Creating The Self-Advocates Comic: York Mind
Creating The Self-Advocates Comic: York Mind
Creating The Self-Advocates Comic: York Mind
Lee Greenfield
January 2016
Contents
What is Self-Advocacy? ............................................................................................. 2
About the Self-Advocates Forum ............................................................................... 2
Why the Forum is Important ....................................................................................... 2
Planning the Project ................................................................................................... 2
Choosing an Illustrator ............................................................................................ 3
Applying for the Grant ............................................................................................. 3
Starting the Project ................................................................................................. 3
Why a Comic? ............................................................................................................ 4
Choosing the Storylines ............................................................................................. 4
Story One Da-Electric .......................................................................................... 4
Story Two - Jargon .................................................................................................. 5
Story Three Information Raider ............................................................................ 5
Comic Workshops ...................................................................................................... 8
Pictures from the comic workshops ........................................................................ 8
Comic Characters....................................................................................................... 9
Creating the Villains ................................................................................................. 10
Illustrating the Comic ................................................................................................ 11
What the Self-Advocates Enjoyed ............................................................................ 15
What York Advocacy Have Learnt From This Project .............................................. 15
Contact Details ......................................................................................................... 15
What is Self-Advocacy?
Self Advocacy enables a person to speak up for themselves and helps them to take
control and make their own choices and decisions. Members of the forum are called
self-advocates.
About the Self-Advocates Forum
York Mind have been facilitating a self-advocates forum for people with learning
disabilities since 2012. The forum is an opportunity for self-advocates with a learning
disability to come together and discuss topics which are important to them
individually and for all people with a learning disability.
The forum offers a space for self-advocates to share ideas, speak up, and learn new
things.
At the forum self-advocates meet new people, make friends and have an opportunity
to meet and speak to professionals in local services. They find out about new
services and activities they may be interested in and speak up about important topics
to promote change. The forum also links into the Mental Health and Learning
Disability Partnership Board in York, (MHLDB).
Self-advocates have given feedback about the Joint Strategic Needs Assessment
(JSNA), collaborated with Healthwatch and other local service providers so people
with learning disabilities opinions are heard and taken into account.
They have also produced a newsletter called Our Voice Together and each year
plan a Christmas social. Last year we had a karaoke Forum Factor!
Why the Forum is Important
The forum is a great place to get together and share information. The forum has
helped people to tackle real issues and it really does make changes.
I love the forum as people like to come and socialise, meet friends and learn new
things.
The forum has helped me to speak up and have my say about things important to
me. I am more confident and independent.
Planning the Project
Prior to starting the project we identified some initial costings to make sure we could
deliver the project and end product within the funding amount available from NHS
England. The priority for us was to identify an illustrator who could deliver in the
timescales and value indicated by NHS England, as this would be where the majority
of the work and costs lay.
Choosing an Illustrator
We were fortunate that we were aware of a local comic illustrator who was starting
up his own freelance artist/illustrating enterprise. As they had previously undertaken
commissions from individuals we were able to view the style of their previous work.
For the illustrator it was an opportunity for them to be involved in a commissioned
piece of work for a company. In addition they were interested in being involved in
some community work with the groups of people who York Advocacy work with.
Being able to retain an illustrator at the start of their career made this project cost
efficient.
Why a Comic?
Previously in the forum self-advocates had engaged in producing a Newsletter called
Our Voice Together. In this newsletter some of the members had written their life
stories and given reviews of local activities. Feedback highlighted that they enjoyed
the creative element of the forums and also having work that they had produced or
appeared in to show friends and family.
During the work that had taken place with self-advocates sharing their life stories in
the forum they also shared their interests, likes, dislikes and hobbies. We found out
about members liking the Blues Brother and James Bond and what they enjoyed
watching and doing.
From this feedback ideas emerged about how we could make this project as
engaging as possible which would be a mix of both informative and creative. In
addition it needed to uphold the advocacy principles of speaking up and demonstrate
how self-advocates had influenced and participated in healthcare.
Information that is both pictorial and in plain English were important themes for this
project alongside demonstrating the impact that self-advocates have which goes
beyond the forum itself. We also wanted self-advocates to have fun!
From our previous work and relationship with self-advocates and feedback they had
given the idea for a Comic emerged. It also felt that it was relevant today with Marvel
Comics and superhero films being a large part of popular culture.
Choosing the Storylines
Over the last 18 months self-advocates have been involved in lots of work around
healthcare and participating in shaping and influencing local services. They had
worked alongside Healthwatch, the local learning disabilities services and the City of
York Council. They had also linked into the Mental Health and Learning Disabilities
Board (MHLDB) on the JSNA and how to engage people with Learning Disabilities
more in the meetings of the MHLDB.
From the work they had done and topics they had enjoyed getting involved with they
choose the four that they would like to use and develop into stories for the comic.
The following pages illustrate how they started to create the actual stories and
characters and build in the content.
It was important to follow the comic style of speech yet at the same time convey the
work completed and why it was important.
The titles of the story were based on the villains created.
On a separate occasion a member of staff from the Learning Disabilities Team asked
if any self-advocates were interested in helping them to appoint a new psychiatrist.
Two self-advocates were part of the interview panel.
As we needed to keep the comic to a set number of pages these two events were
combined into one story. The first part is about the doctors appointment which then
continues with self-advocates interviewing for a new Doctor and being involved in
recruiting staff who work with them.
Self-advocates thought it was important that professionals talk to people with
learning disabilities directly and not through support workers. Especially when they
are able to speak on their own behalf and it is their health and appointment.
Comic Workshops
Self-advocates had highlighted that they found it much easier to engage in smaller
groups because it was less noisy and they had more 1-2-1 support. To ensure they
were able to fully participate in the work we arranged 3 workshops which were
attended by 6, 5 and 3 self-advocates respectively.
Two of the workshops were held in the same place as the monthly forum however,
we used smaller rooms. The third workshop was held in a local service providers
venue in a different location as this meant more people could be involved at a time
that was convenient for self-advocates.
In each workshop there were 2 members of staff to support self-advocates. Each of
the workshops developed a different story. Staff used creative materials and flip
charts to capture the ideas.
Comic Characters
Self-advocates created their own characters based on their own individual interests
and what they liked.
They decided what super powers their characters would have, the costumes,
clothing, hairstyles and colours.
Heathers character incorporates the style of the Blues Brothers, Duncans features
the traits of Robin Hood who can fly with a D on his belt to represent his name.
Louise wanted to be styled like Princess Leia from Star Wars, Katie wanted to be a
princess, Nicholas a Shape Shifter and Sam wanted to have elements of the wrestler
called The Undertaker.
10
11
12
13
14
Contact Details
York Advocacy can be contacted on 01904 414357, via our website
www.yorkadvocacy.org.uk or email on [email protected]
15