Alzheimer's Disease International

This week, in Rio de Janeiro, the Civil20 Summit officially opened, marking another significant milestone in Brazil’s ongoing efforts to strengthen civil society’s role in global policy discussions. The event saw the participation of Brazil’s First Lady, Janja Lula da Silva. During the opening ceremony, representatives from various key organisations and community groups handed over a communique that consolidated the recommendations from C20’s ten working groups. After months of hard work, ADI is pleased to see the C20 Communique feature multiple prominent mentions highlighting the unique needs of people living with dementia throughout the document. With over 55 million people currently living with dementia—a number expected to rise to 139 million by 2050—it’s essential for governments to take action to better support those living with dementia and carers. Next week Brazil will also host the G20 summit, convening 20 of the world's largest economies under the theme of 'Building a Just World and a Sustainable Planet'. It is vital that the G20 takes note of this document and shows leadership on this issue. In collaboration with ADI's Regional Director for the Americas, Diego Aguilar, we extend our gratitude to ADI member Federação Brasileira das Associações de Alzheimer and Febraz President Elaine Mateus for their dedication to this process, alongside our other civil society partners. #G20 #C20 #RiodeJaneiro #Brazil

Breaking news coming from EMA's Committee for Medicinal Products for Human Use, recommending the granting of marketing authorisation of Lequembi (Lecanamab). The CHMP concluded that the benefits of Leqembi outweigh the risks in patients with mild cognitive impairment or mild dementia due to Alzheimer’s disease with one or no copy of ApoE4. Leqembi will be available through a controlled access programme to ensure that the medicine is only used in the recommended patient population. We look forward to further news from EMA regarding this latest recommendation. #DementiaTreatment #AlzheimersTreatment

Alzheimer’s and dementia are in the headlines nearly every day—from new drug treatments and diagnosis breakthroughs, to lifestyle changes for risk reduction. But how do we make sense of all this information?  Join us online from wherever you are in the world on 10 December at 13:00 (UK time) for a free, live webinar where we’ll shine a light on just what is happening with new and emerging drug treatments and what these developments mean for you. With over 120 potential treatments under development, ADI CEO Paola Barbarino will be asking global expert Professor Jeff Cummings what will happen in 2025 and beyond. Don’t miss the chance to get insights and ask your questions live! The event will also feature simultaneous AI translation in 60+ languages.    Register now to be part of the conversation. https://edl.mn/4gfe5Fd #DementiaTreatments #ADIForecast #AlzheimersTreatments #HealthWebinar #Dementia 

ADI is supporting the Academy of Neuroscience for Architecture (ANFA) on an upcoming insightful event "Designing for the Mind: The Intersection of Neuroscience and Dementia".    On 23 November at 5 -8 pm CET, discover how neuroscience-informed design can transform environments for individuals living with dementia.     Register for the event through their online form: https://lnkd.in/dvtRhgAn    Panellists include:    John Zeisel (Founder, I’m Still Here Foundation, USA)  Nathalie Gregoire (Local Architect, France)  Gaelle Marie-Bailleul (Managing, Doctor - Le Village, France)  Emily Ong (Dementia Advocate, ADI Board Member, Singapore)    #DementiaDesign #NeuroscienceForArchitecture 

Join us tomorrow for our next webinar as we address the topic of dementia stigma in health and care systems. Don’t miss this opportunity to gain deeper insights from the 2024 World Alzheimer Report and be present as our expert panel discusses how these insights can inspire improvements in health and care provision for those living with #dementia. Panellists for this event include: 🔴 Paola Barbarino | CEO of ADI and Webinar Host, UK 🔴 Dr Shana Stites | Assistant Professor, Department of Psychiatry, University of Pennsylvania, USA 🔴 Ms Natalie Ive | Dementia Advocate, Australia 🔴 Mr Lebo Molete | Carer, South Africa 🔴 Ms Susan de Santi | Executive Director, External Stakeholder Engagement, Alzheimer’s Disease, Global Medical Affairs, Eisai, USA We look forward to welcoming you tomorrow. Register now: https://bit.ly/4dTclyO #DementiaCare #DementiaStigma #WorldAlzReport

