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| tax_id =
| tax_id =
| registration_id = 294354<ref>{{EW charity|294354|Motor Neurone Disease Association}}</ref>
| registration_id = 294354<ref>{{EW charity|294354|Motor Neurone Disease Association}}</ref>
| region_served = [[England]], [[Wales]] and [[Northern Ireland]]
| founder =
| headquarters = Francis Crick House, 6 Summerhouse Rd, Moulton Park, Northampton NN3 6BF
| headquarters = Francis Crick House, 6 Summerhouse Rd, Moulton Park, Northampton NN3 6BF
| coords = {{coord|52.27685|-0.87298|region:GB_type:landmark}}| origins =
| coords = {{coord|52.27685|-0.87298|region:GB_type:landmark}}| origins =
| leader_title = Royal patron
| leader_title = Royal patron
| leader_name = [[Anne, Princess Royal]]<ref name=annualreport>[https://www.mndassociation.org/sites/default/files/2023-06/Annual%20Report%202022.pdf 'Annual report and consolidated accounts', Motor Neurone Disease Association, 20 May 2023]</ref>
| leader_name = [[Anne, Princess Royal]]<ref name=annualreport2023>[https://www.mndassociation.org/sites/default/files/2024-08/Annual%20Report%202023.pdf 'Annual report and consolidated financial statements for the year ended 31 December 2023', Motor Neurone Disease Association]</ref>
| leader_title2 = Chair
| leader_title2 = Chair of trustees
| leader_name2 = Dr Usman Khan<ref name=annualreport />
| leader_name2 = Dr Usman Khan<ref name=annualreport2023 />
| leader_title3 = Chief executive
| leader_title3 = Chief executive
| leader_name3 = Tanya Curry<ref>{{cite web|url=https://www.mndassociation.org/about-us/our-people/our-directors/chief-executive/|title=Tanya Curry – Chief Executive |publisher=MND Association Official Website |date=2023-01-17 |accessdate=2023-01-17}}</ref>
| leader_name3 = Tanya Curry<ref>{{cite web|url=https://www.mndassociation.org/about-us/our-people/our-directors/chief-executive/|title=Tanya Curry – Chief Executive |publisher=MND Association Official Website |date=2023-01-17 |accessdate=2023-01-17}}</ref>
| focus = [[motor neurone disease]], [[motor neuron disease]]
| focus = [[motor neurone disease]], [[motor neuron disease]]
| method =
| method =
| revenue = £30m<ref name=annualreport />
| revenue = £37.9m<ref name=annualreport2023 />
| revenue_year = 2022
| revenue_year = 2023
| endowment =
| endowment =
| volunteers = 13,000<ref name=annualreport />
| volunteers = 13,000<ref name=annualreport2023 />
| volunteers_year = 2022
| volunteers_year = 2023
| staff = 204<ref name=annualreport />
| staff = 215<ref name=annualreport2023 />
| staff_year = 2022
| staff_year = 2023
| membership = 11,154<ref name=annualreport />
| membership = 12,231<ref name=annualreport2023 />
| membership_year = 2022
| membership_year = 2023
| subsid =
| subsid =
| owner =
| owner =
| ror_id = https://ror.org/02gq0fg61
| non-profit_slogan =
| non-profit_slogan =
| former name =
| former name =
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}}
}}


The '''Motor Neurone Disease Association''' ('''MND Association''') focuses on improving access to care, research and campaigning for those people living with or affected by [[motor neuron disease|motor neurone disease]] (MND) in [[England]], [[Wales]] and [[Northern Ireland]]. MND is also known as [[amyotrophic lateral sclerosis]] (ALS) or, in the United States, Lou Gehrig's disease.
The '''Motor Neurone Disease Association''' ('''MND Association''') focuses on improving access to care, research and campaigning for those people living with or affected by [[ALS|motor neurone disease]] (MND) in [[England]], [[Wales]] and [[Northern Ireland]]. MND is also known as [[amyotrophic lateral sclerosis]] (ALS) or, in the United States, Lou Gehrig's disease.


