Care Management: Achieving Excellence
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Care Management - Laura E. Pasquale PhD
2015
PREFACE
Traditionally, a writing called a festschrift was often commissioned to celebrate a special event, conveying the ideas and spirit of those in attendance. This anthology of collected writings marks the May 2014 Care Management Summit: Achieving Excellence! Sponsored by the College of Community and Public Affairs, Binghamton University, the conference presented issues, challenges and best practices in the field of care management and palliative care, with a particular focus on rural healthcare delivery.
Many thanks go to Binghamton University for its support of the Summit, and to the conference participants from throughout New York State and beyond, who offered their expertise and experience as advocates, caregivers, professionals, and students. Ultimately, it was their presence that made the event a success. A special thanks is also due to the professionally diverse team of peer reviewers, who generously gave their time to the creation of this book.
Beginning with a form of direct service, moving to an account of educational program development and planning, and concluding with system-level considerations in the delivery of health care, the authors invite you to continue the conversation begun at the Summit, and to extend it into your own communities of care.
~ Laura E. Pasquale, Ph.D.
Carlsbad, California
Narrative Care as Essential Care for Older Adults:
Good Hearing is More Than Good Listening
Myra Sabir, Ph.D.
Binghamton University
Myra Sabir, Department of Human Development, Binghamton University.
Correspondence concerning this chapter should be addressed to Myra Sabir, Department of Human Development, College of Community and Public Affairs, Binghamton University, P.O. Box 6000, Binghamton, NY 13902-6000. Contact author at: [email protected].
Abstract
Rather than have a story, narrative psychology holds that the story is the self. Not only this, but stories function as the singular medium through which all forms of human meaning-making occurs. Given this, it stands to reason that the story must be the starting point for all human interactions in the care of elders. Through the idiosyncratic life story, elders, professionals, and management can become visible to each other as unique personalities; experience authentic acceptance; and enter into new, high quality, and strong interpersonal relationships. Shared life stories enable all members of the elder care community to encounter each other in new ways. Elders can show what significance their lives have had for others as well as their continued significance in everyday interactions. Most importantly, decades of research consistently demonstrate that respect for elders’ stories can positively impact elders’ physical, psychological, and social health. This article helps us to better understand why it is especially important to hear elders’ stories; which stories we must privilege; and how to hear them well, for good hearing is more than good listening. Elder care that excludes attention to an elder’s idiosyncratic life story necessarily falls short of the threshold of best elder care.
Keywords: generativity, gerotranscendence, mattering, narrative care, narrative gerontology, narrative principle, narrative psychology.
"But most people here…they just want to tell their story.
That’s what they have to give, don’t you see?
And it’s a precious thing to them. It’s their life they want to give…
(p. 126, Brady, 2003)."
Introduction: The Narrative Principle of Human Existence
It is often said that we have a story; however, narrative psychology holds that one’s story is more intimate than breathing (Kenyon and Randall, 2001, p. 38).
From this perspective, the story is the self (Ruth & Kenyon, 1996a, p. 7). There is no way to conceive of the self or others except through story. In fact, we seem to have no way of describing any element within lived experience except in the form of a story (Bruner, 1987).
… there is nothing below the narrative structure, writes Carr (1986, p. 66), at least nothing we can comprehend.
Our dreams are experienced as stories…. Our plannings, our rememberings, even our loving and hating, are guided by narrative plots, writes Theodore Sarbin (1986, p. 11), arguably the father of narrative psychology.
Narrative and