Working Paper
Working Paper
Working Paper
DOI 10.1007/s11019-011-9365-5
SCIENTIFIC CONTRIBUTION
Introduction
Respect for autonomy is usually considered one of the most
important reasons in favour of legalising euthanasia.
However, in recent debate this has been challenged by
arguments claiming that autonomy is primarily a value that
needs to be promoted or protected. This may imply, or so it
has been argued, that euthanasia and physician-assisted
suicide (PAS) are impermissible since they destroy the
autonomy of the patient (Materstvedt 2003). Accordingly,
it has been maintained that considerations of autonomy
cannot be used as a reason in favour of euthanasia or PAS
and that such arguments are self-contradictory (Doerflinger
1989; Gordijn and Janssens 2000). The idea of autonomy
as a value has also been taken as a reason not to offer
palliative, continuous deep sedation in end-of-life care
(Eckerdal 2004). The question of whether respect for
autonomy may support a right to euthanasia has been
labelled as one of the central topics in palliative care ethics
(Hurst and Mauron 2006).
The aim of the present paper is to investigate the
rationale behind the claim that respect for autonomy is
incompatible with euthanasia and assisted suicide. The
argument deserves attention for two reasons. First, it has
become influential in palliative care guidelines and policy
documents, and it has been put forth by leading theorists in
the field. Second, it is theoretically interesting since it
supposes quite a different normative relevance of autonomy than the standard bioethical conception of autonomy
as a ground for a right to self-determination (including the
right to decide when to end ones life).
The outline of our paper is as follows: starting with
some general remarks about the concept of autonomy as it
is used in bioethical debate, we will go on to present the
above-mentioned arguments as they have been propounded
123
M. Sjostrand et al.
226
123
227
Mill does not use the term autonomy, but liberty. His conception of
liberty, though, is quite close to the common interpretation of
autonomy in bioethics, which is being able to do as one chooses. Kant
on the other hand has a much stricter view, where autonomy consists
in doing what one ideally ought to do.
123
M. Sjostrand et al.
228
123
229
Conclusions
Respect for autonomy is typically considered a central
reason for allowing physician-assisted suicide and euthanasia. However, according to certain interpretations of the
123
230
References
Anderberg, T. 1989. Suicide: Definitions, causes, and values. Lund:
Lund University Press.
Beauchamp, T.L., and J.F. Childress. 2001. Principles of biomedical
ethics, 5th ed. New York: Oxford University Press.
Berlin, I. 2002. Two concepts of liberty, reprinted in: Liberty:
Incorporating four essays on liberty. Oxford: Oxford University
Press.
Billings, J.A., and S.A. Block. 1996. Slow Euthanasia. Journal of
Palliative Care 12: 2130.
Brassington, I. 2006. Killing people: What Kant could have said about
suicide and euthanasia but did not. Journal of Medical Ethics 32:
571574.
Cherny, N.I., L. Radbruch, and Board of the European Association for
Palliative Care. 2009. European Association for Palliative Care
(EAPC) recommended framework for the use of sedation in
palliative care. Palliative Medicine 23: 581593.
Doerflinger, R. 1989. Assisted suicide: Pro-choice or anti-life. The
Hastings Centre Report 19: 1619.
Dworkin, G. 1988. The theory and practice of autonomy. Cambridge:
Cambridge University Press.
123
M. Sjostrand et al.
Eckerdal, G. 2004. Sedation in palliative careThe doctors
perspective. In Terminal sedation: euthanasia in disguise?, ed.
T. Tannsjo, 3741. Dordrecht: Kluwer.
Gordijn, B., and R. Janssens. 2000. The prevention of euthanasia
through palliative care: New developments in The Netherlands.
Patient Education and Counselling 41: 3546.
Hurst, S.A., and A. Mauron. 2006. The ethics of palliative care and
euthanasia: exploring common values. Palliative Medicine 20:
107112.
Husted, J. 1997. Autonomy and the right not to know. In The right to
know and the right not to know, eds. Chadwick et al., 55ff.
Aldershot: Ashgate publishing company.
Juth, N. 2005. Genetic information values and rights: The morality of
presymptomatic testing. Gothenburg: Acta Universitatis
Gothenburgensis.
Kant, I (eds.). 2002. Groundwork for the Metaphysics of Morals. New
Haven, CT, USA: Yale University Press.
Lindley, R. 1986. Autonomy. Basingstoke: MacMillan.
Materstvedt, L.J. 2003. Palliative care on the slippery slope towards
euthanasia? Palliative Medicine 17: 387392.
Materstvedt, L.J., and G. Bosshard. 2009. Deep and continuous
palliative sedation (terminal sedation): Clinical-ethical and
philosophical aspects. Lancet Oncol 10: 747748.
Materstvedt, L. J., Clark, D., Ellershaw, J., Frde, R., Gravgaard, A.
M., Muller-Busch, H. C., Porta i Sales, J., Rapin, CH., and EAPC
Ethics Task Force. 2003. Euthanasia and physician-assisted
suicide: A view from an EAPC ethics task force. Palliative
Medicine 17: 387392.
Mill, J.S. 1982. On liberty. Harmondsworth: Penguin.
Morita, T., S. Tsuneto, and Y. Shima. 2002. Definition of sedation for
symptom relief: A systematic literature review and a proposal of
operational criteria. Journal of Pain and Symptom Management
24: 447453.
Nell, O. 1975. Acting on principle: an essay on Kantian ethics. New
York: Columbia University Press.
ONeill, O. 2002. Autonomy and trust in bioethics. Cambridge:
Cambridge University Press.
Rhodes, R. 2007. A Kantian duty to commit suicide and its
implications for bioethics. The American Journal of Bioethics
7: 45.
Tannsjo, T. 1998. Hedonistic utilitarianism. Edinburgh: Edinburgh
University Press.
Velleman, J.D. 1999. A right to self-termination. Ethics 109:
606628.
Vong, G. 2008. In defence of Kants moral prohibition on suicide
solely to avoid suffering. Journal of Medical Ethics 34: 655657.