The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND.
The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND.
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=== Fundraising ===
=== Fundraising ===
* Fundraising and income generating activities
* Fundraising and income generating activities
* The Association has 90 volunteer branches and groups across England, Wales and Northern Ireland, that assist with regional fundraising activities<ref name=annualreport />
* The Association has 87 volunteer branches and groups across England, Wales and Northern Ireland, that assist with regional fundraising activities<ref name=annualreport2023 />
* The Association benefits from legacies and also tribute funds, which are left in the memory of people affected by the disease.
* The Association benefits from legacies and also tribute funds, which are left in the memory of people affected by the disease.


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* Lobbying government
* Lobbying government
* Raising awareness of the condition and encouraging adoption of best practice such as the [http://www.mndcharter.org/ MND Charter] and [http://www.mndassociation.org/news-and-events/latest-news/nice-guideline-on-mnd-published/ NICE guidelines for MND.]
* Raising awareness of the condition and encouraging adoption of best practice such as the [http://www.mndcharter.org/ MND Charter] and [http://www.mndassociation.org/news-and-events/latest-news/nice-guideline-on-mnd-published/ NICE guidelines for MND.]
* Undertaking awareness activities across the year using media and PR opportunities. In 2019, the Association's 40th year this included an [https://www.mndassociation.org/about-us/who-we-are/40th-anniversary/art-beyond-limits/ art exhibition at the OXO gallery].
* Undertaking awareness activities across the year using media and PR opportunities.
* Sharing information, informal advice and expertise via their podcast, [https://www.mndassociation.org/media/mnd-matters/ ''MND Matters''] (launched in March 2021).
* Sharing information, informal advice and expertise via their podcast, [https://www.mndassociation.org/media/mnd-matters/ ''MND Matters''] (launched in March 2021).


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* [[Chris Broad (cricketer)|Chris Broad]], former [[England cricket team|English cricketer]]<ref name="robkevinnews">{{cite news |title=Introducing our new patrons: Rob Burrow MBE and Kevin Sinfield OBE |url=https://www.mndassociation.org/media/latest-news/introducing-our-new-patrons-rob-burrow-mbe-and-kevin-sinfield-obe |access-date=8 September 2023 |work=Motor Neurone Disease Association| date=26 July 2021}}</ref>
* [[Chris Broad (cricketer)|Chris Broad]], former [[England cricket team|English cricketer]]<ref name="robkevinnews">{{cite news |title=Introducing our new patrons: Rob Burrow MBE and Kevin Sinfield OBE |url=https://www.mndassociation.org/media/latest-news/introducing-our-new-patrons-rob-burrow-mbe-and-kevin-sinfield-obe |access-date=8 September 2023 |work=Motor Neurone Disease Association| date=26 July 2021}}</ref>
* [[Benedict Cumberbatch]], actor<ref name="robkevinnews"></ref>
* [[Benedict Cumberbatch]], actor<ref name="robkevinnews"></ref>
* [[Rob Burrow]], former [[England national rugby league team|England rugby league]] international, living with MND<ref name="robkevinnews"></ref>
* [[Kevin Sinfield]], former [[England national rugby league team|England rugby league]] international, and friend and former [[Leeds Rhinos]] teammate of Rob Burrow who died from complications of MND in 2024.<ref name="robkevinnews"></ref>
⚫
* [[Kevin Sinfield]], former [[England national rugby league team|England rugby league]] international, and former [[Leeds Rhinos]] teammate of Rob Burrow<ref name="robkevinnews"></ref>
* [[Baroness Finlay of Llandaff]], palliative medicine consultant and parliamentarian<ref name="robkevinnews"></ref>
* [[Baroness Finlay of Llandaff]], palliative medicine consultant and parliamentarian<ref name="robkevinnews"></ref>
* [[Charlotte Hawkins]], television presenter<ref name="robkevinnews"></ref>
* [[Charlotte Hawkins]], television presenter<ref name="robkevinnews"></ref>
* [[Eddie Redmayne]], actor, who played Professor [[Stephen Hawking]] (who lived with MND) in the film ''[[The Theory of Everything (2014 film)|The Theory of Everything]]''<ref name="robkevinnews"></ref>
* [[Eddie Redmayne]], actor, who played Professor [[Stephen Hawking]] (who lived with MND) in the film ''[[The Theory of Everything (2014 film)|The Theory of Everything]]''<ref>{{cite news |title=Association patron Eddie Redmayne thanks Association volunteer |url=https://www.mndassociation.org/media/latest-news/association-patron-eddie-redmayne-thanks-association-volunteer |access-date=22 January 2024 |work=Motor Neurone Disease Association| date=21 June 2023}}</ref>
* [[Jeremy Vine]], television and radio presenter<ref name="robkevinnews"></ref>
* [[Jeremy Vine]], television and radio presenter<ref name="robkevinnews"></ref>
* [[Gina Bellman]], actor<ref>{{cite web |title=Living with motor neurone diseasee |url=https://www.mndassociation.org/sites/default/files/2023-02/Living%20with%20MND%20Interactive.pdf |website=Motor Neurone Disease Association |access-date=8 September 2023 |pages=3 (foreword)}}</ref>
* [[Gina Bellman]], actor<ref>{{cite web |title=Living with motor neurone diseasee |url=https://www.mndassociation.org/sites/default/files/2023-02/Living%20with%20MND%20Interactive.pdf |website=Motor Neurone Disease Association |access-date=8 September 2023 |pages=3 (foreword)}}</ref>
* [[Lily James]], actor<ref>{{cite news |title=Film star Lily James to co-host Virtual Pub Quiz to raise awareness of MND |url=https://www.mndassociation.org/media/latest-news/film-star-lily-james-co-host-virtual-pub-quiz-raise-awareness-mnd |access-date=8 September 2023 |work=Motor Neurone Disease Association |date=4 November 2021}}</ref>
* [[Lily James]], actor<ref>{{cite news |title=Film star Lily James to co-host Virtual Pub Quiz to raise awareness of MND |url=https://www.mndassociation.org/media/latest-news/film-star-lily-james-co-host-virtual-pub-quiz-raise-awareness-mnd |access-date=8 September 2023 |work=Motor Neurone Disease Association |date=4 November 2021}}</ref>
* [[Taron Egerton]], actor<ref>{{cite news |title=Film star Taron named MND charity ambassador |url=https://www.cambrian-news.co.uk/news/film-star-taron-named-mnd-charity-ambassador-83987 |access-date=9 December 2024 |work=Cambrian News |date=29 October 2015}}</ref>


