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NICU Toolbox

For Parents

MARCH OF DIMES
What parents CAN do in the NICU:
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Please visit our website for more information

WWW.MARCHOFDIMES.ORG

Healthy babies are worth the wait



March of Dimes

NICU STAFF
The staff members working in the NICU are dedicated to you and
your babies care. It is their goal, to give you the best, most comforting experience possible.
From the start, make it your goal o form a good working relationship with the NICU staff. As you get to know your
babies doctors and nurses, you will feel more comfortable approaching them and asking questions or making suggestions. Ask them to keep you informed about your babys medical condition. When there are choices about your
babys medical care, you should be included in making those important decisions. After all, you and your babys

PARENTS: AN INTRODUCTION
Your baby is born. But the wonderful time you imagined for so long has taken
an unexpected turn. Your baby needs special medical care.
Your baby requires this specialized medical care in a section of the hostpital called the Newborn Intensive Care Unit or NICU. This area of the hospital provides around-the-clock care to sick or pre-mature
infants.

medical caregivers are a team, and you all share the same goal --- the best care for your baby.

WHO ARE THEY AND WHAT DO THEY DO?


There are several people who may work together in the NICU to help you and your baby. They are highly trained to
work with babies who need specialized medical care. Below is a brief list of NICU Staff Members and what they do.

Nurse: The types of nurses and their functions vary with each NICU. Bedside nurses
are trained to care for babies in the NICU
and will be involved with the daily care
of your baby. They can answer questions
about your baby and will show you how
you may help in your babys care.

THIS BOOKLET IS DESIGNED TO GIVE YOU


THE INFORMATION YOU NEED DURING
YOUR FAMILYS TIME IN THE NICU

Neonatologist/Intensivist: This doctor will


oversee your babys care but may consult
with other types of doctors based on your
babys needs.

Throughout the information presented, you will find topics

Neonatal Nurse Practitioner: This nurse has

such as Staff members and their roles, basic advice on what to

Pharmacist: Responsible for overseeing


your babys medication

do and what not to do during your time in the NICU, Transitioning home from the NICU and Resources to help you along.

March of Dimes Coordinator: Will provide


information about how to deal with your
baby being in the NICU
Social Worker: Person trained to help you
connect with resources you may need
along the way, such as home medical
supplies and services to help with learning, motor skills, growth and counseling.
Finanical concerns are also discussed with
the Social Worker.

Audiologist: Person with special training in testing and treating


problems related to hearing.
Hearing Screener: Person who tests your babys hearing
Counselor: Person who has special training to help patients
who are distressed and who need help with non-medical problems
Dietitian: Person who focuses on nutrition needs for your baby
Lactation Consultant: Person with special training on breastfeeding issues
Respiratory Therapist: Person who assists with lung an breathing
Other Types of Doctors:
Cardiologist: the heart and structures that connect to it
Developmental Pediatrician: growth, learnings and emotional health needs for
a child
Endocrinologist: specialty of treatment of diseases related to hormones
Gastroenterologist: speciality in organs involved in digestion
Geneticist: the health problems that are passe through family lines
Infectious Disease Specialist: infections that may affect the babys well-being
Nephrologist: the kidneys and structures that connect with them
Neurologist: the nervous system

Use the combination of breastmilk


and formula, bottle-feeding and nursing that works best for you and your

Be aware of bonding with your baby.

baby.

Keep your balance- there may be times when contact with your baby creates discomfort for him/her. This does not
mean that your baby isnt bonding with you. Keep yourself going, your baby is always growing and changing. Be
aware and watch for your babys cues, these are signals that tell you how he/she is feeling and how much contact
your baby can handle. Keep an open channel of communication with your baby and communicate clearly. NICU
babies are often in need of very clean and patient respones from parents. Be sure to seek help with bonding with
your baby if that becomes an issue. Your OTs and nurses can help you learn about yoru babys unique needs and
how to respond to his/her cues.

Allow the baby to smell the scent of you. Your


scent is very calming to your baby however, keep

The most important thing you can do right now is be an active member of your babys health care team.
The Health Care Team will work with you to do what is best for yoru baby.

in mind, that your scent must be natural not perfumes, lotions, hairsprays etc.
Check your mailbox and calendar. This will help
you keep on task with your daily routine and appointments.

THE PARENTS

Let nurses know when you are going to be coming


into the NICU. By making your timing known, the

Here is some advice on what you can and should do while in the NICU with your baby.
Ask Questions: This can help you keep track of your babys care

nurses can schdule feedings around your arrival.