ADI is greatly saddened to share that Gabriella Salvini Porro has passed away. Gabriella founded Federazione Alzheimer Italia, ADI member association for Italy, in 1993 and served as its director for many years. In this pursuit, Gabriella was a pioneer in establishing the first national association in the country, becoming a guiding light to those seeking information, advice and support for those living with dementia and their carers. She dedicated thirty years to organising information and awareness-raising campaigns, to connecting region-level associations in Italy, and dialoguing internationally with national and international organisations to cement Federazione Alzheimer Italia as a renowned association for its activities in social, health and political fields. Gabriella led Federazione Alzheimer Italia to become an ADI member in 1995, going on to join the ADI board from 1996 to 1999.

After days of visits and meetings finally the 27th conference of our Asia Pacific Regional Office and the annual conference of Alzheimer’s Disease Chinese opens! 700 participants from 16 countries. Some shots from my opening speech, interviews and the plenary opening presentation which focused on how Alzheimer's Disease International contributes to raising awareness and knowledge for each of the 7 areas of the a global dementia action plan, Lee-Fay Low spoke immediately after me emphasising the need of people living with dementia as advocates in China ( note the slide about how language matters and the need to change the lexicon around the disease in China, yes I know it’s hard but Japan did it so why not China? ) and Mr Li Zhenrong spoke of his own experience as a caregiver in Xi’an. ( also a lovely matrioska -which I believe is full of chocolates- 😋 from our Russian delegation) Meera Pattabiraman Huali Wang DY Suharya Diego Aguilar Alzheimer's Society of Maldives Dementia Singapore Alzheimer Indonesia Alzheimer's and Related Disorder Society of India (ARDSI) Hyderabad Deccan Chapter Alvin Cenina michelle anlacan Peach Wattanavitukul

Today we brought back into the Asia Pacific members meeting some of the learnings of yesterday, discussing best (and most cost effective) delivery methods for post-diagnostic support, stakeholder mapping, our AP strategy and learning how maracas ( 🪇? In China?) can be applied for cognitive stimulation. Lots of fun but all very educational too ( ah and we got some lovely tea and cakes) Alzheimer's Disease International Meera Pattabiraman DY Suharya Diego Aguilar Jason Foo Huali Wang

Today, ADI CEO Paola Barbarino was recognised at the Lorenzo's House ‘We Bring Light’ event as one of their 2024 award recipients for embodying the essence of service and light to families affected by younger-onset dementia. ADI celebrates the dedication of individuals, organisations, and communities, like Lorenzo’s House, who work to improve the lives of people living with dementia and their families. These efforts not only help create a more dementia-friendly society, but also shape our global perspective on this issue.  We thank Lorenzo’s House for their tireless efforts in improving dementia care for individuals with younger-onset dementia and their support to families and carers of those affected. #webringlight #dementia #carer #youngeronsetdementia

There are 2 weeks remaining until our upcoming webinar Exploring the World Alzheimer Report 2024: Addressing stigma in health & care systems, taking place on 6 November at 1 pm GMT. Register today: https://bit.ly/4dTclyO This year’s World Alzheimer Report revealed that 65% of health and care professionals incorrectly believe that #dementia is a normal part of ageing—a figure that has risen from 62% in 2019. This alarming insight highlights the urgent need to address dementia stigma in health and care systems. Make sure to register and take part in this timely event as ADI CEO Paola Barbarino and our panel of experts discuss how we can challenge misconceptions and enhance the global response to dementia in health and care systems. Panellists for this event include: 🔴 Paola Barbarino | CEO of ADI and Webinar Host, UK 🔴 Dr Shana Stites, Assistant professor, Department of Psychiatry, University of Pennsylvania, USA 🔴 Ms Natalie Ive, Dementia Advocate, Australia 🔴 Mr Lebo Molete, Carer, South Africa