Latest News for: progeria

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Sammy Basso, activist sought cure for progeria, aging condition from which he suffered – obituary

The Daily Telegraph 12 Nov 2024
Sammy Basso at the start of 2022 Venice Marathon, in which he competed alongside 30 supporters .
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Woman With 'Benjamin Button' Condition Explains What It Means

Opposing Views 08 Nov 2024
Tiffany Wedekind, from Columbus, was diagnosed with progeria, a condition commonly known as the "Benjamin Button" disease, in her late twenties ... Sadly, Chad passed away in 2012 due to complications from progeria.
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Hutchinson Gilford Progeria Syndrome (HGPS) Therapeutics Market value of USD 233.05 Billion by registering a CAGR of 8.5% by 2033

Pharmiweb 22 Oct 2024
Hutchinson-Gilford Progeria Syndrome (HGPS) Therapeutics Market ... The growth of the Hutchinson-Gilford progeria syndrome market can be attributed to the increasing population of the globe which in turn is contributing to more cases of the illness.
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Sammy Basso, Advocate for Progeria Research, Is Dead at 28

New York Times 19 Oct 2024
One of only about 150 people known to have the rare fatal condition, he traveled internationally to raise awareness and participated in the search for a cure ... .
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Sammy Basso, longest living survivor of rare rapid-aging disease progeria, dies at 28

CTV 07 Oct 2024
Sammy Basso, who was the longest living survivor of the rare genetic disease progeria, has died at the age of 28, the Italian Progeria Association said on Sunday ... .
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Survivor of rare Rapid-Ageing disease progeria dies at 28

Ammon 07 Oct 2024
Sammy Basso, who was the longest living survivor of the rare ...
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Survivor of rare rapid-aging disease progeria dies at 28

Arab News 06 Oct 2024
Updated 1 min 24 sec ago. Reuters. October 06, 2024 21.55. .
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US FDA Authorizes Launch of Clinical Trial to Support New Treatment Development for Progeria

The Associated Press 02 Oct 2024
... an investigational drug being developed for the treatment of Progeria.
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ZOKINVY the only FDA Approved Treatment for Hutchinson Gilford Progeria Syndrome (McKesson Corporation)

Public Technologies 10 Sep 2024
Hutchinson-Gilford Progeria Syndrome is an ultra-rare disease that causes premature aging and mortality in children ... For more information about ZOKINVY and the treatment of Hutchinson-Gilford Progeria Syndrome, please clickhere.
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A Disease That Makes Children Age Rapidly Gets Closer to a Cure

New York Times 24 Jul 2024
Progress in the quest to help progeria patients suggests that gene editing techniques may help treat other ultrarare conditions ... .
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Life expectancy with Progeria is 15 years, Jabalpur boy defies odds at 18

India Today 10 Jul 2024
Life expectancy with Progeria is years Jabalpur boy defies odds at ... .
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Zydus acquires rights for progeria treatment

The Times of India 06 May 2024
... USFDA-approved treatment for progeria.
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Zydus’ biopharma arm acquires global proprietary rights for Progeria treatment

The Times of India 04 May 2024
... FDA-approved Progeria treatment.
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Sentynl Therapeutics Announces Global Acquisition of Zokinvy� (Lonafarnib) for Treatment of Hutchinson-Gilford Progeria Syndrome from ...

The Astorian 04 May 2024
Sentynl, a Zydus Group company, receives worldwide proprietary rights to Zokinvy, adding to portfolio of biopharmaceuticals for rare and ultra-rare diseases ....
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Sentynl Therapeutics Announces Global Acquisition of Zokinvy® (Lonafarnib) for Treatment of Hutchinson-Gilford Progeria Syndrome from Eiger BioPharmaceuticals

PR Newswire 03 May 2024
About ProgeriaCollectively known as progeria, Hutchinson-Gilford progeria syndrome and progeroid laminopathies are ultra-rare, fatal, genetic premature aging diseases that accelerate mortality in young patients.

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