Love, Loss, and Lewy Body Dementia: Mary Lou Falcone’s Journey of Care and Resilience Join our host Dr. Anne Kenny, in this episode of the Caregiver Storyteller Podcast, as internationally renowned classical music publicist and strategist, Mary Lou Falcone, opens her heart to share intimate stories from her memoir, I Didn’t See It Coming. With profound love and vulnerability, Mary Lou reflects on her journey alongside her husband, artist Nicky Zann, as they faced the challenges of Lewy Body Dementia together. Through her raw and honest storytelling, she offers listeners not only powerful strategies for caregiving but also a message of hope, resilience, and the deep, enduring love that carried them through. Mary Lou’s story will resonate deeply with anyone navigating the emotional landscape of Alzheimer’s and related dementias. Watch the full episode: VISIT CKPODCAST.ORG *Available on Youtube, Spotify & Apple Podcasts #caregiverstoryteller #caringkind #lewybodydementia #dementia #dementiacare Spotify Podcasts Eleonora Tornatore-Mikesh Andrea Tallent Spivak Stephani Shivers Olivia Cohen, MS, MT-BC,LCAT,CDP Michele Piskin Susanne Bengtsson, LMSW Edward Cisek, PhD Lewy Body Dementia Resource Center Courtney Dawson Norma Loeb Weijing Shi Beatrice Huston Samantha Vaccaro
CaringKind, The Heart of Alzheimer's Caregiving
Non-profit Organizations
New York, NY 1,794 followers
CaringKind is the leading expert in Alzheimer’s and dementia caregiving.
About us
CaringKind, The Heart of Alzheimer's Caregiving* is New York City’s leading expert on Alzheimer’s and dementia caregiving. With over 30 years of experience, we work directly with our communities, partners and supporters to develop the information, tools and training to support individuals and families affected by dementia. We offer a 24-hour Helpline run by professional staff, individual and family counseling sessions with licensed social workers, a vast network of support groups, education seminars, and training programs. We believe in the power of caregiving and seek a world where everyone dealing with dementia has the support they need, when they need it. *Formerly Known as the Alzheimer’s Association, New York City Chapter
- Website
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http://www.caringkindnyc.org
External link for CaringKind, The Heart of Alzheimer's Caregiving
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- New York, NY
- Type
- Nonprofit
- Founded
- 1980
Locations
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Primary
360 Lexington Avenue
3rd Floor
New York, NY 10017, US
Employees at CaringKind, The Heart of Alzheimer's Caregiving
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Andrea Tallent Spivak
Vice President of Development & Strategic Alliances at CaringKind, The Heart of Alzheimer’s Caregiving
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Robert Glatter, MD
U.S. Soccer Network Physician at U.S. Soccer Federation
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Tamryn Shami
Founder of Spotlight Kids NY- Children's based theater company.
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Susanne Bengtsson, LMSW
Dementia Care Specialist | Accomplished Senior Living Executive Director | Aging Life Care Professional | Medical Social Worker
Updates
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📅 Mark Your Calendars for the 8th Annual Caring to Remember Cocktail! 🥂 Join us on Wednesday, September 18th at Tribeca 360 in NYC for an unforgettable evening of raising awareness and support for those impacted by Alzheimer’s and related dementias. 🧡 This year, we are thrilled to honor: 🏆 Frances Graham – Senior Managing Director, Project Management Northeast Region, Newmark 🏆 Linda Foggie – Global Real Estate Executive, Vista Equity Partners And Celebrating: 🎉 Joseph Szabo – SVP, Paramount Group, recipient of the Jerry Silecchia Legacy Award With over 500 real estate leaders coming together, we’re raising our glasses (and funds!) to help support CaringKind and the Blue Zones Project by Sharecare in the Bronx, working to create healthier futures for those most at risk. 💡 Did you know? In NYC alone, over 1 million people are living with or caring for someone with Alzheimer’s or a related dementia. By attending this event, you are directly contributing to the innovative care and programs that support these individuals, their families and their care partners. 🎯 Goal: $550,000 Your support will help us continue our mission of improving Alzheimer’s care and longevity in our communities. Additionally, proceeds will go to the Alzheimer's Association® to fund groundbreaking research for a cure, and to UsAgainstAlzheimer's to support Medicare reform advocacy, helping to ensure better care for all affected by Alzheimer’s and related dementias. To purchase tickets, become a sponsor, or make a tax-deductible donation, click here 👉 https://C2R.givesmart.com Let’s make a difference together! 