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APSFA Fall 2024 Newletter

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APSFA Disclaimers

The APSFA's Mission

What is Antiphospholipid Syndrome (APS)

COVID-19 Vaccine in Antiphospholipid Syndrome (APS) Patients Statement

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APS Foundation of America Fundraisers

Antiphospholipid Syndrome (APS) and Lupus Gear

APSFA SparkGood - Walmart

Just Say No to Fingerstick Machines for APS

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The APSFA Photo Album

The Dragonfly: The Antiphospholipid Sydrome Mascot

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Immunologic strategies for antiphospholipid syndrome still yield ’not great results’

New approach increases the likelihood of detecting antiphospholipid syndrome

Positive Antiphospholipid Levels in SLE Linked to Increased Risk for Vascular Events

Study: Lab results don't always paint full picture for antiphospholipid syndrome patients

Cutaneous involvement ‘frequent’ in patients with catastrophic antiphospholipid syndrome

Selena Gomez praised for speaking on lupus and body-shaming

CATCR-T cell therapy may aid in antiphospholipid syndrome through selective B-cell depletion

WHAT! Shilpa Shetty Was Diagnosed With Antiphospholipid Syndrome: WHAT, HOW, RISKS And Other DETAILS You Need To Know About This Condition-READ BELOW! | SpotboyE

Direct Oral Anticoagulation Therapy Increases Risk for Arterial Thrombosis in APS

What Rheumatologists Need to Know About the Management of Rare Diseases in Rheumatology

Drinking Coffee May Reduce Incident CVD, Mortality Risks

Sleep Duration Linked to Risk of Developing Chronic Disease

Sleep Deprivation May Increase Risk for Systemic Lupus Erythematosus in Women

COVID-19 Vaccination in Pregnancy Not Linked to Adverse Birth Outcomes

Antiphospholipid Syndrome: A 2022 Update

APS 101: August 2022 Edition

Lupus Anticoagulant Levels May Predict Cardiac Dysfunction in Patients With SLE

COVID-19 Vaccine Does Not Raise Thrombotic Risk in Antiphospholipid Syndrome

Antiphospholipid Syndrome and Preeclampsia in Pregnancy: A Case Report

Antiphospholipid Syndrome Secondary to Lupus Anticoagulant: Case Report for Clinical Anticoagulation Determination

Xarelto Risky in Rheumatic Heart Disease

Statins provide protective immune benefits for females

Christina Perri Discloses That Her Heartbreaking Late-Term Pregnancy Loss Was Caused by a Treatable Blood Disorder

Infertility, pregnancy complications increase risk for future stroke

What Are Lipids?

Perri is raising awareness about Antiphospholipid Syndrome

Disease control, safe medications critical to pregnancies for women with rheumatic disease

What autoimmune diseases are and what can be done to alleviate them

Does Sunlight Trigger Lupus?

Vitamin D deficiency a risk factor for miscarriage

TRAPS: Rivaroxaban vs. Warfarin for Secondary Prevention in Antiphospholipid Syndrome [Classics Series]

Q&A: ‘Primary prevention’ the biggest challenge in managing antiphospholipid syndrome

Neurological and Neuropsychiatric Manifestations of Antiphospholipid-Antibody Syndrome (APS)

How Safe Are Migraine Drugs for People With Cardiovascular Conditions?

Q&A: Non-criteria manifestations of pediatric APS common yet ‘under-recognized’

What Is APS-Associated Fatigue and What Can I Do to Improve It?

Preterm delivery nearly twice as common in patients with lupus vs. general population

When Blood Is Being Difficult: Clotting and Bleeding in a Patient With Antiphospholipid Antibody Syndrome and Supratherapeutic International Normalized Ratio

Analysis Links Risk Factors to Adverse Pregnancy Outcomes in Patients With SLE

Mayo Clinic Minute: How to reduce your stroke risk

Shedding light on the link between a type of antibodies and miscarriage

What are lupus anticoagulant antibodies?