===Past patrons===
===Past patrons===
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* Professor [[Stephen Hawking]], cosmologist and theoretical physicist (who had lived with MND for many years)<ref>{{cite web |title=Professor Stephen Hawking – One year on… |url=https://www.mndassociation.org/media/latest-news/professor-stephen-hawking-one-year |website=Motor Neurone Disease Association |access-date=22 September 2023 |date=14 March 2019}}</ref>
* Professor [[Stephen Hawking]], cosmologist and theoretical physicist (who had lived with MND for many years)<ref>{{cite web |title=Professor Stephen Hawking – One year on… |url=https://www.mndassociation.org/media/latest-news/professor-stephen-hawking-one-year |website=Motor Neurone Disease Association |access-date=22 September 2023 |date=14 March 2019}}</ref>
* Sir [[Colin Blakemore]], neurobiologist<ref>{{cite news |title=Announcement of the death of Prof Sir Colin Blakemore |url=https://www.mndassociation.org/media/latest-news/announcement-of-the-death-of-prof-sir-colin-blakemore |access-date=22 September 2023 |publisher=Motor Neurone Disease Association |date=28 June 2022}}</ref>
* Sir [[Colin Blakemore]], neurobiologist<ref>{{cite news |title=Announcement of the death of Prof Sir Colin Blakemore |url=https://www.mndassociation.org/media/latest-news/announcement-of-the-death-of-prof-sir-colin-blakemore |access-date=22 September 2023 |publisher=Motor Neurone Disease Association |date=28 June 2022}}</ref>
⚫
* [[Rob Burrow]], former [[England national rugby league team|England rugby league]] international, who died from complications of MND in 2024.<ref name="robkevinnews"></ref>


