Patient journey in cystinosis: focus on non-adherence and disease management

Gema Ariceta, Simón Lalanza, Catalina Peña, Marta Martínez Montero, Carlos Bezos Daleske, Laura Acuña Álvarez, Elisa Giner

Article Type

Original Research

Published

This study assesses the impact of cystinosis and treatmentassociated challenges on therapeutic adherence to detect potential leverages of change and propose lines of actions based on patient-reported experience measures.

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