Focus on Sexual and Reproductive Health of Patients in Rheumatology

What Golden Hour for Stroke? Introducing the 'Platinum Half-Hour' — Higher stakes for a neuroprotectant to be found someday

Scientists find a genetic cause of lupus

Chalky adrenals: a sequelae of antiphospholipid syndrome

Long Term Follow up of Patients With Primary Obstetric Antiphospholipid Syndrome

Patterns of Recurrent Thrombosis in Primary Antiphospholipid Syndrome-Multicenter, Real-Life Long-Term Follow-Up

Cognitive Impairment Common in SLE, Has Limited Impact on Quality of Life

Q&A: Non-criteria manifestations of pediatric APS common yet ‘under-recognized’

Post-pulmonary embolism impairment frequent, follow-up urged after acute PE

Six tips to improve your mental health

Arterial Health Predicts Cardiovascular Disease Risk in Patients With SLE

Are Patients With Triple-Positive Antiphospholipid Syndrome at Higher Risk for Severe COVID-19?

CPD: Key questions on anticoagulation

Apixaban Compared With Warfarin for Thrombotic Antiphospholipid Syndrome

It’s Time We Took Chronic Pain in Rheumatology Seriously

Hydroxychloroquine Not Associated With Decreased Risk for COVID-19 Hospitalization

Blood Clot Symptoms to Know

How one inflammatory disorder exacerbates another

In Lupus, 'Normal-Appearing' Skin Is Not Normal

Primary antiphospholipid syndrome as a cause of impaired left ventricular diastolic function: experience from a Serbian cohort

Antiphospholipid syndrome: a clinical perspective

Impact of COVID-19 and COVID-19 vaccination on high-risk patients with Antiphospholipid Syndrome (APS): a nationwide survey

Calming overexcited neurons may protect the brain after stroke

Antiphospholipid Antibodies Are Elevated & Functionally Active in Chronic Rhinosinusitis (CSR) With Nasal Polyps

Catastrophic Anti-Phospholipid Syndrome in Systemic Lupus Erythematosus: A Tsunami in the Ocean

Women and high blood pressure

Clot-removing procedure appears safe for pregnant stroke patients

Deadly type of stroke increasing among younger and middle-aged adults

Making habits stick

After a stroke, managing your day to day tasks can feel overwhelming

Computer science professor used his stroke to create an app that helps survivors relearn skills

'My family were told I may not survive the night when I got blood clots at 22 and now it's too dangerous for me to get pregnant'

Vaccine-related blood clots tied to gene variant

What types of blood thinners are used to treat and prevent blood clotting in APS?

An immune ‘fingerprint’ reveals path for better treatment of autoimmune diseases

Miscarriage: Tens of thousands have PTSD symptoms

Small intestine #necrosis in catastrophic antiphospholipid syndrome: A rare and severe case

Home Walking Program Eases Peripheral Artery Disease Limitations

The Lupus Attack: A Case Report and Literature Review of Myocardial Infarction and Antiphospholipid Syndrome

How Serena Williams Saved Her Own Life

Study Determines Pediatric APS Patients May Present Differently Than Adults

Gender differences in primary antiphospholipid syndrome (APS) with vascular manifestations in 433 patients from four European centres

Successful rituximab therapy for pediatric antiphospholipid-related chorea: a case report and review of the literature

SLE & Antiphospholipid Antibody Syndrome as Risk Factors for Acute Coronary Syndrome in Young Patients

Women, Patients of Color Warning About 'Medical Gaslighting'

Woman discovers she’s ‘slowly dying’ as organs shut down due to blood disorder

Systemic lupus erythematosus and antiphospholipid antibody syndrome as risk factors for acute coronary syndrome in #young patients: analysis of the national inpatient sample

The Power to Detect Blood Clot Risk, Right on Your Phone

Kids with rare autoimmune diseases show some symptoms before blood clots: Research

Stroke treatments safe and effective for people with existing disability or dementia

Good news for coffee lovers: Daily coffee may benefit the heart

Brain stimulation shows beneficial effects for motor deficits following stroke

Nausea Drugs and Stroke

Enamel Butterfly Pendant Necklace by Will and Sandy

Apixaban compared with warfarin to prevent thrombosis in thrombotic antiphospholipid syndrome: a randomized trial

Review: Common clinical features of #pediatric #antiphospholipid syndrome

Kids with rare autoimmune disease show these symptoms before blood clots

Daily Inspiration: Meet Dr. Allison Quirin

Characteristics and risk factors of retinal vasculopathy in antiphospholipid syndrome

Anticoagulant therapy for life?: it depends on the cause

Reasons You May Have Brain Fog

Direct oral anticoagulants versus vitamin K antagonists in patients with antiphospholipid syndrome: systematic review & meta-analysis

Nadine Samonte gets real with #APS, #PCOS in maternity photo shoot

The 5 Major Signs of a Stroke

Is It Anxiety or Something Else?