💫 2024 Caring to Remember Executive Committee: Andrea Barragan, AB Energy Partners Antonina Caruso, JRM Debra Cole, HLW Robert Cuzzi, VDA Luis De Jesus, RXR Patrick Dolan, The Durst Organization Meghann Gill, SL Green Frances Graham, Newmark Rosemarie P. Krol, RPA, CBRE Heidi Nigg Christopher Niland, RPA, LEED AP, Fisher Brothers Bonnie Pfleiderer, Swinerton Fernando Roman, JLL Jerry Silecchia, Jr. RPA, FMA, JLL Andrea Tallent Spivak, CaringKind Victor Spivak, RPA, Global Holdings Geraldine Szabo, LEED AP, WBE, GKS Industries Kaci Szabo, Damianos Realty Group LLC Anthony Venezia, Newmark #C2R #RealEstateLeaders #CaringKind #BlueZones #usagainstalzheimers #alzheimersassociation Eleonora Tornatore-Mikesh
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CaringKind, The Heart of Alzheimer's Caregiving reposted this
Delighted to share the panel with Rick Otis , Jenny Starnes Tesler , and Eleonora Tornatore-Mikesh - determined and engaged leaders in the New York community - highlighting creative and magnificent ways to connect and educate the community from awareness to clinical trials! Thank you NewYorkBIO for the opportunity! Thank you Acadia Pharmaceuticals Inc. for recognizing the voice of patients and communities to raise awareness. Looking forward to our dialog on September 10th! #alzheimers, #rettsyndrome, #raredisease CaringKind, The Heart of Alzheimer's Caregiving
Have you registered for our Innovation Summit yet? Join us on September 10th for a day packed with networking opportunities and insightful panels, such as “The Talent Within: Creative collaboration with Families, Organizations, and Industry,” where we will be inspired by the impact of advocacy. Moderator Claire Judkins of Acadia Pharmaceuticals Inc. will be joined by panelists Rick Otis, Jenny Starnes Tesler, and Eleonora Tornatore-Mikesh Secure your spot today! https://lnkd.in/e5KsYirr
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🌟 Why Join the CaringKind New York City Alzheimer’s Walk? 🌟 1. Be Part of a Supportive Community: Walking with us means joining a network of care, compassion, and connection. Together, we create a powerful force of support for those living with Alzheimer’s and related dementias. Your participation helps ensure that no one faces this journey alone. 2. Make a Tangible Impact: Every step you take helps raise awareness and directly supports the essential, life-changing services CaringKind provides. From programs to support groups, your involvement ensures that families and individuals can rely on us every day. 3. Experience a Day of Learning and Connection: This isn’t just a walk—it’s Brain Health and Community Day. Engage with experts, explore valuable resources, and participate in activities that celebrate and promote brain health. It’s a day dedicated to making a difference, not just for today, but for the future. 🗓️ When: Saturday, October 19 📍 Where: Central Park Naumburg Bandshell 🔗 Join us: CKWALK.ORG #caringkind #ckwalk #alzheimers #dementiacare Eleonora Tornatore-Mikesh Andrea Tallent Spivak Samantha Vaccaro Todd Matlovsky Townsend Davis Bill Ritter Mike Marza Joe Fisher Eisai US Eli Lilly and Company Bloomberg Philanthropies Axsome Therapeutics, Inc. The 80th Street Residence RiverSpring Living Attending Home Care Wegmans Food Markets Sunrise Senior Living Watermark Retirement Communities Frank E. Campbell Funeral Chapel CAIPA, Inc. Homecrest Community Services Inc Littman Krooks LLP Pitta & Baione LLP Courtney Dawson Weijing Shi Betsy Billard Anita Gupta William Villanova Deborah deKoff
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Join us for the 36th Annual CaringKind New York City Alzheimer’s Walk! WALK WITH US on Saturday, October 19th in Central Park at the Naumburg Bandshell, and be part of a powerful community supporting those impacted by Alzheimer’s and related dementias. Whether you’re walking with loved ones, solo or virtually, your presence makes a difference. Together, we create hope, unity, and lasting connections. Register, Volunteer or Donate 👉🏼 CKWALK.ORG #caringkind #ckwalk #alzheimers #dementiacare #centralpark #nycevents Eleonora Tornatore-Mikesh Andrea Tallent Spivak Samantha Vaccaro Todd Matlovsky Joe Fisher Townsend Davis Betsy Billard Courtney Dawson Jane Dystel Ezequiel De La Rosa Anita Gupta William Villanova Emily Gellis Steffi Fitter Esther Blair Schiffman Mike Marza Bill Ritter Weijing Shi Eisai US Bloomberg Philanthropies The 80th Street Residence Attending Home Care Axsome Therapeutics, Inc. Grimaldi Yeung Law Group Sunrise Senior Living The Watermark at Brooklyn Heights CAIPA, Inc. Homecrest Community Services Inc Littman Krooks LLP Frank E. Campbell Funeral Chapel Pitta & Baione LLP Wegmans Food Markets
