (iv) assisting the children to live with the illness; and (v) family flexibility.
Conclusion. The results of the current study demonstrate that single-parent families with a child suffering from cancer employ
family resources to assist family adjustment and to maintain family function/equilibrium. These results explain the dynamic
interactions between the multiple levels of resources available to the family.
Relevance to clinical practice. The study results provide evidence-based information that identifies the nature of family resources
in single-parent families and describes how these resources can be applied to assist the families.
Key words: cancer, child nursing, family health, family nursing, nurses, phenomenology
Accepted for publication: 14 January 2008
Taipei, Taiwan
Correspondence: Pei-Fan Mu, Institute of Clinical Nursing,
National Yang-Ming University, Taipei, Taiwan. Telephone: +886
2 28267163.
E-mail: [email protected]; [email protected]
Introduction
2008 The Authors. Journal compilation 2008 Blackwell Publishing Ltd, Journal of Clinical Nursing, 17, 27412749
doi: 10.1111/j.1365-2702.2008.02447.x
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Literature review
McCubbin and McCubbin (1993) defined family resources as
the resources applied in dealing with stress during the
adaptation stages when families undergo stressful events.
When families face stresses such as those caused by cancer,
including prolonged treatment and life-threatening developments, they need to readjust their roles, the pattern of
interactions in the family and the relationships inside and
outside the family. During the adaptation process, family
resources may assist families to recover from stress and return
to equilibrium.
Children with malignancy undergo an extremely unpleasant series of experiences that affect both the child and the
family. The most common findings with respect to these
impacts are physical-psychosocial in nature (Hedstrom et al.
2003) and involve parental and family psychological reactions (McGrath 2001a), parental role stress, changes in the
family relationships and adjustments in family functioning
(Mu et al. 2002). Whether or not parents can successfully
adapt to the process depends greatly on the support provided
by individuals, the family and the social system (McCubbin
& McCubbin 1993).
Only a few studies have used the phenomenological
approach to investigate parental experiences when caring
for a child with cancer. McGrath (2001b) used the phenomenological method to investigate support issues among
parents when a child had leukaemia. The findings indicated
that the need for support was intense and that offers of
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Methods
Based on Colaizzi (1978), a phenomenological approach was
used. The purpose of the phenomenological philosophy is to
understand the essential structure of an individuals experiences from their own viewpoint. The goal of the phenomenological approach is to describe the experiences of the
participants to discover any common meanings or characteristics together with any underlying empirical variations of a
given phenomenon (Girogi 1997).
Participants
The current study used purposive sampling. Participants were
invited to join the study while they attended one of three
medical centres in Taiwan. The medical centres were standardised in terms of physical and personnel quality control as
stipulated by the government. The services provided primary
care nursing in a paediatric oncology setting and has done so
for many years. The criteria for inclusion were: (i) a singleparent family having a child of <18 years who was suffering
from cancer and was receiving either chemotherapy or
radiotherapy treatment and (ii) a single-mother or a
2008 The Authors. Journal compilation 2008 Blackwell Publishing Ltd, Journal of Clinical Nursing, 17, 27412749
single-father who was capable of using Mandarin or Taiwanese to express their experiences.
Nine single fathers/mothers participated in this study. Five
were single mothers and four were single fathers. The age
range of the single parents was 3042 years old. One of the
nine was unmarried, seven were divorced single parents and
one was separated. In terms of educational level, three had
completed junior high school, five had completed high school
and one had attended college. Six were working full-time.
Their religious beliefs were Taoism for three parents,
Buddhism for another three and the remaining three were
atheist. The nine children consisted of five girls and four boys
and at the time of study, the children ranged in age from
615 years. The age at diagnosis of the cancer ranged from
34133 years. The cancers consisted of one case of acute
promelocytic leukaemia, four cases of acute lymphoblastic
leukaemia, two cases of osteosarcoma, one brain tumour and
one neuroblastoma.
Ethical considerations
The study was approved by the Hospital Human Investigation Committee at each of the three medical centres. The
participants rights of anonymity, confidentiality and withdrawal from the study were explained at the time of
interview.
Data collection
Data were collected through open question interviews. Two
open questions were used to initiate the interview and these
focused on the everyday experiences of the single parents and
their use of family resources to care for their children. Each
interview started with these questions: What have been your
experiences while caring for your child since the cancer
diagnosis? How have you survived this? and Throughout
the process, what kind of assistance or support has been
helpful? The first author conducted all the interviews, which
lasted between 6090 min, were taped and then transcribed
verbatim. Facilitative techniques such as Could you describe
it more? and Could you give an example? were used to
obtain descriptions that were as complete as possible.
Data analysis
An open attitude and imaginative variation techniques were
used to investigate the meaning of single-parents experience.
The Colaizzis (1978) method involves using both destructured and restructured analysis as well as integration using
the principles of phenomenology. Methodological rigour was
Results
The results of this study demonstrate the essence of the family
resources used to assist family adjustment among singleparent families who have a child who suffers from cancer.
These consist of five major themes: (i) facing the disease with
courage; (ii) hope kindled by professionals; (iii) constructing
parental role ability; (iv) assisting the child to live with the
illness; and (v) family flexibility.
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Psychological adjustment
When facing their child with cancer, single parents feel
anxious, so to face their childs illness with strength, they
relieve their stress using psychological coping strategies, such
as crying, talking to people and transferring their attention.