Ways to Help Your Hair Grow Faster and Stronger

Low Preconception Complement Levels Linked to Adverse Pregnancy Outcomes in Antiphospholipid Syndrome

What Is APS “Brain Fog”? What Are Some Strategies to Help Manage It?

APS 101

APS: Past, Present & Future

Pulmonary Embolism During Pregnancy: A Mom's Difficult Decision

Safety and tolerability of mRNA COVID-19 vaccines in people with antiphospholipid antibodies

Depression and Lupus: What’s the Connection?

Aspirin Lowered Preeclampsia Risk in Real-World Lupus Study

Did you or a loved one have a severe pregnancy or childbirth complication?

Weakened Antibody Response to COVID-19 Vaccine Among Patients Receiving Immunosuppressive Medications

Myocardial involvement in antiphospholipid syndrome: Beyond acute myocardial infarction

Deep Learning Model Can Identify Hydroxychloroquine Retinal Toxicity

Managing stress when you have lupus

New Findings on the Role of Diet and Gut Bacteria in People with Lupus

Primary Antiphospholipid Syndrome with Livedo Reticularis is Linked to Female Sex and Stroke and Negatively Associated with Thyroid Disease

Are coffee and tea associated with a lower risk of stroke, dementia?

Short-Term COVID-19 Outcomes Worse in SLE, Lupus Nephritis

Direct oral anticoagulants versus warfarin in patients with single or double antibody-positive antiphospholipid syndrome

COVID-19 pandemic led to fewer initial rheumatology visits, autoimmunity lab tests

Academic Performance Lower Among Children With Chronic Rheumatic Diseases

Patients With SLE Can Have Low Immune Response to COVID-19 Vaccines

Hydroxychloroquine Does Not Increase Risk for Arrhythmia in Patients With SLE and RA

Pulmonary Embolism Rule-Out Strategy Safely Reduces Chest Imaging

Safety and Efficacy of Emerging Treatments in the Management of Systemic Lupus Erythematosus (SLE)

Safety and tolerability of mRNA COVID-19 vaccines in people with antiphospholipid antibodies

Atherosclerosis progression in antiphospholipid syndrome is comparable to diabetes mellitus: a 3-year prospective study

Development of a New International Antiphospholipid Syndrome Classification Criteria Phase I/II Report: Generation and Reduction of Candidate Criteria

Single or triple positivity for #antiphospholipid antibodies in “carriers” or symptomatic patients: Untangling the knot

Post-Stroke #Epilepsy Treatment May Influence Mortality

Managing Antiphospholipid Syndrome in Children and Adolescents: Current and Future Prospects

Reducing or Stopping Hydroxychloroquine Treatment Associated with Increased Lupus Flare Risk

Cardiac and vascular features of arterial and venous primary antiphospholipid syndrome. The multicenter ATHERO-APS study

Rare autoimmune rheumatic diseases more than double risk for COVID-19 death

How Can I Lower the Risk of Blood Clots While Traveling?

Epidemiology of Antiphospholipid Syndrome in the General Population

'Paucity of data,' no guidance on induced abortion in patients with rheumatic diseases

Immune thrombocytopenia with clinical significance in systemic lupus erythematosus: A retrospective cohort study of 90 patients

Maggie Paxson, a science teacher at Gainesville High School in the US, has to be incredibly careful to avoid exposure to #COVID-19 while she's teaching in the classroom, this is due to her having antiphospholipid syndrome.

Evusheld: There's a new drug to prevent Covid-19, but there won't be nearly enough for Americans who are eligible

Safety of vaccination against SARS-CoV-2 in people with rheumatic and musculoskeletal diseases: results from the EULAR Coronavirus Vaccine (COVAX) physician-reported registry

Suboptimal Cardiovascular Risk Factor Target Attainment in Patients With Antiphospholipid Syndrome vs RA and Diabetes

Cardiac manifestations in primary antiphospholipid syndrome and their association to antiphospholipid antibodies' types and titers-cross-sectional study of Serbian cohort

Novel Patient-Reported Outcome Tool Assesses Fatigue in Patients With Systemic Lupus Erythematosus

Rare autoimmune rheumatic diseases more than double risk for COVID-19 death

What's the Benefit of a Fourth COVID Vaccine?