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⚾️ Experience the Magic of Baseball with Connect2Baseball! ⚾️ For those impacted by Alzheimer’s and related dementias, the joy of baseball can be a powerful connection. Our Connect2Baseball program brings together fans to share stories, reminisce, and celebrate the game. At our latest meetup, held in-person at the Mets stadium, we watched the Mets team secure a thrilling 4-3 win with a top-of-the-9th home run—an unforgettable day filled with smiles, laughter, and lasting memories. This program is open to anyone with memory loss and their care partners. Whether you’re a lifelong fan or just love the atmosphere of a great game, Connect2Baseball is a place where you can feel supported and connected. Join us for our next session and keep the spirit of baseball alive! 🧢✨ Visit here to register: https://lnkd.in/eh2uYTuC #CaringKind #Connect2Baseball #AlzheimersSupport #DementiaCare #BaseballMemories #Mets #ReminisceTogether Dante Tipiani Olivia Cohen, MS, MT-BC,LCAT,CDP Stephani Shivers Eleonora Tornatore-Mikesh Adina Segal Susanne Bengtsson, LMSW Michele Piskin Edward Cisek, PhD Peggy Chu Weijing Shi Andrea Tallent Spivak New York Mets Elisa Hesterbrink Paola Ogando, MSW, CSW, SIFI Major League Baseball (MLB)
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CaringKind, The Heart of Alzheimer's Caregiving reposted this
I’m honored to join the Board of Directors of CaringKind, The Heart of Alzheimer's Caregiving – an organization very near and dear to me. This year, I’m serving as the Board Chair of the 2024 CaringKind Walk on October 19th in Central Park. If you are available that day, please consider joining our Renewal Walk Team! If you can’t make it, all donations, great and small, are deeply appreciated. Thank you all for your support! https://lnkd.in/gVgHU2v2
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Introducing the Spanish-Language Caregiver Storyteller Podcast! Navigating the challenges of Alzheimer’s can feel overwhelming, especially within the Latino community. We’re thrilled to launch our Spanish-language Caregiver Storyteller Podcast, hosted by Perla Tamez Casasnovas. In the first episode, Anderson T. President and CEO of R.A.I.N. shares his powerful, personal story as a proud Puerto Rican from the Bronx. Join us for this deeply moving conversation that offers invaluable insights and support for every caregiver. 🌐 Tune in at YouTube: https://lnkd.in/eBTii9t8 Spotify: https://lnkd.in/enREgfPs Apple Podcasts: https://lnkd.in/egR3_vtx or visit CKPODCAST.ORG and remember, you’re not alone on this journey. #CaregiverStoryteller #Alzheimers #latinocaregivers #caringkind Eleonora Tornatore-Mikesh Courtney Dawson CaringKind, The Heart of Alzheimer's Caregiving iTunes/Apple Spotify for Podcasters YouTube
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🧡 Step Up For A Cause at the CaringKind New York City Alzheimer’s Walk on Saturday, October 19th! Join us for a Brain Health and Community Day to support and uplift those impacted by Alzheimer’s and related dementias. Every step we take is a show of strength, care, and community. Let’s walk together to honor and stand by those we love. Register, Volunteer or Donate 👉🏼 CKWALK.ORG #ckwalk #caringkind #caringkindnyc #alzheimers Eleonora Tornatore-Mikesh Samantha Vaccaro Andrea Tallent Spivak Todd Matlovsky Bill Ritter Mike Marza Townsend Davis
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WALK WITH US Mark your calendars! 🗓️ Join us on Saturday, October 19, 2024, in Central Park for New York City’s longest-standing Alzheimer’s Awareness Walk and Brain Health Day at the Naumburg Bandshell. Dive into activities designed to enhance your brain health and overall well-being. Whether you’re learning about the latest in cognitive wellness, connecting with social support services, or simply enjoying family-friendly games, there’s something for everyone to kickstart your day. Take the first step towards making a difference. Every step counts! REGISTER OR VOLUNTEER NOW 👉🏼 CKWALK.ORG #ckwalk #caringkind #caringkindwalk Samantha Vaccaro Todd Matlovsky Bill Ritter Mike Marza Townsend Davis Betsy Billard Ezequiel De La Rosa Steffi Fitter Emily Gellis Judith Grimaldi Anita Gupta Eleonora Tornatore-Mikesh Andrea Tallent Spivak Toby Mazer, MPH William Villanova Courtney Dawson abc7NY Olivia Cohen, MS, MT-BC,LCAT,CDP Stephani Shivers Susanne Bengtsson, LMSW Edward Cisek, PhD Linda Centeno Julie Parada Peggy Chu Michele Piskin Adina Segal Dante Tipiani Marcia Avellaneda Henne Jed A. Levine Weijing Shi