Furthermore, they look at the childs illness and their future
with an optimistic attitude. Through this, parents hope that
they can be brave and continue the journey with their child
towards health:
Mother I: I am more independent and optimistic. Cross each bridge
when you come to it. We will see. I intend to be this way. I am happy-
go-lucky. You have to look at the childs illness from different angles.
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2008 The Authors. Journal compilation 2008 Blackwell Publishing Ltd, Journal of Clinical Nursing, 17, 27412749
for her to take care of herself if she can understand more about her
illness.
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Family flexibility
Single parents with children who have cancer already face the
need to take care of the child, to continue to work at a job
and to look after their family, which is already a heavy
responsibility. To function as a normal family, single parents
need to adjust to the family relationships in a flexible manner
and must modify the family roles or interaction patterns.
During this period, the resources that parents use are: (i)
overcoming economic difficulties and (ii) role replacement.
Overcoming economic difficulties
Single parents must carry alone the huge medical expenses for
the cancer treatment and they realise the importance of
financial resources. Single parents usually look for appropriate
information about social benefits. They also receive help from
ex-husband/ex-wives, the medical team and certain institutions, all of which helps to relieve their financial burden:
Mother D: It is my brother who finances me; and there is my parents
and my sister too. Anyway, I borrow some from them if I am short of
money. So far, Ive returned what I have borrowed.
Role replacement
As a result of childs illness, parents feel a need for more
family cohesion. Family members and relatives reach out to
help, dividing the jobs that need to be performed to provide
financial and care assistance. This allows the parent to leave
their child temporarily and to keep their job. Furthermore,
siblings know they are in single-parent families and their
parents have to bear the burden alone. To lessen the parents
burden, siblings share the work. On the other hand, parents
feel their hardship is worthwhile as their children are so
understanding and considerate:
Mother C: Mary is studying in Taipei. They (the relatives) will pick
her up for me, make her dinner and help her bath. I then can similar
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Discussion
The results of the current study demonstrate that single
parents who have a child with cancer employ family resources
to assist with family adjustment, to maintain family functions
and to keep equilibrium. There are five themes that are
involved in this deployment of family resources: acquiring
courage, kindling hope, constructing parental roles, assisting
the childs adjustment and family flexibility. These results
support McCubbin and McCubbins (1996) idea of family
resiliency, which explains the dynamic interaction between
multiple levels of resources that are available to assist a
family to manage their stress.
While caring for children with cancers, the courage of
the single parents arises from their persistent faith in the
hope of recovery. Single parents look for strength from
religion to gain psychological strength and thus be able to
help their children. Through psychological support from
family members and friends, parents realise they are not
alone and so have the courage to continue the journey with
their children. This result is similar to findings by Judge
(1998) and Martinsen et al. (1997). Furthermore,
parents rely a great deal on the medical team to save
their children. The promises, messages and assistance
provided by the medical team help to kindle each parents
hope.
When with their children, the single parents ability to
adjust is an important family resource. Single parents use
emotional-coping strategies to release their stress. These
results resemble other studies that have explored the coping
strategies of parents whose children have cancer (James et al.
2002, Yeh 2003). The current study also identifies that
parents treat the future with optimism to preserve personal
psychological health and to face their childrens illness with
bravery. Walsh (2003) indicated that a positive attitude is the
major factor when overcoming stress in a family. Furthermore, the parents have strong self-esteem and a sense of
responsibility. When parents encounter difficulties or stress,
they rely on themselves to solve problems.
The study further demonstrates that, with regard to their
childrens illness, single parents actively seek multiple sources
of information to strengthen their caring ability. They make
every effort to safeguard their childrens lives and single
parents are careful to establish a safe environment. Furthermore, during their childs illness, single parents use alternative treatment approaches to increase their childs chances of
2008 The Authors. Journal compilation 2008 Blackwell Publishing Ltd, Journal of Clinical Nursing, 17, 27412749
Nursing practices
The study results point out the nature of the family coping
resource experience among children with cancer who are
members of a single-parent family and describe how they
apply family resources. Nursing professionals should evaluate family resources at an early stage and verify the familys
strengths and needs. This will help with the development of
strategies that assist family adaptation. The current study
also indicates that the single-parents persistence and bravery
in dealing with the illness is the major resource involved
in adaptation. Nurses should admire and compliment
the parents persistence and determination, pointing
out the childrens efforts and courage, verifying and
revitalising the family support system network and thus
providing psychological and mental backup for the parents.
Further, spiritual caring is an important family resource,
which can strengthen inner power. Nurses should actively
try to understand the parents religious beliefs and establish a
channel for them to have contact with their religion.
Through their religious faith or a pursuit of religion, single
parents can assist themselves to face the meaning of life and
thus have hope for the future.
Professional medical skill is an essential resource that can
rekindle parents hope. It is vital to establish a constructive
nursepatient relationship and trust. The medical teams
understanding of the sick childrens treatment process, the
2008 The Authors. Journal compilation 2008 Blackwell Publishing Ltd, Journal of Clinical Nursing, 17, 27412749
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Acknowledgement
We are grateful to the participants and nursing staff for their
help.
Contributions
Study design: IH, PM, TC; data collection and analysis: IH,
PM, TC and manuscript preparation: IH, PM.
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