Lisa Sammaritano, MD, Talks About COVID-19, Pregnancy, and Rheumatic Disease – What We Know So Far

Call to Action: Future Innovations Should Focus on Early Diagnosis and Treatment in SLE

Study finds hydroxychloroquine delays disability for least treatable form of multiple sclerosis

Managing Antiphospholipid Syndrome in Children and Adolescents: Current and Future Prospects

COVID-19 and antiphospholipid antibodies: A position statement and management guidance from AntiPhospholipid Syndrome Alliance for Clinical Trials and InternatiOnal Networking (APS ACTION)

One autoimmune disease could lead to another

Aspirin for preeclampsia prophylaxis ‘underutilized’ for high-risk women

ACR recommends fourth dose of COVID-19 mRNA vaccine for patients on immunosuppressants

Researchers Develop Conceptual Framework for Damage in Systemic Lupus Erythematosus

Vitamin D Supplementation Linked to Reduction in Autoimmune Disease

Mechanisms of immunothrombosis and vasculopathy in antiphospholipid syndrome

Antiphospholipid syndrome–mediated acute cerebrovascular diseases and long-term outcomes

Production of anti-PF4 antibodies in antiphospholipid antibody-positive patients is not affected by COVID-19 vaccination

Perinatal Outcomes Compared Among Black Women With and Without Systemic Lupus Erythematosus

COVID-19 Convalescent Plasma Shows No Benefit for Most Patients

EULAR recommendations for cardiovascular risk management in rheumatic and musculoskeletal diseases, including systemic lupus erythematosus and antiphospholipid syndrome

Lupus anticoagulant test persistence over time and its associations with future thrombotic events

Pregnancy loss may be independent predictor of future CVD, CHD, stroke

Non-criteria manifestations in the presence of #antiphospholipid antibodies in a paediatric cohort

Whispering strokes: A risk factor for future stroke, and what to do about it

Non-criteria manifestations in primary antiphospholipid syndrome: a French multicenter retrospective cohort study

CDC Cuts Booster Interval for the Immunocompromised

Cannabis use tied to recurrent stroke risk in young adults

Height associated with different clinical expressions in primary antiphospholipid syndrome female patients

Systemic Lupus Erythematosus Management in Pregnancy

Raynaud’s phenomenon

Internal Medicine Faculty Elected to the American Society for Clinical Investigation

What lab testing is done for a new evaluation for APS?

Scientists pinpoint mechanisms associated with severe COVID-19 blood clotting

Targeting Metabolism in APS and Lupus

Doctor Receives Solution to COVID Fingers from Rheumatologist, Dr. Jason Knight

What Are APS Headaches and What Can I Do to Manage Them?

Finding Brings Researchers Closer To Finding The Exact Cause Of Inflammation And Clotting In Severe COVID-19 Patients — ScienceDaily

Influence of statin therapy on antiphospholipid antibodies and endothelial dysfunction in young patients with coronary artery disease and systemic lupus erythematosus

'Boot camp' enzyme prevents autoimmune conditions

Hydroxychloroquine in systemic lupus erythematosus: overview of current knowledge

EULAR develops new recommendations for cardiovascular risk management

In Rare We Care: Pediatric Rheumatic Disease Awareness & Management

Autoantibodies May Underpin Clotting Effects of COVID-19

Kidney disease in antiphospholipid antibody syndrome: Risk factors, pathophysiology and management

Safety and tolerability of mRNA COVID-19 vaccines in people with antiphospholipid antibodies

Systemic Lupus Erythematosus and Antiphospholipid Syndrome After COVID-19 Vaccination. A Case Report

Combined central retinal artery and vein occlusion associated with antiphospholipid syndrome

Antibody-Activated Endothelial Cells Increase the Risk of Blood Clots with Covid-19

Let’s talk about blood clots

Myocardial involvement in antiphospholipid syndrome: Beyond acute myocardial infarction

Cardiovascular disease risk in antiphospholipid syndrome: Thrombo-inflammation and atherothrombosis