@cure_fop

IFOPA exists to help cure FOP - a rare disease that turns muscles into bones.

Upcoming Programs

Register: January 13 Support Group for Adults with FOP

Register: January 13 Support Group for Adults with FOP

Register: January 20 Caregiver Support Group

Register: January 20 Caregiver Support Group

Register: January 22 FOP Bereaved Families Virtual Meeting

Register: January 22 FOP Bereaved Families Virtual Meeting

For Healthcare Providers

ICC's FOP Medical Guidelines Published in JBMRPlus

ICC's FOP Medical Guidelines Published in JBMRPlus

Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP)

Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP)

Help us Invite Your Local Doctor to Our FOP Community

Help us Invite Your Local Doctor to Our FOP Community

Earn CMEs: Navigating the Challenges of Managing HO

Earn CMEs: Navigating the Challenges of Managing HO

Clinical Trials

Resource: Talking to Kids About Clinical Trial Closure

Resource: Talking to Kids About Clinical Trial Closure

FALKON Trial Closing (December 19, 2025)

FALKON Trial Closing (December 19, 2025)

Preliminary Results: OPTIMA Trial (September 17, 2025)

Preliminary Results: OPTIMA Trial (September 17, 2025)

Clinical Trials Locations Map

Clinical Trials Locations Map

FAQs: Drug Development & Clinical Trials

FOP Management & Care

NEW and Improved FOP Oral Health Hub

NEW and Improved FOP Oral Health Hub

Wheelchair Safety and FOP

Wheelchair Safety and FOP

Watch: Introduction to Using the FOP Treatment Guidelines

Watch: Introduction to Using the FOP Treatment Guidelines

ICC Statement on Off-Label Treatments (Updated)

ICC Statement on Off-Label Treatments (Updated)

Explaining FOP to Children

Explaining FOP to Children

Ability Toolbox Online Guidebook

Ability Toolbox Online Guidebook

More Great Info

Become a Monthly Donor

Become a Monthly Donor

Donate Your Unwanted Vehicle

Fundraising Ideas

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