National Strength and Conditioning Association (NSCA)’s Post

1 in 161 million. It's the reality my family lives with every day. My children share a rare genetic condition. The odds of having this condition are 1 in 161 million. Only 50 cases in the world are known to exist in medical literature. Most doctors have never heard of the condition, and as such, have little to no experience in treating it. For this giving Tuesday, 11/28, please consider donating to the Rare Village Foundation, and specifying the ZMYND11 Treatment Foundation as the option. I and other parents like myself are trying to raise awareness of the condition, to educate medical professionals on how to treat the condition, and to raise funds to start research on potential treatments and cures. Thanks for listening and for your support. https://lnkd.in/gwCYvC4s

Ahead of #PFawarenessmonth #PFmonth Action for Pulmonary Fibrosis #APF has launched #Breathe, an APF Films campaign that gets across the stark and devastating reality of #pulmonaryfibrosis #pf in terms of severity, prevelance and prognosis. You can donate using the link below, to help APF efforts in supporting those affected by PF and in research aimed at stopping lives being lost to PF. Listen to your lungs. If you are struggling to breathe, then think PF. Ask you GP, could it be Pulmonary Fibrosis? 🫁 https://lnkd.in/eBJ-scd8

Brain treatment doesn't just heal the brain, it heals lives. It restores lost dreams, mends broken relationships, and reignites the spark within. Change Your Brain Foundation knows that you're not stuck with the brain you have—you can make it better. Our dedication to scientific research is breaking the chains of traditional thinking. Transform lives—donate now to unlock the secrets of neuroimaging. Visit our website to donate today changeyourbrain.org. #mentalhealth #mentalhealthawareness #mentalhealthcare #endthestigma #breakthestigma

We were honored to help our client Alliance for Paired Kidney Donation gain earned media coverage from their recent 3-way kidney exchange that saved three lives across the globe! Here is how our team was able to help bring this story together: 1) Collaborated with the participating transplant centers and APKD 2) Pitched it to the media 3) Coordinated details with reporters, transplant centers and recipients 4) Provided social media coverage Through this story, our team helped APKD spread awareness of their lifesaving mission to a broader audience. Watch more below! #OrganDonation #Transplant #TransplantProfessional #TransplantLogistics #DigitalMarketing

🧠 #Hyperekplexia is a rare, hereditary neurological condition which causes muscle rigidity, jerky movement and exaggerated startled reactions. 🔊 These reactions are often triggered by external stimuli such as unexpected lights, sudden sounds and movements. 📖 To find out more about the condition and the support we offer to those with #HereditaryHyperekplexia here at The Brain Charity, follow the link below 👇 https://lnkd.in/e9G3gse9

Individuals with #ZTTK syndrome are among the rarest of the rare. There are less than 300 known individuals with ZTTK in the entire world. Due to strict regulations and funding challenges, academic medical research is often a long, slow process. And because ZTTK is so rare it is difficult to attract the attention of medical researchers. The primary researcher who discovered ZTTK syndrome after many years of studying the SON gene remains committed to her medical research and works closely with our foundation. We are immensely grateful for her knowledge, expertise, commitment and friendship. Currently the only treatment options for individuals with ZTTK syndrome are symptomatic support: medications or surgeries for seizures, feeding tubes for poor growth, IV infusions for immune deficiency, therapies for developmental delays, etc. Late last year ZTTK SON-Shine Foundation began exploring the option for potential rare drug development specific to ZTTK syndrome through translational science. This avenue is usually patient/family driven and funded. We will need to raise significant funds, in the millions of dollars, to move forward with this in hopes of potential treatment and improved quality of life for those living with ZTTK. This month, in honor of #RareDisease Day and all of the ZTTK warriors across the world please consider making a donation directly to our foundation using the link below: https://lnkd.in/eruefdej 💛☀️💛☀️💛☀️💛☀️💛☀️💛☀️💛☀️ Share this post !!

The number of young people with tinnitus in the Western world has doubled in recent years. This increase is mainly caused by the use of earbuds and exposure to loud noise at nightclubs, festivals and concerts. Scientific research on tinnitus is still in its early stages. Currently, cognitive behavioral therapy is the best available option for relief and improving quality of life. But there is no cure. This makes dealing with tinnitus very discouraging for patients and caregivers. With your donation, we can fund groundbreaking scientific research to accelerate the search for the cause and cure of tinnitus. Donate now and let’s get tinnitus out of the way! #tinnitus #tinnitusresearch #tinnituscure #tinnitusawareness #ringingears

We are participating in the Adelaide City to Bay, aiming to raise $3,000 to support The Hospital Research Foundation Group - Stroke. Stroke is a cause close to our hearts. At Micro-X, we're developing a new miniaturised stroke CT scanner that can be easily taken on the road, enabling faster stroke diagnosis and speeding up the time to treatment. Faster access to treatment significantly reduces the likelihood of death and disability. Did you know that one in four people globally will experience a stroke in their lifetime? The Hospital Research Foundation Group invests in world-leading research to improve acute treatment, recovery, and prevention of stroke. They also provide essential support to individuals recovering from stroke. You can make a difference by donating through our team's page. Every contribution, no matter the size, helps us get closer to our goal. https://bit.ly/3M87AWY Thank you for your support! 🙏 #CitytoBay #StrokeAwareness #MedicalInnovation #MicroX #Healthcare #Fundraising

DID YOU KNOW that the cause or causes of scleroderma are unknown? Scientists and medical investigators are working hard to understand the condition and what might be causing it! Help us support scleroderma research! Donate today: https://lnkd.in/dubxfVzW . . . . #SclerodermaAwareness #Donate #Scleroderma #SclerodermaAustralia #Awareness #Resources #SclerodermaResearch

#CCAwarenessWeek is a time to highlight our mission of seeing a future free of Crohn’s disease & ulcerative colitis. The Foundation is helping make this future become a reality: it has played a role in nearly every major research breakthrough in IBD. You can double your impact and help us Make #IBDvisible. All gifts will be matched, up to a total of $1 million now through Dec. 31. Best of all, this match will be directed to support research, specifically our unique Litwin IBD Pioneers program. This program funds innovative early-stage research ideas that have the strong potential to open new directions for IBD research. Plus, when you donate $50 or more, you’ll receive a limited-edition T-shirt to Make IBD Visible all year long. Don’t forget to dedicate your gift to someone you love with IBD, and you will help fund research that positively impacts patients’ health. Double your impact here: https://bit.ly/3R7eCx0