Ateneo de Zamboanga University College of Nursing Name: Mendoza, Eirees Joy A. Subject: Nursing Elective Module: '()* !
C"ronic llness, #os$ice %alliative Care&
Single Parenting and Children with Chronic Illness: An Understudied Phenomenon +onald ,. -ro.n, %"./., 0ori 1iener, %"./., 2...3, and 0onnie 4eltzer, M./. t is estimated t"at '*5 to 6*5 of t"e c"ildren and adolescents in t"is country suffer from a c"ronic disease or "ealt" condition. ,"ese conditions can affect c"ildren t"roug"out t"eir lives and also affect t"e family unit. ,"e increase in day7to7day caregiving re8uirements, t"e com$le9ities of disease management activities, lifestyle, and family dynamics, alone or collectively, may influence long7term "ealt" outcomes. :urt"ermore, c"ronic "ealt" conditions may affect t"e financial status, and social, community, and sc"ool interactions of t"e c"ild and t"e family. ,"e c"ild or adolescent is affected $ersonally by t"e $at"ology of t"e disease, side effects or treatment, and by t"e re8uired lifestyle and "ealt" management ada$tations. ,"e family is involved in t"e c"ild;s illness management t"roug" re8uirements for care assistance, su$ervision(guidance, travel and time from .or< for "ealt" visits or "os$italizations, cost of care, and t"e effect of t"ese re8uirements on family dynamics and lifestyle. =ver t"e $ast several years, many studies "ave e9amined t"e $otential im$act of c"ild"ood c"ronic illness on $arents and families. n general, t"e literature "as delineated a myriad of stressors t"at $arents may e9$erience, including financial stress, role strains, se$arations, adjustment to t"e various com$onents of t"e medical system, interru$tions in daily routines and $lans for t"e future, and t"e general uncertainty .it" regard to t"e c"ild>s $rognosis. All of t"ese $ossible e9$eriences may lead directly and indirectly to an9iety, de$ression, $ost7traumatic7stress, "o$elessness, and feelings of loss of control. 1"at is not <no.n is "o. single, or ?lone,@ $arents trying to navigate t"e com$le9 needs of maintaining a "ome, family, and a c"ronically ill c"ild ada$t to t"ese c"allenges. ,"e $ro$ortion of c"ildren in t.o7$arent families "as decreased from AB5 to CD5 in t"e last 6* yearsE t"us nearly 6 in )* c"ildren live in single $arent "omes. ,"e most common ty$e of single $arent "ome is one .it" a mot"er $resent, alt"oug" single fat"er "omes are among t"e fastest gro.ing ty$e of family situation in t"is country. Single $arent"ood may occur as a result of loss !deat", se$aration, divorce, or abandonment by one $arent& or by c"oice !ado$tion, assisted re$roductive tec"nology, c"oosing to become or remain $regnant .it"out a $artner& Education - ,eac"ing $eo$le "o. to loo< after t"emselves and t"eir condition can em$o.er t"e c"ronically ill by ma<ing t"em feel in control. Service $roviders, sufferers, family and friends need to be educated in order to understand ."at an individual is feeling and facing in terms of t"eir $rognosis.
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