Start a journal: This will allow emotional involvment


and a place to express feelings, thoughts and con-

Share information with your family: This will help them know

cerns in a private place.

where your baby is, how he/she is being cared for and how they
can help you

Learn everything you can: You can do this by watching your health care professionals, asking questions,

Take care of yourself: Seek help from family, friends and hospital

attending classes that Parent Support hosts to help

staff such as counselors, social workers or pastors. These people

parents during their time in the NICU.

are there to help you through stressful times.

Learn about your babys unique needs for feeding. Be sure to attend the Mothers Milk Club and ask questions:
Can I hold my baby skin-to-skin?
How will my medications that I am taking affect breast milk and my baby?
Is breast milk the only food my baby needs now?
Is there a quiet/private place I can go to breastfeed or pum milk and/or breastfeed my baby?

Be aware of Hygiene:

About how many times per day should I try to pump milk and/or breastfeed my baby?

Learn about infections and how they spread


Provide mothers breast milk or even colostrums
when possible
Taking steps to control infection after you take
your baby home

There are also some important items to keep in mind to avoid doing in the NICU. Please be aware of your own
personal hygiene and do not come to the NICU while ill. Always remember to wash your hands after phone use
to avoid spreading germs and illness.

Working as partners with your healthcare team to


follow all prevention measures
Practice good handwashing

Please do not bring any pets to the NICU. Pets can spread germs and disease and create an insterile envrionment.

Wash hands after touching the phone, door


knobs etc.
Be aware of other ways to control infections
Keep noise levels at babys bedside very low: The
most vital sounds for the baby are the parents
voices. Attend the class to learn how to understand

In addition to pets, please refain from bringing any children into the NICU.

It is now time for your baby to go home, now what?


At some point, your baby will leave the NICU. Most babies leave the NICU and grow into normal, healthy
children. Some leave the NICU with temporary or chronic medical conditions. Either way, your healthcare
team will be sure that you and your baby are ready for the transition home.

RESOURCES
Throughout your time in the NICU, you and your family are not alone. Your
healthcare team is here to help you through every step of the way.
Kangaroo Care, Holding Your Baby Close
This is the practice of holding your diapered baby on your bare chest
or between your breasts with a blanket draped over your babys
back. This skin-to-skin contact is benefical for both you and your
baby. Kangaroo Care can also help your baby:

Maintain body warmth

Regulate his heart bat and breathing rates

Gain weight

Spend more time in deep sleep

Spend more time being quiet and alert and less time crying

Have a better chance of successful breast feeding

Reduce the comfort the baby may feel

Here are some key steps to help make the move from the NICU to home:
Make an appointment with the pediatrician when you arrive home
Be sure to know what tests have been done for your baby before leaving the hospital and
what tests still need to be done
Record details about your baby such as test performed, medicines to take home, training
recieved and any other pertant details
Be aware of when your baby is due for check-ups and be sure to take him/her to every
check-up advised, including recommended visits to specialists
Keep aware of what signs may show your baby is having health problems and who to
contact if this occurs.
Recieve all trainings on car seats, giving medicines and other special circumstances of your

Additonal resources available to parents are CPR class, Discharge Teaching Class which are both required for the baby to be discharged from the
NICU. The NICU also provides a parent mailbox which is located outside the
entrance of the NICU as well as a calendar where parent support classes and
activilties are l isted weekly.

babys care
Never be afraid to ask questions, your healthcare team is trained to take you through your
entire journey at the NICU.

Eventually, looking back...


Your NICU journey will contain ups and downs, joyous and
difficult moments. Evenutally when you are able to look back
on this time, youll see that you prevailed and even grew. Some
day, you may find yourself wanting to share your unique and
amazing story with other parents. Or, you may choose to put
your NICU days behind you and move on in other ways. Whatever your babys outcome, we hope you will be able to look
back at your time in the NICU awtih pride and strength.

NICU Toolbox
For Parents

March of Dimes
670 East 3900 South, Suite 1-105
Salt Lake City, UT, 84107

Phone : (801) 327-9464


Fax : (801) 212-3158
Email : [email protected]

TAWNA BURTON

Family Support Specialist

OFFICE HOURS ARE MON - FRI 09.00 AM - 5.00 PM

TEL- 020-345-6780
CONTACT NUMBER FOR CALLS OUTSIDE OF THESE TIMES ARE

020-345-6780 OR 020-345-6780

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