==References==
==References==

Revision as of 10:25, 9 December 2024

Motor Neurone Disease Association
Founded6 October 1979 (1979-10-06)
TypeCharitable organisation
Registration no.294354[1]
Focusmotor neurone disease, motor neuron disease
HeadquartersFrancis Crick House, 6 Summerhouse Rd, Moulton Park, Northampton NN3 6BF
Coordinates52°16′37″N 0°52′23″W / 52.27685°N 0.87298°W / 52.27685; -0.87298
Region served
England, Wales and Northern Ireland
Membership12,231[2] (2023)
Royal patron
Anne, Princess Royal[2]
Chair of trustees
Dr Usman Khan[2]
Chief executive
Tanya Curry[3]
R.O.R. Idhttps://ror.org/02gq0fg61
Revenue£37.9m[2] (2023)
Staff215[2] (2023)
Volunteers13,000[2] (2023)
Websitemndassociation.org

The Motor Neurone Disease Association (MND Association) focuses on improving access to care, research and campaigning for those people living with or affected by motor neurone disease (MND) in England, Wales and Northern Ireland. MND is also known as amyotrophic lateral sclerosis (ALS) or, in the United States, Lou Gehrig's disease.

The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND.

Activities

Research

The MND Association funds and promotes research to understand what causes MND, how to diagnose it and, most importantly, how to effectively treat it so that it no longer devastates lives. It does this by:

  • Funding research
  • Coordinating research through conferences and symposia

The Association organises the International Symposium on ALS/MND, an annual event which brings together leading international researchers and health and social care professionals to present and debate innovations in their fields.

The Association funds research that includes animal testing.[4][5]

Care and information

  • Provide information to patients and carers
  • Provide care through a network of branches and regional care advisers

Fundraising

  • Fundraising and income generating activities
  • The Association has 87 volunteer branches and groups across England, Wales and Northern Ireland, that assist with regional fundraising activities[2]
  • The Association benefits from legacies and also tribute funds, which are left in the memory of people affected by the disease.

Awareness and campaigns

The Association has a campaigns network that helps shape a better future for people with neurological conditions such as MND. It does this by:

  • Lobbying government
  • Raising awareness of the condition and encouraging adoption of best practice such as the MND Charter and NICE guidelines for MND.
  • Undertaking awareness activities across the year using media and PR opportunities.
  • Sharing information, informal advice and expertise via their podcast, MND Matters (launched in March 2021).

Patrons and ambassadors

Current patrons and ambassadors for the organisation include:

Past patrons

References

  1. ^ "Motor Neurone Disease Association, registered charity no. 294354". Charity Commission for England and Wales.
  2. ^ a b c d e f g 'Annual report and consolidated financial statements for the year ended 31 December 2023', Motor Neurone Disease Association
  3. ^ "Tanya Curry – Chief Executive". MND Association Official Website. 2023-01-17. Retrieved 2023-01-17.
  4. ^ "MND Association position statement on research involving animals". Motor Neurone Disease Association. Retrieved 3 August 2023.
  5. ^ "Which Charities Fund Animal Experiments?". Animal Aid. Retrieved 23 August 2023.
  6. ^ a b c d e f g "Introducing our new patrons: Rob Burrow MBE and Kevin Sinfield OBE". Motor Neurone Disease Association. 26 July 2021. Retrieved 8 September 2023.
  7. ^ "Association patron Eddie Redmayne thanks Association volunteer". Motor Neurone Disease Association. 21 June 2023. Retrieved 22 January 2024.
  8. ^ "Living with motor neurone diseasee" (PDF). Motor Neurone Disease Association. pp. 3 (foreword). Retrieved 8 September 2023.
  9. ^ "Film star Lily James to co-host Virtual Pub Quiz to raise awareness of MND". Motor Neurone Disease Association. 4 November 2021. Retrieved 8 September 2023.
  10. ^ "Film star Taron named MND charity ambassador". Cambrian News. 29 October 2015. Retrieved 9 December 2024.
  11. ^ "Professor Stephen Hawking – One year on…". Motor Neurone Disease Association. 14 March 2019. Retrieved 22 September 2023.
  12. ^ "Announcement of the death of Prof Sir Colin Blakemore". Motor Neurone Disease Association. 28 June 2022. Retrieved 22 September 2023.


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