Join PPMD this September for Duchenne Action Month as we continue to celebrate the power of this incredible community with the actions that make us strong! Small actions, selfless actions, deliberate actions all create a ripple effect. How do you take action in the fight for every future?
Why September?
With the growing global recognition of World Duchenne Awareness Day on September 7, the kickoff of the 17th season of Coach To Cure MD, Congress returning to work after summer recess, our kids heading back to school and the need to reach out to teachers and administrators about Duchenne, September is the perfect month to take action to raise awareness and crucial funds to support our fight for every future.
September 7th: World Duchenne Awareness Day
The World Duchenne Awareness Day global initiative, spearheaded by the World Duchenne Organization, aims to raise awareness about Duchenne and Becker muscular dystrophy and has gained historic significance with the United Nations’ official recognition of the day.
This year’s theme for World Duchenne Awareness Day is “Raise Your Voice for Duchenne,” emphasizing the importance of amplifying voices to advocate for the rights, inclusion and well-being of people living with Duchenne.
Celebrate Your Actions
Download Your Social Media Toolkit
Celebrate your actions by sharing them with @ParentProjectMD on social media as we highlight members of our community taking action in the fight to end Duchenne!
Hashtags
- #DuchenneActionMonth
- #WDAD2024
GIFs & Stickers
When you share your actions on Instagram stories, search for
PPMD to use our fun PPMD GIFs and Stickers!
Profile Pictures, Cover Images & Frames
World Duchenne Awareness Day
Help raise awareness on September 7th by adding our Facebook profile picture or cover image to show the world that you are part of the fight for every future!
- Download Profile Picture
- Download Cover Images:
Duchenne Action Month
We’ve created a Facebook profile picture, cover image, and frame template you can customize by adding your own photo to raise further awareness.
Duchenne Action Month Webinar:
PPMD Advocacy – Raising Our Voices in 2024 and Beyond
As we approach World Duchenne Awareness Day, join PPMD for a special webinar on Thursday, September 5, 2024, at 1:00pm ET. PPMD Advocates from throughout the Duchenne and Becker community will reflect on PPMD’s advocacy efforts in its 30th anniversary year, highlighting key policy achievements and ongoing work to promote rights, inclusion, and well-being for those with Duchenne and Becker.
Register NowHow Do You Take Action?
There are a variety of simple and powerful actions you can take to help raise awareness and support PPMD’s work in the fight for every future. While we’ve listed a few ideas below — the sky’s the limit!
- Create a Facebook Fundraiser in honor of World Duchenne Awareness Day on September 7 to raise awareness & help fund our fight for every future!
- Join the Race to End Duchenne as we raise awareness and critical funds to end Duchenne.
- Host a Coach To Cure MD tailgating or watch party while your favorite sports team plays on their Coach To Cure MD game day!
- Create your own DIY Fundraising to End Duchenne event. Fund the fight for every future your way and have fun encouraging your community to support you!
- Ask your state governor or town mayor to recognize World Duchenne Awareness Day on September 7 with a proclamation or have a local landmark building “GO RED” with lighting!
- Join and update your account in The Duchenne Registry.
- Download PPMD’s Back-to-School Resources to ensure a smooth start to the school year when reaching out to teachers and administrators about Duchenne.
- Restock your family’s supply of great PPMD merchandise so that you can raise awareness all month long!
This September let’s all do something…
To help raise awareness.
To fight for every future.
To end Duchenne.
