@cure_fop
IFOPA exists to help cure FOP - a rare disease that turns muscles into bones.
Upcoming Programs
Register: January 13 Support Group for Adults with FOP
Register: January 13 Support Group for Adults with FOP
Register: January 20 Caregiver Support Group
Register: January 20 Caregiver Support Group
Register: January 22 FOP Bereaved Families Virtual Meeting
Register: January 22 FOP Bereaved Families Virtual Meeting
For Healthcare Providers
ICC's FOP Medical Guidelines Published in JBMRPlus
ICC's FOP Medical Guidelines Published in JBMRPlus
Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP)
Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP)
This educational webinar on fibrodysplasia ossificans progressiva (FOP), hosted by Ellen Elias, MD and Christiaan Scott, MD, examines best practices to suspect and diagnose this ultra-rare condition.
Help us Invite Your Local Doctor to Our FOP Community
Help us Invite Your Local Doctor to Our FOP Community
Earn CMEs: Navigating the Challenges of Managing HO
Earn CMEs: Navigating the Challenges of Managing HO
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Clinical Trials
Resource: Talking to Kids About Clinical Trial Closure
Resource: Talking to Kids About Clinical Trial Closure
FALKON Trial Closing (December 19, 2025)
FALKON Trial Closing (December 19, 2025)
Preliminary Results: OPTIMA Trial (September 17, 2025)
Preliminary Results: OPTIMA Trial (September 17, 2025)
Clinical Trials Locations Map
Clinical Trials Locations Map
FAQs: Drug Development & Clinical Trials
FAQs: Drug Development & Clinical Trials
Watch: Patient Perspectives on Clinical Trial Participation
Watch: Patient Perspectives on Clinical Trial Participation
This webinar provides an overview of drug development in FOP, including the phase 2 and 3 clinical trials that are currently recruiting people with FOP. Watc...
FOP Management & Care
NEW and Improved FOP Oral Health Hub
NEW and Improved FOP Oral Health Hub
Wheelchair Safety and FOP
Wheelchair Safety and FOP
Watch: Introduction to Using the FOP Treatment Guidelines
Watch: Introduction to Using the FOP Treatment Guidelines
ICC Statement on Off-Label Treatments (Updated)
ICC Statement on Off-Label Treatments (Updated)
Explaining FOP to Children
Explaining FOP to Children
Ability Toolbox Online Guidebook
Ability Toolbox Online Guidebook
More Great Info
Become a Monthly Donor
Become a Monthly Donor
Donate Your Unwanted Vehicle
Donate Your Unwanted Vehicle
Fundraising Ideas
Fundraising Ideas
Facebook
Facebook
Instagram
Instagram
YouTube
YouTube
LinkedIn
LinkedIn
X
X
View on mobile